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Radical Neck Dissection and Laryngectomy Stoma
Hello everyone- My husband has been battling tongue and neck cancer. Last year he had a surgery to remove the tumor, went back a few weeks later for 2nd surgery to have clear margins. Within 6 months the tumor was back aggressivly, so he was then treated with chemo & radiation. The main tumor is still in the tongue and the…
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Another clean ct scan for Connie
Hello Everyone, Just thought I would let you know how we are doing. Connie had a clean ct scan on 08/25/11 so that was really good news. She still uses the peg but she is eating a little food here and there. Her energy level is good and she is back to normal in that area. I come here often to see how everyone is doing but…
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Platelets
I had CBC work today, white and red cell counts in normal range, my platelets are on the low side. Not enough to stop the next chemo infusion on monday. Onco nurse said the doc may decrease the dosage of chemo I receive. Has anyone else experienced an issue with their platelets? Thanks, Linda
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Month of September, busy
Looks like I will have to start paying rent to the doctors this month. have just completed 20 bouts of Hyperbaric treatment for teeth. Next week I will probably have back surgery for a herniated disc pinched nerve. This coming Tuesday will receive results of ultra sounds on my carotid artery, had surgery on it in 2008 as…
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Exovac side effect's
I have been taking Exovac for a week it has not helped with saliva yet the Doctor said it should start helping in 2 weeks.I will keep thking it for awile to see if it helps. One side effect is over active bladder when I take one in about a hour it’s the best to stay near a bath room or you will urinate on your self. I know…
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test results and prayers
Test results on Friday for Grandma wish us luck and prayers please. Thank you
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Great News
Steve had a pet scan on 8/19 said they saw something, had ct scan yesterday, Doc called today and said he is cancer free. Cried all day with joy, thank you everyone for all the support, now we work on healing.
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Post Pet Scan Results
We got the results for my husbands post pet scan. Results: Inconclusive!!! Ent said he wave 2 options wait 3 months for another pet scan or have a needle biopsy. We asked the ent what he advises and without hesitation, he said biopsy. I agree, his suv from main tumor went from 10.7 to 5.8. That still seems a little high to…
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Battle Plan
Well, I am finally going in to meet with my chemo oncologist on Friday morning to discuss the battle plan for me. I had a lung biopsy two weeks ago and they were waiting for the gene sequencing to be done on that before they could come up with a plan. I have never had chemo before, only radiation/surgery and I am very…
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ekdennie update!
I just wanted to give everyone a quick update on how I am doing. I saw my ENT and prostodontist last week and will see my radiation oncologist next week. no sign of regrowth! I am still having some trouble with finding foods I can eat, mostly due to my mouthpiece, but it has been fun seeing what I can swallow, what I can…
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Cisplatin secondary cancer risk
Hi, I read (after my oncologist appointment) that there is a rare risk of developing a secondary cancer years later with Cisplatin use. My medical oncologist seemed rather adamant that I go the Cisplatin route. I have a second primary cancer (nasopharyngeal) after a first encounter with colorectal cancer in 2008 and I'm…
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How old is Cancer
Just wondering about how old Cancer is, has it always been there and if so there sure looks to be more cancer now than ever. I was reading an article that was saying that Egyptian mummies have been found with breast tumors, and the earliest writings (from about 1600 BC) mentions "there is no treatment" for it. Then I read…
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A knock on the window pane
Have you ever had such a moment. I'm sitting here in the basement and I hear a tapping on my living room window. I go investigate. Standing there smiling from ear to ear is the old gentleman who works for the medical company that delivered my jevity cases two years ago. He's checking on me 2 years post treatment and…
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cancer unknown primary
anyone else out there?
