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almost 3 months out
almost three months out and my husband has not been feeling well and he is kinda hoarse and his throat hurts more than usual. He said "I thought all this was behind me and now I feel like I am getting worse". Anyone else experience this kind of setback, so far out?
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Sleep All The Time
All my hubby wants to do is sleep, is this normal, I worry so much about him, he says I am fine just let me sleep. He eats very little and is so skinny. 4 months how much longer before he is able to stop feeling so weak. Linda
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Scan question. Type and frequency.
When i first finished treatments, I had 2 pet scans. One at 2 months and one at 4 months. The next schedule scan was at 7 months and the insurance company balked at pet scans and they were replaced by mri of head and neck and a cat scan of chest. Those have been my tests every 3 months since. I am now a year and 6 months…
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hypopharyngeal cancer and post-treatment neck pain
Is there anyone on this board who had hypopharyngeal cancer and then had back-of-neck pain after successful treatment? Jim's treatment was radiation and chemotherapy, no surgery, no neck dissection and was completed a year ago. He has had two nerve blocks to treat the pain from nerve damage directly behind and what seems…
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Court Case ruling..What do you think* Xrated*
I thought I would share with you a HIGH PROFILE civil case that was tried here locally. Verdict was received today. This is a cancer story, not head and neck. (well maybe) A gentleman has surgery by an urologist to be circumcised. When the doctor started the procedure he discovered that the patient had cancer and removed…
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Glossectomy & Stoma
Has anyone had a full Glossectomy, Radical Neck Dissection & Laryngectomy Stoma? My husband has this as his last choice from the Stanford Tumor Board. We are searching for survivors who can inform us what to expect during and after recovery. Any advice and info is greatly appreciated. Sending love to all who have to go…
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Try again - Vacation
Last time we went on a cruise I got a butt kicking case of pneumonia (aspirated food - again - into lungs). Well Carnival is leaving Mobile Al in October so we figured we'd better take this last cruise before they depart. Then we are off to Fla for grandson's birthday and hopefully I get to meet Skiffen and see who can…
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Scan anxiety and the wait
A couple of weeks ago I had a soft tissue CT scan of my neck and the reading noted some "bumps" "possibly post surgical" etc. etc. so a folow up P.E.T. scan was ordered. SInce I hadn't had one since last November this was over due anyway. So the scan comes on a Thursday with a three day wait after that to get the results.…
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Maybe that'll end it
Forum Spam, whould've thunk. best, Hal
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Thyroid Math...seems to leave me still sleepy and cold.
Well here are the numbers... Test Result Reference* TSH 2.29 .49-4.67 Normal Total T4 7.1 4.7-11.7 Normal Free T3 2.16 1.45-3.48 Normal (lower end) Free T4 .9 .7-2.2 Normal (lower end) *I realize that reference numbers may vary between labs. My numbers suggest that all is well...or wellish, however I remain FREEZING.. even…
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Biologic therapy vs, chemotherapy
My husband has Tonsil Cancer that has travelled to two lymph nodes (no where else so far). The oncologist wants him to take erbitux along with his radiation instead of the chemotherapy. Can anyone give me their experiences and / or thoughts?
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Diamox
I have been on Diamox for about 5 or 6 months, it was to help with the excess water build up on the brain, now that I am off of it everything taste like salt. For a while I was thinking my wife is just using too much salt in everything. But now even my bottled water tastes salty, the Diamox made all my food taste different…
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tongue pain
I thought yall might have sone insight as to when my tongue would quit burning? i am 13 weeks past treatment and anything i eat still burns my tongue. I tried to eat eggs this morning and they burnt. I dont know if its the texture (which feels like sand) or the burns on my tongue that are just still sensitive. I really…
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encouragement
Hi everyone, My mom was diagnosed with cancer in July - squamous cell carcinoma. The cancer was on the back of her tongue, spread a little to the floor of her mouth, and to some of the lymph nodes on her neck. She was a heavy smoker, but she quit about 4 years ago. Her getting cancer has been a fear of mine since I was…
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saliva
My husband had about 70% of his tongue removed,and 36 lymopnodes. He then had 33 rounds of radiation. I was wondering if anyone could tell me aprox. how long it takes for the saliva glands to start working. Thank you.
