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So how likely is r-cvp to work the first time around? Do I really need to do Rituxim afterward?
Hey all, I'm Kim and new to this site. Basic info. about me. I am 40 and was diagnosed with stage 4 indolent non-hodgkins b-cell folicular lymphoma. It was found in my Lung, a verdebra in my spine, a spot on my back, and a little in my arm (as far as the larger amounts). I had radiation for the one on my spine before chemo…
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Reynaud's Phenomenon
Hi All - A couple of months after ending my chemo (ABVD) my hands started to get really cold at work and my fingers would turn numb. I dismissed this as each occurrence would end fairly quickly. Over the next couple of weeks it continued, and my fingers would turn white, then blue/purple and be completely number. I had a…
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Mantle Cell Lymphoma and Guillian Barre
My husband was diagnosed with Mantle Cell Lymphoma. At that time his thumb and first two fingers were getting numb and the doctors talked about Carpal Tunnel. It then progressed to the whole hand and then his feet. After many test they diagnosed Guillian Barre. He had five days of IVIG treatments with slight improvement…
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Happy Anniversary to me!
Yep...today is my 1 year anniversary of when I joined this wonderful group. Thank you John for being the first responder, and thank you "ALL" for the continuous love and support you have given to me. I'll celebrate about anything these days,(ha!) so I figured this was just another one of those special moments to remember…
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Lymphoma is back after Autologous Stem Cell Transplant
My mother has non-hodgkins lymphoma and had undergone CHOP two years ago. She had a relapse and went through DHAP. Doctors recommend her to do Autologous Stem Cell Transplant. The high dose treatment accompanying the SCT was quite tough and the whole transplant was completed in May'11. She was regaining strength until a…
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First day...
Hi guys, Well...wish me luck...today is my first day to babysit Lizzy all day while her mom is at work. She got here at 6:45 with a big smile on her face, and was greeted by gramma with an even "BIGGER" smile on her face...ha! Hope you all have a good week...Love...Sue (FNHL-2-3a-6/10)
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Stem cell transplant
Does anyone here had a Allogenic stem cell transplant and how was it after your 100days?
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a few things...
Hi all, I haven't been around for past 3 weeks as I've been lurking on the lung cancer page. Dad (who's 83) has been diagnosed with advanced stage non small cell lung cancer. His Onc has indicated he has 2 choices...chemo to prolong his life to 12 - 24 month or nothing at all aka hospice. Dad's been wavering back and forth…
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"Post Prednisone Porky" :)
I've been bouncing off the walls coming down off the prednisone. Been eating like "Porky" too... Hope you get a chuckle out of this... http://www.youtube.com/watch?v=_R4FM_O33-o Anyone else feel like this post chemo? Hugs and strength to everyone...
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results of pet scan
I went back to my onc today, the results of my pet scan is clean I do have a small node on the right side of the groin area, but the doctor does'nt think its lymphoma he did say he wanted to keep an eye on it. blessings denise
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Update on Husband's Uncle
Hi there. I want to thank those of you who replied to my original post "Questions for you". My husband's uncle met with his oncologist today to go over the latest pathology. It has been determined that his cancer is not HL or NHL, or any of the other subtypes of Lymphoma. The oncologist is at a loss. On the PET Scan it…
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Non Hodgkins Diffused large B cell lymphoma
Hello, I am new to these boards and have been inspired by the stories of strong people on this forum. God bless you all. My mother was diagnosed yesterday with Non Hodgkins diffused large b cell lymphoma. Has anyone had any experience with this? What should we expect? What does chemo therapy entail? I am relieved in a…
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John..I re-posted the list of 10 cancers.....
Hi John, I'm the one that removed this information. I was worried it might upset people with the death stats. Once I'd seen that you had read it, I removed it...sorry!(you haven't lost your mind..ha!) Since I couldn't e-mail it to you, I posted it here. I'll leave it up as long as it doesn't offend or scare anyone. I'll be…
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Chemo Brain
Hi All, I was just wondering if anyone else is suffering chemo brain after chemo? I am 8 mos out of chemo and still have problems. Family members like to downplay it and say it's just because I'm getting old (I'm only 43). I tried to explain to them the difference between those occasional senior moments (opening the fridge…
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Hope to find an answer here
Hello All For the last 3-4 weeks i have been having soreness under my armpits. None of the doctors can feel a swollen node. The pain seems to change intensity. Some days it's worse and some days there is less pain. I also started to have a swollen lymph node in my neck 3-4 days ago. I went to doctor again and he said that…
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stomach pain with hodgkin's (chemo)
Hi My daughter was diagnoised with Hodgkin's this summer at the age of 22. She is currently taking ABVD treatment and is doing well. Before she was diagnoised she had stomach pain but this seemed to have went away. She is now at treatment 7, she is going to take 12 or 6 cylces. She has hodgkin's in her chest. This past…
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pet scan
Last wednesday i had a pet scan and for some reason there not calling me back which has me worried, i keep thinking mabey its bad news and they don't want to tell me over the phone, they have always called me back in the past. i do have good news, after 3 months the thrush is gone my onc put me on 400 mgs of diflican or 10…
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Janelle, colonscopy
I am submitting a new post because of it's importance. I did respond to your original post, Janelle, but I am starting a new thread on this procedure. ------------------------------------------------------------------------------------------ Dear Janelle, I too, can't believe the doctor punctured you during a routine…
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Yes!!!!!!!!!!
