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Blood Transfusions
My mother was diagnosed a few months ago with Stage IVa throat cancer. Since then she has undergone 33 rad treatments and only 3 cisplastin instead of 6 due to her blood levels dropping. She was admittfed on wednesday for the 3rd time due to dehydration. Her body is rejecting any form of nourishment regardless of what…
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Dentures
I have a quick questions for those of you that had dentures prior to treatment or need to get them after completion. My dad has had dentures since he was in his thrities due to a car accident. He had to stop wearing them prior to treatment because of pain from the cancer. He know is wondering when he should get new ones.…
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Back again
Two hour drive to the hospital for a check up. Probably nose scope. Then two minute chat. Then two hour drive back home xxxo
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Up date on Me
Just came back from Doc, everything is the unchanged, I found out today, that the First Doctor and Nose and Throat specialist, who did the implant last September of 2009, trimmed my l/s Larnyx, which my voice is now crippled, I asked the Doc today why my tumor wasn't noted after the 5 tests he did, before he carved into…
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Biopsies
Hi All, My wife went today for needle biopsy on her thyroid. She has 2.7 x 1.5 tumor. I hope it is nothing and we should know the results by Wednesday. Please keep her in your prayers. I have a scan on the 7th, but I don't think there will be any sign of the c. I just don't know if I can take care of her as well as she did…
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Clean!!!!!!!!
I just got the results of my Saturday scan, which was my first PET/CT after surgery and rads and I am NED!!!!!!!!!. Am I typing OK? It is hard to type when you are laughing and crying at the same time and jumping up and down and dancing. This feels so good I can't even describe it. I hope and pray that everybody else gets…
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Wah - No Donut for Pam
Well, I WANTED to be in the club of cool kids getting PET and CT scans in November. Doc's office called Friday, and told me that my insurance company will not OK a PET for tomorrow, just a CT. I'm bumming. It's my understanding that a PET will show cancer too small to show up on a CT. I was really hoping for the more…
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2 year checkup
Im leaving early in the morning to MD Anderson for my 2 year check up. Still going every 6 months for check up, so Im hoping I have graduated to once a year. Say a prayer for a clean checkup. Sirena
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Good News From ENT
So i went for my check up today and the doctor told me that it looks normal and that i am healing fast. So i asked does that mean the cancer is gone and he says to me and my wife, " you are cancer free!!!!. " Which made me ask if i still needed to go for my PET scan tomorrow and he said not right now. You seem do be doing…
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I went to my ENT doctor today
Well today I went to get my post check up with the ENT and I also had my hearing test done. Lets say I pretty much failed the hearing test with the low and high pitches I cant really hear so my ENT doctor wants me to get hearing aids due the mount of damage was done with chemo and radiation and ENT doctor said the hearing…
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Good luck to Hondo...
As a new timer as of today on this Board i am an old timer for my cancer (at the base of my tongue}.. almost seven years ago and feel so at home reading all the problems we have and are going through..The radiation killed my cancer but at about five years out i found that it killed the lower left jaw bone so i had to have…
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Prayers for Hondo
Prayers for you, Hondo, as you make your trip to Mayo tomorrow. May they find the source of the pain and fix it. Good luck and please keep us posted when you can. Myka
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Micheal Douglas
I was trying to find that post about Micheal Douglas but I cant find it but anyways I just got back from dollar general picking up a few things and I was waiting in line to get checked out and I seen a newspaper saying Micheal Douglas only have 3 months to live and he at 139 lbs. Let me tell you he doesn't look the same…
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MY FIRST POST TREATMENT DOCTORS VISITS
Hello and hope everyone is well today. I met with my medical team today and looks like my healing / recovery will take longer than I thought. My ENT scoped me and is very pleased with all of the surgical sites and did not see anything of concern. He also looked at my vocal chords as he was surprised I still have no voice.…
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Neck pain and tightness after dissection
Hi, I'm pretty new to these boards. I was recently diagnosed with mucoepidermoid carcinoma and had the left floor of my mouth removed and grafted and a neck dissection on the left side of my neck on 10/13. I was wondering how it was for everyone else their pain and tightness in the neck area. I have alot of nerve pain and…
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pet results
I am happy for all that had good pets this month, and through this fight. I just got mine back and, well somone had to have a bad one and i guess it was my turn. At least my drs held something in reserve so we still have something to fight this with, like my kids say (wonder where they got this from) nothing in life ever…
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Basketcase checking in!
