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Partner of Hodgkin Lymphoma survivor
I met my partner almost a year after his treatment ended for Hodgkin Lymphoma. He's an amazing individual and I care for him dearly. I understand that I have no concept of what he went through but I'm trying to learn and understand as much as I possibly can. His diagnosis is excellent and his last CT scan shows that there…
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HAVING THE ZEVALIN July 21, 24, 28
Hi Everyone, Following in Mary's tracks and taking the Zevalin. Sure hope I do as well as she did. Mary, thanks for all the information you've posted on the Zevalin, it sure helped me understand the process. Can't say I'm not scared, but then I was really scared when I took my first chemo too. This is supposed to be…
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Seeking advice on Toothpaste!
DX with NHL around 6/1/2010. My first round of R-CHOP was on 6/23/2010. I've been looking for a toothpaste that doesn't cause my mouth to feel like it's on fire, yet makes my mouth and teeth smell and feel clean. Does anyone have any suggestions?
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I think I'm done...
Well I got some news today that I wont be doing chemo for atleast the month Of August and possibly be done for good!! They rescheduled my PET scan for the 18th, exactly 4 weeks after the last chemo, I'm so pumped right now!! Once they get the results back I'll find out more about the radiation that I will have to do, I…
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NO fresh fruits and Veggies
Hi I am new here, my husband has been diagnosed last Feb 2010 with Follicular NHL stage 4B, grade one. It was found that lymph nodes ALL over his body were affected plus his spleen and his bone marrow as well. His oncologist immediately said he needs R-CHOP (his symptoms were severe and painful and would cripple him). He…
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Nothing tastes good
I don't enjoy any food. Of course bland is what they want us to eat. What did you all eat when your mouth got sore?, and you had no taste?
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Wish me luck
Today is #4 chemo treatment. I should also find out when my scan is.
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Bald women are a WONDERFUL vision
I know it's hard........I've been there too. But today when I see a bald woman walking around without a hat, scarf, or wig? What do I see? A strong, competent, warrier beating cancer!! It's terrific! It's a vision of strength, compassion and attitude. I personally think there is not a more beautiful sight than to see…
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P.E.T. scan results
Hi everyone, my Oncologist called me this morning about my PET scan, she said the treatment is working, the one lymph node in my chest is gone, the cancer is still present in the four different areas of the bone, but she said that's to be expected. I'm kind of confused because I thought she told me earlier that it should…
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Why call at all?
My doctors nurse just called to tell me 2 of 3 parts of my BMB results came back. So far it shows no cancer...BUT...the last part is still needed to "CONFIRM" no cancer. I was just so happy to hear about the 2 parts being cancer free that I failed to ask anymore questions like...what part are we waiting on...blood…
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personal experience with Treanda and Rituxan
My husband just started this drug regimen. His WBCs and RBCs are down after his first treatment. Has anyone experienced this and how long did this last for you? Did the low blood counts affect your treatment plan? What helped?
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hey cobra666 blood work
Hey, hope you are doing well, you asked about my blood work and it seems to be an on going theme with me, everything was in the dreaded L zone! the Chemo just takes me to zero, what made it worse is I had my P.E.T. scan this morning and could not get my shot's on Monday,so right after scan ,I went to my Onc and they give…
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Newly out of stem cel transplant
June 16, 2010 was a day of miracles. As many of you know, I am a young mother of three small children and FEARED my upcoming autologous transplant. I researched, studied, analyzed, and PRAYED like never before! I was scared with the booklets my hospital passed out and honestly some of the horror stories I read. I just…
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Joint Pain
Is anyone else out there experiencing joint pain from chemo? The past few weeks have been torture for me. I can't sleep more than 2 hours at a time, if I am even sleeping at all. My doc prescribed Mobic for me which is to help with arthritis but thus far it is not helping. I've tried swimming and soaking in a hot…
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Symptons
Can anyone tell me the symptons of Lymphona. My gp wants me to go see a blood oncologist because my iron is 500. She says it should be around 150. Did anyone have high iron in their blood before they were diagnosed?
