Started to research kidney transplant

klarsen316a

Today I took a huge step in calling the hospitals that do kidney transplants that are within my insurance network. There were only 2.
My oncologist is not on board with me looking into a transplant. They aren’t sure yet (it’s been a year) if the nodules on my lung are cancerous. They are too small to biopsy without potentially collapsing my lung. There has been no change to the size or shape of the nodules in the year I’ve been on treatments. With having only my left kidney, I don’t see why I shouldn’t explore this option that my primary care doctor suggested. He thinks that the cancer is contained to the kidney only. But my oncologist is not in agreement.
My Tumor is currently at 73mm or 2.87 inches. Initially it was 11cm or 4.33 inches. So, treatments are working. But I’ve been taken off of the Lenvima as it almost killed me. They are now only doing immunotherapy as a treatment. If In 3 months, it hasn’t shrunk anymore or it grows, they will double up on immunotherapy. This also comes with risk of the immunotherapy attacking my good organs.
I’ve been told that the mass is too large for a partial nephrectomy.

Wish me luck on getting closer to getting this cancer out of me!

jazzgirl

Hi again I just saw this more recent post. I wish you luck and more. It's very good that you are proactive with your questions and research, being your own advocate. That is a major part any more of getting the best health care. Take care ~