-
Recurrent HL
Hello, everybody! I first was diagnosed with classic HL in 2011, 2A with a mass in the right supraclavicular node, and another mediastinal mass. I must have joined this network then, because my email was registered when I went to "join" tonight. I just don't remember posting here. I think I read a lot, but didn't feel I…
-
Cake
In honor of the retreat I just attended, and to celebrate summer, my favorite season; to debut the kooky and festive cake stand that followed me home from an estate sale, may I present my lemon poundcake with blueberry cream cheese frosting decorated with sugared blueberries.
-
Am I An ABVD Failure?
As soon as I was diagnosed with Hodgkin's Lymphoma my oncologist (who had previously treated me for anal cancer) started me on a course of ABVD chemotherapy. The results have been disastrous. Aside from the expected side effects (hair loss and metal mouth) I began to waste away until my appetite disappeared, my weight…
-
All CSN members are invited!
It’s finally happening! We are happy to announce that as early as tonight, a new Chat application is being launched on CSN. It is NOT Java-based and it DOES support members using mobile devices. To access chat, you must be a CSN member and logged on. Once logged on, all you have to do is click chat in your left navigation…
-
Backyard Visitors
These guys often frequent my backyard sometimes as many as five in a group:
-
Another New NLPHL Hopeful
I've been reading this forum for a few days now and am thankful for all the supportive and amazing people! I'm 48 and just diagnosed with NHPHL in the mesentery. I had two nodes taken out three weeks ago and the small one tested positive for folicular in situ and the large (3.5 cm) for NLPHL. I have no symptoms, just found…
-
It's back
So my daughter has to have a Stem cell transplant. We will be traveling quite a distance next week and moving there for a few months. She has to meet with her hematologist to discuss the process. She had hodgkins and it has showed it's ugly head again. it is very small unlike the last time it was quite large. Can someone…
-
Personal Choices Poll
This is just kind of a personal choices poll to see how any of you would handle certain circumstances and any advice that can be provided. 1.I am at a point in my life where after being single for 17 years, I feel that I might be ready to start dating and allow myself to share my life and feelings with someone else. Do you…
-
Third Cancer Dx CLL after Lymphoma and Thyroid
So yesterday I saw a cardioologist for a stress test, and he tells me so I see you have Chronic Lymphocytic Leukemia and I said oh really good to know. Then he sent me for an echo and turns out I have heart realted damage from ABVD treatments as a kid, and now wants to send me for an angiogram. Another day anothe dx just…
-
Camp Bluebird was Amazing!
I returned yesterday afternoon from Camp Bluebird, a 3-day retreat for adult cancer survivors. Camp Bluebird is co-sponsored by the American Cancer Society and is held in many locations throughout the country. The camp I attended was held at a beautiful conference center nestled in the Blue Ridge Mountains of Western North…
-
Thinking of Sue
Hi Sue, Just wanted to pop in and say that I am thinking of you today and always. Biggest hugs. Lisha
-
Nodular lymph-predominant Hodgkin's lymphoma in husband
Hi, My husband was diagnosed with nodular lymph-predominant Hodgkin's lymphoma in November/December 2012, began chemo in Jan 2013, finished then began a round of radiation in March/April until May 2013. He now undergoes Rituxan maintenance treatments every other month and I think has another year left. He is quite a bit…
-
Que le vaya bien
RIP Blanca Valdez. I remember meeting you almost 20 yrs ago when I crashed a quinceñera w your cousin. I rember you being shy to dance, but over the last 15 yrs everytime we crossed paths you were dancing. The life of the party! Im not sure where the nickname Grumpy came from. Maybe like how they call big boys Tiny. I…
-
Good news...
