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5th Treatment
Good Morning everyone, getting ready to go for my 5th treatment, wow, time sure flys by when your having fun!!!!! LMAO!
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2 different cancers ???
Still waiting for the pet/ct. Should be early next week. My pcp is now on board with thinking that symptoms look like lymphoma. I have received some blood results. My tumor marker for thyroid ca is elevated. So, this most likely means that I have some thyroid ca cells somewhere inside me. I have no thyroid and have had…
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Upcoming CT Scan
Well I'm 5 1/2 months out of chemo, RCHOP, and 4 1/2 months since my last scan. My Onc wanted to wait until Sept to do my next scan. I wasn't comfortable waiting that long so I'm having my CTs this Friday. So now I'm getting nervous and wondering why I do this to my self. Last time we went 6 months I had my recurrance so…
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Chemo, Camo and hair
So this thursday I get my 5th treatment, almost done. I have to say this has been a battle. Lets face it we are in a war! So that brings me to camo, I always wear it on chemo day and I wear it quite often. It reminds me that I am fighting for my life, we all are. Oh and my hair is growing, in fact now it itches and sticks…
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Run Around
Hi All, Well I talked to the lady in hematology at the center today, she basicly told me that she could not help. So, I pushed and she sent my labs reports etc. to a different lady who works for the lymphoma Drs.( I thought she had already done that) The new lady called me and left a message. She said that I need a biospy…
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pain medication that works
I haven't been online recently with any questions. But, each day I read the posts. After reading the posts, I say a prayer for each and everyone that submittedd the post. On one of the posts i read, someone posted a pain medication that really works. I tried finding the post, but was unsuccessful. At this time I have no…
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free time stress time
Hi, just thought I would express myself. My daughter and two granddaughters just left. Now it is quiet with just me and my husband. How do you keep the stress and worry away at the quiet times.I really don't sleep well these days, mostly stay up very late, 1 or 2 in the am. My brain starts to think and then I get tense.…
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Not Today!
Hi all... It just hit me earlier this morning that today was the day I was suppose to start chemo, before we decided to do the wait and watch routine. I don't know what got into me, but as soon as I remembered I decided I needed to do something constructive to celebrate my chemo reprieve...soooo...I washed all the windows…
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more waiting
Just had a call from the cancer center. I sent over my labs and ct reports also a list of my symptoms. The gal said she will have the Docs look it over and then figure out if I need a hematologist or a lymphoma Doc. She said she will get back to me tomorrow. It's always TOMORROW. I'll keep you posted...
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Connected to cancer
Hi All Just want to say that I find your courage, your bravery, your honesty, your kindness, your words, so inspiring. Thank you all ....
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Blood Pressure before diagnosis
Hi, I was wondering if anyone had issues with high to very high blood pressure before you were diagnosed. I have been having trouble with high blood pressure for about six months. one time it sent me into a hypertensive crisis with an ambulance ride to the ER. It is now under control with meds. Just wondering if anyone had…
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Vinny, Where you be man?????
Haven't heard from you in a while. Just wondering how things are going. Hope things are getting better for you. John
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Maintenance Rituxan
From what my onc told me with this last relapse Zevalin would limit my options 10-15 years from now so that is why they really didn't think it was a good choice for me. He gave me 4 options. Watch and Wait, Zevalin (which he didn't recommend), some new chemo, and rituxan. I chose Rituxan and he agreed with me that was what…
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Trying to find out
Hi, I am new to this site. After reading many posts, I think I need to get more answers. I have an enlarged spleen and liver which was found by ct in June. I was having really bad chest pain with breathing. It was controlled by narcotic pain meds. never found a reason why my chest hurt. Dr thought it might have been a…
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Family just doesn't get "Watchful Waiting"
Hi all...We took a little mini trip to see some family over in Spokane Wa this week..(hubbys mom, brother and sister). They just can't accept or believe that "watchful waiting" is actually something I should be doing with having cancer in me. I explained in detail why I'm waiting to start treatment, but man oh man, they…
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Help!! i don't know who to turn to :(
I've been worried about getting cancer for the past few years because i have had A LOT in my family. Just recently I have been getting sick A LOT. Fevers in the middle of the night, my face just BURNING, then cold chills during the day (random temp changes), not being able to sleep, loss of appetite (lost 5lbs in the last…
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does anyone have lymphoma as a met?
