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Monday, Monday

KTeacher
KTeacher CSN Member Posts: 1,103 Member
in Head and Neck Cancer #1
I just got the call. Cooking (oops! radiation) begins Monday. A little bit lower than last time, hopefully not so many problems with the mouth but who knows with the throat. I will have the Amifostone as long as I can handle it (4 weeks last time). Prayers and well wishes are appreciated.
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Comments

  • Noellesmom
    Noellesmom CSN Member Posts: 1,859 Member
    #2
    Prayers lifted for you
    Hoping everything goes much better this time.
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  • Hal61
    Hal61 CSN Member Posts: 655
    #3
    Everyday
    Hi KT, I'll be thinking of you Monday. Once is too much, twice is too much twice. Everyday people beat the beast. Keep your head up, you can beat it too.

    best, Hal
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  • arndog64
    arndog64 CSN Member Posts: 537
    #4
    Hal61 said:

    Everyday
    Hi KT, I'll be thinking of you Monday. Once is too much, twice is too much twice. Everyday people beat the beast. Keep your head up, you can beat it too.

    best, Hal

    Prayers are coming your way.

    Prayers are coming your way.
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  • sweetblood22
    sweetblood22 CSN Member Posts: 3,228 Member
    #5
    arndog64 said:

    Prayers are coming your way.

    Prayers are coming your way.

    Monday, Monday...
    Can't trust that day......

    Now that is stuck in my little pea brain. :)

    Prayers going out to you, and I hope that this time you have an easier time, and kick this things arse to the curb, for good!
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #6
    Amifostine
    Kinda weird they'd prescribe that if you aren't having rads to the mouth area...not sure where when you say lower...

    I know it's mainly to help prevent the thick mucous (which I never had at all), but it also helps retain/regain salivary function.

    I had to bail on them also, about number 32 of 35...

    Thoughts & Prayers,
    John
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  • KTeacher
    KTeacher CSN Member Posts: 1,103 Member
    #7
    Skiffin16 said:

    Amifostine
    Kinda weird they'd prescribe that if you aren't having rads to the mouth area...not sure where when you say lower...

    I know it's mainly to help prevent the thick mucous (which I never had at all), but it also helps retain/regain salivary function.

    I had to bail on them also, about number 32 of 35...

    Thoughts & Prayers,
    John

    Salivary glands in left
    Salivary glands in left cheek will get some of the zap, neck should get the rest of the hit. I will find out when I start to burn.
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  • Jimbo55
    Jimbo55 CSN Member Posts: 590
    #8
    I Don't Like Mondays
    Hope things go smoothly this time around and you'll be rid of the beast once and for all. Positive thoughts your way. Cheers.

    Jimbo
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #9
    Hi Teacher

    Wishing you well as you begin again

    Hondo
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #10
    Skiffin16 said:

    Amifostine
    Kinda weird they'd prescribe that if you aren't having rads to the mouth area...not sure where when you say lower...

    I know it's mainly to help prevent the thick mucous (which I never had at all), but it also helps retain/regain salivary function.

    I had to bail on them also, about number 32 of 35...

    Thoughts & Prayers,
    John

    Hi John

    I guess I was lucky I was able to take the Amifostine all the way through my rad treatment, just hate getting the shot in the belly every time.

    Hondo
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  • Skiffin16
    Skiffin16 CSN Member Posts: 8,305 Member
    #11
    Hondo said:

    Hi John

    I guess I was lucky I was able to take the Amifostine all the way through my rad treatment, just hate getting the shot in the belly every time.

    Hondo

    Itchy Welts
    Yes, they left me with a quarter sized dry itchy welt each time...They'd hit a different spot everyday to help minimize the dry patches....

    The girls were funny about it though....on my last day they drew a big smiley face on my belly...LOL.

    JG
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  • jim and i
    jim and i CSN Member Posts: 1,788 Member
    #12
    Hondo said:

    Hi Teacher

    Wishing you well as you begin again

    Hondo

    Praying for an easier time
    Praying for an easier time and a complete cure this time.

    Blessings,
    Debbie
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  • luv4lacrosse
    luv4lacrosse CSN Member Posts: 1,410 Member
    #13
    THINKING OF YOU
    Prayers and a positive thought headed your way.

    Best!!

    Mike
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #14
    Skiffin16 said:

    Itchy Welts
    Yes, they left me with a quarter sized dry itchy welt each time...They'd hit a different spot everyday to help minimize the dry patches....

    The girls were funny about it though....on my last day they drew a big smiley face on my belly...LOL.

    JG

    big belly
    It was a good thing I was fat back then and had a big belly for them to poke.
    Oh yes I remember the itching too, what also got me was all the water they wanted me to drink before each treatment, I just said hell on that give me the water in a big bag

    Hondo
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  • denistd
    denistd CSN Member Posts: 597
    #15
    luv4lacrosse said:

    THINKING OF YOU
    Prayers and a positive thought headed your way.

    Best!!

    Mike

    mouth sores
    My radiation was for laryngeal cancer, I had no mouth sores at all.
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  • lizziek
    lizziek CSN Member Posts: 27
    #16
    denistd said:

    mouth sores
    My radiation was for laryngeal cancer, I had no mouth sores at all.

    Mouth sores
    I had a few minor sores the first week and then nothing. I started rinsing my mouth with glutamine (it's an amino acid)1 tsp dissolved in a glass of water. I found a report of a clinical trial on the stuff. You can drink it too, it's suppose to help with your protein metabolism. You can get it at any health food store. I also brushed my teeth 4 or 5 times a day during treatment. My oncologist was impressed with the lack of sores.
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  • KTeacher
    KTeacher CSN Member Posts: 1,103 Member
    #17
    Skiffin16 said:

    Itchy Welts
    Yes, they left me with a quarter sized dry itchy welt each time...They'd hit a different spot everyday to help minimize the dry patches....

    The girls were funny about it though....on my last day they drew a big smiley face on my belly...LOL.

    JG

    Itchy Welts
    Thanks for the reminder. I have all of the creams ready, not looking forward to those red hot welts.
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  • KTeacher
    KTeacher CSN Member Posts: 1,103 Member
    #18
    denistd said:

    mouth sores
    My radiation was for laryngeal cancer, I had no mouth sores at all.

    Mouth sores
    Hopefully I won't get them this time. I found this site after my first fight. So much good information I will put to use this time.
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  • Hondo
    Hondo CSN Member Posts: 6,636 Member
    #19
    KTeacher said:

    Mouth sores
    Hopefully I won't get them this time. I found this site after my first fight. So much good information I will put to use this time.

    Keeping Positive
    You are a second timer with this C so you know and understand all or most of what to expect. I wish I would have found this site back in 2002 when I first got this stuff, like you it would have been a great help for me.

    Wishing you the best on Monday
    Hondo
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  • buzz99
    buzz99 CSN Member Posts: 404
    #20
    Cooking
    Thougths and prayers coming your way as you begin the "journey." Karen
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