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Crawling and itching skin
Hello Catherine, I have no idea where your post went, or my reply to your post. Since I have had this problem before, I always copy my message. Hi Catherine, I am not sure if your problem is related to any treatmnet you might have had. I used to get the very same thing, only once in awhile. I figured out what was causing…
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I'm here!
Thanks for asking guy's, it's been kinda hectic lately. My wife has a biopsy scheduled for Wednesday. The specialist feels that it is just calcification but really wants to make sure. I will feel better after the results! I thank all of you for your thoughts and prayers! Have a great Sunday Vinny
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My Heart hurts
My mother in law passed away yesterday. They took her off the respirator Thursday evening and moved her to a hospice house Friday afternoon. I was with her when she passed, it was peaceful and she went within minutes of the Great Grandkids telling her they loved her...I think she was waiting for them. I wish I could take…
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It will be a "GIRL"
Hi guys, My daughter in law just called and said they looked at the baby today (29 weeks along) and for "SURE" we will be welcoming a baby girl...Elizabeth Jo Reid into our family around the 9th of May. Finally now I can start buying girlie stuff! Lizzy weighs about 4 pounds right now and is progressing perfect. Hurry up…
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Donald51
I am wondering how Donald is doing , have not seen him on here in a long time. I would love to know how he is doing after the Zevalin treatment. I go to see the Oncologist March 4 , so will see what he has to say. Hope everyone had a wonderful Valentines Day. I just am not feeling the greatest. But will see. I had Zevalin…
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r epoch or group c chop?
i was diagnosed with mediastinal diffuse large b cell non-hodgkin's lymphoma a few weeks ago, and i've had one round of Group B chop treatment, but now my doctor's have decided to either up my dosages to Group C chop treatment or give me R epoch treatment instead in order to decrease the chances of my cancer coming back.…
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WHERE DID IT GO??????
Late last night I clicked on the board and saw a post by someone named Victoriaphillips. It was a post talking about there already is a cure for cancer but it is being suppressed by the government. It was late and there were numerous articles to click onto,but being so late I decided to wait til this morning to check them…
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Wheres Vinny???
Vinny, Wondering where you are and if you have any results about your wifes biopsy. We are all concerned. John
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Non Hodgkins Small Lymphocitic Lymphoma new diagnosis-
Hi I recently was diagnosed with Non H SLL stage 4 30% in my bone marrow. I am 39 years old mommy of three precious boys ages 7,5 and 3. I have been on a roller coaster of feelings since my diagnosis about a week ago. I need to talk to any survivors of this type of lymphoma. I need guidance, support and info. Please if you…
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Checking in...
Hello to all! Just checking in to say hello.I do see the board frequently but don't always have time to post, but think of each of you often. It sounds like everyone continues to carry on and that is good. I am doing fine. I have been battling a nasty cold for the past 2 weeks. I seem to get more colds now and they last…
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Roya - how's your Mom?
Hi Roya - your Mom must have had her second Treanda (Bendomustine) chemo now - thinking of her and wondering how it went? My 3rd is coming up next Monday and Tuesday. I have one week in the month I feel almost normal and book each day of that week to the nine's doing fun things with friends and hubby before chemo knocks me…
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Anyone getting REPOCH and a pump at home
I just started my 2nd round of REPOCH with several hours in the Dr. clinic and the rest of the day and night with a small portable pump. It is so much nicer being around family while the meds drip slowly into me. I get this for five days and then I'm off for two weeks. Is there anyone else getting this for large cell…
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Thinking of you Beth....
Hi Beth, Just wanted to let you know that I'll be thinking good positive thoughts for your PET scan...(Tues) I'm so glad you will get your results on Wednesday and not have to wait any longer than necessary. My prayers are with you friend. Don't forget to let us know the results. Love...Sue (FNHL-2-3A-6/10)
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Effects of Cobalt radiation
I was diagnosed with Hodgkins in 1982 as a Sr. In College (I was a Sr. In college). after my spleen was removed I went through extended Mantle radiation with both Liniac and Cobalt therapy. Unfortunately I have had. Plethora of side effects. I have colitis, hypothyroidism, and just 2 weeks ago I was diagnosed with Breast…
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Is It Good Or Bad? And I'm New...