I am a breast cancer patient and have a large swollen "something" in my right armpit and close to my chest wall. Going for tests tomorrow, but I just wondered if typically lymphoma is a metas cancer or primary?
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Medi Port Removal?
Good Morning everyone! I have been lurking around this board for awhile and now I have a question! How long do most people wait before they have their port removed? I have completed 5 cycles of ABVD and have 1 cycle left and I want my port out as soon as possible. It is really bothersome! My onc said I could have it out as…
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Long term effects from Radiation and Chemo and Zevalin
I am so very tired I get up from bed and one hour later could go back to sleep. I just can not shake this tiredness. My last cat scan was in March. It was good. Somehow I just feel like something is not right. I go for my next appointment on Sept. 1. I guess it is just puzzling to see what you get left with. Mine was…
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Where's Cobra??
Cobra are you out there?
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Is anyone else who's lost hair having problems with
hitting your head???? Is hair like cat whiskers, if we don't have it we can't gauge how close are heads are to pointy or hard objects????? I'm not kidding I hit my head 2 or 3 times a day at least.
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Needing Info
Hi there, everybody. My 59-yr-old husband was just diagnosed with diffuse large B-cell lymphoma after a mass was removed from the lymph nodes in his neck. We just got back from a week of grueling tests @ M.D. Anderson Hospital in Houston. We'll return on Tues, Aug 3rd for results, staging & treatment plan. We were told…
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This is creepy!!
I just need to ask if anyone has had weird stuff go on with their toenails during and after treatment? I noticed my nails looking odd before I was done with treatment and they just kept getting uglier. Well now they are falling off one by one. I only have 3 left and they look like they could go at any time. It's not…
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Half Way There!!!!
Hi guy's just got back from my fourth treatment, it feels good to say half way there!!! My blood counts both white and red are still pretty low, I got to go on a pill that will help fight infection, can't remember what my Onc called it! Chemo Brain!!! Go tomorrow for my shot. Did any of you guy's get a Muga scan half way…
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Watchful Waiting"
Hi all... Looks like I will be doing the "Watchful Waiting" process instead of chemo.Un-real how things change in two days time!!! I didn't even get to see the chemo nurse this morning, but was instead directed sraight to my doctors office. Apparantly my primary doctor was very un-comfortable with me starting chemo on the…
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finding a job after cancer
It's been 3.3 years now. I had non-hodgkin lymphoma back 2007. I spent my next 2 years 2008-2009 resting from medications and I had regular check ups.I'm cured and well now. I can't seem to find a job or I don't know how to start my life all over again.I want to work abroad but there's no means and ways. Is there a program…
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Another new test!
Just venting again guys. I've been having some continuing eye problems since I finished treatment last February with RCHOP. Saw my eye specialist yesterday and he isn't really happy about the changes he sees. Even though my tests are negative or inconclusive, due to my having pain on the right side of my head, he is…
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RA DRUGS
LESLIE, I read the article on ra and lymphoma. You mentioed that the RA drugs you were taking may have caused your lymphoma. Just wondering what drugs were you taking for the RA. John
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Need advice/opinions pre biopsy
I am writing for a friend who is allergic to computers :-) Here is some backround about what is going on: Last yr. at age 46 she had her first mammogram. Apparently, there was evidence of lymph node enlargement in both armpits, which they never told her about. This year, her mammo showed the nodes again, but they were…
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Sue
Well, it's late in the day. I wonder if Sue started her chemo today? First day is sooo long. :) Hope she's doing ok.