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This one's for you Kimba :)
As you requested Kim I have changed my pic to a picture of my great grandson Maven. I'm always happy to show him off but sometimes I get carried away :) He's 10 months old now and walking...excuse me, he's running, all over the place so trying to get pictures of him can be a challenge sometimes because he doesn't stand…
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Face mask
Hi all, I am hoping some of you will have great advice. My mom in law is thinking of having cyberknife tx with the face mask for brain mets. Since I have not had to experience the face mask , as of yet, I thought of many of you and hope you can offer advice. This would be a treatment for pallitive reasons only. She is 84…
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Has anyone heard from ratface ?
I haven't been on as much as I would like, but has anyone heard from ratface? I haven't gone thru all the threads, but was just wondering. Dave
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The one best thing.
Many of you have read my intermittent Polly-Anna posts on here, chirping about survival and gratitude and being able to choke down sourdough bread. Well, here is another one. I had a revelation last night about "living in the moment." I can do it now. I am doing it. I've been doing it for some time now, probably since…
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Delayed reaction to Giants winning the World Series
We won!! Ironically I was in Texas at MD Anderson when they won and flying back to SF the same day they were. Needless to say I'm very proud of my team. It's been very inspirational watching them work so hard to accomplish something they never have. I had to change my tickets up to stay a day longer at the hospital and US…
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An AWESOME experience!
Warning: Long post (as usual for me) Two weekends ago I was privileged to be invited to go to the Wind River Cancer Wellness Retreat out in the foothills of NC. In a single hyphenated word... life-changing! You could also use words like 'amazing' and 'relaxing' and 'therapeutic' and 'needed' if you would like as well. What…
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NPC cancer recur
Hi, I finished my NPC (T3n0m0) treatment on August 2009. On 26th October 2010, my x-ray deteched the cancer cell in my lung. Further ct-can show metastases lump nodes in both lungs.The biggest one is 3cm. Need another 6 round of chemo. 1 round of chemo in every 3 weeks. Doc said treament is to control it and it may recur…
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Oct 30 makes a year
Hello everyone, I havent been on is quite a while. It got to be too much for me. No suggestions were working for my boyfriend in his recovery as far as food. He still does not eat solid foods. Oct 30 made 1 year that he finished his treatment. has had 3 or 4 follow ups, where the dr has poked, prodded, stuck things in and…
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facial hair
My radiologist told me that I will permanently lose my facial hair. I would like to know if this is true or not. I've always had a goatee or beard.
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Yes!!!! add 1 more to the NED list
3 months out now and had my 1st CT scan today and it's clean...NED It's always been a nagging thought in the further reaches of my mind that things have been too easy for me through this whole process and some bad news awaits around the next corner. But a big sigh of relief today. My recovery from treatment has been a…
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Delnative knew
Jim, I made the long-overdue trip to the University of Iowa hospital today to visit a Dental Specialist. He's just down the hall from the Otolaryngology center, and one floor right below the H&N Cancer Center, there. According to this Dr.- I shoulda been on the flouride trays right from the get-go, and that includes even…
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Two primary tumors
Has anybody on this board been diagnose with two primary site in the throat?
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Upper oesophical stricture
Hi I had squama cell cancer on my tonsil and received chemotherapy and radiotherapy. I am a year and 3 months on peg tube. I have upper oesophical stenosis and am only able to swallow a trickle of water. My oesophagus was unable to be dilated because it has gone so narrow after treatment and I was unable to swallow barium…
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Dry Skin
Whenever I take a bath,usually once a week, shower all of the other days (I am British I grew up in a bathtub, what do you expect?)LOL, I get white scaly skin on my hands and feet, little whit spots as well, goes away after a few hours, I do not get it when I shower, at least not as much, does this happen to anyone else?…
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Checking In
Hi all: Basketcase checking in here! Just got back from visiting my 92 year old aunt in Albany, GA (she's the one who lost her daughter, my cousin, in April) and spending the weekend with my brother (the only brother I've got left) in Thomasville, GA. Had a great time but good to be home. My aunt and uncle from Memphis are…
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It's been a year....
