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Lost our dear friend today..
Hi, Our dear friend battling colorectal cancer passed away this morning. We had a nice visit with him last night, so it was comforting to be able to give him hugs and love before he passed. I thought we might have a bit more time, but it was not to be. Love...Sue
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Radiation
Hello, I will find out soon if I'm finished with chemo (finished 6 cycles of ABVD), and then I'll be moving on to radiation. Has anyone had radiation for Hodgkins? The area that will receive the radiation is by my left lung. What was your experience? Thanks!
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Met with transplant doc/clinic today
Well, I liked the doctor and the nurse coordinator. I have never been so overwhelmed in my life. Transplant is an outpatient procedure. I will not be able to work for 3 months. I'll be doing Treanda & Rituxan first to get back to remission. They will do a scan and bone marrow biopsy to make sure I am in remission before…
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feeling weak
does anyone ever feel raelly weak on top of the every day fatigue i have felt felt so weak for searal day i cant evan take a shower. can stress cause this or should i be worried? mabey its somthing else. denise
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trip to the doctor
thank all of you for your hel and support i am calling my doctor tommow to have bloodwork done he does it in his office so i wont have to run to much the only thing i will have to wait a couple of days to get the results. i hope that all it is, my blood count is low. i hope everyone is feeling as well as they can
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Hair Loss & Scalp Pain
Hi all - I'm getting ready for my second round of chemo, and my hair is beginning to fall out. The skin on top of my scalp feels really sore - sort of like it is bruised. Did anyone else experience this while their hair was in the process of falling out? Thanks!
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Not feeling well
I hate to be complaining. I just can not put my finger on this but just do not feel well. I do not know why. Seem to have like needles and pins in my arms or legs recently. My last chemo treatment was was 11/2 years ago. And Zevalin Christmas 23, 09. So I dont know. I read all the posts. To keep up with you all. I pray for…
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Thinking of you Beth
Hi Beth, I will be thinking of you today as you meet with your doctors. Please let us know what they have to saw, as it must be so frustrating not having started chemo yet. And now wanting to change the chemo drugs must be both frustrating and scary for you. I do know that RICE is a very common chemo used for recurrances…
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Thinking of you
Hi All, I just wanted to say that I am thinking of all of you. I don't think I have enough energy to respond to every post, so I wanted to say hi to all. I know that some of you have things coming up and some of you are waiting. I hope things begin to get easier for all of us. Stay well and know that I am thinking of you…
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Moving on after cancer
I just finished treatemnts for Hodgkins 2a bulky disease. I am relieved to finally be done with treatments but at the same time I find myself not really knowing how to procceed. I want to just forget this whole cancer nightmare and move on with life, but I don't think I'll ever be able to do that completley. Especially…
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fatigue
i have fatigue and my cancer has been in remission for two years i take a small walk every das and i try to eat right but my appitite is not that good anyone else have this problem. any help would be apprceciated.
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Liz..how to find Doug..
Hi Liz, Maybe you can explain your story to someone at your clinic. They can check their records for Doug and surely come up with his last name. How many Doug/policemen could be getting chemo the same day as you..ya know what I mean? You can ask them to call him, relay your e-mail address to him and also ask them to tell…
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Bone thinning with treatments
Anyone having problems with your bones?My bones have been doing lots of cracking lately.Sounds like Rice Krispies getting up and down.Have a knee with an old injury that has swelled a few times after treatments.Done so many treatments over the years and no one has mentioned my bones.Was reading some place about this, any…
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Uncertainty abounds
Hi Y'All, Just want to let you know that I'm still around and do read the board whenever I can. Right now I'm very busy with trying to get a very disorganized set of books (accounting records) ready for my tax accountant to make sense of. And I'm running out of time. Last week was my first post-remission follow-up testing…
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NHL and subsequent fluid in Lung
Hi Guys Im new to this stuff so bare with me. My sister (19) was diagnosed wit NHL last April after discovering a lump just below her neck. Susequently treatment started in June. She has finished the Chemo but it was not as succesfull as the doctors made out it would be so she had to go in for a stem cell harvest. She is…
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Disability and Cancer
I was curious, I used to beable to work 50 hours a week, now that I've been in Chemo and have been sick I havent been able to work at all. Is it possible for me to receive disability because I have cancer or because I cant work. I'm not for sure how it works, or even where to go to find out info. Any info would be greatly…
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Stem Cell Transplant
This is in my future, will have to do Treanda first to get back to remission though. I would love to get some input from anyone who has done both the treanda and the SCT. I am scared, and just trying to get some information from those warriors who've been through it. My armpit is still killing me, but I know it's going to…
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Just diagnosed with Classic Hodgkins Lymphoma
I am 42- have been married almost 19 years- I have 5 children and I love life- more now than ever. Each day is a little scary.. so many things. FNA, Cervical lymphnode removal, Bone marrow biopsy- and am scheduled for PET scan, echo, pulm. function test... the list goes on. Then chemo- and hair loss... WOW. I thought my…
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Was diagnosed in late February 2009 and Just found this site.
