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exhaustion
I think this is my first post here. I am 38. I was diagnosed with diffuse large b cell lymphoma in 12/09. I did 6 rnds of RCHOP followed by 22 rnds of radiation. My biggest struggle is the fatigue. It isn't even fatigue,it is downright exhuastion. I have been out of treatment for a year. Was I naive to think I should be…
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Fatigue
Hi All, I think that I am on the way to feeling better. I woke up today, and felt a little energy and still feel pretty good. Have not felt that in a long time. Usually I wake up and feel so tired, then get a little burst mid day, then tired again and sometimes a little late in the evening. Today just feels different. I…
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Isolation and anxiety
Hi, I just joined this forum, looking to hear how other people live with uncertainty. I was diagnosed with low grade stage one nhl in April, 2011, one enlarged inguinal node removed, followed by radiation to the groin in June/July. I was very sick from the radiation, but docs maintain that my reaction is uncommon. I'm very…
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new here, diagnoised with aggresive non hogkins lymphoma large b- cell
Hi i am new, diagnosed with b cell last month. to make a long story short, my abdomen started hurting with diarrhea. thought i had flu, after a few weeks went to er, they found nothing, called a surgeon he ordered test, didnt make it to day of test, went to different er and found a tumor with an intussumption, had er…
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I´m from Brazil loking for pet scan in las vegas someone could help me?
My name is Leonardo Almeida and my father was diagnosed with hodgkins lymphoma at about one year ago, he made a chemotherapy treatment, and according to the doctors, it is in complete remission. we're going to Las Vegas and we'll be in town between 6 and 15 September, we would like if possible, someone who showed us a…
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Thinking of you, Sue
Hi Sue, I just wanted to say that I am thinking of you today. Hope all goes well for you. I am sure you will let us know how your feeling, when you are able. Keep smiling. Love, Lisha
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Chemo treatment on hold
We just got back from our vacation to beautiful Kauai with our 3 teenage grandchildren (17, 16 and 13). Since my husband was in between chemo treatments we thought this would be a good time to take a summer vacation. He was feeling good and wasn’t due for chemo until we got back from our vacation. We were all planning to…
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this goes with my previous part
i forgot to put this with my prevois post. my docter is not having me back until november7 i am really scared that maby it will be a lot worse by then denise.
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Antiplastic Large Cell Lymphoma, Breast implant related
Looking for anyone that has had, or been diagnosed with this particular type of ALCL. It only affects people who have had silicone or saline implants. FDA issued new warning in Jan 2011 of the possibility of ALCL and breast implants. Desperately need someone to contact me. Just recived this diagnosis. Thanks....
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Antiplastic Large Cell Lymphoma, Breast implant related
Looking for anyone that has had, or been diagnosed with this particular type of ALCL. It only affects people who have had silicone or saline implants. FDA issued new warning in Jan 2011 of the possibility of ALCL and breast implants. Desperately need someone to contact me. Just recived this diagnosis. Thanks....