A heartfelt hello to all and hope this finds everyone as well as can be and hanging in there. I went to The Mayo Clinic yesterday for a recheck and it was confirmed that I remain in complete remission. I now have a 6 month free pass!!! It feels like I've been carrying around 1000lbs for the last few weeks and now I am…
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Way past due update
This is way overdue. I am doing well and just got my power port out this morning, so finally I have no more foreign objects in my chest! Yeah! And of course the happy drugs have worn off and I am hurting. I just took a pain pill so I am really anxious for it to start working. I am really falling down on the exercise part…
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Lisha
I have been thinking about Lisha these last few days. I was hoping each day when I sign on to see a post from her. I know she was in Texas at MD Anderson. Lisha, if you see this post, try and let us know how everything is going. If you are busy, that's OK. I just want you to know I think of you very often, and send you my…
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Radiation
My daughter is going to be starting radiation next Monday. The doctor called and said that he will be using IMRT. He explained that this is the best choice for her. She has Hodgkin's and the PET scan showed a small spot left in her chest & neck. Does anyone have any information on this or may have had this type of…
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Newly diagnosed with FNHL of the GI Tract
Hi. My name is Keith. I am 50 years old with a 16 year old daughter, 12 year old son and a wonderful supportive wife of 23 years. I was dx in May 2011 with FNHL in the GI tract, Grade 1, Stage 1E. I have a small tumor inside my small intestine, located in the terminal ileum. It was found by accident during a colonoscopy. I…
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Workshop: Fear of Recurrence and Late Effects
CancerCare Connect® Education Workshop, Fear of Recurrence and Late Effects: Living With Uncertainty, which is Part IV of the four-part program, The Ninth Annual Cancer Survivorship Series: Living With, Through and Beyond Cancer. The workshop will take place on Tuesday, July 12th, from 1:30 to 2:30 pm Eastern Time.…
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follicular stage4
Hi, I was dx 2 days ago with stage4 follicular lymphoma, following a lymphnode biopsy in my left armpit and then ct scans and a bone marrow. The bone marrow revealed that it is in my bones,about 15%. I was given the choice of using "Bexxar" as treatment vs. conventional therapy. Has anyone here had this therapy or have any…
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Started my R-CHOP today, well sort of!
Today was the day! Appointment was at 8:45, saw the doctor first then went to the infusion room. Since I just got my port but in Thursday, they had a little difficulty accessing it, but finally managed, and gave me my pre-meds. Rituxan was started at 10:30, at 40, within 30 minutes my throat started to feel scratchy and…
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Just diagnosed, First Treatment Done ABVD
I was just diagnosed with Stage 2 Hodgkins Lymphoma on May 21. I got married June 4th and had my first treatment of ABVD last Thursday the 16th. I am not reacting very well to the chemo at all. I'm constantly having nausea and can barely hold any food down, my body is so weak and painful I can barely make it up and down…
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Rash
Since my son started chemo, he has developed a rash that covers nearly 80% of his body. It's pretty severe (he complains of an intense burning and pain). Niether his oncologist or his dermitologist seem to be able to determine what caused it, but there's been no mention that it is related to his lymphoma or the chemo…
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Port, picc line, or IV?
When i did my chemo the tumour in chest was to big to get a port. i could either wait until the tumour shrunk from chemo, then get it put in but i chose not to. I chose to get an IV and have the chemo pump directly into my veins. Im just curious to see what everyone else did and if they'd choose it again. Thanks, Ian
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What the heck???
Hi guys, Wow...I tried all day to log in to CSN and couldn't get connected. It just now let me do it...(9:50 Pacific time). Has anyone else had a problem today? Anyways...just wanted to let you know we are leaving on vacation tomorrow morning and won't be home until Aug 6th. I'll have my laptop with me, and will check in…