Hi all! I have a lot to share. Please read my story. I was said to be in remission in November of 2009, but my last two PET Scans have came back abnormal. The first being in September when they found a spot in my lung. I was told if it was active it would probably be some other form of cancer because lymphoma supposively…
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Don't assume Drs will figure out for you (but how would I know?)
Hi, Folks, I just learned from my physical therapist that I have lost most of muscle tone in my body after just completing 12 chemo treatments so my PT is sending me an order for swimming and pilates training to build up my muscles and strength. Wow - I feel overwhlemed to start all over but I look forward to gain back…
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Thinking of John
Hi John, Just wanted to let you know I'm thinking about you while your getting your first maint R-infusion today. Had mine on Feb 14th and all went well...next one for me is scheduled for April 11th. If your not too tired when you get home, let us know how it went. The pre-meds allowed me to take a 3 hour nap during the…
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Update
Hi all, I feel like I have been away for such a long time. I have tried to read the most recent posts to get myself updated. Thank you all for caring and you are never being nosey or a busy body. Hubby is doing better than expected, hooray for that! I have had a few set backs. First was the hypertensive crisis and all the…
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R-Epoch - Recent Experiences?
I saw a couple of threads on the R-Epoch regimen. I was curious about other people's experiences. I began the regimen on January 24, in the hospital, but have done my last two rounds as an outpatient with the pump. I had a CT scan after my first two rounds which showed a 50% decrease in the size of my tumor. I'll have a…
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I feel so overwhelmed
I can't handle all this stress. It's too much. I feel broken. I need icecream and bed.
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living with little energy
I was in CSN when I was in tx for hodgkins lymphoma. I am in remission for 4 years now and feel well except i am very tired still. Are you like this?
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Does anyone have Neuropathy & chronic pain after CHOP R treatments?
I am new to this site and encouraged to find anyone else living with the difficult side effects after chemo treatments. I am 43 years old and was first diagnosed with follicular NHL in 2005. It was only in my neck area so I received rituxin treatments for a year with very little side effects. I also went through radiation…
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Welcome D Maggie!
I am afraid the great folks here won't find your post so thought I would start a new thread for you so people can respond with all of the help they give. Please retell your story and know that there are many treatments to help you but first take some deep breaths and allow yourself time to get a firm diagnosis. Then you…
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New Doctor approved cancer website
My oncs office gave me some new forms to fill out and they have advocated a new website, it's actually really good. Cancer.net Lots of great information and approved by oncologists.
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How are you doing Lisha?
Hi Lisha, Just wondering how Keth is doing after his surgery and if you have any "new" news to share. I know you are doing the "watchful waiting" for your cancer, but also remember you saying you hurt your shoulder again. Are you doing anything for it...therapy..new surgery, etc? Well sweetie...just wanted to let you know…
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The perfect example...
Hi guys, Steve and I have a close friend that has late stage colon cancer. He's been fighting so hard for his life, but things don't look promising for him. Since joining our group last July, I have also been "lurking" on the colorectal board trying to learn as much as I can about colon cancer and the various treatments…