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Chef daddy Mike Son Up-date 8-23-11
Mike called a short while ago to up-date me on his Sons condition. They were able to do the bone marrow test and it showed that the leukemia is no long in there, but his Liver has stopped working. If you remember I posted about his heart running supper fast, well that was because of the liver not working, his heart just…
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What is Jevity
I hope this isn't a silly question. Is this the food used for the feeding tube? If so, where do I buy it or is it by prescription? My husband will have the tube in on Tuesday. Sorry for sounding so silly not knowing what this is. Is this like Ensure? Thanks, Donna
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Bad couth need help
Along with my other problems like dry mouth and can’t swallow Since Radiation I have a couth it is worse in the morning but I have through the day bad again late afternoon I couth up flame like you do with a chest cold sometimes I don’t have control over it I couth and it goes in the floor or on me has anyone had this…
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Pet Scan Results
Doctor just called said no sign of cancer in tonsil, node, or whole body area. But Steve did have a spot on his right face show up the first time he had a pet scan, so they rad it to. ENT & Chemo doc think this is a false reading, no this pet scan has lite up a small area again. Doctor said it could be inflamation, or…
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Has anyone heard from Jeepman?
I was just wondering if anyone has heard from Jeepman? I have not seen him post in awhile.
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What if caregiver gets cancer? update 8/25
Went to doctor for CT result yesterday, just couldn't wait over a week. CT clear but since I found the lump on my tongue refered to ENT ASAP. See ENT this afternoon. Please pray it is something else other than cancer. Debbie OK, I have not posted this question sooner because I know you all will tell me that it aint cancer…
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Ray the hypochondriac
Lost one salivary gland through Scc damage just had my first 4 Radiation treatments but I am so dry my tongue is not sticking its sliding over the roof of my mouth. I know we are all different as each body is probably like a snow flake,unique. I do think this might be a bit early.
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Smoking
My husband finished treatments on April 20, 2011 for SCC of the left tonsil hpv. His doctors told him this was caused from HPV and not smoking, so what does he keep doing, smoking, does anyone here still smoke after treatment, and does anyone have any comments on how I can help him to quit. I quit when he was diagnosed,…
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First Pet after treatment
Steve goes in for his pet scan tomorrow at 9:45, I am not going to lie, I am scared. I know how mean cancer can be, saw take a great man before, I know the doctors say Steve has a 80 percent chance of being cured, but damn it, I am scared, please pray for me to have the courage to smile and show him the braveness that I…
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waiting is the hardest
Here I set waiting for Steves pet scan results, we called and she said they are typing them up and will have the results this afternoon. Steve is taking a nap and here I set with a million things running through my mind. Why can't I stop being scared, I hate this feeling, I know his out look is good, the doctors can't even…
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eating again
For the last three days Steve has been eating with me, he has cleaned his plate, and even asked for seconds on my salad. God is good, I feel I can breathe a little better each day. I try to keep up the brave front for him, but after watching my first husband pass on from cancer, the old fright returns. Steve is not just my…
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smells
I know everyone is different, but has anyone continued to have an aversion to cooking smells? Jim has gotten sick from food smells from day one so I have had to eat fast food or take out for the last two months. If you had this problem, how long before it went away? I am craving home cooking and the expense is putting a…
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One Year Tomorrow
Dear CSN Buds: Tomorrow the 21st will be one year since Charlie passed away. I'm getting ready to leave here and go to NC and be with his family. I can't say it's any easier being without him and I miss him more than ever; but because of folks like y'all I've managed to get to this point! Truly y'all have been so wonderful…
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Still kickin'...just not as high
Thank you all for your posts. Sorry I have not posted earlier, but have been feeling a bit numb. The good news is that no disease was found in the neck. Even the hot spot they were watching is no longer visible. Hooray! Unfortunately, there is a questionable site in my right lung. I will be going to Mt Sinai for a needle…
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How far out were you when were you able to eat regular food again?
My husband completed chemo (taxol & carboplatin, 9 times, once a week) last week. Yay! He has 9 more rads (of 34) and he's finished! What a happy day that will be! :) He has lived on 3 high calorie, high protein shakes a day & has been able to keep the weight on without a peg. He is wanting to eat regular food so bad. When…