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Fruits and vegetables cure
Hello. I'd like to hear some thoughts and perhaps contact anyone who has cured cancer through eating raw fruits and vegetables. Personally, I do believe that this is possible and would like to contact those who have had success with same. 5 years ago I had a a melanoma cut out of my back. It had penetrated 0.6 mm into my…
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starting R-CHOP
I was diagnose with FNHL stage 4B back in Nov. and my onc. had me on a watch and wait since my nodes were not causing any pain. Last month however, a PET scan showed that it may be turning into the aggresive type so it's time for chemo. I have about 4 months ahead of me of treatment and don't know how my body is going to…
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To All
To all of you who are waiting to begin treatment and currently in treatment just a quick note to tell you good luck and that I'm thinking about you. Keep sharing and taking advantage of this site. Those of us who have already made this journey are so happy to help you if we can. We may not be able to make the journey for…
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Checking up on Vinny and Cobra
I know you two are in the beginning of the worst of the cycle and hope you are both ok. I know TIRED doesn't begin to describe what you are feeling. Just know that by the end of this week you should be starting to "feel a little more normal". Hopefully the taste thing will get better. I was fortunate that food tasted good…
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It must be the waiting or tapering off HRT...
I am now in the 4th week of tapering off of the Premerin(as per order from Dr.) She wants me off HRT before starting my treatment...(1 pill per week). No pill for Thurs..Fri..Sat..and Sun.(this week). Back on a pill this Mon and Tues and then off Wed...etc etc. It must be messing with my hormone balance because alot of…
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Post Chemo sickness
I finished chemo 2 weeks ago, yet this morning I felt very sick. I felt light headed and nauseous. Has this happened to anyone else after taking RCHOP treatment? I think my body is going through withdrawal, what do you think?
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Hey John or anyone.
You posted a question for me about returning to 100% after chemo and I guess you are right, not too many posts about what to expect etc. Look under starting R Chop about midway down and I hope it helps. Mary
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OUCHY! DON"T LIKE BMB TEST!!!!!!
Have you ever heard of someone having DRY HARD BONE? Well lucky me...I have it. What a horrible experience today! My doctor went in for the marrow and tissue but kept saying she wasn't getting any blood...kept saying my bone was dry. I can't count how many times she tried, but she finally gave up and decided to go in at…
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cutaneous lymphoma /pet scan
Done with RT and tumor is gone. Hopefully, no more to come. I went ahead and got the pet scan done ever after CT was clean, except for a suspicious node (non specific finding) in the mesentery. I'm glad I went ahead and got the pet scan, it was clean with no (non specific findings) YEAH! I go back to my oncologist for an…
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BMB back on for tomorrow...
Boy oh boy...after living with my hubby for 32 years I thought I knew all there was to know about him.(WRONG)... Steve is a "very" quiet layed back kind of guy and rarely shows emotion or gets vocally up-set. He called at noon today and I told him about the mess up at the clinic and insurance co and the postponement of the…
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radiation therapy to the neck and taste buds
Hello everyone. I'm curious if anyone else has had radiation treatments to the neck. I completed 15 sessions of radiation two weeks ago for a total dose of 3000 cGY. It was not fun! It has been the most agonizing thing I've been through since my dx in Dec. 09'. I'm still without any taste buds and my saliva is only 25% of…
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What do you think?
On July 31st we plan to leave on vacation for 2 weeks. This coming up Tuesday I get the bone marrow test done which will tell us if my cancer is in the marrow/bone, or both. From what you all have said this will be the last step in staging my cancer...(stage 3 right now. I'm guessing once my doctor knows "exactly" what…
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Checking on allmost60
You doing ok honey? Did you get a mickey mouse bandaid on your butt like I did??? if not....darn. Hope to hear from you soon!
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When does hunger from Prednisone stop
Hi all, I just finished up my last round of R-EPOCH chemo, which is similar to R-CHOP but there's an extra chemo (etoposide) and it's a 96 hour infusion. My question for everyone out there is when the excess hunger from the prednisone stops. I've been gettingt 100 mgs 5 days in a row every three weeks. I've put on some…
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low blood counts Vinny
Vinny,I guess your blood counts are still low, right? I know you have to be dragging. My blood counts are in the high normal range and I am dragging today. Its been 8 days out from round 2. I wasn't too bad right after round 2, but did have a couple of days that were down. It seems weird to feel so down 8 days later all of…