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Clear CT Scan
Hey Everyone! This isn't a big milestone CT like a 1 year or the BIG 2 year, but I'm excited about it. Got my all clear for my 16 month post-tx CT today and all is good! Was wondering about some of the others in my same time-range. I see Deb, PamM and Steve(hawk) post, but anyone hear from Micktissue or StevenL lately.…
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Great Info Site
Science-Based Medicine Site I've been looking at an information website lately, called Science-Based Medicine. Here's a brief excerpt from the "About SBM" intro: "Science-Based Medicine is dedicated to evaluating medical treatments and products of interest to the public in a scientific light, and promoting the highest…
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Esophagus damage
Two weeks ago I had my peg tube removed endoscopically. The gastrologist said that I had some esophagus damage from the radiation and would have to take Prevacid for life. I was very upset and he modified it for 6 months and then an appointment to see him again. I haven't had any acid reflux or esophagus related problems…
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Root Planing question
I have to have a root planing today at 1:00. I'm posting this kind of late, but I am a little scared. I know they are going to have to give me a shot, my worries are that I had the left floor of my mouth grafted, and I'm worried about a shot in that area. Also I'm worried about them messing with it then getting an…
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Number 40
Walking out the door for Jim's last radiation!!!!!! Can't believe it is finally done. Debbie
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HPV?
I had my surgery to remove my tonsils on 8/8 and after surgery, doc says found 2 warts near my tonsil, and they are known to cause tonsil cancer. I asked him how the heck i get warts on my tonsils and he told me to google it when I get home. He ended up keeping me overnight because apparently I bled alot. I did look it up,…
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Husband walked Daughter down the aisle
A day of sweet, happy feelings... We have come SO far. We still picked food for the wedding based on what he could eat. (mashed potatoes and gravy of course!!) ... but we danced and enjoyed the whole day..he cried, he smiled, WE ALL DID. Just wanted to share our joy and let you that are starting this journey know... it's…
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Anyone remember their progression through the eight drawer chest
Soon after diagnosis the organizer in me kicked in. I promptly went straight to a manly big box store and purchased two plastic four drawer chests. Stacked one upon another, I could not see into the top two drawers. (I'm short) Into the drawers went everything connected to treatment. Syringes, plastic gloves, bandages,…
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sugar levels
My husband is 10 months now from dx of suragolttis cancer, he has had all rad treatments some erbutux and now has 4 more treatments of cysblatan. He was in the hospitol last week-end from high blood sugar levels of 499. So now that he is out of hospital we have to do the insulin shots. Trying to get the right about of…
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10 more days
Well 10 more days until our 3 month Pet Scan. Jeez, I am getting nervous. I feel good we will have a good outcome, but the fear of the beast still hanging out scares me. Man cancer just sucks!
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Caretake problems
Last night my wife made supper and did not make me anything. Thats abour the 10th time in the last 2 weeks that she did not fix me anything to eat and last night i got mad at her for not cooking for me. She is an excellent wife and never left my side while i was sick. I could not ask for a better wife. She dont know what…
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when do things get better?
15 days post radiation for stage 1v tonsil CA. Had radical tonsillectomy April 2011. Thought I would be getting a little better by now. since 15 days out from radiation. When did you people start to feel a little better? I have sores on tongue and throat. Can't swallow anything due to pain and secretions. Using suction.…
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No saliva and more Problems
I finished my radiation treatment 8 mounts ago and I am still not producing any saliva I have been on Salagen for about 3 mounts it hasn’t helped yet is there anything else I can try? I am unable to eat bread or meat still soup and soft food. Where they removed the feeding tube I now have a hernia but I need to have more…
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Tear Duct Plugs
Those that know me know that I had radiation to my sinus's and neck. Since Ive had issues with my vision. Blurred vision, pain when I move my eyes around, eyes always felts strained. Finally decided to get some relief, when I couldnt even look up without it causing discomfort. Nothing life threating, but annoying. My doc…
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Good News!
