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Another feeding tube
Well I finally agreed to my wife and doctors advise and I am going to have a feeding tube put in again. I have been out of treatment for 6 months and have not been able to gain weight. Started this whole mess nearly two years ago at 290 and now 141. I really hope I can gain some weight and get some muscle mass back as well…
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Scc
So where does this cancer usually metastasize? It's not bone because I can't find anyone herevwith bone mets. Robinleigh
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Why am I not feeling better yet
I have Base of Tongue cancer and have been out of 7 weeks of radiation and weekly chemo treatments for almost six weeks now. My tongue and mouth are still covered with sores and my throat stills hurts immensely. The mucous/phlegm continues and still cant sleep more than 1-2 hours at a time without awakening to clear my…
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When does it get better
Steve is 4 months post treatment from tonsil cancer, he is still sleeping alot and he says he still does not feel good. I know it takes some longer and some less time to feel better, but does anyone remember when you did start feeling the new nomal and was able to enjoy life again. Linda
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My latest news
Last week on the 2nd of August, I had surgery. I decided to go along with Mayo's plan, and opted to leave the surgery decisions with them...The previous surgeon was opting for a mandibulotomy with neck resection, removing my left tonsil and soft palate where it was necessary...Mayo's team decided that they could do it all…
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Never ending horror-arterial ruptures due ro radiation damage
I never saw this one coming.Might as well add it to the endless list of life threatening side effects.We are now 4 1/2 mos postX. Five days ago Daryl woke up coughing up blood. Buckets of it.By the time the ambulance reached Emergency he had lost 2/3 of his blood and had gone into shock.The hospital to which they took him…
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Second time around
Second time around and this first week has not gone well. Monday did ok at the cancer center, techs. were surprised to see me. Got so sick in the afternoon and evening, couldn't even keep in a few ice chips, no Amifostone on Tuesday. Spent the day drinking water (with L-Glutimine) and eating what I could. Wed. tried the…
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Just updating....
Hi Everybody...I'm just updating my status so some of the "old timers" will know what I've been up to lately. As most of you "oldies" may remember I was treated for NSCLC in left lung and Laryngeal cancer in 2009. Everything went into remission and I've been able to enjoy life...until February 2011 when the CT scan showed…
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More Waiting
We thought we would have the gene sequencing from my lung biopsy today, but that is now due on Friday. We found out that the lung masses are definitely cancer,but we won't know if it is the same cancer that invaded my parotid gland until Friday. So, I have cancer in three parts of my body and as of right now, there is no…
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im back .. with a different parent
Hello to my other family. I still continue to lurk on my iphone ( sweet i dont know how you do it) Moms doing really well (tonsil)... struggling with fatigue and still cannot taste. Anyway, dad just called me to tell me a biopsy on his face was positive for SCC! i didnt even know he was going for a biopsy! His…
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Monday, Monday
I just got the call. Cooking (oops! radiation) begins Monday. A little bit lower than last time, hopefully not so many problems with the mouth but who knows with the throat. I will have the Amifostone as long as I can handle it (4 weeks last time). Prayers and well wishes are appreciated.
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Very Special Day Today
This has nothing to do with C but something I would like to share will all my friend. Today is my 37th anniversary, my wife and I got hooked on each other back in 1974 and they said it would not last, little did they know. The last 9 years have been very trying for both of us in dealing with my C but if it has done…
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Newbie
Hi everyone. I'm newly diagnosed cancer in my right tonsil, and lymph nodes on the right side of my neck. PET and CT as well as scopes indicate that it has not spread. I see the Hematologist and Radiation folks at Cleveland Clinic on Wednesday. A nutritionist friend recommended Glutamine powder in water to help my throat.…
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Constipation - Need home remedies
My husband got the stomach peg put in Tuesday. Wednesday he weighed 164 lbs. Today he weighs 161. He said he doesn't want to eat because he's so constipated. They were going to wait for him to start using the stomach peg and now they say he has to start using it. Does anyone have any good home remedies for constipation. He…
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My wifes Stage IV Nasopharyngeal Cancer
My wife had fluid backup in her ear and the first general doctor had her use antibiotics. It didn't help. Gave her a second dose and it didn't help. He sent her to an Ear doctor who put a drain tube and insisted she get checked for nasopharyngeal cancer. She refused based on crap reviews on yelp.7 months later we went back…
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Back Home
Hi all: Just checking in and reporting I'm back home. I returned Sunday afternoon. It was a good trip. Charlie's family and I observed his 1 year anniversary quietly. The "boys" were overjoyed that Mama is back!I'm spending Labor Day in Chatt. with best friend and family at their campsite so should be fun as always. I did…
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into week 3 radiation
and as of 4 days ago right side of mouth feels like its one big open sore and throat everytime i swallow feels like both sides are peeling the skin off each other ouch I got a big BooBoo LOL see trying to laugh
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Nasopharyngeal Cancer - EBV or HPV
hi, my girlfriend was told she has Nasopharyngeal cancer and we are just waiting for the biopsy result before starting treatment. Does the result from pathologist tell if the cancer is EBV or HPV positive? or does the result just to confirm weather it is cancer or not?
