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Lymphoma (Hodgkin and Non-Hodgkin)

Worried about family
Ok, I admit it, I am scared. The closer it gets to Tuesday the less sleep I get. I can get to sleep, I just can't seem to stay asleep. I've been up since 3AM just dozing off an on this morning. I know it's just stress, but man I have been down this road so many times I should be used to it. I haven't cried much because I…
HOME
I am finally back home! I missed my hubby, my bed and my puppies. I am going to miss being waited on hand and foot though LOL. I'm hurting some, but hopefully the pain pill will start working soon. How is everyone else doing?
Rituxen maintenance for NHL stage 2 grade 3A???
Hi all, My mom is about to finish her 4th (hopefully last) round of chemo (Bendamustine-Rituxen) for NHL stage 2 grade 3A (indolent/follicular). Though R-CHOP was suggested by the oncologist we got a second opinion and opted to go with B-R since it had less harsh side effects. We got good news and her 2+ cm tumors were…
Lost, but I'm trying
Hi All, Thanks for asking about me. I have been feeling 'lost' lately. I'm trying to stay focused on daily living. But not doing such a good job right now. I think my increased pain and all the waiting is getting to me. I did read a post the other day from someone, don't remember who, that said they did the watch and wait…
Free housecleaning for Women undergoing chemo.
Hi everyone, My Cancer Support Group leader sent this to me today. Hopefully, someone can make use of this service. Darlene If you know any woman currently undergoing chemotherapy, please pass the word to her that there is a cleaning service that provides FREE housecleaning - once per month for 4 months while she is in…
It's back
Here we go again. It's back, new spot and armpit again. SUV 8. Have surgery for biopsy and bone marrow biopsy tomorrow afternoon. I have to have chemo again, possibly stem cell transplant. Chemo most likely will be ICE, don't know anything about it.
waiting now
Last two days have been hectic, Lisa had her biopsy, they removed 5 hopefully "calcification's",now we wait three day's. I had my Oncologist visit today, my WBC'S dropped, but my Onc. is not to concerned, I told her how I feel tired all the time, been having hot flashes, and I get dizzy. She told me this was my second time…
Surgery is over
Well we finally got home at 8:00 this evening. Surgery is done, now the darned wait for Tuesday. I'm doing ok, starting to hurt a little but can't do pain pill till 10.
Oncologist Visit
Well I went to see the Oncologist about the pain under my arm pit and on the side. He did not know what to say about it. So he wants a cat scan next week. I asked if I might of pulled something. He did not think so . So I will be going to do the scan sometime next week. As soon as they let me know which day. It is so…
Apology..
Hi guys, I feel like I need to apologize for something I said in an earlier post(yesterday, I think)....regarding $$$$ made off of cancer, and saying there is no incentive for finding a cancer cure, and also saying we probably won't ever see it happen. It just wasn't right for me to say that, especilly on a group site…
Help with severe dry breath overnight
My husband is stage 4 Hodgkin. He has had six ABVD and two additional AVD only treatments (no Bleomycin). Currently he is experiencing severe dry mouth overnight. Any connection to the elimination of this drug? He sips water (many trips to the bathroom). Tried the humidifier (too noisy) Any help with this symptom? ~ Joyce
Good Luck Tomorrow Vinny and Lisa
Just want to wish you guys good luck tomorrow with Lisa's appt. This waiting stuff is for the birds. OF COURSE YOU ALREADY KNOW THAT!!! John(FNHL-1-4A-5/10)
Hodgkins Survivor
I was 32 when I was diagnosed with IIB lymphoma with a mediastinal mass, tumors under both arms and in my neck. I was in congestive heart failure when I was finally diagnosed. My cancer presented in the skin with sores all over my body that got staph and would not heal. The staph got into my blood stream and my heart was…
SLL (small lymphocytic lymphoma)
Hi- I have just been diagnosed with SLL and have been told it's best to wait and watch. Has anyone had experience with this NH lymphoma? Have you tried anything other than conventional treatments? I would especially love to hear long-term survival stories. I am young for this disease- 43- so I'm trying to understand how/if…
Pics
Sue, The computer has been acting up for a while and I could not get on to the expression pages.Just got on and checked out your pics. My goodness girl, you look like you are 10 yrs old in 1979. Thats the same year my oldest son was born(Oct.) They are great pics. John(FNHL-1-4A-5/10)
Eye problems in survivors? Muscle twitching? Other neurologic issues?
