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Molecular level blood work
Hi All, I was wondering if any of you with either Mantle Cell or fNHL and are currently in remission are having your disease followed with Molecular level bloodwork. We can appear to be in remission based on our PETs and CTs with normal LDH but on a molecular level still have cancer. There is a blood test around on these 2…
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Snow, snow, snow and more snow....
Really wish good news piles up as fast as the snow is falling here. Took an hour and a half to drive home from work tonight. Have I said how much I appreciate my hubby? Just checking in on everyone. I know I am praying everyone's good news KEEPS COMING! Take care everyone, Beth
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Update
Hi All, Well, the sis in law has gone home to FL. Whew and yeah!! I feel like I can breathe a little better. I am so ready for my life to be back to "normal". I have been talking to MD Anderson, and they said that they did find some worrisom nodes in my neck and also the one in my mediastinum area. Some may be able to be…
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You will all think I am new ageie but
find an accupunturist! I had accupunture and took chineese herbs starting with the 3 rd round of chemo (rchop) and guess what my blood counts went up and my energy went up and I don't know how I could have made it thru 8 rounds without it. Don't think its new agie It does work.
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Vertigo
I have been having vertigo a lot more frequent since my treatments ended. I have had it before because I also have Meneires Disease, but it has gotten so much worse. HAs anyone else experienced vertigo or dizziness since treatments. Another thing it has taken a toll on is my teeth, they were fine before treatment and now…
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Mary and Vinny
So guys how have you been as far as progress? Is the tiredness still there as much? HOPEFULLY IT IS GETTING LESS AND LESS. I know you all have appts coming up,but the way we feel means so much as well. John(FNHL-1-4A-5/10)
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Scan is done...
Well...the deed is done and now I wait! It drives me crazy that right now sitting at Valley Imaging is a piece of paper showing if I'm in remission. Aint it just crazy that we pay big bucks for our insurance and then have to sit and wait for results that could be read in a matter of minutes? Oh well..it is what it is! They…
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Help with diminished taste buds during ABVD
My 79 year old husband has stage 4 Hodgkins and just had his fourth ABVD chemo treatment. No food has any taste for him anymore....(well, except eggs). Can anyone suggest something that will help? This treatment will continue until the end of April His other meds to prevent nausea are Emend, Zofran, Compazine Thanks, Joyce…
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Re-vaccinations after Stem Cell Transplant
Today is Monday,January 17, 2011 I was diagnosed with stage 4 MCL in July, 2009 and started chemo treatment shortly after--just before my 60th birthday (yes, we raised 3 sons...all on there own and my husband and I were looking forward to some fun adventures.) I had 6 rounds of mega-chemo (each time a week long stay in the…
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Up and Down
Hi All, Feeling like I am all over the place with my emotions. Sometimes I feel so strong and then it just crashes around me. I'm sure some of it has to do with the stress of the funeral and having the sis in law stay with us. But, other times I just start thinking about my future and start to get scared, I think? I have…
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MRI scan
Hi All, Just got home from another scan. This one is for the shoulder that had surgery last May. I started having a lot more pain in Dec. but with all that ws going on, I didn't go to the doc till now. He is worried that I may have increased the tear in my labrum. I hope it's just irritated from all the lifting I did for…
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I'm Back
Hi All, So sorry that it took me so long to update. You are all so wonderful and caring.. This week has been very hard and being away from home was so difficult. My daughter was a great help, but I wish Keith had been with me. I have arrived home to sadness and so much more. Tomorrow will be the funeral for Delores.…
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Big Day
Sue, I think the big day is tomorrow,right? I know the biggest day is on the 25th of Jan. Thats when the Doc will tell you that you are in remission. I know when I was getting my scan things like "I wonder what it sees as it goes down the body?" "I wonder if there is still anything in that area?" All kinds of stuff goes…
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onc visit
Hello everyone, I have my Onc visit tomorrow, you all know the drill, blood work, port flush. I also will be having my first PET scan scheduled...... dom dom dom!!!! a little nervious to say the least, because I have been feeling lousy the past week, mainly fatigued, I'm at work and I'm ready for bed by 9:00am, I start at…
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Hello to all!
