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Lymphoma (Hodgkin and Non-Hodgkin)

BMB back on for tomorrow...
Boy oh boy...after living with my hubby for 32 years I thought I knew all there was to know about him.(WRONG)... Steve is a "very" quiet layed back kind of guy and rarely shows emotion or gets vocally up-set. He called at noon today and I told him about the mess up at the clinic and insurance co and the postponement of the…
radiation therapy to the neck and taste buds
Hello everyone. I'm curious if anyone else has had radiation treatments to the neck. I completed 15 sessions of radiation two weeks ago for a total dose of 3000 cGY. It was not fun! It has been the most agonizing thing I've been through since my dx in Dec. 09'. I'm still without any taste buds and my saliva is only 25% of…
What do you think?
On July 31st we plan to leave on vacation for 2 weeks. This coming up Tuesday I get the bone marrow test done which will tell us if my cancer is in the marrow/bone, or both. From what you all have said this will be the last step in staging my cancer...(stage 3 right now. I'm guessing once my doctor knows "exactly" what…
Checking on allmost60
You doing ok honey? Did you get a mickey mouse bandaid on your butt like I did??? if not....darn. Hope to hear from you soon!
When does hunger from Prednisone stop
Hi all, I just finished up my last round of R-EPOCH chemo, which is similar to R-CHOP but there's an extra chemo (etoposide) and it's a 96 hour infusion. My question for everyone out there is when the excess hunger from the prednisone stops. I've been gettingt 100 mgs 5 days in a row every three weeks. I've put on some…
low blood counts Vinny
Vinny,I guess your blood counts are still low, right? I know you have to be dragging. My blood counts are in the high normal range and I am dragging today. Its been 8 days out from round 2. I wasn't too bad right after round 2, but did have a couple of days that were down. It seems weird to feel so down 8 days later all of…
yelled at
hello everyone, just got done getting yelled at from all my Onc nurses, I had chemo yesterday,I went back today for my shot and told them when I was leaving yesterday, I had shortness of breath and my heart was racing pretty bad, It passed about a hour after, they said I should have came back in. I know they are right, I…
not a good day
Hey guy's just checking in, had my blood work done today, WBC counts were under 1, had to get two shot's today! lucky me!!! hahahaha, I feel that I can talk about anything here so here it goes, has anyone had bad hemorrhoids. I have been talking stool softers and it is working to some degree but, this is really killing me,…
Third Round in the Books!!!!
Hello everyone,just got back from round Three! My blood counts were still very low, but my doc said we can still do it! I was glad, for that nothing would have been worse then getting sticked for nothing, and then have to go back!!!!!! I will be getting my P.E.T. Scan later in the week to see if treatment is working, can't…
BMB re-scheduled for Friday
Un-believable! I just got a call from the cancer clinic saying they overlooked getting a pre-authorization from my insurance for the biopsy and I would have to wait until they got it. I asked her why they couldn't call the insurance co and get one faxed...the gal said she was just relaying the info my doctors nurse had…
Need information - docs don't agree on treatment!
Hi all, I really need some help here. Here is my story. Diagnoses on May 27 with Follicular lymphoma from a core biopsy. Had a total excision of a lymph node 2 weeks ago and now dx has changed to marginal zone with probable malt lymphoma in my stomach. I am tired (anemia) with stomach discomfort in the upper ab area., some…
Going for bone marrow/biopsy test
I have this one last test to finish out the staging of my cancer. Right now I know I am stage 3 follicular lymphnoma-grade2-Type A. If the results show that the cancer is also in the marrow, does that put me at a stage 4, and does that also mean the treatment will be alot more involved than if it wasn't in the bone marrow?
Ouestiona about getting out in the sun...
My husband and I are avid fishermen. We spend all of our spare time in our boat down on the Columbia River fishing for steelhead and salmom...summer, fall and spring runs. As a matter of fact we are scheduled to take off for the first two weeks in August and already have our cottage arrangements paid for and ready to go.…
Pancreas Tumor and NHL?
