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Lymphoma (Hodgkin and Non-Hodgkin)

Help with diminished taste buds during ABVD
My 79 year old husband has stage 4 Hodgkins and just had his fourth ABVD chemo treatment. No food has any taste for him anymore....(well, except eggs). Can anyone suggest something that will help? This treatment will continue until the end of April His other meds to prevent nausea are Emend, Zofran, Compazine Thanks, Joyce…
Re-vaccinations after Stem Cell Transplant
Today is Monday,January 17, 2011 I was diagnosed with stage 4 MCL in July, 2009 and started chemo treatment shortly after--just before my 60th birthday (yes, we raised 3 sons...all on there own and my husband and I were looking forward to some fun adventures.) I had 6 rounds of mega-chemo (each time a week long stay in the…
Up and Down
Hi All, Feeling like I am all over the place with my emotions. Sometimes I feel so strong and then it just crashes around me. I'm sure some of it has to do with the stress of the funeral and having the sis in law stay with us. But, other times I just start thinking about my future and start to get scared, I think? I have…
MRI scan
Hi All, Just got home from another scan. This one is for the shoulder that had surgery last May. I started having a lot more pain in Dec. but with all that ws going on, I didn't go to the doc till now. He is worried that I may have increased the tear in my labrum. I hope it's just irritated from all the lifting I did for…
I'm Back
Hi All, So sorry that it took me so long to update. You are all so wonderful and caring.. This week has been very hard and being away from home was so difficult. My daughter was a great help, but I wish Keith had been with me. I have arrived home to sadness and so much more. Tomorrow will be the funeral for Delores.…
Big Day
Sue, I think the big day is tomorrow,right? I know the biggest day is on the 25th of Jan. Thats when the Doc will tell you that you are in remission. I know when I was getting my scan things like "I wonder what it sees as it goes down the body?" "I wonder if there is still anything in that area?" All kinds of stuff goes…
onc visit
Hello everyone, I have my Onc visit tomorrow, you all know the drill, blood work, port flush. I also will be having my first PET scan scheduled...... dom dom dom!!!! a little nervious to say the least, because I have been feeling lousy the past week, mainly fatigued, I'm at work and I'm ready for bed by 9:00am, I start at…
Hello to all!
Just wanted to say hi to all and to let you know I am still around here. I guess I have been fairly wrapped up in worrying about my upcoming CT scan on the 28Th. I posted some about this on Vinny's last post. I follow all of you and think of you each day. I think I have scared myself silent but not to be confused with…
MDS
Any of you know anything about MDS??
Wow! Wow! Wow!
Just got back from onc follow-up.......wait for it..... wait for it.... I AM IN REMISSION !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! What a beautiful thing. So my dear, dear family. Thank you! I'm not going anywhere, I'm still staying with you all and I thank you for the love, prayers, support - all of it. You are…
Hows it going Lisha?
Hi Lisha, I know you are very busy with testing and seeing doctors, but just wanted you to know that I'm thinking of you every single day. I hope Keith is doing ok at home and I've been praying for ALL of you! Take care dear lady and check in when you get time. Much love...Sue (FNHL-2-3A-6/10)
Test Results
Hi all my peeps. I just love that it's just so dear. I just got home from UCSF a little bit ago, very tiring commute and day. Had a 10AM labs and 11AM doctor appt, didn't get out of there until after 1PM. By than I was totally spent. But well worth it as my ultra sound of my spleen was totally normal and this confirms my…
No word from Lisha......
I'm rally starting to worry now...sure hope we hear something soon! Sue (FNHL-2-3A-6/10)
Any Bears fans???
If so...I hope you've stocked up on your "charmin"..it's gonna get messy! (Seahawks just love bear meat..makes em mean and strong!)Muawhaha!..evil laugh)! Love Sue
Posting Pictures
Hi Peeps, For those who asked I posted 2 pics of Neo on my expressions page. Really easy to do. Leslie
Neo continues
Just an update on my Neo the Cat, He started chemo for his small cell lymphoma last Thursday. It's really hard to give him these drugs that we know can make you feel like crap. But so far he is handling it really well. Just hope it works for him and buys him some time. He is being very sweet and loving. He goes in to see…
Micro fractures, anyone?
