Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

Salagen????
Is there any thing better than Salagen I’m not producing any saliva I have been taking Salagen for 2 ½ mounts and it’s not helping. I had my throat dilated yesterday and the Doctor said I had a lot of damage to my throat from the radiation and it want help much until I can produce saliva anyone got any suggestions.
Glutamine
My husband has been using a product called juven since the beginning of his finding out about his cancer. It has glutamine in it which I read a lot about on this site as being so beneficial to maintaining lean muscle tissue. It also has arginine in it which is another amino acid. Does anyone know if arginine causes mouth…
Starting to feel like a real member LOL
just finished second week radiation from upper lip to below collarbone right across. Cancer op site feels raw and wisdom teeth op sites feels raw inside of right cheel is swollen and raw,and throat is really starting to hurt, tongue slides on roof of mouth as its not even sticky. Don,t take this the wrong way just stating…
Thrush
We have been batteling thrush now for over a month are on the 3rd bottle of antibiotics.Dr has been giving him fluconazole,has anyone heard of this med and has anyone hed better luck with another med. Thank you.
Distressing news (anxious on timelines)
hi, I recently discovered a lump in the right of my neck in July. I went for CT, PET and fine needle aspiration. The fine needle aspiration confirmed (poorly differentiated squamous cell carcinoma). I previously had colorectal cancer in 2008 so it was devastating to hear this news again. I hear that this cancer is…
Caphosol
Hi everyone, My husband is using Caphosol and it works great, however, it is very expensive. I've seen where folks have been lucky enough to come across someone that had some products leftover/couldn't use and passed it on to another patient. Is there a place here in CSN where I could check for something like this? Best…
almost 3 months out
almost three months out and my husband has not been feeling well and he is kinda hoarse and his throat hurts more than usual. He said "I thought all this was behind me and now I feel like I am getting worse". Anyone else experience this kind of setback, so far out?
Sleep All The Time
All my hubby wants to do is sleep, is this normal, I worry so much about him, he says I am fine just let me sleep. He eats very little and is so skinny. 4 months how much longer before he is able to stop feeling so weak. Linda
Scan question. Type and frequency.
When i first finished treatments, I had 2 pet scans. One at 2 months and one at 4 months. The next schedule scan was at 7 months and the insurance company balked at pet scans and they were replaced by mri of head and neck and a cat scan of chest. Those have been my tests every 3 months since. I am now a year and 6 months…
hypopharyngeal cancer and post-treatment neck pain
Is there anyone on this board who had hypopharyngeal cancer and then had back-of-neck pain after successful treatment? Jim's treatment was radiation and chemotherapy, no surgery, no neck dissection and was completed a year ago. He has had two nerve blocks to treat the pain from nerve damage directly behind and what seems…
Court Case ruling..What do you think* Xrated*
I thought I would share with you a HIGH PROFILE civil case that was tried here locally. Verdict was received today. This is a cancer story, not head and neck. (well maybe) A gentleman has surgery by an urologist to be circumcised. When the doctor started the procedure he discovered that the patient had cancer and removed…
Glossectomy & Stoma
Has anyone had a full Glossectomy, Radical Neck Dissection & Laryngectomy Stoma? My husband has this as his last choice from the Stanford Tumor Board. We are searching for survivors who can inform us what to expect during and after recovery. Any advice and info is greatly appreciated. Sending love to all who have to go…
Try again - Vacation
Last time we went on a cruise I got a butt kicking case of pneumonia (aspirated food - again - into lungs). Well Carnival is leaving Mobile Al in October so we figured we'd better take this last cruise before they depart. Then we are off to Fla for grandson's birthday and hopefully I get to meet Skiffen and see who can…
Scan anxiety and the wait
A couple of weeks ago I had a soft tissue CT scan of my neck and the reading noted some "bumps" "possibly post surgical" etc. etc. so a folow up P.E.T. scan was ordered. SInce I hadn't had one since last November this was over due anyway. So the scan comes on a Thursday with a three day wait after that to get the results.…
Maybe that'll end it
Forum Spam, whould've thunk. best, Hal
