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Alternatives when Avastin stops working
My wife has just finished chemotherapy and has started maintenance phase with Avastin only. Literature indicates that Avastin stops being helpful after a matter of months, as low as 2 months to an average of 8 months or so. I would very much appreciate hearing from patients who have had Avastin therapy and are now on…
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Chemo and pulse rate
hello everyone. i am very happy to have found this forum. I just finished the third round of my chemo Treatments. And just noticed i am having a high pulse rate. Nothing below 100 and sometimes it goes up to 125. has anyone experienced this? Thanks from Switzerland James
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Immunotherapy For Stage IV Lung Cancer With COPD
Hello, I'm new here, sadly. My husband of 19 years was just diagnosed with stage iv lung cancer this past Monday. They found a mass on his right lower lung and what looks like cancer on the lining of his lung. Dr said there is no cure, only treatment to help. My husband is 70 and has severe COPD, he is on steroids and…
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extreme fatigue 9 months after lung cancer lobectomy
Its been 9 months since I had a upper right lobectomy for lung cancer. Im experiencing extreme tiredness and fatigue no matter how much rest that I get Im wiped out. Its been going on for months. I do have copd and am on oxygen, Could it be low oxygen? Emphesema in the remaining lungs ? Has anyone else experience the same…
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Loss of taste
Has anyone experienced a loss or alteration in their taste buds after surgery? I quit smoking after 39 years of 1 PPD since my VATS lobectomy. So far lost 12 pounds. About 1 per day. Please comment if you have some suggestion or experience.
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Bronchoscopy with biopsy or another CT in 3 months
I am asking on behalf of my husband. We received the results of his PET scan and CT w/contrast. Results were enlarged inferior hilar lymph nodes, mild metabolic activity SUV 3.2. Bilateral lung nodules, not metabolically active. No other abnormalities noted. He has been given the option of a repeated CT in 3 months…
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Irregular nodules
Hi Everyone, From your experience, what does “irregular Nodular opacities” mean? I have two in my right lung. One is 10mm the other is 16mm. They were picked up on a CT of my neck while dealing with a different health issue. Waiting for a chest CT. Thank you, Carrie
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Enhertu
My wife has stage 4 NSCLC lung cancer with bone mets. She survived first line chemo and hit remission against the odds. Late during a year of maintenance chem (also has immunotherapy), it came back in 7 spots... chemo was stopped and soon she found out she has the mutation to take the very new targeted chemo drug Enhertu.…
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Anger overwhelming
My husband of 46 years found out that he has non small cell lung cancer and I am homebound because of genetic eye disease and can't drive...he has to take himself to all radiation treatment and chemo treatments...he was in bad health with COPD and severe psoriatic arthritis and heart issues before the cancer diagnosis...we…
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Bilateral hilar lymphadenopathy
I was in the ER Saturday for what had been diagnosed as cellulitis 2 weeks earlier. I had many tests including a chest X-ray followed by a CT scan that showed bilateral hilar lymphadenopathy. It was suggested I follow up with my oncologist on Monday. He has suggested a PET scan. I was just wondering if anyone has had a…
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NSCLC Diagnosis
My wonderful mother-in-law was very recently diagnosed with stage 4 NSCLC. We are facing several treatment options and I thought reaching out to a handful of messge boards and forums might help us decide which path to follow. The basics are she has never smoked or drank - even on rare ocassions - a day in her life. At age…
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Lobectomy chest tubes
has anyone experienced numbness/burning sensations in breast and lower front rib area after chest tubes removal. It’s been 5 weeks after lobectomy and this crazy sensation is somewhat irritating. Thanks
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Help me help
My mother in law had her biopsy yesterday, though her Dr is sure it's cancer. Her pet scan 2 weeks ago found it in so many places, with the main mass in her right lung being 3.5 inches diameter. She is an amazing woman, my husband and her are extremely close, and I absolutely adore her and my father in law. I'm having a…
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Neuropathy months after radiation?