The doctor called me 1 year ago and told me I had cancer. On my son's 16th birthday no less. We were getting ready to go out and celebrate his birthday at a rest. called Champs. I said to him " are you telling me I have cancer and he said "yes. I sat thru the dinner with my son and husband and felt in a fog. Slow motion.…
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World Series!!
I've got five doses of Caphosol on the Giants to win tonight's game. In San Francisco! I could also throw some of those 4x4 pads with the slit for the feeding tube in. Any takers? Bob
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Wednesday was SUPPOSED to be my last day. :'(
So, at the beginning of all this they gave me a calendar that had all my aptmnts on it. Started in the beginning of September and went thru Oct 20. My finish line. So yesterday I went in all excited and the rad tech says"you're in a good mood today!" and I say "Well of course! It's my last day!" she looks at me a little…
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13 weeks out - PET results
Well, Glenn had his first PET scan and he's NED!! What really made him happy was his Rad Onc saying she would clear him for dentures just after Thanksgiving. They still see some swelling on the CAT scan and want another month. He still has a PEG tube and he's lost 65lbs, but he had it to lose. They're not worried about the…
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Second PET Completed
Happy to report that at 7 months out "There are no definite findings to suggest residual desease, and there are no FDG avid cervical lymph nodes identified". My original diagnosis was T4N2 SCC of the vallecula between tongue and vocal cords. My Rad/Onc gave me a referral to see a Lymphedema physical therapy specialist to…
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Tube out!
Monday morning my Gastro Dr. removed my tube. I am happy to report he yanked it out & there was no pain. He told me it would take a bit of time to heal however, it is not draining & is looking great! How long did you leave your dressing on it? I am changing mine daily & also use saline solution to clean it. I appreciate…
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ct/petscan
hi all I hope everyone is well I went for my ct/pet scan and was told no sign of cancer from my head to my toes thank God! now I have to work on healthy foods what kind of health shakes do some of you reccomend ? God bless
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Bob's PET Scan Results
Well Bob had his 1st post Cancer PET Scan last Wednesday....He did NOT tell me he had to go in on Friday for the results. I was asleep and heard him shower and get dressed..thought nothing of it until he said do I look ok? I said for what? He said I am going for my results...OMG I could not get up and get ready and dressed…
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Another new mbr
Hello all! I've been an "outsider" reading your posts since I was diagnosed with Stage IV tongue cancer. I've had my surgery and going into my last week of radiation and chemo. I finally decided to join to thank you all for your posts. I felt I wasn't alone and decided to join because there might be other "outsiders" like…
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ENT Visit
Hello everyone. I wanted to share with you what my ENT Doctor told me today and see if anyone else was told something similar. He saw a mass, but told me it looked flakey and puffy not like the scary cancer he saw before. Which in my mind seems like good news. He said he wanted to keep an eye on it and has me coming back…
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Vita-Stim Swallowing Therapy
Bob started this electrically stimulated swallow therapy this week. They put electrodes around his neck, wrap his neck in some other stuff, and then turn on this machine while he does swallowing exercises. Anyone else have this therapy and did it work??? He goes 4 days a week, 1 hour sessions, for four weeks. Note - he…
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Therabite versus OraStretch
I was under the impression that I was getting the Therabite to help with my jaw stretching. However, the package just arrived and is an OraStretch. I know the Therabite is good....does anyone know anything about the Orastretch???? I haven't opened it yet so can exchange it if necessary. Thanks.
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Never swallow again???
Hello, I live in a small Texas town just lucky enough to have an Oncology Clinic and a teaching hospital. I was diagnoised with stage 4 base of the tongue cancer with lymphnode envolvement, last Sept, 2009. I underwent cemo and radiation treatments. I wore a cemo pump 5 days a week and had radiation treatments 5 days a…
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Infected Computer
I got infected with a computer virus that redirected me to advertisement sites. There is a free program called ad-ware by javasoft that did fix the problem. I don't know where I picked it up - but I do visit this site a lot and we did have that problem with that spammer. I had to load the software onto a flash drive on off…
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Chemo for Base of Tongue
I am a 58 year old male that was recently dx with SCC - Base of Tongue as primary source. Noticed a lump on right side of neck in January of this year. My primary care doctor ordered a CT scan after my office visit. The results were unconclusive & I was told lump was benign. Dr said it was most likely a sinus infection &…