Hi All, After a few weeks of scary tests PET/CT and biopsy, Pat got the all clear today! Thanks so much to all of you for your prayers and support! Twenty months out and doing well. Myka
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Question: symptoms achy joints, freezing cold
3 weeks post radiation, my husband suddenly said he was freezing cold last night - I mean his hands were pure white, and he was shivering uncontrollably, teeth chattering, couldn't warm up for about an hour under heavy blankets. Now this a.m. he says his whole body aches, especially his joints. Anybody have any info of…
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Salava
I use bioten spray. Nobody understands when you say you have dry mouth they just think drink something. Then i spend 10 minuets about how it does not work that way. I tried Sweets mugg root beer thats the best drink for me. Thanks Sweet. But the thing that works best for me is milk with hersheys syrup in it. It cant be…
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Caretaker Question
Hello to all the caretakers, this is my question. My poor wife is so stressed with me fighting cancer for nearly two years and she still working has really taken a toll on her. I am not in good enough condition yet to help around the house much, I have more bad days then good. I have been through chemo and radiation twice…
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ROLL CALL, AUGUST 2011
Aloha all. My apologies for the delay. I have not been on the board as much, but will continue to update if there is sufficient interest. We have 58 who enrolled or reported back in. There is another 77 who have not checked back in. That roster will follow. The intent was to keep track of those with H&N cancer. There are a…
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I have missed cold cereal
Not the most pressing subject but just thought I would throw out this question. I love cold cereal. Tried eating it not long after treatment ended (Dec. of 2010) and I had trouble swallowing it and the taste wasn't quite right. Now I find myself eating almost everything. Wondered if any of you had this same issue and if so…
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diarrhea
Not a pretty subject. BUT...Did anyone have chronic diarrhea from 5 F U. Docs have prescribed immodium, lomotil and nothing is stopping it. Mouth sores from 5 F U are so horrendous that we are back on PEG tube for most of nutrition. We were making progress until this "episode" and now very discouraged. Nothing tastes right…
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long time lurker
I just thought it was about time I introduced myself, i have been lurking for sometime! My husband was dx BOT scc on March 18/10, stage 4 lymph node involvement on both sides. Completed chemo and 7 weeks of rads in July 2010 with surgery in Dec to remove the lymph nodes. I have followed along with everyone and feel like I…
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Surviving/health guilt
I don't know if this had been discussed here before. If it has been overdone, sorry for the repeat. Does anyone else read the stuff here, or "IRL" stuff you know of others, and feel like "Why am I so lucky/blessed?" Don't get me wrong, this is not a whine. I know I'm lucky and blessed. A month or so I got an unclear PET…
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Post treatment - coughing, sneezing, chest pain
I am 4 months out from treatment. Had my 90 day PET/CT 30 days ago and all sign of the disease I had was gone. But, they found some stuff in my lungs that concerned them - inflammation or more cancer? They don't know. Get scanned again in 30 days. But now I am experiencing coughing when I drink some fluids, little sneezing…
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Well I guess it really starts today
Well I guess it starts today with tooth clean at dentist no more sweet products ever and the cooking starts Wed correction Tue which is tomorrow for about 7-8 weeks love the smell of pork cooking LOL
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Post treatment - coughing, sneezing, chest pain
I am 4 months out from treatment. Had my 90 day PET/CT 30 days ago and all sign of the disease I had was gone. But, they found some stuff in my lungs that concerned them - inflammation or more cancer? They don't know. Get scanned again in 30 days. But now I am experiencing coughing when I drink some fluids, little sneezing…
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ENT Visit Causes Bleeding
Just wondering if anyone has had this occur. Now 17 months post I went for my standard 3 month check-up with my ENT. All previous scans have been NED with a 3cm area in the vallecula that they wanted to keep an eye on at future visits. Prior to doing his normal nasal scope to check the throat he wanted to check my tongue.…
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Very Bad News on PET
I can't believe that I am actually typing this as everything seems so surreal right now. I just got a call from my ENT about my Saturday PET/CT scan. It seems that the parotid cancer has spread to a lung and in the cervical vertibrae as well as still being present in my right cheek area. I am being referred to local cancer…
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Surgery Tomorrow
Thanks everyone for all of the information and encouragement! The TORS surgeon and radiation doc reviewed the PAT scan again. They (we) decided that I will have surgery in the morning. They will do a biopsy on the other tonsil and see what the pathologists says while I am still under, if it's not more cancer, then they…
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Hondo
I got you beat. I can open my mouth to 21mm. I understand where you are coming from. This jaw bone thing sucks. Plus i have a lot of pain in mine. Good luck in the future. David