Just wanted to say hi to all and to let you know I am still around here. I guess I have been fairly wrapped up in worrying about my upcoming CT scan on the 28Th. I posted some about this on Vinny's last post. I follow all of you and think of you each day. I think I have scared myself silent but not to be confused with…
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MDS
Any of you know anything about MDS??
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Wow! Wow! Wow!
Just got back from onc follow-up.......wait for it..... wait for it.... I AM IN REMISSION !!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!! What a beautiful thing. So my dear, dear family. Thank you! I'm not going anywhere, I'm still staying with you all and I thank you for the love, prayers, support - all of it. You are…
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Hows it going Lisha?
Hi Lisha, I know you are very busy with testing and seeing doctors, but just wanted you to know that I'm thinking of you every single day. I hope Keith is doing ok at home and I've been praying for ALL of you! Take care dear lady and check in when you get time. Much love...Sue (FNHL-2-3A-6/10)
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Test Results
Hi all my peeps. I just love that it's just so dear. I just got home from UCSF a little bit ago, very tiring commute and day. Had a 10AM labs and 11AM doctor appt, didn't get out of there until after 1PM. By than I was totally spent. But well worth it as my ultra sound of my spleen was totally normal and this confirms my…
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No word from Lisha......
I'm rally starting to worry now...sure hope we hear something soon! Sue (FNHL-2-3A-6/10)
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Any Bears fans???
If so...I hope you've stocked up on your "charmin"..it's gonna get messy! (Seahawks just love bear meat..makes em mean and strong!)Muawhaha!..evil laugh)! Love Sue
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Posting Pictures
Hi Peeps, For those who asked I posted 2 pics of Neo on my expressions page. Really easy to do. Leslie
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Neo continues
Just an update on my Neo the Cat, He started chemo for his small cell lymphoma last Thursday. It's really hard to give him these drugs that we know can make you feel like crap. But so far he is handling it really well. Just hope it works for him and buys him some time. He is being very sweet and loving. He goes in to see…
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Micro fractures, anyone?
My DLBC went into remission in October following 6 rounds of R-CHOP. My largest tumor was in my lower back; into and around the spine. I've been going to physical therapy and haven't really gotten all that much relief. Darn those moist hot packs do feel great! Anyway, I saw a spinal specialist today, in hope that he could…
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Heart Racing??
Ok so I finished my chemo(ABVD) and radiation, it was all completed on 10-19-10. Since then was put on Darvocet 3 x daily for a month until the recall. Now I take hydrocodone 5's. Last night my heart started fluttering and then started racing for about an hour or so. Had me terrified. I've had heart problems ever since…
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Agent Orange
Are there any `children` of Vietnam Veterans out there who have been diagnosed with non-hodgkins lymphoma?!?!? i know that the pamphlets that are sent out each month say only spina bifida for a possible side effect in children, but if the vets can get NHL, why cant it be passed through their blood into their children? my…
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I kicked cancers ****!
As of Monday, I am officially done with all my treatments for Hodgkins! Scans look good, and now i'll just be getting new scans every 3 months for a while! I wanted to say thanks to everyone on these boards for being such a great inspiration and support team for me this past year! I never thought i'd see the end of the…
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did anyone out there come down with long term effects????
i am 13 years stage 4 hodgkins free and so far the only longterm effect i came down with was an under active thoyroid which the radiation killed...i am at high risk for alot of long term complications like heart disease, breast cancer, thyroid cancer etc..i was just wondering how many people actually did come down with…
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Blood Counts
My father has Non-Hodgkin's Lymphoma. This is his 3rd relapse, and he was supposed to be admitted to Moffitt Cancer Center in Tampa on Thursday for 5 days of intensive chemo (Etoposide, Cisplatin, Cytarabine, and Ritual). The plan was to do a 5 day intensive now, one in February. If the PET scan in March then shows at…
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Houston update-MIL update
Hi All, Thanks for all the well wishes and advice. I am safely in Houston with only minor problems getting here. Plane had a broken something in Dallas, but we are here as of 9 last night. My first appointment is at 10 tomorrow so I plan on arriving at 9. I was told to use the valet and that they/dr will validate it for…