I have been diagnosed with Stage 3, Low Grade, NHL and have been going thru chemo. My cancer was caught when they discover two tumors thru a CT scan. It showed two tumors, one on top of my pancreas (5 x 5.6 x 4.8 cm) and a groin lymph node. They took out the groin tumor, and since it did not have pancreatic cells, they…
New to CSN - nearly 2 years post Stage 4 NHL
Hi, I'm new to this forum and wondering if there are any others living post treatment, mostly going strong, but sometimes struggling emotionally with flashbacks of the trauma of diagnosis and treatment? I was diagnosed at the age of 38 with a huge mediastinal (chest) mass which was advanced and immediately life…
Some good news and some potential bad news.
Good news is that my tests are fine, no signs of masses or blood problems. I also will go see a neurologist, just to double check that my brain is alive and kicking. Bad news is that my resting heart rate is at around 100, and this has been going on for a while. It's concerning, so I'm waiting on what will be done.
stem cell transplant
My dad recently DX, but his NHL was a reoccurance of his old NHL so they want to do stem cell replacement anyone had this? thanks Winnie
Wow, Wowwow!!
Could you maybe stop???????????
Cobra you shave your head yet?
Just checking buddy. How you doing?
Neurological and mental issues post-chemo?
I underwent treatment for Hodgkin's last year (ABVD) and am wondering if any of you had severe emotional issues after treatment? I had depression prior to my diagnosis, but it comes in swings now, almost like I'm bipolar. I'm on Prozac and seeing a therapist, but is there any form of psychological testing that I can look…
SWEATING
Does anyone know if its normal to sweat after chemo? I had my first round a week ago and now I notice I can be sitting in the house and notice that I am starting to sweat for no apparent reason. It usually does not last long, but it concerns me.
When did the cancer go away?
I was diagnosed with large b-cell non-hodgkins with characteristics of hodgkins (gray zone lymphoma) in March. I am doing six R-CHOP treatments. After 2 cycles I had a CT scan done. The cancer had improved some. After the 4th cycle I had a PET scan done. The cancer was "better". Just wondering after what treatment cycle…
Seeking advice on Toothpaste!
DX with NHL around 6/1/2010. My first round of R-CHOP was on 6/23/2010. I've been looking for a toothpaste that doesn't cause my mouth to feel like it's on fire, yet makes my mouth and teeth smell and feel clean. Does anyone have any suggestions?
NHL Second Treatment
Hi all I have my second treatment today, I'm not looking forward to the next few days of recovery. I want everyone who reads to know that I'm well aware that some people posting on this board have it much worse than I do and while I complain about feeling like crap during my recovery I read your posts and it puts my…
Steroids and 4th of July
At least you'll be up and ready for fireworks...that is if the rain stops long enough.
A question about the port
Hi, I have a question about the port. I had it installed a couple of weeks ago right before my first session of chemo, and since the tube was removed I'm terrified to get it restuck, does it hurt really bad or am I just scaring myself? Because I'm terrified to get my next round of chemo because of it.
thanks second treatment
Thanks for all the words of support, the way I'am looking at this, is I got 25% of my treatments done and in the bag, I go tomorrow for the dreaded Neulasta shot, I'm beginning to feel that shot wrecks me more then the Chemo...hahahahahaha This compared to my last treatment for cancer which was head and neck is a lot…
19 year old HL survivor
Hey there. My name's Melissa, and I was diagnosed with Hodgkin's (Stage IIB) last April. I've been in remission since December, when I finally finished radiation. I was in my second semester of freshman year, and still went to school during my treatments. I got through with almost no problems, with the exception of…
It really does end!
Glad to hear both of you are hanging in there. Ooooeee I can really remember the tired. There were times at work that I would sit in my car for a break and then wonder how I was going to get back in. I slept a lot and think I probably helped myself out by doing so. I never had any open sores in my mouth but it was really,…
going for biopsy
I need some help i have an enlarged lymph node in my groin area, night sweats severe fatique, loss of body mass (but no real weight loss). I also have a bad rash on chest and legs as well as a mass under my left rib cage near the center of my chest. When i eat just a little i feel very full and bloated and have experienced…

Lymphoma (Hodgkin and Non-Hodgkin)

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