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Sue, thinking of you
Hi Sue, Just wanted to say hi and let you know that I'm thinking of you. Don't know if your awake after your long day. Sounds like it was a lot to do in one day. I hope the baby shower added some fun into your day. And I am so sorry for the loss of your dear friend. Any loss is so hard, but close friends are extra hard.…
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at last
thank god at last they found the problem with the weakness thyroid gland is low. why do y.ou have to keep insisting to doctors that somtings wrong befor they listen do they because we dont have that degree that we are stupid
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Surgery
Going in for surgery on Monday to remove a lump that was found after my last PET Scan on February 10th. It started out just being an abnormality in the lymph nodes in the neck and no lump was found by my Oncologist. Was referred to a surgeon for a biopsy and the surgeon found the small lump in the left/front side of my…
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WOW!!!
I just got my first bill for the R maint and was shocked to see that it costs almost the same as my CVP-R treatments. $13,249.80 for my Feb 14th lab work, onc visit and R-infusion. I don't have my deductible met for 2011 yet, so I got socked with a $927.00 co-pay amount...(patient responsiblity). Well, I guess the one good…
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Entered a Blog explaining what's up, it's too long for here
Everyone, I wrote a letter last night to my brother explaining the process. I entered under my page in a blog. Let's get this day over!
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Has anyone heard from BlueRoses?
Hello everyone its been a long time since I have heard from Blueroses. I was wonder if anyone has an update on her condition?
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FMLA
Now thats its been a year on FMLA. They have reduced the FMLA to one day every 4 months that I can miss? What should I do,just get off of it? Since I never use it or should I stay on it?
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Dry Eyes Continue
Hi Peeps, Saw my eye doctor today, my eyes are dryer than ever and the dryness is causing scratches on my corneas. Not good! I'm not so good with eye drops, they just don't work well at all, and I get most of the drops on my cheeks not my eyes, LOL. So my doctor put plugs in my tear ducts. Now besides being dry and…
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We have a plan
I am going to be doing RICE after all. I start monday. I will have a port put in monday morning and ice later in the afternoon. Ice again on Tuesday, RICE on wednesday and neupogen shot on thursday. The ice will be about 3 hours each, and rice day about 6 hours. I'll get a two week rest, then will do rice on monday, tues…
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A way to start off high school.
Hi my name is Victor and I figured I was diagnosed with Non Hodgkins Lymphoma in September of 2009. What I find hillarious is that I was getting used to high school and everything when my mom takes me to the doctors and says that I have to go to the doctors. "Ummmmm....ok" Weeks before I had many other biopsee's and…
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Please help us interpret PET scan results
My husband has Stage 4 Hodgkin Lymphoma. He has received nine treatments of ABVD. Last week he had a PET scan and we were anticipating a report from his Doctor today, but unfortunately... he's on vacation. The Doctor DID call us last evening and said thing looked 'good'. Just did a brief google and read a JAMA article on…
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Bendamustine & Rituxan
My husband was diagnosis with Non-Hodgkin’s Follicular Lymphoma (StageIV). He has just completed his first round of Chemo (Bendamustine & Rituxan). His side effects thus far have been manageable, thank God. Our main concern is when his blood cells are low which we were told would be 7 days after treatment. The plan is to…
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Lost our dear friend today..
Hi, Our dear friend battling colorectal cancer passed away this morning. We had a nice visit with him last night, so it was comforting to be able to give him hugs and love before he passed. I thought we might have a bit more time, but it was not to be. Love...Sue
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Radiation
Hello, I will find out soon if I'm finished with chemo (finished 6 cycles of ABVD), and then I'll be moving on to radiation. Has anyone had radiation for Hodgkins? The area that will receive the radiation is by my left lung. What was your experience? Thanks!