Thyroid Math...seems to leave me still sleepy and cold.
Well here are the numbers... Test Result Reference* TSH 2.29 .49-4.67 Normal Total T4 7.1 4.7-11.7 Normal Free T3 2.16 1.45-3.48 Normal (lower end) Free T4 .9 .7-2.2 Normal (lower end) *I realize that reference numbers may vary between labs. My numbers suggest that all is well...or wellish, however I remain FREEZING.. even…
Biologic therapy vs, chemotherapy
My husband has Tonsil Cancer that has travelled to two lymph nodes (no where else so far). The oncologist wants him to take erbitux along with his radiation instead of the chemotherapy. Can anyone give me their experiences and / or thoughts?
Diamox
I have been on Diamox for about 5 or 6 months, it was to help with the excess water build up on the brain, now that I am off of it everything taste like salt. For a while I was thinking my wife is just using too much salt in everything. But now even my bottled water tastes salty, the Diamox made all my food taste different…
tongue pain
I thought yall might have sone insight as to when my tongue would quit burning? i am 13 weeks past treatment and anything i eat still burns my tongue. I tried to eat eggs this morning and they burnt. I dont know if its the texture (which feels like sand) or the burns on my tongue that are just still sensitive. I really…
encouragement
Hi everyone, My mom was diagnosed with cancer in July - squamous cell carcinoma. The cancer was on the back of her tongue, spread a little to the floor of her mouth, and to some of the lymph nodes on her neck. She was a heavy smoker, but she quit about 4 years ago. Her getting cancer has been a fear of mine since I was…
saliva
My husband had about 70% of his tongue removed,and 36 lymopnodes. He then had 33 rounds of radiation. I was wondering if anyone could tell me aprox. how long it takes for the saliva glands to start working. Thank you.
Chef daddy Mike Son Up-date 8-23-11
Mike called a short while ago to up-date me on his Sons condition. They were able to do the bone marrow test and it showed that the leukemia is no long in there, but his Liver has stopped working. If you remember I posted about his heart running supper fast, well that was because of the liver not working, his heart just…
What is Jevity
I hope this isn't a silly question. Is this the food used for the feeding tube? If so, where do I buy it or is it by prescription? My husband will have the tube in on Tuesday. Sorry for sounding so silly not knowing what this is. Is this like Ensure? Thanks, Donna
Bad couth need help
Along with my other problems like dry mouth and can’t swallow Since Radiation I have a couth it is worse in the morning but I have through the day bad again late afternoon I couth up flame like you do with a chest cold sometimes I don’t have control over it I couth and it goes in the floor or on me has anyone had this…
Pet Scan Results
Doctor just called said no sign of cancer in tonsil, node, or whole body area. But Steve did have a spot on his right face show up the first time he had a pet scan, so they rad it to. ENT & Chemo doc think this is a false reading, no this pet scan has lite up a small area again. Doctor said it could be inflamation, or…
Has anyone heard from Jeepman?
I was just wondering if anyone has heard from Jeepman? I have not seen him post in awhile.
What if caregiver gets cancer? update 8/25
Went to doctor for CT result yesterday, just couldn't wait over a week. CT clear but since I found the lump on my tongue refered to ENT ASAP. See ENT this afternoon. Please pray it is something else other than cancer. Debbie OK, I have not posted this question sooner because I know you all will tell me that it aint cancer…
Ray the hypochondriac
Lost one salivary gland through Scc damage just had my first 4 Radiation treatments but I am so dry my tongue is not sticking its sliding over the roof of my mouth. I know we are all different as each body is probably like a snow flake,unique. I do think this might be a bit early.
Smoking
My husband finished treatments on April 20, 2011 for SCC of the left tonsil hpv. His doctors told him this was caused from HPV and not smoking, so what does he keep doing, smoking, does anyone here still smoke after treatment, and does anyone have any comments on how I can help him to quit. I quit when he was diagnosed,…
First Pet after treatment
Steve goes in for his pet scan tomorrow at 9:45, I am not going to lie, I am scared. I know how mean cancer can be, saw take a great man before, I know the doctors say Steve has a 80 percent chance of being cured, but damn it, I am scared, please pray for me to have the courage to smile and show him the braveness that I…

Head and Neck Cancer

Discussion List

Discussion Boards