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second treatment
Going for second treatment today, had my head shaved yesterday, figured I would be the one to take it away, not the Chemo! hahahahaha.My port is finally starting to heal, so I'm hoping it will be easier then last week. Just some information, my wife and I went to Gilda's Club for the first time,and they were wonderful, I…
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lymph node removed and just have radiation in that spot?
I had a lymph node removed and is suggested to have just radiation in the groin? I have stage 1 low grade follicullar but with symptoms. Is it possible to have symptoms with such low grade? I have had some weight loss and occasional night sweats. Now that the lump is removed, shouldn't the symptoms go away? Still have…
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Diffused large cell b lymphoma
Mom just found out she has diffused large cell b lymphoma at least in stage 3; doing bone marrow biopsy in a week to see if it is stage 4. Mom is 89 so we were wondering if it is advisable for her to take any treatments. Can anyone tell us how bad is the treatment for this type of lymphoma?
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Very Discouraged Disappointed Depressed Frustrated
My wife was diagnosed with Large B Cell Lymphoma, T Cell rich (90%) in November 09. Lymph nodes, spleen, chest, intestines, spine are all involved. She had spinal cord compression from large tumors in her spine and could not walk until she got radiation treatments. I suspect she has residual damage as she cannot walk…
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Stem Cell Transplant
I had an auto stem cell transplant in 02/2009. My platelets are still only in the 50's. Has anyone else experienced this? Other then that I am feeling mostly good!
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Great stage I or II Low Grade B-cell?
I went yesterday for another dose of radiation. I talked with the specialist and asked him why I get zapped in front and back? Then he pulled my PET scan and showed me another place that I may have cancer. He told me it might be early stage II. Didnt want to take any chances so he put it in my treatment. He also told me it…
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Dad has lymphoma 69
My dad has just been dx and he has not told me yet what stage or varity he has his bladder has a large stone in it which they will be removing and they have biopsied his lymphnodes, he said they are getting a second opinon before they stage, I need for him to ok, You see i also have cancer, I am stage 4 rectal cancer ( me…
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SOMEDAY IN THE FUTURE
After reading all the post and checking on other sites for updates it will come a day when you can go to the Drs. office for cancer and get a shot and be cured. They have come so far with this dreaded disease in the past 15 years. It seems they are making progress quickly. The treatments have changed from years ago and the…
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crash and burn
hey guy's, thing's really went south for me fast! had my blood counts done they were all low, ran a fever last night, have to go back to my Ono this morning, she may want to put me in the hospt. They gave me a belly shot yesterday, along with 500 mg of Levaquin. My WBC were 1.0 GRAN count was 0.3, my PLT were 92.I will try…
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N-102 Protein
Wanting to know if anyone is familiar with N-102 Protein to fight cancer.
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Pain after completing R-CVP
Hi everyone, I was diagnosed with FNHL in November, Stage 4, grade 1. I had an egg sized tumor in my groin as well as tumors in my colon, abdomen and thyroid. The tumor in my groin was inoperabe so they did R-CVP. I just finished that May 13 and am to see my doctor and have a scan June 29. At my 3 month checkup, the doctor…
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NO TASTE OR FLAVOR
Anyone out there experienced no taste or flavor in the food during chemo? If so how long does it last and will it come back? What causes it, the Rituxin or the prednisone or the other chemo drugs?
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What is the wait time after surgery to get radiation
How long should you let the site of surgery heal before getting radiation on it. Does anyone have any experience in this? Should you do it right away or let it heal? Not sure if you wait a few months if the cancer will come back in that spot sooner.
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After Effects From ABVD
I am 44 now & had Hodgkins when I was 25--1992. I have had thyroid & infertilty issues in the past. But this weekend I found out that I have major heart issues. I have to have my mitral valve replaced because of the damage from the chemo. And I have nonischemic cardiomyopathy....your heart "squeeze" is weakened. Has anyone…
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Non Hodgkin Lymphoma
I have recently started R EPOCH chemotherapy for Non-Hodgkin Lymphoma. Can somebody clarify something for me. I know that the next chemo cycle starts in 21 days. But, do you count 21 days from the starting date of the last chemo cycle or do you count 21 days from the last day the previous chemo ended. I started my second…
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Sister of Cobra666
Hi I am Cobra666 sister. He told me that I could join if I ever had questions about what he is going threw. I don't know about some of the big words I see on this site but I will do the best I can. My bother has Non-Hodgkins Lymphoma B Cell. I live in Maryland so I can't see him much. I keep up with him threw CSN and phone…
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Thank you Eeveryone
I would like to thank you all for the nice posts. I sure pray for everyone here. And wish everyone the best. I hope we can all get remission and keep it going. It is so nice to have you all to chat with. Hilde
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Rituxan is doing it's job
Had my pet scan yesterday with results today. It's working, the spots are gone. This is my 3rd time around with this stuff and we chose 4 weekly treatments and maintenance every other month for a while. I am just so greatful it's working since the cancer started spreading.
