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Just diagnosed with Classic Hodgkins Lymphoma
I am 42- have been married almost 19 years- I have 5 children and I love life- more now than ever. Each day is a little scary.. so many things. FNA, Cervical lymphnode removal, Bone marrow biopsy- and am scheduled for PET scan, echo, pulm. function test... the list goes on. Then chemo- and hair loss... WOW. I thought my…
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Was diagnosed in late February 2009 and Just found this site.
Hi all! I have a lot to share. Please read my story. I was said to be in remission in November of 2009, but my last two PET Scans have came back abnormal. The first being in September when they found a spot in my lung. I was told if it was active it would probably be some other form of cancer because lymphoma supposively…
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Don't assume Drs will figure out for you (but how would I know?)
Hi, Folks, I just learned from my physical therapist that I have lost most of muscle tone in my body after just completing 12 chemo treatments so my PT is sending me an order for swimming and pilates training to build up my muscles and strength. Wow - I feel overwhlemed to start all over but I look forward to gain back…
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Thinking of John
Hi John, Just wanted to let you know I'm thinking about you while your getting your first maint R-infusion today. Had mine on Feb 14th and all went well...next one for me is scheduled for April 11th. If your not too tired when you get home, let us know how it went. The pre-meds allowed me to take a 3 hour nap during the…
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Update
Hi all, I feel like I have been away for such a long time. I have tried to read the most recent posts to get myself updated. Thank you all for caring and you are never being nosey or a busy body. Hubby is doing better than expected, hooray for that! I have had a few set backs. First was the hypertensive crisis and all the…
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R-Epoch - Recent Experiences?
I saw a couple of threads on the R-Epoch regimen. I was curious about other people's experiences. I began the regimen on January 24, in the hospital, but have done my last two rounds as an outpatient with the pump. I had a CT scan after my first two rounds which showed a 50% decrease in the size of my tumor. I'll have a…
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I feel so overwhelmed
I can't handle all this stress. It's too much. I feel broken. I need icecream and bed.
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living with little energy
I was in CSN when I was in tx for hodgkins lymphoma. I am in remission for 4 years now and feel well except i am very tired still. Are you like this?
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Does anyone have Neuropathy & chronic pain after CHOP R treatments?
I am new to this site and encouraged to find anyone else living with the difficult side effects after chemo treatments. I am 43 years old and was first diagnosed with follicular NHL in 2005. It was only in my neck area so I received rituxin treatments for a year with very little side effects. I also went through radiation…
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Welcome D Maggie!
I am afraid the great folks here won't find your post so thought I would start a new thread for you so people can respond with all of the help they give. Please retell your story and know that there are many treatments to help you but first take some deep breaths and allow yourself time to get a firm diagnosis. Then you…
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New Doctor approved cancer website
My oncs office gave me some new forms to fill out and they have advocated a new website, it's actually really good. Cancer.net Lots of great information and approved by oncologists.
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How are you doing Lisha?
Hi Lisha, Just wondering how Keth is doing after his surgery and if you have any "new" news to share. I know you are doing the "watchful waiting" for your cancer, but also remember you saying you hurt your shoulder again. Are you doing anything for it...therapy..new surgery, etc? Well sweetie...just wanted to let you know…
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The perfect example...
Hi guys, Steve and I have a close friend that has late stage colon cancer. He's been fighting so hard for his life, but things don't look promising for him. Since joining our group last July, I have also been "lurking" on the colorectal board trying to learn as much as I can about colon cancer and the various treatments…
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First Follow-Up Testing
Hi Y'All, Yes, I'm still here. I've been looking in on the group frequently, but have only post rarely since the first of the year. I have gotten continually busier, but that's not an excuse. Unfortunately, I have had to spend a ridiculous amount of time catching up with a few small business accounting records in…
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Bad Day
Just had a really bad day today. Don't really know how to explain it, but I haven't been able to smile at all today. I hate this feeling. I opened up and told him how scared I really am and I'm starting to think I should have just kept it to myself. I know he's not feeling good, but I feel terrible, not healthwise, just…
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lisa
Morning everyone, Lisa got her results from her biopsy, well it's not cancer, but she still has to go through surgery to remove a small growth in her breast. The doctor said that she now has to be checked every 6 months, to make sure this does not evolve into something else, and we all know what that means.... I can't…
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FNA or removal?
