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Lymphoma (Hodgkin and Non-Hodgkin)

What is the wait time after surgery to get radiation
How long should you let the site of surgery heal before getting radiation on it. Does anyone have any experience in this? Should you do it right away or let it heal? Not sure if you wait a few months if the cancer will come back in that spot sooner.
After Effects From ABVD
I am 44 now & had Hodgkins when I was 25--1992. I have had thyroid & infertilty issues in the past. But this weekend I found out that I have major heart issues. I have to have my mitral valve replaced because of the damage from the chemo. And I have nonischemic cardiomyopathy....your heart "squeeze" is weakened. Has anyone…
Non Hodgkin Lymphoma
I have recently started R EPOCH chemotherapy for Non-Hodgkin Lymphoma. Can somebody clarify something for me. I know that the next chemo cycle starts in 21 days. But, do you count 21 days from the starting date of the last chemo cycle or do you count 21 days from the last day the previous chemo ended. I started my second…
Sister of Cobra666
Hi I am Cobra666 sister. He told me that I could join if I ever had questions about what he is going threw. I don't know about some of the big words I see on this site but I will do the best I can. My bother has Non-Hodgkins Lymphoma B Cell. I live in Maryland so I can't see him much. I keep up with him threw CSN and phone…
Thank you Eeveryone
I would like to thank you all for the nice posts. I sure pray for everyone here. And wish everyone the best. I hope we can all get remission and keep it going. It is so nice to have you all to chat with. Hilde
Rituxan is doing it's job
Had my pet scan yesterday with results today. It's working, the spots are gone. This is my 3rd time around with this stuff and we chose 4 weekly treatments and maintenance every other month for a while. I am just so greatful it's working since the cancer started spreading.
KIDNEY PAIN
Anybody have any kidney pain after R-cvp? It was 5 days ago I started the chemo but have noticed some kidney discomfort on the left side in the past couple of days. Just wondering if it is normal or not and how long it may last. john
Donor Lymphocyte Infusion
Has anyone had a donor lymphocyte infusion. My boyfriend is 2 years out of a bone marrow transplant that did not succeed against his PTCL NOS. He has undergone the latest chemo treatment and, like all the other chemos, worked at first but grew to be resistant. We have been battling for 3 years now and he has become…
Acupunture
So someone on here,suggested acupunture for my chemo side effects. So I went the day after my last treatment. Of course close to your treatment you are feeling human again. So I really didn't see much effect. Oh BTW we have a school by us and its cheaper to go to students. I got a package deal 4 treatments for $100. So…
Starting Chemo in 2 weeks
I had my port put in about a week ago. Its still sore and throbs at times. Because of sleeping funny my neck and shoulders have been killing me for a few days now. I have my first chemo treatment on July 1. I'm a little nervous now that I actually have a date set. I will be getting 4 cycles of ABVD (8 treatments). Then I…
Necessity of Humor
I just want to bring up the topic of humor. While this experience does have a lot of fear and uncertainty, humor my friends will help get you through it. We need to laugh at ourselves and our experiences. We do funny things, we say funny things and laughter is HEALING. Try to see the humor my friends. It helps. It takes…
Rituximab First Day
I spent 6 hrs at the cancer center today getting my Retuximab. They put it in really slow to see how I would react to it. The last hr they turned it up to drip faster. I had no problems except my sinuses started to feel like they were filling up, but it went away in a few minutes. I go back tomorrow for the CVP part. I was…
possible help for bad taste
Like many after chemo, nothing taste good. a friend of mine came up with a solution. Every morning I take 50 MGs of zink and 250 MGs of magnesium. Not sure if it helped because the chemo was wearing off, but really made a huge difference. I go for more chemo Thurs and will keep you updated about the effectiveness during…
TUMOR SHRINKAGE OF THE ABDOMEN
Has anyone actually been able to feel the shrinkage in the abdominal tumors after chemo? If so how long did it take to notice. I have seen where some have seen a shrinkage in the ones in the neck and groin region, but not seen anything about the abdomen as of yet. I know we are all different but it gives me something to…
newbie to this type of cancer
