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white foamy sticky mucus
My husband was diagnosed with t-cell Lymphoma june of this year.He keeps spitting up this white foamy sticky mucus.He said its coming from his stomach.Doctors said thats not a commmon side effect of chemo.They put him on an antacid but doesnt seem to help.Has anyone else had this symptom and did anything help?
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Ommaya Resovoir
I WAS DIAGNOSED WITH LYMPHOMA IN SEPT OF 2009 AND IT WAS INDOLENT BUT STAGE 4. IN jANUARY OF THIS YEAR IT MOVED TO LARGE B CELL AND BECAOME AGRESSIVE. AFTER 6 1/2 R-CHOP TREATMENTS THERE IS NO SIGN OF CANCER IN THE BLOOD OR SPINAL FLUIDS BUT NOW THERE IS A SMALL MASS THAT HAS APPEARED IN THE 3RD NERVE OF THE CAVERNOUS…
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Web cast RE: children with lymphoma
July 26 Living with Childhood Cancer: Pediatric Leukemia and Lymphoma web chat The Cleveland Clinic 12:00 p.m. ET For more information, visit clevelandclinic.org We've had some newer and younger folks on the board lately. I ran across this last night and thought I'd post it for anyone who's interested. Kellie
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wrong diagnosis
hi my name is stephanie i was wondering is there any way that you could be diagnosied with hodgkins lymphoma and it be the other non hodgkins. the reason i ask is becuase the symptoms im having and i have a tumor in my bone. in the bone marrow and everything i research on about that brings me too non hodgkins. i was…
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Yes!
I went for my first checkup with my onc and it was great. I don't have to go back for 2 weeks and I get to have my power port out too! They don't use it for blood draws so no need to keep it in!
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white foamy sticky mucus
t-cell lymphoma
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Trouble with low lymphocyte count
I have a history of NHL and was treated with R-CHOP 2 years ago. I now have a low absolute lymphocyte count of 540 cells/mcl with normals being 850-3900. I also have anemia with hemoglobin of 11.8. My oncologist does not know about these counts because he was not copied on the results. I have never had a low lymphocyte…
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Please tell me your experience with r-chop!
I am going to be starting r-chop soon and I am really wanting to hear how it was for everyone. If you have had r-chop please take the time to tell me your experience...
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Chemo Brain?
I have read about this in some of your posts. What is this? Joke? Real? Thanks :) God Bless Brady
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Low Dose Naltrexone, LDN
Hi everyone, I need some information please. The blood work I had in May 2011 was extremely good. The exception was 2 Immunoglobulin levels. They were just shy of being normal. LDN is a low dose treatment with no side effects to boost the immune system. It was used for MS, HIV, etc. It is also being used for cancer…
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BryanK
Bryan, If you are out there reading the post PLEASE post and let us know how everything is going. We know it is a hard road,but you can get some real support here. I know you have probably been on the computer searching the websites for answers.They are good for stats ,but not for real support. If you get a chance please…
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Drs. Visit
I am back on the the same medicine that i was on in the beginninng for the thrush. but instesd of taking it for 5 days i take it for 14. blessings denise
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My Dad has not much time
Hello Family, I am a one year 49 yr old survivor of IIIB adenocarcinoma lung cancer, so I am doing well, NED at this time!....the issue is my dad. Stage IV, Large B-cell NHL, was stable for 4yrs, then slowing gained steam to this point. He has gone through two rounds of chemo, last one was R-chop, 6 mo ago. It did not…
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Got my release today!!
The transplant docs released me today back to my reg onc for followups. I am a happy camper. I called and left a message for them I need to see him next week but haven't gotten the appointment yet. I also don't have to be on the neutropenic diet any more YEAH!!! I am having a salad tonite, with unpeeled tomatoes and…
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University of Michigan
So, yesterday I went down to Ann Arbor to the University of Michigan to talk with a Lymphoma specialist. They told me my case was rare. That I have Nodular lymphocyte predominant Hodgkin’s lymphoma (NLPHL) It is one of the less frequent types of Hodgkin’s disease comprising about 5% of all cases of this cancer. They said…
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thrush
I have had this crap for almost 3 months now, i see the doctor in the morning, i have had the medicine pill form and 3-4 bottles of nystain my tounge really stings and its hard to eat i've lost about 20 pounds because of it i'm beginng to think its never going away. blessings denise
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Martha
Hi Martha, I was just wondering how your second day getting the rest of your first treatment went? I hope all went well and you are getting some rest. Take care...Sue (FNHL-2-3A-6/10)
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Time has come to face the dragon!
