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New liver lesions
Hi everyone. I’m new here and really scared. I went to dr for pain right under right rib. Sent me for abdominal ultrasoun thinking I had gallbladder issues. They found two 1.5 hyperechoic hepatic lesions on right lobe. The radiologist notes may represent hemangioma although other etiologies could be considered in the…
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HCC and me
I was diagnosed last August with a 13cm tumor on the outer edge of my left liver. It was removed, I had a huge scar, it took about 7 weeks to fully recover, and in Zürich, where I had the surgery, they said I would most likely never get it again. I had absolutely no risk factors. Even though the cancer recurred very…
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Just lost my husband to HCC
On April 26, my husband died at home. This was a man who was incredibly diligent about his health care - annual physicals, blood tests, colonoscopies, endoscopies, the works. He had hig blood pressure and AFIB, which were monitored and managed well by medication. We lived (although we didn't like it much) on a 5 acre…
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how much does nexavar cost with insurance and copay?
how much does it cost on average ? ive heard you cant get it cheaply and if you do it will pretty much break you ? how much does it cost you a month is anyone experiencing the out of pocket cost ?
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Severe and unrelenting itching
Family member with liver failure has severe and unrelenting itching. Does anyone know of treatment fot the itching.
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Values for blood tests
My father has liver metastases from an Adenocarcinoma of Unknown Primary. In the past few weeks his jaundice is worsening. The doctors have frequently taken blood samples for various tests, mostly for liver function, and his results from last week are higher than ever. I'm not sure if anyone can answer this question, but…
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Cholangiocarcinoma
Does anyone have experience with bile duct, gall bladder, liver cancer? My husband has just been diagnosed and I am looking for advice on how to manage symptoms of bloat and gasiness . His main complaint seems to be abdominal discomfort. I can't seem to get the right combination of meds and/or foods.
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Portal vein tumor
My dad has been recently diagnosed with two masses in his liver and it has spread to the main portal vein. He is being seen at MD Anderson for treatment (which I haven’t been very pleased with, but I’ll save that for another time.) he has recently started nexavar and I’m just wondering if there is anybody that has a loved…
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Chemo Drug Rituxin & Hep B
Does Anybody have any information about the Link of recieving The Chemo Drug Rituxin ( For A Non Staged Liver cancer) for almost two Year ( since June 2016) and Now Testing Positve for the Hepatitis B Virus ( May 5th 2018) HBSAG Positive, was negative 11/16/2014, HBC T Positve was Negative 11/16/2014, AHBS 4/15/15 <3 .1,…
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RCC Mets to liver - Y90 Therasphere
My RCC mets to liver and lungs two years ago. The Sutent has been controlling them until the past three months. My lung tumors stayed the same but my liver have doubled in size. I underwent Y90 Therasphere last Thursday and go for followup scans in February. Had some bad side effects but feeling better after five days. Has…
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ocular melanoma and liver cancer
Hi Everyone, My mother-in-law has ocular melanoma which she was and is still receiving treatment for. We recently found out that the due to the ocular melanoma in her eye it has moved/spread to her liver and she currently now has stage 4 liver cancer. We have been giving options for treatment but, we are currently in the…
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Stage 4 HCC - starting new clinical trial
Hi all. Here's my brief history for reference. All treatment except chemo performed @ MD Anderson, Houston. Chemo performed @ home in Melbourne, FL. March 2010 - heavy pain in upper right quadrant caused me to see my GI doctor (i also have ulcerative colitis) which turned out to be a 20cm malignant tumor from HCC. No Hep A…
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Diagnosed with large mass liver cancer- terrible odds?
Hi, My dad was diagnosed with primary liver cancer (large mass 10x11x10 cm as of one month ago-perhaps bigger now but yet to have another scan). My dad was in good health (he did not have cirrhosis or hep c) but has lost a lot of weight in the last few months. I was wondering whether there is much hope here given the size…
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Why am I suddenly sharing information
Some people are wondering if I have come out on the discussion boards about stuff because I don't have much time left. Nope. Doing okay still. Tired because of a recent move to a better domicile, snowed in a bit cuz I live by the Great Lakes. All and all doing okay. I received a message from a daughter who needed…
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Side effects
I am on oral chemo target therapy. Recently my medication was changed to where my dr. says I need to stop all foods and beverages need to be water from 5pm until 10am. My chemo should be taken between 7:30 and 9:30. My doctors call it 'eating around your pill' when I eat between 5pm and 10am. I know I'm an adult, and as…
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Becoming Real
Since I was diagnosed with HCC in Decemebr 2014 I've felt like I have been just playing with having cancer, even though I had five tumors and initially given a year to live. Since then, i have had three TACE prcedures and one RFA performed, which have been very successful in shrinking or stopping growth. Prior to each…
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Long term Nexavar users
Just wondering how many Nexavar users there are out there who have been on it over a year+! And what side effects are bothering you now?