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pet scans
This seems like a busy week for pet scans. Hondo, I think that yours was an hour ago. Best wishes with your results! Prayers for all of you getting scans this week! Robinleigh
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Severe pain
Buzz finished treatment January 10, 2011 for Stage IV base of tongue cancer. He had chemo and radiation. Now he is having intermittent severe pain in the left side of his neck (both sides were radiated but the left more so). It hurts from the top of his head to his collar bone. We have a referral for physical therapy which…
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I expected him to look worse
What on earth is that supposed to mean? All of our friends who havn't seen Vaughn in a while all say the same thing ...I expected him to look worse. I'm not sure if this is a compliment or not. I think he looks great so I get a little annoyed.I'm not sure if people just don't know what to say or what. Has anyone else…
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How long have you survived with a recurrence
Would this be a helpful discussion to start?
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hello from Ray week 4 ended
Nice to log on and see you all helping where you can or should that be were you can.
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Mouthwash
My wife was going to start a trial for a mouthwash during her second round of chemo. The doctor has been examining her and determined she is not a good candidate because her mouth is moist and does not look like it is developing sores. It hurts at times and may get worse later. Oh well back to the salt water rinse for her.…
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*** Indian Rocks Beach Florida ~ Skiffin & GreenD ***
My wife, Shelley and I had the pleasure of meeting up with Denny & Denise this Labor Day 2011... Great company and awesome lunch at Keegan's Grille, Indian Rocks Beach Florida.... Skiffin16 & GreenD..... Keegan's Grill ~ IRB, Florida Too bad the rest of you didn't show up for the invite....I talked crap about most of you,…
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Photopenia
Has anyone heard of photopenia? If so, what the heck is it?
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Nephew's Update
Hi all: Am back home now. Thanks so much for all the prayers and please keep them coming. Brian is still unconscious. They placed a monitor in his brain to determine if any swelling was happening. The bleeding on the brain has stopped. They operated today on his right leg and were very pleased with how it went. Our prayer…
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Excess Mucus = No Sleep
My husband is 2 rads from finishing treatment. He cannot get any real amount of sleep due to excess mucus coughing fits. Has anyone had any luck in finding a solution to this problem? Thanks in advance! Tammy
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Easy to Swallow Recipes
Can someone direct me on where I can get receipes for easy to swallow meals? I tried the HNC Superthread but received an error for that page.
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Hospital Food
Dear board readers. Note to myself was to get extra food for my wife. Let her eat foods she will like in the hospital. The food may look ok but it's not enough for a person who's hungry and can't afford to lose weight. I should have planned my drives to Stanford with time to pick up Good food for her to eat. She lost…
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Chief daddy Mike Son up-date 9-4-11
Just to let everyone know Mikes Son is really doing well, His Liver is in the normal range and he continues to take his chemo with no further problems. He is still in the hospital and they are now starting to do physical therapy on him, and the good part they are letting Mike help him as an instructor. Please continue to…
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treatment for scc tonsil and lymph node
hi everyone my dad was diagnosed on August 8, 2011 with scc left tonsil primary into lymp node HPV+ we started treatment August 22, 2011 with one round of 76 mg cisplatin and IMRT raditation. September 2 was the 8th radiation treatment. Chemo was scheduled for Aug. 30 but was cancelled because the kidney function was not…
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PRICELESS
Hey Greg 53, good morning. Did you survive Growlers Pub?? I HIT THE SNOOZE BUTTON MORE THAN ONCE. GOOD CONVERSATION CARDINALS AND RAMS GET WINS GREAT TO SEE US BOTH EAT AND ENJOY A FEW TOO MANY NEWCASTLES PRICELESS!!! TO ALL OF MY CSN BUDS, HAVE A GREAT AND SAFE LABOR DAY WEEKEND.
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Rad Qs for SCC mobile tongue 4 no node no HPV
What questions should be asked of the radiologist before radiation treatments begin? Three weeks ago had most of tongue reconstructed with forearm muscle. Tumor over 4 cm, 84 lymphnodes removed all testing negative. Had first occurrence two years ago, simple procedure to remove tumor, did not remove all. HPV test was…