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Evoxac approved
My insurance Co.Called this morning and have approved the Evoxac for producing saliva I have been taking Salagen for 3 mounts and it has not helped. I hope this does. I know Hondo said he had tried both but neither helped him has anyone else took Evoxac with any luck it is a new drug if anyone else has any information let…
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One year anniversary
Just got home after having cocktails with my ENT who found my cancer one year ago today! He is quite the treat, kind but very direct. About 10 years younger than me. During our anniversary celebration tonight he let it slip that a year ago he thought I was a goner with how huge my mass was...I found the hair on my arms…
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awesome news
Not really a discussion point but I am excited and I have to tell someone : ) My husband finished radiation just over a week ago...and tonight he came to me and told me he could taste his soup! Tomato and garlic with basil : )
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Urgent Prayer Request
Hi all: Need all the prayers we can offer up. My nephew Brian, (my brother Richard's son; Richard is the brother that passed away 8 weeks after Charlie last year). He was hit by a car in Chatt. last night and is in the Trauma Unit in Chatt. He has had his spleen removed, surgery to relieve bleeding on the brain and a rod…
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recently diagnosed completed 8 weeks or radiation
I was recently diagnose with adeniod cystic carcenoma as my doctor said he has seen nothing this bad of this cancer it had invaded my orbit broke through my cheek bone covered my forehead and was moving up towards my brain.i completed my 8 weeks of radiation oh about almost 4 months ago and the lumps in my cheek and face…
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please pray for my family
I just found out tonight there is a chance my grandma has breast cancer. I am so stressed out. I have been caring for my husband who has oral cancer and now this!! I just lost my Dad in 09 to brain cancer. I don't know how much more I can take!! I need prayer like it's peoples job!
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Return of my tumor
Only two months past a clear PET and an MRI shows the return of the tumor and it is even more aggressive. It is paralyzingly the left side of my head and neck. Doctors given me a few weeks to months. Declining surgery since it has invaded my brain case and brain stem. I'm now on erbetrex chemo for palliative care.…
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Picc line error
At Stanford and it's almost 3am. We got here at 11:30pm. Wife noticed red mark near picc line bandaid and they are doing culture tests to make sure its not infected. Note: She was just here at 4pm pst to have the dressing changed. She showed it to the nurse who changed the dressing and she said it could be an allergic…
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He just finished rads 2 weeks ago and I am getting sick.
My husband is just out of radiation and I am getting sick. I think I am coming down with a cold. Anw ideas on how to keep him from getting sick?
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Eating Ability
Before I was diagnosed with tonsil cancer I was the kind of fellow that made the management of the all you can eat buffets nervous. Now, 13 weeks post treatment, I can east solid foods again without assistance from meds like Mary's Magic. As a matter of fact, I stopped taking all pain meds about a week ago (was taking…
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Feeding tube questions
Hi, I know many people have been extolling the life saving virtues of the feeding tubes. But I generally like to view both sides of coin and also think it will help anyone no matter if they decided to get one or not. If you had a feeding tube, could you please answer these questions? 1. What type of feeding tube did you…
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What do ya think?
Well mom had erbitux only to treat her recurred(they really did not get it all the first time last year) paranasal cancer. Last year she had surgery and radiation, but doctor said she did not need chemo. Chemo tends not to be very effective with this cancer, but who really knows because its so rare. 2,000 cases a year.…
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A Physician's Story
This was on the Op-Ed page of the New York Times yesterday, September 2, with the title "When Doctors Become Patients". The author is Eric D. Manheimer,the medical director of Bellevue Medical Center and three years ago he noticed a lump on his neck. And even though I've already seen this movie, I had to keep reading.…
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Sore Mouth and Throat Relief - Any Suggestions?
My dad (77 years old) was diagnosed with base of the tongue cancer, stage 2 squamous and has started radiation - 9 treatments done, 26 to go. The back of his throat and his lips are getting sore - does anyone have any suggestions? I have been reading all the wonderful postings on the discussion board to warn him about many…
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Survivor Builds 'Cancer-Fighting' House
Very interesting story, http://health.msn.com/health-topics/cancer/survivor-builds-cancer-fighting-house?gt1=31036 Hondo
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oh oh camouflage disappearing
Beard and moustache falling out there goes the hiding matter for my ugly moosh
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1/2 way through Treatment!