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Met with transplant doc/clinic today
Well, I liked the doctor and the nurse coordinator. I have never been so overwhelmed in my life. Transplant is an outpatient procedure. I will not be able to work for 3 months. I'll be doing Treanda & Rituxan first to get back to remission. They will do a scan and bone marrow biopsy to make sure I am in remission before…
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feeling weak
does anyone ever feel raelly weak on top of the every day fatigue i have felt felt so weak for searal day i cant evan take a shower. can stress cause this or should i be worried? mabey its somthing else. denise
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trip to the doctor
thank all of you for your hel and support i am calling my doctor tommow to have bloodwork done he does it in his office so i wont have to run to much the only thing i will have to wait a couple of days to get the results. i hope that all it is, my blood count is low. i hope everyone is feeling as well as they can
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Hair Loss & Scalp Pain
Hi all - I'm getting ready for my second round of chemo, and my hair is beginning to fall out. The skin on top of my scalp feels really sore - sort of like it is bruised. Did anyone else experience this while their hair was in the process of falling out? Thanks!
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Not feeling well
I hate to be complaining. I just can not put my finger on this but just do not feel well. I do not know why. Seem to have like needles and pins in my arms or legs recently. My last chemo treatment was was 11/2 years ago. And Zevalin Christmas 23, 09. So I dont know. I read all the posts. To keep up with you all. I pray for…
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Thinking of you Beth
Hi Beth, I will be thinking of you today as you meet with your doctors. Please let us know what they have to saw, as it must be so frustrating not having started chemo yet. And now wanting to change the chemo drugs must be both frustrating and scary for you. I do know that RICE is a very common chemo used for recurrances…
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Thinking of you
Hi All, I just wanted to say that I am thinking of all of you. I don't think I have enough energy to respond to every post, so I wanted to say hi to all. I know that some of you have things coming up and some of you are waiting. I hope things begin to get easier for all of us. Stay well and know that I am thinking of you…
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Moving on after cancer
I just finished treatemnts for Hodgkins 2a bulky disease. I am relieved to finally be done with treatments but at the same time I find myself not really knowing how to procceed. I want to just forget this whole cancer nightmare and move on with life, but I don't think I'll ever be able to do that completley. Especially…
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fatigue
i have fatigue and my cancer has been in remission for two years i take a small walk every das and i try to eat right but my appitite is not that good anyone else have this problem. any help would be apprceciated.
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Liz..how to find Doug..
Hi Liz, Maybe you can explain your story to someone at your clinic. They can check their records for Doug and surely come up with his last name. How many Doug/policemen could be getting chemo the same day as you..ya know what I mean? You can ask them to call him, relay your e-mail address to him and also ask them to tell…
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Bone thinning with treatments
Anyone having problems with your bones?My bones have been doing lots of cracking lately.Sounds like Rice Krispies getting up and down.Have a knee with an old injury that has swelled a few times after treatments.Done so many treatments over the years and no one has mentioned my bones.Was reading some place about this, any…
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Uncertainty abounds
Hi Y'All, Just want to let you know that I'm still around and do read the board whenever I can. Right now I'm very busy with trying to get a very disorganized set of books (accounting records) ready for my tax accountant to make sense of. And I'm running out of time. Last week was my first post-remission follow-up testing…
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NHL and subsequent fluid in Lung
Hi Guys Im new to this stuff so bare with me. My sister (19) was diagnosed wit NHL last April after discovering a lump just below her neck. Susequently treatment started in June. She has finished the Chemo but it was not as succesfull as the doctors made out it would be so she had to go in for a stem cell harvest. She is…
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Disability and Cancer
I was curious, I used to beable to work 50 hours a week, now that I've been in Chemo and have been sick I havent been able to work at all. Is it possible for me to receive disability because I have cancer or because I cant work. I'm not for sure how it works, or even where to go to find out info. Any info would be greatly…
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Stem Cell Transplant
This is in my future, will have to do Treanda first to get back to remission though. I would love to get some input from anyone who has done both the treanda and the SCT. I am scared, and just trying to get some information from those warriors who've been through it. My armpit is still killing me, but I know it's going to…
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Just diagnosed with Classic Hodgkins Lymphoma
I am 42- have been married almost 19 years- I have 5 children and I love life- more now than ever. Each day is a little scary.. so many things. FNA, Cervical lymphnode removal, Bone marrow biopsy- and am scheduled for PET scan, echo, pulm. function test... the list goes on. Then chemo- and hair loss... WOW. I thought my…