Hi All! I am having skin pain. I've taken Shingles medication with no improvement. I'm now on neuropathy medication with very, very little improvement. My skin on and under my breasts burns and the skin on my back does too. It's like a band of burning skin that follows my bra band. THERE IS NO RASH! Has anyone had anything…
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Staging question
My mom, 81 yo, has been diagnosed with stage 4 NSCLC (adenocarcinoma). It is in one lung and was found in a lymph node, so they believe it has spread, however they have done no further testing to see if and where it has spread. She has been hospitalized since June due to a lung infection (valley fever, the reason they even…
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Keytruda infusion as inpatient
Has anyone had an issue of being admitted to the hospital and the hospital refusing to administered the Keytruda as an inpatient? Have you ever heard of Keytruda only be administered as an outpatient? I have a friend who has been in the hospital for over 3 weeks. He's not well enough to be released but needs the Keytruda…
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Depression
Has anyone had problems with depression after treatment?
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Stage 4 Lung Cancer with Mets
Hi All, I’m new here today. I was told I have stage 4 lung cancer with Mets to the liver & brain .The ONC said I have 6 months without Treatment! No Biopsy yet .... I have to go for a Consult & Physical BEFORE the needle Biopsy. I wasn’t told this & Wondering “ why “. 6 months Without Treatment, I’m Scared to Death ! So…
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Alcohol and Lung cancer
Hello, I'm new to the site and searching for answers and help. My husband has small cell lung cancer - was diagnosed in 2019. A week ago he had a 4 day stay at the hospital on IV Lasix. Just prior to and after his stay, he is drinking heavily. He has wonderful care, and the cancer is "dormant". He's not been eating much…
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Xalkori/How long do I have to live?
I was diagnosed with non-small cell lung cancer about nine months ago. After one chemo treatment, my doctor said Xalkori (crizotinib) was the best treatment for me (250 mg. twice daily). A PET scan four months ago showed very promising results compared to my initial PET scan, but a PET scan a few days ago, after four more…
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anyone in stage 4 lung cancer remission ???
My father was just diagnosed with stage 4 lung cancer and the oncologist says that he could go into remission with the chemo. Is there anyone who has gone into remission after chemo ?? anyone ???
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Here for information during the waiting process
Hi all: About a month ago, my husband went for a CT calcium scan of the heart just as a preventative measure. A lung nodule less than 1cm was observed and a CT scan was ordered which found the following. Mediastinum - Right Hilar adenopathy/soft tissue 2.3cm Scattered bilateral lung nodules, 1.4 cm, no suspicious nodules…
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Narcotic pain meds after lobectomy
I had a lobectomy Dec. 13, with a huge open incision. I am still in so much pain, it's hard to breathe or be active, yet my doctor wants me to switch from percoset to regular over the counter tylenol. It's doing pretty much nothing. What has been your experience with a reasonable time to continue needing pain meds???
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Severe Dehydration Following 1st Round of Chemo / Immunotherapy - Similar Experiences?
Hello - in need of some experience and advice! Almost 2 months ago, my mother (72) was diagnosed with stage 4 adenocarcinoma in her right lung which metastasized in her brain and pelvis bone. About 3 weeks ago, she had her first chemo treatment session (2-part chemo cocktail + keytruda) and about 2 days after, she...took…
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Small Cell Lung Cancer
My dad has stage 4 SCLC. He will be starting chemo(again) & immunotherapy. Is anyone else in the same situation?
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Very cold air conditioning
Can very cold a/c be detrimental to a recovering lung cancer patient? Both my dad (at age 68) and my uncle (at age 71) died from lung cancer. My brother (age 61) now has been fighting it for 2y6m. The last 3 cat scans show cancer is in remission. His cancer numbers are up in the 70s. He has a hard time to breathe and an…
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Lyrica after lobectomy
I am 8 weeks post surgery for RUL Trying to wean off of Lyrica by taking it only at bedtime but it seems to put me in La la land and all I want to do during the day is sleep. How long does anyone stay on Lyrica for nerve pain? I’m thinking I’d rather deal with nerve pain rather than exhaustion. thank you, Miss Sultana
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Very cold air conditioning
both my dad (at age 68) and my uncle (at age 71) died from lung cancer. My brother (age 61) is now fighting with recovering from lung cancer. About 2y6m ago he was diagnosed with stage 3 lung cancer. He has had radiation and chemo and immunotherapy in the interim. The latest 3 cat scans have shown his cancer is in…
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Lung Cancer
I am looking for patients or survivors with lung cancer who have never been a smoker.
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6cm mass found in lung
I haven’t been diagnosed yet but a 6 cm mass was found in my right lung plus additional suspicious nodules. Anyone here have such a large mass.