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2 year checkup
Im leaving early in the morning to MD Anderson for my 2 year check up. Still going every 6 months for check up, so Im hoping I have graduated to once a year. Say a prayer for a clean checkup. Sirena
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Good News From ENT
So i went for my check up today and the doctor told me that it looks normal and that i am healing fast. So i asked does that mean the cancer is gone and he says to me and my wife, " you are cancer free!!!!. " Which made me ask if i still needed to go for my PET scan tomorrow and he said not right now. You seem do be doing…
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I went to my ENT doctor today
Well today I went to get my post check up with the ENT and I also had my hearing test done. Lets say I pretty much failed the hearing test with the low and high pitches I cant really hear so my ENT doctor wants me to get hearing aids due the mount of damage was done with chemo and radiation and ENT doctor said the hearing…
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Good luck to Hondo...
As a new timer as of today on this Board i am an old timer for my cancer (at the base of my tongue}.. almost seven years ago and feel so at home reading all the problems we have and are going through..The radiation killed my cancer but at about five years out i found that it killed the lower left jaw bone so i had to have…
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Prayers for Hondo
Prayers for you, Hondo, as you make your trip to Mayo tomorrow. May they find the source of the pain and fix it. Good luck and please keep us posted when you can. Myka
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Micheal Douglas
I was trying to find that post about Micheal Douglas but I cant find it but anyways I just got back from dollar general picking up a few things and I was waiting in line to get checked out and I seen a newspaper saying Micheal Douglas only have 3 months to live and he at 139 lbs. Let me tell you he doesn't look the same…
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MY FIRST POST TREATMENT DOCTORS VISITS
Hello and hope everyone is well today. I met with my medical team today and looks like my healing / recovery will take longer than I thought. My ENT scoped me and is very pleased with all of the surgical sites and did not see anything of concern. He also looked at my vocal chords as he was surprised I still have no voice.…
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Neck pain and tightness after dissection
Hi, I'm pretty new to these boards. I was recently diagnosed with mucoepidermoid carcinoma and had the left floor of my mouth removed and grafted and a neck dissection on the left side of my neck on 10/13. I was wondering how it was for everyone else their pain and tightness in the neck area. I have alot of nerve pain and…
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pet results
I am happy for all that had good pets this month, and through this fight. I just got mine back and, well somone had to have a bad one and i guess it was my turn. At least my drs held something in reserve so we still have something to fight this with, like my kids say (wonder where they got this from) nothing in life ever…
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Basketcase checking in!
Hi all: Thought I'd better check in since I haven't for awhile. I'm leaving Wed. to go back to NC to Charlie's folks. I promised my mother-in-law I'd come back and get her Christmas decorations out and up for her. I've already put up my tree as we did this early since this time of year was so hectic for Charlie. I managed…
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What happens now?
Hello Everyone, It has been a long time since I have posted because quite frankly it has just been too hard to read all the blogs of where we were and where we are now. My husband was diagnosed on 6/1/2009 with tonsil SCC stage IV. He has been in treatment ever since and it just keeps spreading. Now it is in the liver,…
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Beware or be aware
Everyone should know during rad and chemo treatments, and even after you are subject to get thrush and hairy tongue. Doctors did not tell us to be on the look out for either and David has a case of both at 4 weeks post treatment. The signs are wite to yellow build up on tongue and soar throat. Very dry mouth also. When you…
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PET today for hubby of luv2cut1
Myka...know that I am thinking of you at Pat today as he gets his first post treatment PET. Mark said the scan was no big deal...didn't like the not eating breakfast...no coffee. He is taking it all in stride and is in no hurry to get results. That's just his way. Mixleader and Pam M have scans coming up too. My best to…
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Starting Treatment Again
Well I got my PET scan results back and I still have a tumor at the base of my tongue left side. My last PET showed hot spots on the right side also and now they are all gone. I talked to the doctors this week and I will have to start four sessions of chemo. Cysplatin this time, I had Carboplatin last time and boy did it…
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Wonderful news
David ate his first real food in over 2 months just now, I fixed him a bowl of oatmeal and he finished it all!! Wooohooo... This has got to be the happiest day in my life. It will only get better from here. Has his first pet will be in Dec and need prayers for an all clear. Hope everyone has had a good weekend and feeling…
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Cry cry cry
So I am 12 days post treatment and though I should probably be happy that the worst is over, for the past 3 days I can't stop crying. I feel like my quality of life is just terrible. I love my life, I have much to be grateful and happy for, but I can't stop crying. I miss food, I hate sneezing, yawning, or coughing because…
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Pet Scans
I was wondering what was meant by the term "full body pet scan" I was looking at the statement that came from the hospital, it stated "Pet Scan/Cat Scan" full body Sull to thigh. Wondering how much of your body do the scan, is it really from the top of your head to the bottom of your feet. The internet tells me it's from…
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Pulling Teeth
I need some advice for a friend - he was just diagnosed with stage IV throat cancer from smoking/drinking. I guess the treatment will be lots of radiation and some chemotherapy. As you all know, he and his family are in shock and, quite frankly, terrified. I've read a lot of your posts and am grateful for the advice I've…
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14 Months - Reving up!