Hello everyone-- I am a 27 year old survivor of Hodgkins Disease. I was diagnosed when I was 12 and have been relatively healthy ever since. However, over the past few years I have developed some undiagnosed neurological problems, and a few people have suggested that they are long term effects of chemo/radiation. So I…
Hodgkins Survivor
I was 32 when I was diagnosed with IIB lymphoma with a mediastinal mass, tumors under both arms and in my neck. I was in congestive heart failure when I was finally diagnosed. My cancer presented in the skin with sores all over my body that got staph and would not heal. The staph got into my blood stream and my heart was…
Crawling and itching skin
Hello Catherine, I have no idea where your post went, or my reply to your post. Since I have had this problem before, I always copy my message. Hi Catherine, I am not sure if your problem is related to any treatmnet you might have had. I used to get the very same thing, only once in awhile. I figured out what was causing…
I'm here!
Thanks for asking guy's, it's been kinda hectic lately. My wife has a biopsy scheduled for Wednesday. The specialist feels that it is just calcification but really wants to make sure. I will feel better after the results! I thank all of you for your thoughts and prayers! Have a great Sunday Vinny
My Heart hurts
My mother in law passed away yesterday. They took her off the respirator Thursday evening and moved her to a hospice house Friday afternoon. I was with her when she passed, it was peaceful and she went within minutes of the Great Grandkids telling her they loved her...I think she was waiting for them. I wish I could take…
It will be a "GIRL"
Hi guys, My daughter in law just called and said they looked at the baby today (29 weeks along) and for "SURE" we will be welcoming a baby girl...Elizabeth Jo Reid into our family around the 9th of May. Finally now I can start buying girlie stuff! Lizzy weighs about 4 pounds right now and is progressing perfect. Hurry up…
Donald51
I am wondering how Donald is doing , have not seen him on here in a long time. I would love to know how he is doing after the Zevalin treatment. I go to see the Oncologist March 4 , so will see what he has to say. Hope everyone had a wonderful Valentines Day. I just am not feeling the greatest. But will see. I had Zevalin…
r epoch or group c chop?
i was diagnosed with mediastinal diffuse large b cell non-hodgkin's lymphoma a few weeks ago, and i've had one round of Group B chop treatment, but now my doctor's have decided to either up my dosages to Group C chop treatment or give me R epoch treatment instead in order to decrease the chances of my cancer coming back.…
WHERE DID IT GO??????
Late last night I clicked on the board and saw a post by someone named Victoriaphillips. It was a post talking about there already is a cure for cancer but it is being suppressed by the government. It was late and there were numerous articles to click onto,but being so late I decided to wait til this morning to check them…
Wheres Vinny???
Vinny, Wondering where you are and if you have any results about your wifes biopsy. We are all concerned. John
Non Hodgkins Small Lymphocitic Lymphoma new diagnosis-
Hi I recently was diagnosed with Non H SLL stage 4 30% in my bone marrow. I am 39 years old mommy of three precious boys ages 7,5 and 3. I have been on a roller coaster of feelings since my diagnosis about a week ago. I need to talk to any survivors of this type of lymphoma. I need guidance, support and info. Please if you…
Checking in...
Hello to all! Just checking in to say hello.I do see the board frequently but don't always have time to post, but think of each of you often. It sounds like everyone continues to carry on and that is good. I am doing fine. I have been battling a nasty cold for the past 2 weeks. I seem to get more colds now and they last…
Roya - how's your Mom?
Hi Roya - your Mom must have had her second Treanda (Bendomustine) chemo now - thinking of her and wondering how it went? My 3rd is coming up next Monday and Tuesday. I have one week in the month I feel almost normal and book each day of that week to the nine's doing fun things with friends and hubby before chemo knocks me…
Anyone getting REPOCH and a pump at home
I just started my 2nd round of REPOCH with several hours in the Dr. clinic and the rest of the day and night with a small portable pump. It is so much nicer being around family while the meds drip slowly into me. I get this for five days and then I'm off for two weeks. Is there anyone else getting this for large cell…
Thinking of you Beth....
Hi Beth, Just wanted to let you know that I'll be thinking good positive thoughts for your PET scan...(Tues) I'm so glad you will get your results on Wednesday and not have to wait any longer than necessary. My prayers are with you friend. Don't forget to let us know the results. Love...Sue (FNHL-2-3A-6/10)

Lymphoma (Hodgkin and Non-Hodgkin)

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