update

sue5749

Hello everyone, just a brief update on my husband. We went to a meeting this morning had a appt. at 7 am. About four of the docters came in and felt my husband neck, and they all went over his med records. Then his ENT doctor came back in and said " Well, it looks like the cancer is still there the 33 rad treatments and 12 cemo treatments that you have had did not get the cancer, the treatments did make the tumor smaller but it is still there, and he is to high a risk for surgery because he is a liver transplant patient" So I asked " so what do we do now? He said " We could do some more cemo this MIGHT help" So he ordered my husband to have a barium swallow test done, also some blood work, he said with all the rad treatments his thyroid might not be working like it should. My husband was complaining about dizzy spells. Then he wants his to go talk to another cancer doctor. So this is where we are at now. My husband is not talking that much, might be depression. He has been through alot the past 8 months with the track, feeding tube, and all. He at least wants to get to get back to eating food again. Not very good news, makes everything feel like, well I don't know, just so sad, mad, all the feelings you all know about. Husband yells at the way I',m driving. I forget half the time how to get to point a and b it's all so much to take in. Trying to figure out what doctor is where. And going on half the sleep. I try and not say anything just go and do. I guess that about all anyone one of us can do at atime like this. Half the time I don't know how to spell, just want to talk, or vent, as I know everyone on this sight is going trough just about the same thing, or has gone through the same thing? Anyway, I am going to close my eyes right now, it's only 3:30pm but I have been up since 5 am, took hubby for his blood work, then went to Wal-marts, washed a load of cloths and ironed them. Hubby is asleep on the couch and I am getting ready to close my eyes and rest. This IS a good thing!

Pam M

Hanging Tough
I hope you're snoozing while I'm typing. Sorry the docs didn't leave you feeling more secure. It's understandable you're feeling the strain. I was often stressed during treatment, and I was making visible progress, and tolerating treatment well, and was surrounded by optimistic, supportive medical personnel. I wish his ENT would go into detail about "too high a rish for surgery". Hopefully the next cancer doc you all see will have a different opinion, or at least give you more info, and help you be active in the struggle. Do you have any family nearby? An in-person support system? You know, when people ask what they can do to help, only some of them are hoping you'll say "No". Many times, when someone says that, they will feel better if you let them help. I hope you can find a way to re-energize. Today's nap (assuming you got it) is a great thing. You don't need me to tell you (but I will anyway - I'm like that) that you'll be best able to take care of him if you take care of yourself.

Hondo

Pam M said:

Hanging Tough
I hope you're snoozing while I'm typing. Sorry the docs didn't leave you feeling more secure. It's understandable you're feeling the strain. I was often stressed during treatment, and I was making visible progress, and tolerating treatment well, and was surrounded by optimistic, supportive medical personnel. I wish his ENT would go into detail about "too high a rish for surgery". Hopefully the next cancer doc you all see will have a different opinion, or at least give you more info, and help you be active in the struggle. Do you have any family nearby? An in-person support system? You know, when people ask what they can do to help, only some of them are hoping you'll say "No". Many times, when someone says that, they will feel better if you let them help. I hope you can find a way to re-energize. Today's nap (assuming you got it) is a great thing. You don't need me to tell you (but I will anyway - I'm like that) that you'll be best able to take care of him if you take care of yourself.

Hi Sue
It’s not easy being a caregiver as your going through your husband cancer is the same as him. I am sorry because when I read stuff like this I too remember not always being very kind to my caregiver and now I realized just how much I needed her and could not have done it without her at my side. I am not sure where you are doing your treatment at but I agree on looking a second opinion. Hope you get the rest you need.

Take care
Hondo

tesa

Hondo said:

Hi Sue
It’s not easy being a caregiver as your going through your husband cancer is the same as him. I am sorry because when I read stuff like this I too remember not always being very kind to my caregiver and now I realized just how much I needed her and could not have done it without her at my side. I am not sure where you are doing your treatment at but I agree on looking a second opinion. Hope you get the rest you need.

Take care
Hondo

Sue I am so sorry about your
Sue I am so sorry about your situation. I too am a caregiver..my mother is a cancer patient who has had a recurrence after completing surgery and radiation just 8 months ago.
They are seeing if she can have surgery because of her age...that is the only option because we were told today that chemo doesn't work at all with this type of cancer.We were told by a first doctor that she can have it, so get a 2nd or 3rd opinion.

Where are you guys being treated?
If you need a friend to talk to in a similar situation please email me at gcooper242@yahoo.com.

I'll be praying for you both.