Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Liver Cancer

Metastatic Liver Cancer
My mom is detected with metastatic liver cancer. Would appreciate if anyone could recommend some effective treatment.
Liver Ablation
I had liver ablation surgery on March 18th for a small hepatocellular cancer tumor. I am still in quite a lot of pain. I am not running a fever that would suggest infection. My surgeon seems dismissive of my pain. Has anyone in the forum had this procedure? How long did it take for your pain to get better? I am truly…
Recovering from Liver transplant
After 13 years of battling HCC with 3 recurrences and 3 previous surgical treatments for tumors at varying times, I was listed for transplant in Sept., 2018. After 6 months of waiting I received an MELD exception for HCC which put me high on the list for transplant. I received the call on May 7, 2019 and received my new…
Advance Liver cancer and "Folfox chemotherapy"
My Husband had been on "Nexavar" for two months but finally found out that his tumors are still growing and there are more spots on his liver. The oncology decided to stop the Nexavar and try to put him on "Folfox". Anyone who has same treatment, please response my post and I would be much appreciated.. Thank you...
NED 5/24/2018 and 2x scans/2yrs:1x scan 3 yrs
Hi, I went to a new doctor and he ordered blood tests, they came out looking good. I requested a gi specialist and was given a highly sceptical doctor who wanted to know why a gastrologist and not an onocologist was in charge of the tumor. So we did a cancer blood test and it came back no hep C and he said no cancer : )…
CT reveals liver lesions
Hello, For approx. 3 months, I have had severe right flank pain. Finally went to see the doctor and had an ultrasound and bloodwork. This was done in March. The ultrasound report revealed no kidney stones and nothing on liver. HOwever a uterine cyst is present and I have gallstones which the doctor does not believe is…
I won twice, working on #3 now.
After years of targeted chemo pills I won the battle against my cancer. NED 5/24/2018. Once a year check ups for 5 yrs, that's how confident my doctors are that I am a winner. And I started noticing things. Odors that no one else admits to smelling are phantom odors and will go away in 6-9 mos. Oh, and I personally stink,…
Lenvima
anyone heard or tried Lenvima for stage 3b invading portal vein?
Cirrhosis of the Liver
Hi Everybody I want to keep this short for right now. Approximately 3 years ago my wife was diganosed with breast cancer. She did the radiation treatments then went of Tamoxifen for the last two and a half years. Just recently out of the clear blue sky they informed her that she has stage 4 Cirrhosis of the liver. My…
What is a tumor marker and what do the numbers mean?
I see people talking about tumor marker numbers? What do they mean in reference to liver cancer?
Liver biopsy w/sedation
Hi. Tomorrow I undergo a liver biopsy. If you've experienced one, did it hurt? They will use propofol to put me under. Has anyone had this happen? Did they fully put you under or was there just a certain level of sedation? I'm very nervous. Please share your experiences. Thanks so much!
Please help What should I expect?
I am 29 years old and am currently taking care of my 66 year old mother. She was diagnosed with Stage 4 HCC on October 3rd, but had been experiencing Acites since end of august. She first went in because of bloating sotmach, they diagnosed her with HEP C. Then Cirhosis. Then the cancer (on oct 3). Unfortunaltey she does…
HCC, Portal Vein and Opdivo
I want to give you a brief history of my treatment. I have had a combined treatment of Y90 Radioembolization with Nivolumab. All my doctors say I am not in the textbooks or in uncharted territory. They really don't know what to offer me. My goal is first tell you my results and success and ask your knowledge and assistance…
Is it time for Hospice?
I am looking for some advice about whether or not it is time for me to arrange hospice care for my Dad. He is 77 years old and was diagnosed with liver cancer that had spread to the portal vein in April 2018. His first treatment was a chemoembolization that at first worked on the tumor in the liver but of course not on…
Apricot Kernels for cancer treatment
To All strong cancer surviors, This post is a ray of hope for my father who is suffering from metastatic bone cancer stage IV from liver. He was diagnosed with liver cyhrosis 4 years back. Things were pretty stable until he was disgnosed with stage IV metastatic cancer. He had been through radiation therapy in January. I…
Liver Mets with undetermined primary site