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Taste changes after Chemo
I am about 2.5 months removed from my last Chemo treatment (R-EPOCH) and am still experience funny tastes with certain foods (eggs, some meats depending on how they're cooked, popcorn, etc.). I know that three of the drugs in that regimen have taste changes as a side effect (Cyclophosphamide, Doxorubicin, Vincristine). I…
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Cat Scan
I want to thank you all for the encouraging words. I pray for all of you on this board. The waiting really stinks for sure. But have no choice. I understand the pred, It really was no fun but we just have to look at it that is really helps us. Hope you you all feel pretty well. I will be praying for us all. Hope your…
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Cat Scan
I want to thank you all for the really nice replies. I appreciate them so very much. I always include everyone in my prayers from this board. Now just comes the waiting time. That is always nerve wracking. But I dont see any problems. I just have not felt the best but contribute that to getting older and other problems.…
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Lymphoma Workshop in Minneapolis
My family and I are attending Lymphoma Workshop: Understanding Lymphoma Basics and Current Treatment Options patient forum in Bloomington, MN on Saturday, October 29, 2011. we'll take notes and give an update later. Hugs Janelle =)
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thrush again
hi everyone, i have thrush again i was afraid that would happen again if i started,, taking antibiotics, thats why i took so long going to the doctor, because harsh is hard on the imune system. I feel like if i have to take chemo again, i won' make it because ifeel so week and wobbly. i feel ifs darned if do and darned if…
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POG Group - ALL Surivor - Long term chemo brain
I was diagnosed in 1995 with Acute Lymphoblastic Lymphoma Large T-cell, Non Hodgkins. I was involved in a study of chemo sessions, nothing experimental just dosage and time intervals. I have been suffering from Chemo brain for years and it has progressivly gotten worse. College was tough and life has gotten tougher. It is…
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checking in
Hey guy's just checking in, had my blood checked today along with my port flush, got to say I'm feel kinda bummed. My white counts where in the 4.0 range for a while , today it was 3.0 which is out of normal range, my Oncologist feels that it's OK. I have been soooo fatigued lately, that little voice starts to creep back…
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Ct Scan
Hi Everyone , I do my cat scan on Friday and we will see after that. I get all nervous days before that. But I always did. I guess sometimes when you are not feeling the best, your mind runs away with you.I suppose you think after Zevalin you think nothing will ever happen again. Have some issues when I go back to the…
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CancerCare Connect® Education Workshop, Update on Lymphoma
CancerCare Connect® Education Workshop, Update on Lymphoma from the 2011 American Society of Clinical Oncology (ASCO) Annual Meeting, which will take place on Tuesday, August 23rd, from 1:30 to 2:30 pm Eastern Time. Workshop Topics Overview of Lymphoma Current Treatment Options New Research Presented at ASCO…
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My experience with Watch and Wait
I was DX in June 2011 with fNHL stage III grade 1. My onc wants to watch and wait. I go back in October for my first recheck. The loss of sleep was making me miserable. I took Ambian for a month so that I could sleep but soon found that it made me very depressed. It took me four nights to get off of the sleeping pill, but…
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CAT WINK
Where have you been? How are things going? I saw you had posted and I had to check the date to be sure I was on the right year.LOL. Get back to me. John(FNHL-1-4A-5/10)
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chemo and low blood counts
I have been sick for 5 or 6 days, I finaly went to see my prc and while I was there, I asked for a copy of the pet scan results, my onc had said he wanted to keep an eye on a lymphnode on the right side of the groin area, I always freeze when I go to the cancer center, so I did't ask why, or for a copy of the results. I…
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a;;ergic reaction to rituxion
Hello, I don't have cancer but my brother was diagnosed in March . And he has started his therapy with Rituxion but he is having severe reactions to the drug. He breaks out in hives, His throat closes up and he has severe joint pain and back pain. Then they have to stop the drip and give him benadryl and steriods. I was…
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Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?
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PCNS Lymphoma
I was discovered to have this ugly disease. I am only 24, no AIDS, never smoke or alcoholic. 7 tumars are in my brain. The biggest one is 3cm. Now I finished first chemo with MTX and then cytarabine. I know most people with this cancer can survive several years, but when it comes back, it took their lives. Is there any…
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Difficult times
Hi All, Well, I thought being home was and would be the greatest thing. But I find myself feeling afraid and somewhat lost. I know it has to due with the change of venue and change of time and probably even the change in the weather. I am trying to be strong for myself and everyone. It's hard. I am very tired, but not…
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Pain
Hello Everyone: I sure had a terrible weekend. I do have acid reflux disease and take medicine for that. Friday I all of a sudden had the worst stomach pain. Like in the middle of my stomach under the breast in the center. Well I ended up in the ER and it was not my heart. So they gave me a GI Cocktail with lidocane in it.…
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Curious about the future
So as I approach my year anniversary of being diagnosed with Non Hodgkins Diffused Large B Cell, I wonder if I will ever go back to being normal. I have been in remission for about 5 months now, and so far so good. I just have a lot of questions now and I figured who better to ask then my new found friends :) My biggest…
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Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?
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Pain following Radiation for MALT Lymphoma
Is anyone experiencing stomach cramping and bloating after completing radiation therapy for MALT lymphoma? I completed radiation at the end of March. All followup and second opinion testing were in normal range. Doctors do not have an answer. What are you doing to help with pain?