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Dr. Appt.....
Hi guys, Well...First off I want to wish John a big Happy Birthday wish..I hope you are having a perfectly wonderful day. The best I can give you from my doctors appt is...I'm stable. I got the S word instead of the R word..ha! My blood work was ok, a little low in some areas, but nothing to worry about at this time. I was…
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thaks to everone for your support
thankful for all of your support befor i got this suppot line from cancern society and my new church family i had no emotional support my 3 older childretren only called whenever it was time for my social ssecurity i had to lock up my pain meds because they would steal my13 year tells me costantly she hates me she told the…
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beth
beth you are so lucky i was sent to columbus and morgentown, and no match was found for me at either place. Wishing you a long happy life. you are in my prayers ~Denise
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Chest pain/pressure, years after treatment...
Does anyone out there still continue to have pain well after treatment done. I finished my 6 cycles of chemo for primary mediastinal large b cell lymphoma in May of 2006. I have been in remission since. Yet I still have chest pressure/pain of which no one can find an answer for (which is what brought me to the doctor in…
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PET & CT Scan?
Hi there, I just wondering if it is common to have both a CT and a PET scan within the same week (not on the same day) to check on how Lymphoma is responding to treatment.
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Thinking of you Beth..
Hi Beth, Today is such a big day for you and I'm sure your weekend was filled with anticipation. I've had you in prayers all morning and you've been heavy on my mind. Don't worry about posting until you feel totally up to it. We all love you dear lady. Sue (FNHL-2-3A-6/10)
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My short, but bumpy ride with hodgkin's (My story)
Hi my name is Cameron Reicheneker, and I was diagnosed with Hodgkin's Lymphoma at the age of 16 (Stage 2B, Lymphocyte Predominant) In late December 2010, after I received a biopsy of an enlarged lymph node on my neck. I began treatment in early January 2011, after another surgery was performed to insert my Medi-Port. The…
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Chest pain/pressure, years after treatment...
Does anyone out there still continue to have pain well after treatment done. I finished my 6 cycles of chemo for primary mediastinal large b cell lymphoma in May of 2006. I have been in remission since. Yet I still have chest pressure/pain of which no one can find an answer for (which is what brought me to the doctor in…
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My sister has been diagnosed with Hodgkin Lymphoma
My sister is getting her first dose of chemo on Monday and I am a nervous wreck. I am sooo worried. Any advice?
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forme
forme i take levothyroxine 25 mcg denise
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need imformation
does anyone know how long it takes for thyoid meds to start working i am tired of feeling tired if that makes any sense i want to feel like myself again. prayers and best wishesfor all of you and prayers to you beth on your transplant. denise
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leslie
i have follicular stage4 fifty percent in my bone marrow abdomen and my chest. still wondering where it came from and is it somthing i did. best wishes and prayers to you i go to church tonight it always makes me feel a little better. denise
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Update - PET scan results
I promised to reply about trying to get an early visit with my husband's doctor for interpretation of his PET scan done three weeks ago. Well....I didn't get an appointment. We decided to just wait it out! The nurse practioner that we saw yesterday before John's tenth chemo treatment was sufficient and so informative that…
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Sue, thinking of you
Hi Sue, Just wanted to say hi and let you know that I'm thinking of you. Don't know if your awake after your long day. Sounds like it was a lot to do in one day. I hope the baby shower added some fun into your day. And I am so sorry for the loss of your dear friend. Any loss is so hard, but close friends are extra hard.…
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at last
thank god at last they found the problem with the weakness thyroid gland is low. why do y.ou have to keep insisting to doctors that somtings wrong befor they listen do they because we dont have that degree that we are stupid
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Surgery
Going in for surgery on Monday to remove a lump that was found after my last PET Scan on February 10th. It started out just being an abnormality in the lymph nodes in the neck and no lump was found by my Oncologist. Was referred to a surgeon for a biopsy and the surgeon found the small lump in the left/front side of my…
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WOW!!!
I just got my first bill for the R maint and was shocked to see that it costs almost the same as my CVP-R treatments. $13,249.80 for my Feb 14th lab work, onc visit and R-infusion. I don't have my deductible met for 2011 yet, so I got socked with a $927.00 co-pay amount...(patient responsiblity). Well, I guess the one good…
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Entered a Blog explaining what's up, it's too long for here
Everyone, I wrote a letter last night to my brother explaining the process. I entered under my page in a blog. Let's get this day over!
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Has anyone heard from BlueRoses?
Hello everyone its been a long time since I have heard from Blueroses. I was wonder if anyone has an update on her condition?
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FMLA
Now thats its been a year on FMLA. They have reduced the FMLA to one day every 4 months that I can miss? What should I do,just get off of it? Since I never use it or should I stay on it?
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Dry Eyes Continue
Hi Peeps, Saw my eye doctor today, my eyes are dryer than ever and the dryness is causing scratches on my corneas. Not good! I'm not so good with eye drops, they just don't work well at all, and I get most of the drops on my cheeks not my eyes, LOL. So my doctor put plugs in my tear ducts. Now besides being dry and…
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We have a plan
I am going to be doing RICE after all. I start monday. I will have a port put in monday morning and ice later in the afternoon. Ice again on Tuesday, RICE on wednesday and neupogen shot on thursday. The ice will be about 3 hours each, and rice day about 6 hours. I'll get a two week rest, then will do rice on monday, tues…
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A way to start off high school.
Hi my name is Victor and I figured I was diagnosed with Non Hodgkins Lymphoma in September of 2009. What I find hillarious is that I was getting used to high school and everything when my mom takes me to the doctors and says that I have to go to the doctors. "Ummmmm....ok" Weeks before I had many other biopsee's and…
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Please help us interpret PET scan results
My husband has Stage 4 Hodgkin Lymphoma. He has received nine treatments of ABVD. Last week he had a PET scan and we were anticipating a report from his Doctor today, but unfortunately... he's on vacation. The Doctor DID call us last evening and said thing looked 'good'. Just did a brief google and read a JAMA article on…
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Bendamustine & Rituxan
My husband was diagnosis with Non-Hodgkin’s Follicular Lymphoma (StageIV). He has just completed his first round of Chemo (Bendamustine & Rituxan). His side effects thus far have been manageable, thank God. Our main concern is when his blood cells are low which we were told would be 7 days after treatment. The plan is to…
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Lost our dear friend today..
Hi, Our dear friend battling colorectal cancer passed away this morning. We had a nice visit with him last night, so it was comforting to be able to give him hugs and love before he passed. I thought we might have a bit more time, but it was not to be. Love...Sue
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Radiation
Hello, I will find out soon if I'm finished with chemo (finished 6 cycles of ABVD), and then I'll be moving on to radiation. Has anyone had radiation for Hodgkins? The area that will receive the radiation is by my left lung. What was your experience? Thanks!
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Met with transplant doc/clinic today
Well, I liked the doctor and the nurse coordinator. I have never been so overwhelmed in my life. Transplant is an outpatient procedure. I will not be able to work for 3 months. I'll be doing Treanda & Rituxan first to get back to remission. They will do a scan and bone marrow biopsy to make sure I am in remission before…
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feeling weak
does anyone ever feel raelly weak on top of the every day fatigue i have felt felt so weak for searal day i cant evan take a shower. can stress cause this or should i be worried? mabey its somthing else. denise
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trip to the doctor
thank all of you for your hel and support i am calling my doctor tommow to have bloodwork done he does it in his office so i wont have to run to much the only thing i will have to wait a couple of days to get the results. i hope that all it is, my blood count is low. i hope everyone is feeling as well as they can