Hello everyone, my name is Katie, I'm 22, a wife and mother, college student and recent cancer survivor. I was diagnosed with Hodgekins in June and went through 6 months of chemo. I have been coming on this network for a while now but never really signed up. I was told by my onco. that my cancer was gone in January but the…
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Tired
Hi Everyone: Has anyone felt such terrible fatigue. I have finished my treatment in December 23, 09 I had 8 rounds of R-Chop and Zevalin. But every evening I can hardly stay awake starting around 5. I read Liz's post and I have pain in the muscle at night. It really wakes me up at night from sleep. I can not seem to lay on…
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Whew!!
Hi guys, Yesterday the wind blew and it started snowing but it didn't last long enough to even cover the ground..."YES"! Got my walk done today, but froze my toosh off in the process. It's cold as all get out, but the sun is shining and the wind is minimal...hope all of you have a nice peaceful weekend and decent weather…
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Pain
Hi Everyone; I am having a pain underneath the left armpit and it is kind of radiating down the side. What does everyone think about this? I do go to the my Oncologist next Friday. Will ask abou it for sure. I have never went with my blood tests. Because my tests were always ok. It is weird. I have been in remission for…
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checking in
Good morning guy's, hope all is well. I'm trying to get into a routine that includes some exercise. The funny thing is that I really have to force myself to to get through it. I'm hoping that the exercise will get back some of my energy! I'm kinda of stressing about Lisa's appt. this Monday, I wish they would just do the…
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Sorry that I haven been posting
Not sure how long its been since my last post, been dealing with some medical issues, right after the new year i had to go to the ER due to blood in my urine and severe pain in my stomach, doc said it wasnt a kidney stone, but had a hard time figuring out what was causing it, i asked him if retuxin could have done it and…
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Cutaneous B-cell lymphoma
If you or someone you know has cutaneous B-cell lymphoma, please contact me. This cancer is so rare, I have yet to meet anyone else who has it.
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fingers crossed
Hey guy's just had to share, my wife had her routine mammogram last week, they seen something they did not like, they had her go back and this time they did a magnification scan, and they found calcification there. Now see needs to go for further evaluation. Does not seem real, I did some research and it could mean nothing…
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Both of us have Lymphoma
Hi, I was wondering if anyone else who has Lymphoma also has a spouse with Lymphoma. My husband was 1st diagnosed with T-Cell Lymphoma in 1997, underwent treatment and went into remission for 2 years. Re-diagnosed in 1999, treated and went back into remission for a total of NINE years. He was diagnosed again in October of…
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Mantle Cell Lymphoma
i am looking for info on MCL-non hodgkins Lymphoma there isn't too much out there. Does anyone know anything about it or how aggressive it is?
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Christmas Miracle!
It’s a Christmas Miracle!!!!! I went to my Onc.this morning for blood work, and she told me that upon further review, I don’t need the spinal tap!!!!!!!!!!!! She called my Doctor at Univ. of Penn. and told her that since I’m out of treatment and there was nothing in the spinal fluid, the treatment can do more harm then…
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Indolent B cell Non hodgkins Lymphoma around kidney
Hi I just signed on & am asking if anyone else has a lymphoma site around the kidney. I am Stage 1EA & am otherwise very healthy at age 57. I am in a watch & wait mode and would love to treat this if there was a high likelihood for cure, which I hear there isn't. Radiation to my kidney would cause significant kidney…
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MRI Results (Mass behind left eye)
The MRI results showed a good response and we will follow up with another MRI in 6 months. My oncologist stated that unlike what most people expect, radiation does not completely wipe out all of the tissue associated with the mass. Some fibroid like tissue remained. She was most interested in the clinical presentation…
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Sue, hope you're feeling okay
Hi Sue, Just checking on you. I have not seen you post in a day or so. I/we worry when we don't hear from our regulars. Sure do hope that you are feeling okay. Thinking of you.. Lisha
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Life is Precious....
Hi, Everyone, Just to let you know today I was just finishing PET scan and walked to the snack room then got the message that one of my dearest friends from another state passed away at age 67 - just suddenly collapsed for some reason. I am deeply saddened and at a loss. I am getting better and was going to contact her to…
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I asked my onc to do a PET scan today
Well, I am about to the end of rope. I called my nurse today to ask my onc to do a pet scan today. I am tired of my armpit and boob hurting so bad. I'm having more and more nightsweats and I've had it. I'm doing the therapy for the lymphedema and don't seem to be getting anywhere with it. The pain just keeps on...never…