My name is Charles and Ihave been diagnosed with Waldenstrom's. Am interested in any persons or family memebers who are dealing with or who have delt with this type of disease. About to have Rituxan.


  • KC13167
    KC13167 Member Posts: 215
    Hi Charles,

    I haven't heard of your type of lymphoma, so google it, I did. The national institute of health indicates that there are only 1,500 cases in the US each year. I'm sure that if there's anyone on this site who is familiar with your type of lymphoma they will contact you. Due to the infrequency of your illness, I hope that you are being treated at a large cancer treatment center.

    Prayers to you and your family,
  • allmost60
    allmost60 Member Posts: 3,178
    Hi Charles,
    Welcome to the group. If you have questions once you start the Rituxan there are quite a few of us here that have finished taking it, or in the 2 year maint stage of treatment. I go in every other month for my infusion for the next 2 years. I just had my 3rd infusion 2 weeks ago. So far I'm doing good with the Rituxan. I also had Rituxan in my chemo protocol CVP-R, six rounds, which I finished in December. The CVP part was not fun, but totally doable. I hope everything goes well for you and wish you the best. Hope you come back and let us know how you are doing. Sue
    Follicular NHL-stage3-grade2-typeA-diagnosed June,2010. Age 60.
  • JoanieP
    JoanieP Member Posts: 573
    Hi I just finished my last maintenance of rituxin. It took 2 years and 8 treatments. They have been using this drug successfully for many years. I will be glad to answer any questions.