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KIDNEY PAIN
Anybody have any kidney pain after R-cvp? It was 5 days ago I started the chemo but have noticed some kidney discomfort on the left side in the past couple of days. Just wondering if it is normal or not and how long it may last. john
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Donor Lymphocyte Infusion
Has anyone had a donor lymphocyte infusion. My boyfriend is 2 years out of a bone marrow transplant that did not succeed against his PTCL NOS. He has undergone the latest chemo treatment and, like all the other chemos, worked at first but grew to be resistant. We have been battling for 3 years now and he has become…
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Acupunture
So someone on here,suggested acupunture for my chemo side effects. So I went the day after my last treatment. Of course close to your treatment you are feeling human again. So I really didn't see much effect. Oh BTW we have a school by us and its cheaper to go to students. I got a package deal 4 treatments for $100. So…
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Starting Chemo in 2 weeks
I had my port put in about a week ago. Its still sore and throbs at times. Because of sleeping funny my neck and shoulders have been killing me for a few days now. I have my first chemo treatment on July 1. I'm a little nervous now that I actually have a date set. I will be getting 4 cycles of ABVD (8 treatments). Then I…
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Necessity of Humor
I just want to bring up the topic of humor. While this experience does have a lot of fear and uncertainty, humor my friends will help get you through it. We need to laugh at ourselves and our experiences. We do funny things, we say funny things and laughter is HEALING. Try to see the humor my friends. It helps. It takes…
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Rituximab First Day
I spent 6 hrs at the cancer center today getting my Retuximab. They put it in really slow to see how I would react to it. The last hr they turned it up to drip faster. I had no problems except my sinuses started to feel like they were filling up, but it went away in a few minutes. I go back tomorrow for the CVP part. I was…
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possible help for bad taste
Like many after chemo, nothing taste good. a friend of mine came up with a solution. Every morning I take 50 MGs of zink and 250 MGs of magnesium. Not sure if it helped because the chemo was wearing off, but really made a huge difference. I go for more chemo Thurs and will keep you updated about the effectiveness during…
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TUMOR SHRINKAGE OF THE ABDOMEN
Has anyone actually been able to feel the shrinkage in the abdominal tumors after chemo? If so how long did it take to notice. I have seen where some have seen a shrinkage in the ones in the neck and groin region, but not seen anything about the abdomen as of yet. I know we are all different but it gives me something to…
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newbie to this type of cancer
Hi, I've been a member here since 2006, I had Head and Neck cancer which I had been in remission for about 3 1/2 years, just about three weeks ago everything changed, it was dumb luck that I was feeling dizzy and my Onocologist suggested I have a P.E.T. scan, I'm thinking a heart problem, turns out the scan found several…
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Rituxin only therapy
My father has non-hodgkins lymphoma and is having his second round of chemo (first was four years ago). He had his first treatment of bendamustine and rituxin four weeks ago. One week later he was in the hospital with pneumonia. His platelet counts are very low, so they made the decision to take him off the bendamustine…
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Anyone Else with SLL - NHL
I was diagnosed in November 2006 with SLL. I was stage IV, lymph nodes in neck, liver, spleen involvement. I did R-Chop with Rituxan and then maintenance Rituxan through last June. It was only in July last year that my enlarged spleen finally went back down to within normal range. I have had abnormal liver tests, as…
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follicular
Hi!! I'm just a bundle of nerves. The cancer i have is follicular NHL grade 3 stage 4 I had my spleen removed. done the chop treatments now on my last round of retuxan in July. got to get c-scan 7-1 . But the last several months i'm expericing some major fatique and pain in lower abdomin area.. Depression is bad just found…