My DLBC went into remission in October following 6 rounds of R-CHOP. My largest tumor was in my lower back; into and around the spine. I've been going to physical therapy and haven't really gotten all that much relief. Darn those moist hot packs do feel great! Anyway, I saw a spinal specialist today, in hope that he could…
Heart Racing??
Ok so I finished my chemo(ABVD) and radiation, it was all completed on 10-19-10. Since then was put on Darvocet 3 x daily for a month until the recall. Now I take hydrocodone 5's. Last night my heart started fluttering and then started racing for about an hour or so. Had me terrified. I've had heart problems ever since…
Agent Orange
Are there any `children` of Vietnam Veterans out there who have been diagnosed with non-hodgkins lymphoma?!?!? i know that the pamphlets that are sent out each month say only spina bifida for a possible side effect in children, but if the vets can get NHL, why cant it be passed through their blood into their children? my…
I kicked cancers ****!
As of Monday, I am officially done with all my treatments for Hodgkins! Scans look good, and now i'll just be getting new scans every 3 months for a while! I wanted to say thanks to everyone on these boards for being such a great inspiration and support team for me this past year! I never thought i'd see the end of the…
did anyone out there come down with long term effects????
i am 13 years stage 4 hodgkins free and so far the only longterm effect i came down with was an under active thoyroid which the radiation killed...i am at high risk for alot of long term complications like heart disease, breast cancer, thyroid cancer etc..i was just wondering how many people actually did come down with…
Blood Counts
My father has Non-Hodgkin's Lymphoma. This is his 3rd relapse, and he was supposed to be admitted to Moffitt Cancer Center in Tampa on Thursday for 5 days of intensive chemo (Etoposide, Cisplatin, Cytarabine, and Ritual). The plan was to do a 5 day intensive now, one in February. If the PET scan in March then shows at…
Houston update-MIL update
Hi All, Thanks for all the well wishes and advice. I am safely in Houston with only minor problems getting here. Plane had a broken something in Dallas, but we are here as of 9 last night. My first appointment is at 10 tomorrow so I plan on arriving at 9. I was told to use the valet and that they/dr will validate it for…
Sue- did you get final results?
Hi Sue, I know you had your last chemo on 12/14 and then after that you'd do the PETscan. I have been thinking of you and praying. I just came to this site after a month or so, been busy with my mom. I am wondering how things turned out. Roya
Can't stop crying
The week after I got my diagnosis in May, my dear friend and fellow board member of a local non profit was also diagnosed. I have NMZ NHL Stage iv. He had SMZ NHL. We called ourselves the Lymphoma twins and we emailed and talked constantly about how we would beat this together. He needed to get back on his bike next summer…
How are you doing Lisha?
Hi Lisha, Just wanted to tell you I am thinking about you and anxiously waiting to hear any "NEW" news or a progress report on you getting some kind of treatment going. I'm keeping you in my prayers every day and hope to hear from you soon. Also keeping Delores and your mom in my prayers...hope all is ok with both of them…
update and questions
I forgot to mention, I go back in may 2011 for blood tests, no scans. The oncologist told me they can check the blood for any changes including bone marrow involvement. Never heard of that. The down side, I have other problems that took the joy out of my good news. The exact words were: There is mild patchy FDG around the…
Doc visit today whew!
Mammo was good. Blood work good. He's not overly concerned about the swelling, can't feel any discernable nodes. He's going to send to a lymphadema clinic about the swelling so that they can look at and teach me what to watch for and how to deal with it. Told me if it gets worse to call him and he may send me for a…
remission or gone
Hello all, I saw my oncologist monday jan 3. She informed me the NHL is gone. The results of the pet scan I had on dec 29, 2010 was negative. 3rd scan that was negative. My small bowel perforated in sept 2009 from NHL. My small bowel was resected and most likely all cancer cells were removed. I then had only 4 weeks of…
Anybody know anything about Lymphadema?
I'm going to be referred to a clinic for it, and have no friggin clue what it is. Can anyone help me? Also, he told me to be careful with my left arm for scratches and stuff.....yeah right, 12 week old puppy with needles for teeth???? I almost laughed.

Lymphoma (Hodgkin and Non-Hodgkin)

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