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Chemo trial waiting list????
What do you do when you are on a trial waiting list? How long do you sit and wait? My 35yr old fiance has been diagnosed with stage IV parotid gland cancer (salvitory gland cancer) in Aug 2010. The Dr pulled us off conventional chemo after 2 rounds and put us on a trial waiting list. What do we do if there are no trials…
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For Kimba and all who have scans coming up
Kim, Just to let you know thoughts and prayers are with you and Mark on Mark's scan this week, and to everyone who has scans coming up. Pat's scan is Wednesday and I know how stressed out I am. Here is to NED! Myka
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New here
Looks like I finally found a good place. My husband Doug was diagnosed with T1 N2 Stage4 HPV Type Squamish Cell Carcinoma of the left tonsil, with large left side tumor mass and invading lymph nodes We have already done the biopsies, have opted out of neck dissection and should be starting radiation-chemotherapy within the…
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For those of us with problems swallowing
I started my blog up on this site and posted a few recipes that I can actually swallow for any one that is interested. Just keep in mind that they are developed for my 'tastes' which is not much taste at all. Lol. Things still taste like salty wall paper paste to me. I also have two great kitchen tools that have made my…
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Back in the chemo saddle
Hey Guys, Just wanted to let y'all know I started back up today with a blast of Cisplatin and day one of 35 radiation. They installed wifi in the chemo room while I was gone so I am actually writing while getting chemo. I was hopeful that I wouldn't need to be back in this room but the protocol calls for what it calls for,…
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Newbie
My husband (50) was diagnosed with stage IVa throat cancer 2 weeks ago and just finished his first week of radiation and 1 day chemo. I've been reading through posts here and they have been so helpful (and hopeful)....I feel so blessed to have found this group to help us along this unplanned journey.......
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Moving Forward
I received excellent news today and just wanted to share. The results of my first post-treatment PET scan shows that I am currently cancer-free! This is the best news I've had in six months. I am so blessed! I am grateful that I have such a supportive wife (caregivers need lots of love), a loving family and a lot of…
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Graduation Day...I guess
Just wanted to share with everyone that today was my last rad treatment #33. I amout about one week off schedule. I had to suspend the treatment with only 4 left for a week when my neck became so burnt from the rads, (doctors orders). And yes, I though about not finishing, But all behind me now Yahooooooooooooooooooo!My…
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What Side effects do you have?
I am just curious about what different or the same side effects we are all facing. I have " Dry mouth, tingle in my finger tips and toes, constant stuffy nose, shooting feeling of electricity down my back that feels like it burst when it gets to the small of my back, ringer in the ears-not so bad anymore, fatigue from not…
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during radiation, i'm having trouble swallowing anything
Hey Guys. I am 28 and have Hodgkins Lymphoma and usually post on those boards, but I decided you guys might be more help with this problem. I have just finished up 6 months of chemo and am currently going through radiation treatments. The doctor told me I may have trouble swallowing but I had no idea it would be this bad.…
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HPV + WITH AGGRESSIVE TUMORS
Hello all and hope your evening is going well. I am one week post treatment and have way too much time to think about the future. I was wanting to know what your medical team may have said regarding the "aggressive nature" of your cancer. Pre surgery I was diagnosed T2N2M0 with my Right Tonsil being the primary. Once my 2…
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NPC survival side effect
I am from Malaysia. Detected NPC stage 3(T3N0M0) on June 2009. Already finished 35 radiation n 6 round of chemo since last August 2009. My side effect now is lack of saliva, fatigue and alot of phlegm. Recently, i encouter blood stain in my phlegm especially waking up in the morning. Check with ENT doctor, he give me 2…
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Parathyroid Cancer
Does anyone know where to search, discuss, explore options for individuals with parathyroid carcinoma that has now metasis to the liver and bone. I know its rare and its definitely cancer. Thanks!