Hi guys... Great news!..(I think )..My Radiation Oncologist's office called today and said they will be making my radiation mask tomorrow, so I should plan on being there an hour or better!!!! I haven't talked to the Radiation Oncologist yet about the scan results, but I "assume" this means my eye cancer is NOT in the deep…
-
RITUXAN AND PAIN
Hello folks: I have always had a problem with low back pain. Started Rituxan in 2012. In 2013 I developed pain in knees, hips and back. Eventually I am going to a physical therapist. Anyone had pain problems from Rituxan??? Nancy
-
Sue, Good Luck on your scans today!
I know you won't have results today but wanted to post in addition to my mesage to you so others can chime in! May it be superficial and knocked out easily! Hugs
-
Scan Results
The results were good and I'm still in remission (NED). My oncologist said that if all is well after my next scan (6 monhts), we'll go to annual follow ups with no scans unless symptoms present. If next scan is good, I plan to say goodbye to my old friend the dual port. I have some other issues like high blood pressure I…
-
Bad Medicine?
One of our 4-year-old granddaughter's friends has leukemia and they are attending a fund-raiser for him today. Granddaughter was telling me about it yesterday. She told me her mother said the friend had to take some bad medicine and that it made his hair fall out. She went on to say, "Like you, Mimi. You had to take some…
-
Some fun info
Since there hasn't been much going on, I thought I would share something fun. Some of you may have watched the Kentucky Derby or heard about the winner "California Chrome" It's a real Cinderella story, and the neat thing is that two couples own CC and one of the couples live in our town of Yuba City. They are the quieter…
-
Moving right along...
Hi guys, Well...things are moving right along. Had labs today....this coming Tuesday will have my CT Scan of the head, and Thursday I'll meet again with the radiology oncologist. He said if my eye cancer is superficial/on the surface, he can do a targeted radiation consisting of 2 rounds.If the cancer is deeper in the…
-
Second chemo today
this one went about twice as fast!! Thanks for your prayers. As you can see by my new profile picture, I went for the buzz cut.
-
Missing in action
Once again I have been missing in action....ahhhh nobody told me how busy life was really going to be...School and work are draining me lately, but the semester is over and this is my last summer school free. I just had to stop in and check in on everyone....did some cyberstalking on you guys For those of you who have been…
-
The Picnic and Camp Bluebird
Last weekend, the physicains and staff of my oncology clinic held a picnic for staff, patients, and their families. It was amazing! My husband and I took our little 4-year-old granddaughter. There was delicious food, music, and all kinds of family games. They had those giant puffy, inflatable, jumpy things and our girl…
-
4 biopsies done on swollen lymph node
I had thyroid cancer in 2008, 5 mm that was removed. All my thyroid gland was removed, did not have radiation because dr said it was really small. Every since all my blood work and my t4, t3 and all other tests have always been very good, perfect results. 2 years after the thyroid cancer, during one of neck ultrasound they…
-
Happy Mother's Day!
I'm so thankful for each moment w my mom even though I wish the quality of time was better. Today marks one month since she has been away from home. After her second week in the hospital she went to a skilled nursing facility for rehab. Two days prior to her scheduled return home she was rushed to the ER because her…
-
Radiologist appointment...
Hi guys, Finally got a date to see the radiology Oncologist...Thursday at 2:00. I assume...(not smart to do )... he will schedule my MRI for the following week. Once that is done and we get those results, I should know more which way we will go with treatment....radiation or chemo. My right eye tears up constantly, but…
-
Scan Today - SCANXIETY
Well, as usual I have scanxiety about my 6 month checkup today. I could use some hugs, laughter and maybe hear from some of you folks who haven't posted in awhile. I know some of you are going through relapse, treatment, and stem cell transplants and you are in my thoughts. Some of you are in remission or perhaps "cured"…
-
New Oncologist
Hi Guys, Sorry for the delay in posting, but with the big move, unpacking and getting in to see a new doctor, my plate "done runeth over" , with little to no energy left at the end of the day for computer time!! But...with that being said, we are now completely settled in the new house and it feels very homey and…
-
Happy Mother's Day
Happy Mother's Day !!!
-
Sue, did you make it to Oregon? ;)
Hope you're doing well and loving your new home!