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Just back from Mayo
After an extremely long day I am happy to report that the CT scan was clear. Whew!!!! I feel like 1000lbs has been lifted from my shoulders. Thank you Sue and Lisha for asking, made me a little teary. I don't have to go back for 6 months unless something comes up. My doctor discussed with me at length the great amount of…
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Favorites - Movies and Books
Hi All, I was curious to know what some of your favorite movies and books are. Two of my favorite oldies are The Abyss and True Lies, Newer movie would be Up Any book about a dog, The Art of Racing in the Rain, Marley and Me Lisha PS I know that this is not cancer related, but thought I would ask..
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Missing genes
My father was recently diagnosed with Mantle Cell Lymphoma. I am very scared as to what is going to happen.... many of you know much of this process is a waiting game. He is missing his P13 and Q17 gene, both cancer fighting. Any suggestions or any stories of someone who has a similar diagnosis? Any advice would be…
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clear
Well no activity noted on my PET Scan, worry free, for three more months!!!!! LOL
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George and Zevalin
George - you wrote in November on my post about Treanda/Bendamustine chemo after using it you had a Zevalin shot (radioimmmunotherapy). Believe it brought a quick remission and just wondering how you're doing a few months later? Thanks - Fran
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Hip surgery
Hi Everyone, Is there anyone on this board that had hip replacement surgery? Did you have lots of pain after surgery, and during your physical theraphy? Just curious. Right now the pain in my hip is tolerable. Just wondering for the future. Thanks Love Maggie
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Milk Thistle or other herbs??
Soo after being medicated for months and months, I've been worried about the effects the chemotherapy and pain medications have had on my liver and kidneys. I know I shouldnt worry but they still have me on pain medication regimen for avascular necrosis and carpal tunnel from the chemo. Has anyone had any experience with…
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Low Energy and sleepless nights
Hi Everyone: I have done the Zevalin in December 23,09, So last December was a year. I still am tired and my blood work has not totally recovered yet. I seem to not sleep at night anymore. I have very bad nights. Never in my life had a sleep problem. Plus have muscle pains I can not lay on either side of my hips and upper…
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Where Are You?
Lisha, Havn't heared from you in a few days and are wondering how you are doing? I hope you are resting and staying mellow. Thinking of you, Leslie
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snow, snow and ice
Hi Everyone, I am not sure if this is the 8th or 9th storm in New York. I live in the suburbs, 23 miles outside of NYC. It is very unusual for New York to get this amount of snow and ice. It is costing me a small fortune to have a landscaper come weekly. There is no way I would be able to shovel this snow and ice. Also, I…
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Folotyn(pralatrexate)
Does anyone knows about Folotyn(pralatrexate, its a new drugs for T-Cell lymphoma and if so can you relate to symphtoms that occur.Thanks
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follicular lymphoma in my thyroid.
Hi everyone I am new to this site,I was just wondering how many have had this, My doc's said it was rare for this to happen.I had this in 2008.
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Thanks
Thanks for all of your caring comments. I was just diagnosed in Dec. (2010) with non-Hodgkin's lymphoma (large cell diffuse) I believe that's it! It's all still new to me. The first round of chemo wiped me out. In fact, I was to begin Round #2 last week, and the Dr. thought I hadn't recovered enough from Round #1, so they…
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Enlarged Sternocleidomastoid muscle in the neck
I've had NHL for 15 years. The last 10 years the left side of my neck, the Sternocleidomastoid muscle is getting bigger than the right side. I've had scans and nothing shows up. The doctor can not give me a reason why. It's for sure not a lymph node under the muscle pushing it up. It's the whole muscle. Can lymphoma effect…
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I'm new.
Just found this site and wondering how it works! I have had my first round of REPOCH and go back for the second one this Tuesday. Am not pleased with being in the hospital for 5 days at a time, but guess it's OK if that's what it takes!
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Shingles
Well went to see my onc this afternoon. I have shingles on the same arm as the lymphadema. Does it ever stop? I am miserable.
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Thinking of Mary...
Hi Mary, Well... your big day is here!!! I know you are glad the waiting is over....I know I am! It's amazing how antsy we get while waiting for others to get their scans done! I'll be thinking only positive good thoughts and praying for excellent results. Your so fortunate to get your results in the same day...don't…
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Hodgkin Recurrence within the same year?
Has anyone had a recurrence of hodkins within the same year they got treated? My doc says he seen a spot in my chest on the last PET scan just outside the area where I was treated in my lung. I hope its not Cancer at all but if it is I pray that its lymphoma again. I have another PET scan on February 6th and hopefully all…
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Happy Birthday, John!
Happy 62nd birthday today - you're a babe - 6 years younger than me! Enjoy your buffet and have a happy day - Fran
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Mailman came..
Hi Guys.. Well...The results of my CT scan show NO CHANGE in tumor size since my last scan on Oct 20th. The newest scan is identical to the Oct scan except now it shows..BOWEL: a few scattered diverticula of the sigmoid colon. This wasn't present in Oct,so it's a new finding. I looked up diverticula of the sigmoid colon…
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I'm here....
Hey peeps... I'm here...been busy all day catching up on laundry,house cleaning and getting presentable for my doctors appt tomorrow. You know the drill...shave legs,paint finger and toe nails, wash hair,q-tip the ears,and scrub all those little hidden body area's "just in case"...he says strip and get up on the…
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January 25, 2011
I just wanted to say hi to everyone who is having doctors appoints on this day. I'm wishing Sue, Liz, Vinnie and anyone else a very positive day filled with good news. I hope I didn't forget anyone. If I did we will blame it on chemo brain. Sue, hope you hear very good news. Vinnie good luck on you scans. They are very…
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Sue?
Anybody heard from her yet?
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Molecular level blood work
Hi All, I was wondering if any of you with either Mantle Cell or fNHL and are currently in remission are having your disease followed with Molecular level bloodwork. We can appear to be in remission based on our PETs and CTs with normal LDH but on a molecular level still have cancer. There is a blood test around on these 2…
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Snow, snow, snow and more snow....
Really wish good news piles up as fast as the snow is falling here. Took an hour and a half to drive home from work tonight. Have I said how much I appreciate my hubby? Just checking in on everyone. I know I am praying everyone's good news KEEPS COMING! Take care everyone, Beth
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Update
Hi All, Well, the sis in law has gone home to FL. Whew and yeah!! I feel like I can breathe a little better. I am so ready for my life to be back to "normal". I have been talking to MD Anderson, and they said that they did find some worrisom nodes in my neck and also the one in my mediastinum area. Some may be able to be…
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You will all think I am new ageie but
find an accupunturist! I had accupunture and took chineese herbs starting with the 3 rd round of chemo (rchop) and guess what my blood counts went up and my energy went up and I don't know how I could have made it thru 8 rounds without it. Don't think its new agie It does work.
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Vertigo
I have been having vertigo a lot more frequent since my treatments ended. I have had it before because I also have Meneires Disease, but it has gotten so much worse. HAs anyone else experienced vertigo or dizziness since treatments. Another thing it has taken a toll on is my teeth, they were fine before treatment and now…
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Mary and Vinny
So guys how have you been as far as progress? Is the tiredness still there as much? HOPEFULLY IT IS GETTING LESS AND LESS. I know you all have appts coming up,but the way we feel means so much as well. John(FNHL-1-4A-5/10)
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Scan is done...
Well...the deed is done and now I wait! It drives me crazy that right now sitting at Valley Imaging is a piece of paper showing if I'm in remission. Aint it just crazy that we pay big bucks for our insurance and then have to sit and wait for results that could be read in a matter of minutes? Oh well..it is what it is! They…