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Shock and Awe!
Hi Friends! I went today and was in the "Donut" for an hour, awaiting the biopsy needle. Well, they remove me from the table, after flipping me around like a cod fish, and told me the Dr. needs to talk to me. Okay. I get up, and the Dr.comes in, and says he cannot find anything to biopsy. What!!? He compared all the scans…
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Lump in back of throat
Hello everyone, it has been quite a long time since I have posted here although I still read through the posts almost everyday. I had a malignant paraganglioma removed from the right side of my neck in Dec. 2009, followed by 5 weeks of radiation treatment. The cancer had spread to several lymph nodes that were also…
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Thanks from a Lurker
A thanks from someone who has never posted--or even joined--but relished the ideas and stories. I am in the final week of radiation for tongue cancer. 42 radiations, 2 chemo (Cisplatin). Prior to that, I had a tumor in my tongue (HPV+) removed through TORS robotic surgery and a partial neck dissection removing 44 lymph…
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conjunctivitis
Hey y'all Have any of ya'll gotten conjuntivitis of the eye from yourc hemo treatments, or as a late effect after radiation is finished? Are any of you taking celuximtab for chemo? (I guess thats how its spelled)
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Hurricane Irene vs Fatty Patty
Hi all! Hope everyone is safe. I am scheduled for my biopsy for tomorrow in Manhattan, and am ready to go. Unfortunately, Irene has hit, Bloomberg has closed the city down, and I do not have a ride. UGH! I am planning on going, weather and Bloomberg permitting, but cannot get a ride, so really will have to drive myself. I…
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Speed dating has nothing on my Oncologist
My first visit after radiation commencement actually into my second week lasted 3min 37 sec I know because i use a dicta phone so I can transcribe and keep an actuate record of what i am told and have to do. I have learnt nearly all I am to expect from here and reading all my literature. I am feeling a tad peeved . oh PS…
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Salagen????
Is there any thing better than Salagen I’m not producing any saliva I have been taking Salagen for 2 ½ mounts and it’s not helping. I had my throat dilated yesterday and the Doctor said I had a lot of damage to my throat from the radiation and it want help much until I can produce saliva anyone got any suggestions.
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Glutamine
My husband has been using a product called juven since the beginning of his finding out about his cancer. It has glutamine in it which I read a lot about on this site as being so beneficial to maintaining lean muscle tissue. It also has arginine in it which is another amino acid. Does anyone know if arginine causes mouth…
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Starting to feel like a real member LOL
just finished second week radiation from upper lip to below collarbone right across. Cancer op site feels raw and wisdom teeth op sites feels raw inside of right cheel is swollen and raw,and throat is really starting to hurt, tongue slides on roof of mouth as its not even sticky. Don,t take this the wrong way just stating…
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Thrush
We have been batteling thrush now for over a month are on the 3rd bottle of antibiotics.Dr has been giving him fluconazole,has anyone heard of this med and has anyone hed better luck with another med. Thank you.
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Distressing news (anxious on timelines)
hi, I recently discovered a lump in the right of my neck in July. I went for CT, PET and fine needle aspiration. The fine needle aspiration confirmed (poorly differentiated squamous cell carcinoma). I previously had colorectal cancer in 2008 so it was devastating to hear this news again. I hear that this cancer is…
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Caphosol
Hi everyone, My husband is using Caphosol and it works great, however, it is very expensive. I've seen where folks have been lucky enough to come across someone that had some products leftover/couldn't use and passed it on to another patient. Is there a place here in CSN where I could check for something like this? Best…