My name is Martha, and I am a 60 year old grandmother of 5 grandsons, and mother of 1 daughter and wife of 42 years to a wonderful and supportive man. Thats all the important stuff. My dx is fNHL, 3A, extensive involved lymph nodes, no bone marrow. Largest node 5.4 cm, others 3+. Thats my dragon. Weapon of choice R-CHOP to…
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Lisha
Hi Lisha, Just checking to see if you have come home yet, or still in Texas at MD Anderson. Keeping you in my prayers dear friend. Much love..Sue (FNHL-2-3A-6/10)
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Diets for Lymphoma
I am a newly diagnosed NH lymphoma(-tic). I am not obsessed, but do agree proper diet has its just rewards to most any malady. Does anyone have a proven diet, or just a list of what "to" and "not to" eat for lymphoma? Yes, I checked the i'net, but like most searches was deluged with yadda-yadda. Any and all suggestions are…
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Latest results from second opinion
Well the doctor i saw for the second opinion had me do lab cultures, and asked me questions from my medical history from 20 plus years ago, i was in nursing back then , i worked in hospitals doing patient care, he asked me if i ever had a positive TB result from the TB shot, i said yes i did but i was told i was most…
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Introduction
Hello all. I'm new here. Just wanted to give you a brief introduction and am hoping to receive some support and information from those of you (patients and caregivers) who have also been battling with lymphoma. My b13 year old son, Kiefer, was diagnosed with Burkitts NHL about a month ago. What we thought was tonsilitis or…
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Only 300 people in the USA have what I have..
I am at MD Anderson for two days for testing the dr told me there are only 300 people in the USA that have hodgkins LP like me... They are going to put me on R-CHOP and I am wondering if anyone has had that and what kind of symptoms they had with it... I have to admit I am scared and am hoping someone can tell me how it…
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After 20 years, a Lymphoma re-occurrance
Yes, I had Non-Hodgkin Lymphoma 20 years ago. I had a small relapse 5 years ago (I went on Chemotherapy for several months), but now it seems to have re-occurred. I don't even know the name of the type of Lymphoma that I have now -- it used to be called "poorly differentiated". I started to notice lumps in my groin area…
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Help with symptoms
Hi All, I am having some bad health issues and am getting nowhere with physicians. I'm 39 years old and was diagnosed with hodgkins 2b in 2007. I went through about 15 rounds of chemo and about 15 of radiation also. After treatment I was clear of all cancer. About a year ago I began having chest pain. A couple times I had…
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CHOP Chemo
Hello all I am wondering if anyone has had CHOP Chemo. My Dr thinks that is what I am going to be taking but I wont know until monday when I go to MD Anderson and I was really hoping for someone to tell me how it was for them. I am really scared to have to do Chemo and I am not sure how to take it. I have stage 1 type A…
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All finished with R Epoch treatments
I just finished my 7th (I had one exra) and final treatment of Re Poch for Large Cell lymphoma. Last Pet scan looked good - no active lymphoma. Now we wait and pray it doesn't come back. I still have CLL (Chronic Lymphocytic Leukemia) but that is still stable.
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To everyone, especially Johm
Hello all, I am pasting a copy of my post to John. John was so hurt that some of us haven't posted, or posted as much as before. I am not sure if everyone will read the post from me to John. Therefore, I just want everyone to know, I haven't forgotten anyone. I love all of you, and think of you often. See below under the…
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Checking in
Hi all, Just wanted to say a quick hello. I am feeling a bit bruised and battered, but okay. Very tired, nothing new as this seems to be my everyday normal. I am waiting for more appointments and some results. Hopefully I will have a better idea and a new plan. Beth, so so happy that you are home. Your strength and courage…
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Please respond to the post INTRODUCTION...
Hi guys, I'm still disturbed about a post that was submitted to our group last night from a young man going by the username of "Mofo". Many of you may not have seen it before it was removed by the moderator, but I'm concerned that Bryan may have read it. I think as many of us as possible should post a comment under the…