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Liver cancer pain
I was diagnosed 10/15 Have had a resection. Have had two other small tumors discovered, one agin in the liver and another in a lympth node. I do not qualify for a transplant. My ongoing problem is pain management. It seems in the current political evinonment this is a touchy issue but for those like me it is a horrible…
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Great news for HCC Patients
FDA approved the PD-1 inhibitor, nivolumab (Opdivo) for the treatment of hepatocellular carcinoma (HCC) after disease progression despite treatment with sorafenib. More here: http://cancerdiscovery.aacrjournals.org/content/early/2017/10/04/2159-8290.CD-NB2017-138.long
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Hilar cholangiocarcinoma
Hi, Last week, my dad (75 years) diagnosed with Hilar cholangiocarcinoma with preferential extension into the left ductal system. Doctor placed a stent in the bile duct to allow the bile to drain into the small intestine. Yesterday's PET scan revealed that his cancer has spread to lungs and Colon. Doctor not advised for…
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TACE and Chem Brain
I had 2 TACE procedures done on a Liver tumor. The tumor was 7.5 cm, shrunk to 4, then shrunk to 2. Transplant was successful 7 years ago. I have lived in a general fog last 7 years. 95% of Chem brain symptoms. Dr. think maybe a stroke but no evidence of stroke? I'm thinking Chemo slowly, continously seeped into my body…
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AFP levels
My husband was diagnosed with liver cancer in May 2016. He is currently being treated at Lahey Hospital in Boston Ma and has been evaluated through their transplant department. In September he had a chemo immobilization, since then his AFP levels have gone from 2,000 to 10,951 as of yesterday. He has had a bone scan and…
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I need some SUPPORT?
I've been the prime caregiver for my dad for almost a year since he was diagnosed with liver cancer. For about a week now he is going downhill, I have to change him, lift him and put him into his wheelchair, cook for him & take him to his appointments. I could use some support.
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SIRT Y90 for Liver Tumors - Any opinions/experience?
Hi, Came back from the hospital with a 2nd opinion from another oncologist. Mom has stage 4 colon cancer met liver. Been on a few chemo combinations for 2 years. Now this new oncologist says that mom is a good candidate for SIRT Y90 for her liver tumors. Anyone got experience with SIRT Y90? Any bad side effects? I did some…
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Cholangiocarcinoma
In August of 2007, I made an appointment with my doctor because my urine was bright almost neon yellow, my bowels were clay color and I would become very fatigued when I exercised. These were the first symtoms of the disease. Upon seeing my doctor, he told me my skin was very yellow, which I had not noticed and my tongue…
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Waiting results...CT question?
I have had abdominal pain for 2 months got me worried halloween went to ER..abdominal/ pelvis CT with out contrast was done and came back with nothing ....then 2 weeks later still that bloated can't eat abdominal pain and blood in stool ..back to ER had another CT with and with out contrast again and colonoscopy and…
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Can Anyone help me please reading this report
Hello, can you please help me understand this report. How bad is it? and how fast the liver cancer cells spread. I really appreciate any comments or suggestion. Thank you in advance.
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Liver and prostate cancer
Anybody have liver and prostate cancer at the same time, I've just been diagnosed with prostate cancer that's unrelated to my liver cancer. Liver cancer has been taced twice with successful results. Urologist wants my liver transplant team to prioritize me for transplant before prostate surgery. If not will come up with…
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Newly diagnosed HCC, surgical revision already done.
Wow-what a ride! First I had abnormal ALFP (already had Hep C) quickly followed by CT which found a mass and MRI confirmed HCC. Just two months since MRI and I've already had laparoscopic surgery to remove last week. Not a horrible recovery though I still need a little Percocet (almost out). Two questions: 1. Suggested…
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just had my first liver ultrasound
I have pics of the liver but I i can't tell much about them. It's going to be a long weekend. Can anyone scribe their ultrasound images? Thanks