Hello everyone, new here. I have mets to my liver, however the primary site hasn't been found yet. Suspect is colon, however nothing has shown on the pet scans to confirm that. I had prostate cancer 13 years ago and had lung cancer almost 2 years ago. I had radiation only for a small single nodule in my right lung. Pet…
Colon cancer mets to liver
My MIL was diagnosed in April with colon cancer that spread to the liver. She has chosen not to have chemo. Can anyone tell me what to excpect? Scared/ Worried/ Shocked i dont even know how to describe me and my family right now. We would like to know what may be coming our way as she seems to be going down hill fast. She…
Had my liver cancer tumor surgery
and part of my right liver of lung cancer lymp nodes but it metablished into a lymp nodes next to the pancresis as a lymp nodes which I am active in chemotherapy but only giving months to live. I am trying other natural optioons such as hydrogen peroxide (food grade 30percent) Chuga tes, mangostein, cat claw and looking at…
Fibrolamellar Liver Cancer
My daughter was diagnosed with fibrolamellar hepatocellular carcinoma in August, 2000, when she was 19 years old. She had a liver transplant in October, 2000, and did fine until a metastacies of this same cancer was found on her lung in Sept of 2001. She had a lobectomy in Feb of 2002. She had a grapefruit sized tumor…
What to expect in the last stages
Hello. I do not know exactly where to begin this email or even if I am doing the right thing. My mother, who is 58, is in the final stages of primary liver cancer. On Wednesday 6/4/3, her physician indicated she has approximately 4-8 weeks to live. Last night, Saturday 6/7/3, she fell into a hepatatic (sp?) coma. Her…
Microwave with Y90
Hi everyone! I've been posting on the colon cancer forum more since my mom is stage 4 colon cancer mets to liver. But the surgeons removed the main colon tumor and we're now tackling the liver tumors. We had Y90 radioactive spheres put in for the liver tumors a few months ago (with not much results) and now they want to…
What is Stage 4 Liver Cancer
Could someone explain what it means to be in Stage 4 of Liver Cancer and what the odds of survival are? Thanks.
bile duct cancer /bilary cancer
My mil was dx w/ unresectable intrahepatic bile duct cancer (cholangiacarcinoma) in December 2008 & started chemo (gemcitabine & irinotecan) Jan '09. in reading about BDC, I've seen some note of a connection b/n BDC and gallbladder disease. My mil did have her gallbladder removed July '07. I was wondering, just as an…
HCC and Opdivo
I was diagnosed with HCC late in 2014 and since have had three TACE procedures and one RFA. AFP levels go up without anything showing on scans so now the oncologist wants to try me on Opdivo. Does anyone have any experience with this therapy? Side effects?
Should we try opdivo?
Hello everyone, My mom was first diagnosed HCC at year 2010, and then at 2012, 2014, May 2018, September 2018. Tumors were all small (all are about 1.0cm) at these 5 times, and thus we chose radiofreqency ablation operation to resect them. Because HCC relapses 2 times in past 4 months, her doctor believes that her liver…
Cholangiocarcinoma
I had whipple surgery for cancer in my common bile duct In November 2017. I am 8 months postop and now have large bowel cramps and colic after eating. My surgeon has ordered pancreatic enzymes 2 with each meal and snack. Has anyone else post whipple taken these and how long before they were effective?
Getting ready to start chemotherapy and radiation therapy and I am really scared. Any
Can someone give me some advice on how to calm my nerves down as well as my anxiety for starting this treatment. I am really scared.
Multiple Liver Metastases
Hello there My brother, age 68 who never smoked, no alcohol is diagnosed with multiple liver metastases ( two small and one big spot on his liver) covering spleen but not infected, as per CT scan report his kidneys, lungs, bladder, prostate and all other organs are free and normal, doctor requested a biopsy and waiting for…
Husband just diagnosed with HCC, has hep B and starting Nexaver
My husband was just recently diganosed with HCC due to his Hep B. They want to start him on Nexavar and do a possible ablation. We are going for a second opinion at the Moffit Center in Tampa. Does anyone have anything encouraging to tell me because all I read is dismal. He has a mass 6.5 x 6.5 on the left lobe inoperable…
How were you diagnosed?
I have a black patch on my right abdomen since many months.. and I have occasional pain in the back and near liver.. is this how it started?? I went to my skin specialist and he gave me a cream for 2 months... PS I m only 19 years old..

Liver Cancer

Discussion List

Discussion Boards