I would like to get feedback from you all. I have had an enlarged lymph node that is very hard (doesn't hurt) and other "symptoms". The ENT sent me last May for a CT scan and found that I had a 1.2cm enlarged jugulodigastric node. My symptoms gradually increased and in October I went back to my GP and he said that he…
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cancer treatment centers of america
anyone have experience with these hospitals
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Non Hodgkins Lymphoma, Treatment with Zevalin 90-Y, and Lymphedema
Zevalin Hi, I am new to this site and have found it to be very uplifting as we are currently being fed a lot of negative facts from our doctor and hospice at home care givers (a service recommended by our doctor) My girlfriend of 10 years has Non Hodgkin's lymphoma and is currently into the start of the 6TH week of her…
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No News is good News
Its it true that no news is good news. I did my scan last Thursday and have not heard nothing yet but figuring that no news is good news. I will call there afterwhile. I am anxious to know but yet figuring that they should have called me already. And thinking that if something was wrong they would have called already. I am…
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Results are in
Semi-good news today :) Still low grade lymphoma grade 1-2. Bone Marrow is clean :) So now looking at doing Treanda and SCT. I have an appointment with the transplant clinic on the 25th. I may qualify for a trial, we'll see. Regardless if I qualify for the trial or not, it's what's going to happen, but it'd be nice if a…
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Damn tube
Ok disappointed here. I called the surgeons office to see if I could get this drain tube out and they said it's still draining too much, so it looks like another day of this irritant is still on my agenda. Wish I could sleep. It's getting old sleeping in increments, I prefer hours at a time lol. Take care, Beth
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Scan Results
I finally got my Cat Scan results. I can not believe that they let me wait this long. I finally called them late this afternoon . I can not understand them letting me worry this long. But it all turned out good. I was so relieved. My scan was clear. I suppose my aches and pains were mostly old age and arthritis. I suppose.…
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Test Results
I am think of all of you who are waiting on test results. It's the very worst. I like everyone else don't understand why they take so long to get. John, when do you get your results? Beth thinking of you and sending lots of prayers your way. And to everyone else, just hang in there. Thinking of you always. Leslie
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Wishing all a successful week.
My positive thoughts and prayers to all of you expecting results and news of any sort this week. I hope for the best for each of you. To the rest of us who are coasting,may God give us the power to steer effectively. And last but surely not least,prayers for Japan. Mary
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Hi all I am still here
I know its been a while, I have been trying to live my life to the fullest. Funny how cancer changes your life. I get up every morning and put on my face and nice clothes heels and go about my day. Hey I am a clothes horse and who am I saving them for, what special occasion??? Well living another day is a special occasion.…
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Busy with new worries
Hi all, I haven't been here since now we are dealing with a mass in my dad's thyroid. He may need surgery, fine needle biopsy came back unclear. We have completely put aside the enlarged lymph node in his groin now. Other things to deal with. Life is tough! Prayers to all. Roya
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Omega 3 fatty Acids to fight/prevent muscle & weight Loss due to chemo. (?).
I recently read an article (http//copingmag.com/cwc/index.php/resources/pri...)that was said to have been published in CANCER a peer-reviewed journal of the American Cancer Society (dated: 2/28/2011), that stated that fish oil (omega-3 fatty acids), may help combat cancer related malnutrition (loss of weight and muscle…
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follicular lymphoma treated with zevalin
Hi everyone, I was treated for my lymphoma with six sessions of RITUXIN iv's and one with ZEVALIN from may 5th to June 10 2008. Went for a ct scan yesterday(8-26-08)and as expected,the Dr gave me a clean bill of health. PRAISE GOD! best of health to all!
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Scan
I did my cat scan on Thursday at 3 pm. So I figure I will hear something on Monday or Tuesday. I really dislike the waiting all the time. So will see what happens. Hopefully nothing. But I still feel like something is wrong. But will wait and see. It is so good to know that you can come here and write how you feel. I pray…