Hi, I've been a member here since 2006, I had Head and Neck cancer which I had been in remission for about 3 1/2 years, just about three weeks ago everything changed, it was dumb luck that I was feeling dizzy and my Onocologist suggested I have a P.E.T. scan, I'm thinking a heart problem, turns out the scan found several…
Rituxin only therapy
My father has non-hodgkins lymphoma and is having his second round of chemo (first was four years ago). He had his first treatment of bendamustine and rituxin four weeks ago. One week later he was in the hospital with pneumonia. His platelet counts are very low, so they made the decision to take him off the bendamustine…
Anyone Else with SLL - NHL
I was diagnosed in November 2006 with SLL. I was stage IV, lymph nodes in neck, liver, spleen involvement. I did R-Chop with Rituxan and then maintenance Rituxan through last June. It was only in July last year that my enlarged spleen finally went back down to within normal range. I have had abnormal liver tests, as…
follicular
Hi!! I'm just a bundle of nerves. The cancer i have is follicular NHL grade 3 stage 4 I had my spleen removed. done the chop treatments now on my last round of retuxan in July. got to get c-scan 7-1 . But the last several months i'm expericing some major fatique and pain in lower abdomin area.. Depression is bad just found…
I think my Dr is a perv
Ok so my first exam with my Onc, my husband and daughter go along with me. So after we talk for a while he has me get on the exam table. My family is sitting in chairs right behind him. He proceeds to check my nodes. He leans into me and puts his "package" into my knee. At first I thought well he didn't mean to do that,…
REAL NUMBER OF LYMPHOMA CASES
I was talking to my onc. the other day and he was telling me there will be 66,000 new cases of nhl diagnosed this year alone. He said there are more people walking around that will never be diagnosed. Almost all cases are diagnosed thru test for other ailments totally unrelated to lymphoma. He said a great many cases are…
CHEMO RESPONSE
Does anyone out there know the actually response percentage to follicular lymphoma with chemo? I read different rates on the sites I get on. John
Staying in the positives?
Looking for suggestions here. I truly believe that positivity feeds positive and negativity takes over. So, any suggestions anyone?
little red spots
Anyone know what they are?
Cat Scan Results
Hi Everyone and Donald! I went to get my cat scan results. And after getting the Zevalin in Dec. Everything turned out beutifully. Had to see the Nurse practioner, my dr was on vacation. The only thing they worried about is that my last wbc March 31, my wbc was 4.0 Today it dropped to 2.7. So they do not know why that is.…
Fertility
Hi everyone. I was just diagnosed with hodgkins lymphoma. I am still in the staging process. My biggest concern right now is fertility after chemo. I am 27yr old female. I do not have any children but it is something I want more than anything. And its not just having a child, because I know I can adopt, but I really want…
PORTACATH INSTALLED
Had my porta cath put in today and a little sore right now.They said it will be sore for a few days. Thought I would post this for those that are waiting to have theirs put in. It is a little apprehensive waiting , but its not that bad at all. Start r-chop next week and thats where the praying really starts. I see a lot of…
cutaneous follicle center cell lymphoma ct scan
Hello All, Thank you for all the information I have seen on this site and reading your discussions. I have a Primary cutaneous follicle center cell lymphoma. They give me a very good prognosis. However, I was bothered by the CT Scan which showed a non specific finding of haziness in the mesentery lymph nodes as being…
Progress report
Hello to all and I hope this finds everyone in a peaceful spot. As many of you may remember I had Zevalin treatment for Follicilar NHL in April. I went for a follow up check yerterday 5-27-10. It looks as tough my blood work has rebounded and is now normal, so normal in fact that they were able to cancel my remaining 6…
Cat Scan
Had my Cat scan yesterday. So now have the awful waiting time. So we will see what it is going to be. Keeping a good thought for sure. I dont want to be over confident. But trying to be positive. Have not felt the greatest of late. But hope you all are doing well. It just never seems to leave your mind. My prayers to all…
In the dark
My husband is half way through his treatments. He was diagnosed with stage 3 tonsillar lymphoma. He's been set to have 8 months worth of intense chemo, no radiation. He had a PET scan (results to come on the 19th). He refuses to tell anyone of his status, and won't let anyone go to or call his doctor. He did say if the the…

Lymphoma (Hodgkin and Non-Hodgkin)

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