Hi everyone, Just thought I'd post an update on my husband's progress. Tomorrow he will have completed 4 weeks of his 7 week course of tx. He is doing pretty good. Yesterday was the 2nd chemo, and his Oncologist decided to give him Carboplatin instead of the Cisplatin he had the first time, due to the ringing in his right…
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Appealed
I have appealed my insurance refusing to pay for Evoxac for salava I don't think I will win but I am trying they said it's not approved by the FDA I find that hard to belive. I think to day has been the worse day for dry mouth I live in central Alabama and it is very hot and dry the grass is brown from all the hot dry…
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Hints on Accessorising Naso Gastric tube
dress requirements for Naso-Gastric tube one dress shirt or 1 western shirt or both Have discovered you can make a bow tie for dress shirt or a loo alike string tie for western shirt thus enabling ones self to go out and socialise LOL Ask tube installer to leave a little extra length then you get the plain tie option this…
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Another feeding tube
Well I finally agreed to my wife and doctors advise and I am going to have a feeding tube put in again. I have been out of treatment for 6 months and have not been able to gain weight. Started this whole mess nearly two years ago at 290 and now 141. I really hope I can gain some weight and get some muscle mass back as well…
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Scc
So where does this cancer usually metastasize? It's not bone because I can't find anyone herevwith bone mets. Robinleigh
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Why am I not feeling better yet
I have Base of Tongue cancer and have been out of 7 weeks of radiation and weekly chemo treatments for almost six weeks now. My tongue and mouth are still covered with sores and my throat stills hurts immensely. The mucous/phlegm continues and still cant sleep more than 1-2 hours at a time without awakening to clear my…
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When does it get better
Steve is 4 months post treatment from tonsil cancer, he is still sleeping alot and he says he still does not feel good. I know it takes some longer and some less time to feel better, but does anyone remember when you did start feeling the new nomal and was able to enjoy life again. Linda
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My latest news
Last week on the 2nd of August, I had surgery. I decided to go along with Mayo's plan, and opted to leave the surgery decisions with them...The previous surgeon was opting for a mandibulotomy with neck resection, removing my left tonsil and soft palate where it was necessary...Mayo's team decided that they could do it all…
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Never ending horror-arterial ruptures due ro radiation damage
I never saw this one coming.Might as well add it to the endless list of life threatening side effects.We are now 4 1/2 mos postX. Five days ago Daryl woke up coughing up blood. Buckets of it.By the time the ambulance reached Emergency he had lost 2/3 of his blood and had gone into shock.The hospital to which they took him…
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Second time around
Second time around and this first week has not gone well. Monday did ok at the cancer center, techs. were surprised to see me. Got so sick in the afternoon and evening, couldn't even keep in a few ice chips, no Amifostone on Tuesday. Spent the day drinking water (with L-Glutimine) and eating what I could. Wed. tried the…
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Just updating....
Hi Everybody...I'm just updating my status so some of the "old timers" will know what I've been up to lately. As most of you "oldies" may remember I was treated for NSCLC in left lung and Laryngeal cancer in 2009. Everything went into remission and I've been able to enjoy life...until February 2011 when the CT scan showed…
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More Waiting
We thought we would have the gene sequencing from my lung biopsy today, but that is now due on Friday. We found out that the lung masses are definitely cancer,but we won't know if it is the same cancer that invaded my parotid gland until Friday. So, I have cancer in three parts of my body and as of right now, there is no…
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im back .. with a different parent
Hello to my other family. I still continue to lurk on my iphone ( sweet i dont know how you do it) Moms doing really well (tonsil)... struggling with fatigue and still cannot taste. Anyway, dad just called me to tell me a biopsy on his face was positive for SCC! i didnt even know he was going for a biopsy! His…
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Monday, Monday
I just got the call. Cooking (oops! radiation) begins Monday. A little bit lower than last time, hopefully not so many problems with the mouth but who knows with the throat. I will have the Amifostone as long as I can handle it (4 weeks last time). Prayers and well wishes are appreciated.