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Cyberknife
I have done some research and the most I have found is that they do not recomend Cyberknife for tongue cancer. I had an MRI a few weeks ago and still have a golf ball size tumor on the left side base of the tongue, also one lymph node that is enlarged. I spoke with my Oncologiest on the phone Friday and he informed me they…
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How Long
How long before everyone started to feel better after throat cancer treatments. David is post 3 weeks and a half and feels terrible today. throat still hurts, thick mucus, week. Still on feeding tube, but drinks tea and water, still on the pain meds. He wanted to know how long before things will start healing in his…
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Hi from Chefdaddy
Hi guys and gals. I'm sorry for not posting for such a very long time, like everyone else here, my health has made several changes and reversals but I am now finally stabilizing and doing much better. My son, daughter, brother and myself were sent to Disneyland by the Make-A-Wish Foundation and we all had a wonderful time.…
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Not eating post round 2 of TPF
Buzz had two rounds of TPF induction chemotherapy for Stage IV BOT cancer. Both rounds put him in the hospital for a week each time. He had severe electrolyte imbalances and neutropenia with infection. So, we are not doing round 3 and are waiting to go to the chemoradiation phase soon. For now he is not eating! His throat…
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Hospital and Insurance Issues
Hyperberic Chamber was located in another Hopsital, I have had nothing but problems getting this hopsital to get B/C B/S of Michigan to get there payment, the hospital either can't give me info, last month they pulled my account, but they keep sending me bills for extravagant amounts. Blue Cross will pay for the treatment…
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How Did Everyone's Employer's handle your Cancer Situation?
I want to Know how everyones boss handled the situation with Cancer, Mine is slowly working me out the door, you no the one that has been a dedicated worker, and now feels the prize pony is useless.....I just want to hear, we hear about our own personal problems, but did it effect your job. I, like others here know we had…
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PET / CT Scan Preparation
Hi Everyone. As we have quite a bit of scanning activity and many questions I thought it pertinent to post the following. PLEASE NOTE: THIS IS MY OPINION BASED ON LOTS OF READINGS AND CONSULTATIONS WITH NATURAL THERAPISTS - SO PLEASE DO YOUR OWN RESEARCH ON THIS. THERE IS HOWEVER NO REAL DOWNSIDE TO TAKING THIS APPROACH:…
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Bloody ear discharge
Hi friends, I want to know if any of you experience bloody ear discharge post radiation treatment. I finished treatment in February of this year and for the past 3 months I have experience random bloody ear discharge. The ENT isn't concern and prescribed anti infection ear drop and fungal pills. Would appreciate your…
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2 months post treatment, swollen neck and water coming out nose
Hi all, I had written several times about 4-5 months ago, then life got in the way. Roger has completed his chemo (cisplatin) and radiation treatments. he had stage 4a base of tongue cancer that had spread down both lymph chains on either side of his neck, He just got the results of his new PET scan and nodes have…
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White Blood Cell Count
I am 10 weeks post rad for SCC at BOT and my internist is monitoring my lab work since my chemo oncologist discharged me. She just email me with results from todays lab and my white blood cell count is now 3.2 (down from 3.9 and 4.1 prior to that). I just left a message for the oncologist because I am concerned. Does…
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Stories of Hope interviewed me :)
I hope y'all find this inspiring: http://www.cancer.org/Treatment/SurvivorshipDuringandAfterTreatment/StoriesofHope/after-tongue-cancer-a-newfound-determination-to-succeed
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stricture update - great news
Hi all. I've been busy opening up our new psychotherapy office in town (a great milestone for me personally) but have been wanting to respond to Una's thread about her stricture. My stricture had completely closed. I see many people talking about their opening in centimeters (cm). 1 centimeter is 10 millimeters (mm, about…
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Thick mucus and sore throat
Dave finished all rads and chemo 8 days ago, ooooh yyyea! But the problem is the mucus seems very thick and is making him sick, and throat is so sore he has let up on taking fluids orally. Any suggestions for these 2 problems, and How long before it will ease off? The doc said rads would continue to burn him for several…
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Ring the Bell!
Today was my last treatment day and I rang the bell! Time to recuperate now.
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Even Polly Anna can have a bad day.
Me texting my child: "Sometimes I have these 'OMFG WTF did they do to me' moments. I am afraid the edema is going to choke me in my sleep and that I will have demented elf hair forever. I can't tell anyone because I will cry. And I really have nothing to cry about." My wise child texting back: "And then you remember that…
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Anyone here from the Stanford, CA area?
The son of a dear friend up here in the foothills has just been diagnosed with a Head/Neck cancer that is substantially more advanced than mine was. He'll be seeing the same doctor, Kaplan, who is treating me at Stanford Cancer Center. He, however, will have to get daily treatments at Stanford. Anyone have any leads on…
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How long until taste returned?
Hi all, There is lots of info here about people's experiences with salivary function, but I am really curious to know how long it was for you after treatment ended before your sense of taste returned to normal? Or if it ever did? Thanks! ~Dane