Hi all, I have not been on CSN for quite a while. I have a lot going on, but you are always in my prayers. I have my PET Scan on Monday 11/15 at Mt Sinai, and am trying not to rev-up! I am planning to have this port-o-cath out of my chest in December, after I receive my CLEAN scan. I am in the midst of a divorce, and…
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How do you know when your body really is thirsty
Well 14 years out and I had a first. Last week I finally decided to trim our hedges; basically an all day event. Like all of you I carry my water everywhere but I also know that there are times (always) when my mouth is dry but unless I need to talk to someone, I may just ignore it for a while. Well I guess I ignored it…
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This Thanksgiving, among many things I am thankful for you.
It is the time of year when Thanks come to mind..This is my first Thanksgiving following treatment and diagnosis and it sure does change ones perspective. Among all the usual things I am thankful for (and you all know what I mean) I am very thankful for this board. I may not post all that much and am often brief, but just…
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AS CLOSE TO NED AS POSSIBLE!
Hi all, I want to thank each and every one of you for your well wishes and prayers this week. Pat had his scan on Wednesday and got results today. He has CLL also, so he will never get a complete NED, but it appears that there is NED for the head and neck cancer! We feel so lucky and so blessed and I thank you tremendously…
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swelling
hello everyone, haven't been online in a while due to computer problems. Mike had his PET/CT scan & it was inconclusive. the dr said there was so much edema,they couldn't get a clear picture. They also said that there was some activity that they were concerned about. Mike's had an infection in his neck that's been leaking…
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Parotid Gland Cancer - Stage 4
I am 44 year old female and found out 2 weeks ago that I have cancer of the parotid gland. 3 months ago I went to my primary care doctor because of pressure in my right ear and what I thought was a swollen gland. Thinking it was a possible ear infection starting, I took antibiotics twice, but nothing changed. My ENT sent…
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Chocolate chip cookies...
When I was about three weeks into the cisplatin and rads, a family friend sent over a batch of chocolate chip cookies. They smelled fabulous. However, taking a nibble off the edge of one of those suckers was like filling my mouth with parafin wax. No flavor at all. Hurt to chew. Stuck to my teeth. Felt like glass on my…
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radiation graduation friday and THANK YOU!
I was told today that my last radiation treatment will be on friday! I am so excited to finally get to a point where I can rest without having to get to the cancer center everyday. I love the way I have been treated there, but I am so tired. I just want to rest! I am doing a happy dance...with all the side effects I have…
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PEG couldn't be placed....anyone else have that?
My husband went in to have his PEG inserted today, but after they attempted the procedure the doc says that he can't do it. We were told that his stomach sits too high and that he has a small hiatal hernia. If they placed the tube it would be right under his sternum and that would be too uncomfortable. They gave us two…
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US Marine Corps ~ 235th Birthday
Tribute to my fellow Marines and to all of the men and women who have served and are serving our beautiful country...salute!!
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First Visit to Regular Doctor
My dad had his first visit to his regular MD since his treatment ended. He had to go back on his blood pressure meds, but at a lower dose. The doctor told him that his diabetes is under control. The only area of concern was his sodium level and it was pretty low. What happens when your sodium level gets low. What kind of…
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Reflash post treatment
In the sixth year of remission after the treatment for NPC, I recently had rash in my whole body resulting in an emergency visit. The rash was similar to the one I got when I received the first dose of cisplantin during the treatment. Emergency room doctor said it was caused by my body’s allergy reaction. Has anyone…