Hi all: Thought I'd better check in since I haven't for awhile. I'm leaving Wed. to go back to NC to Charlie's folks. I promised my mother-in-law I'd come back and get her Christmas decorations out and up for her. I've already put up my tree as we did this early since this time of year was so hectic for Charlie. I managed…
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What happens now?
Hello Everyone, It has been a long time since I have posted because quite frankly it has just been too hard to read all the blogs of where we were and where we are now. My husband was diagnosed on 6/1/2009 with tonsil SCC stage IV. He has been in treatment ever since and it just keeps spreading. Now it is in the liver,…
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Beware or be aware
Everyone should know during rad and chemo treatments, and even after you are subject to get thrush and hairy tongue. Doctors did not tell us to be on the look out for either and David has a case of both at 4 weeks post treatment. The signs are wite to yellow build up on tongue and soar throat. Very dry mouth also. When you…
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PET today for hubby of luv2cut1
Myka...know that I am thinking of you at Pat today as he gets his first post treatment PET. Mark said the scan was no big deal...didn't like the not eating breakfast...no coffee. He is taking it all in stride and is in no hurry to get results. That's just his way. Mixleader and Pam M have scans coming up too. My best to…
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Starting Treatment Again
Well I got my PET scan results back and I still have a tumor at the base of my tongue left side. My last PET showed hot spots on the right side also and now they are all gone. I talked to the doctors this week and I will have to start four sessions of chemo. Cysplatin this time, I had Carboplatin last time and boy did it…
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Wonderful news
David ate his first real food in over 2 months just now, I fixed him a bowl of oatmeal and he finished it all!! Wooohooo... This has got to be the happiest day in my life. It will only get better from here. Has his first pet will be in Dec and need prayers for an all clear. Hope everyone has had a good weekend and feeling…
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Cry cry cry
So I am 12 days post treatment and though I should probably be happy that the worst is over, for the past 3 days I can't stop crying. I feel like my quality of life is just terrible. I love my life, I have much to be grateful and happy for, but I can't stop crying. I miss food, I hate sneezing, yawning, or coughing because…
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Pet Scans
I was wondering what was meant by the term "full body pet scan" I was looking at the statement that came from the hospital, it stated "Pet Scan/Cat Scan" full body Sull to thigh. Wondering how much of your body do the scan, is it really from the top of your head to the bottom of your feet. The internet tells me it's from…
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Pulling Teeth
I need some advice for a friend - he was just diagnosed with stage IV throat cancer from smoking/drinking. I guess the treatment will be lots of radiation and some chemotherapy. As you all know, he and his family are in shock and, quite frankly, terrified. I've read a lot of your posts and am grateful for the advice I've…
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14 Months - Reving up!
Hi all, I have not been on CSN for quite a while. I have a lot going on, but you are always in my prayers. I have my PET Scan on Monday 11/15 at Mt Sinai, and am trying not to rev-up! I am planning to have this port-o-cath out of my chest in December, after I receive my CLEAN scan. I am in the midst of a divorce, and…
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How do you know when your body really is thirsty
Well 14 years out and I had a first. Last week I finally decided to trim our hedges; basically an all day event. Like all of you I carry my water everywhere but I also know that there are times (always) when my mouth is dry but unless I need to talk to someone, I may just ignore it for a while. Well I guess I ignored it…
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This Thanksgiving, among many things I am thankful for you.
It is the time of year when Thanks come to mind..This is my first Thanksgiving following treatment and diagnosis and it sure does change ones perspective. Among all the usual things I am thankful for (and you all know what I mean) I am very thankful for this board. I may not post all that much and am often brief, but just…
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AS CLOSE TO NED AS POSSIBLE!
Hi all, I want to thank each and every one of you for your well wishes and prayers this week. Pat had his scan on Wednesday and got results today. He has CLL also, so he will never get a complete NED, but it appears that there is NED for the head and neck cancer! We feel so lucky and so blessed and I thank you tremendously…
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swelling
hello everyone, haven't been online in a while due to computer problems. Mike had his PET/CT scan & it was inconclusive. the dr said there was so much edema,they couldn't get a clear picture. They also said that there was some activity that they were concerned about. Mike's had an infection in his neck that's been leaking…