Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

No ear tubes for me today! Flash flooding. ***posting a couple pix****
Well, I am still dealing with clogged ears. It's been almost exactly two months. What a PITA. Anyway.... I saw the doctor (probably resident) who was working with the doctor today. He could see the fluid in my ears still and he can back with the main dr dude and we chatted. I told him about my history and concerns. He…
Is it neuropathy or something else?
Im a stage iv survivor who had SCC on the base of the tongue and the secondary site in the lymph nodes. I had 35 radiation sessions and three chemotherapy doses of cisplatin over seven weeks. My pet scan is clear and my oncologist and radiologist are telling me I am cancer free. That's the good news! The bad news is that I…
Should we get Neck Ultrasounds??
Anyone having any routine neck ultrasounds to check for blockages, vessel weakness, aliens? There have been a few threads about carotid rupture that has me thinking..... Stacey
Herpes to Fight H&N Cancers??
Sorry - forgot how to include links It's at http://ht.ly/1eCi5c Docs using bacteria from dirt, scorpions and the virus that causes herpes to fight cancer. From the article: "Not to leave viruses out of the mix, doctors based at the Institute of Cancer Research in London report that they have used a genetically engineered…
Wierd taste in mouth
This may sound a little gross so I hope this is not uncommon but here goes. I am almost two months post treatment and for the last 2-3 weeks I have been getting a weird taste in my mouth when I urinate. I cant even describe the taste. Has anybody experienced this? I would hate to think something is going awry in my…
Finally, A Plan
I just met with my chemo onc and he has a battle plan for me now. Briefly, I started with a parotid cancer and it spread to my lungs and lower back. I had a lung biopsy which confirmed it to be the same type of cancer that started in my parotid. My doc sent the sample to a lab which did gene sequencing to pick the best…
Creatinine Level High - Does this go away?
My husband is 3 weeks out from rads and chemo (32 rads and 3 cisplatin)for stage II laryngeal cancer of the epiglottis. He was doing pretty good but getting daily IV fluids to help his hydration and keep the mucus a little under control. He was still not eating much due to the sore mouth and the mucus gagging him (no PEG)…
HPV test ????
After my boys ragged me on fathers after I mentioned what had been said on here about HPV. I am wondering was it a standard test your Onco ran for you or what ?
pro's and con's of a T.E.P
I had a Laryngetomy in oct 2010 and a T.E.P implant on May 2011, I cannot seem to get it to work for me and everyone tells me to just keep trying. I've had it replaced 3 times because of leakage to my lungs.I use the HME Cassette ( heat and moisture exchanger) Only good thing about that is it helps to keep the stoma clean.…
Another Update
Hi all: Thanks again for all the prayers and continued prayers. My nephew is still in a coma but docs told sis-in-law they are not discouraged about that as we all know people can be in comas for months! The fact that he has come thru all the surgeries is amazing in itself. They are going to put in a feeding tube and trach…
Radical Neck Dissection and Laryngectomy Stoma
Hello everyone- My husband has been battling tongue and neck cancer. Last year he had a surgery to remove the tumor, went back a few weeks later for 2nd surgery to have clear margins. Within 6 months the tumor was back aggressivly, so he was then treated with chemo & radiation. The main tumor is still in the tongue and the…
Another clean ct scan for Connie
Hello Everyone, Just thought I would let you know how we are doing. Connie had a clean ct scan on 08/25/11 so that was really good news. She still uses the peg but she is eating a little food here and there. Her energy level is good and she is back to normal in that area. I come here often to see how everyone is doing but…
Platelets
I had CBC work today, white and red cell counts in normal range, my platelets are on the low side. Not enough to stop the next chemo infusion on monday. Onco nurse said the doc may decrease the dosage of chemo I receive. Has anyone else experienced an issue with their platelets? Thanks, Linda
Month of September, busy
Looks like I will have to start paying rent to the doctors this month. have just completed 20 bouts of Hyperbaric treatment for teeth. Next week I will probably have back surgery for a herniated disc pinched nerve. This coming Tuesday will receive results of ultra sounds on my carotid artery, had surgery on it in 2008 as…
Exovac side effect's
I have been taking Exovac for a week it has not helped with saliva yet the Doctor said it should start helping in 2 weeks.I will keep thking it for awile to see if it helps. One side effect is over active bladder when I take one in about a hour it’s the best to stay near a bath room or you will urinate on your self. I know…
test results and prayers
Test results on Friday for Grandma wish us luck and prayers please. Thank you
Great News
Steve had a pet scan on 8/19 said they saw something, had ct scan yesterday, Doc called today and said he is cancer free. Cried all day with joy, thank you everyone for all the support, now we work on healing.
Post Pet Scan Results
We got the results for my husbands post pet scan. Results: Inconclusive!!! Ent said he wave 2 options wait 3 months for another pet scan or have a needle biopsy. We asked the ent what he advises and without hesitation, he said biopsy. I agree, his suv from main tumor went from 10.7 to 5.8. That still seems a little high to…
Battle Plan
Well, I am finally going in to meet with my chemo oncologist on Friday morning to discuss the battle plan for me. I had a lung biopsy two weeks ago and they were waiting for the gene sequencing to be done on that before they could come up with a plan. I have never had chemo before, only radiation/surgery and I am very…
ekdennie update!
I just wanted to give everyone a quick update on how I am doing. I saw my ENT and prostodontist last week and will see my radiation oncologist next week. no sign of regrowth! I am still having some trouble with finding foods I can eat, mostly due to my mouthpiece, but it has been fun seeing what I can swallow, what I can…
Cisplatin secondary cancer risk
Hi, I read (after my oncologist appointment) that there is a rare risk of developing a secondary cancer years later with Cisplatin use. My medical oncologist seemed rather adamant that I go the Cisplatin route. I have a second primary cancer (nasopharyngeal) after a first encounter with colorectal cancer in 2008 and I'm…
How old is Cancer
Just wondering about how old Cancer is, has it always been there and if so there sure looks to be more cancer now than ever. I was reading an article that was saying that Egyptian mummies have been found with breast tumors, and the earliest writings (from about 1600 BC) mentions "there is no treatment" for it. Then I read…
A knock on the window pane
Have you ever had such a moment. I'm sitting here in the basement and I hear a tapping on my living room window. I go investigate. Standing there smiling from ear to ear is the old gentleman who works for the medical company that delivered my jevity cases two years ago. He's checking on me 2 years post treatment and…
cancer unknown primary
anyone else out there?
pet scans
This seems like a busy week for pet scans. Hondo, I think that yours was an hour ago. Best wishes with your results! Prayers for all of you getting scans this week! Robinleigh
Severe pain
Buzz finished treatment January 10, 2011 for Stage IV base of tongue cancer. He had chemo and radiation. Now he is having intermittent severe pain in the left side of his neck (both sides were radiated but the left more so). It hurts from the top of his head to his collar bone. We have a referral for physical therapy which…
I expected him to look worse
What on earth is that supposed to mean? All of our friends who havn't seen Vaughn in a while all say the same thing ...I expected him to look worse. I'm not sure if this is a compliment or not. I think he looks great so I get a little annoyed.I'm not sure if people just don't know what to say or what. Has anyone else…
How long have you survived with a recurrence
Would this be a helpful discussion to start?
hello from Ray week 4 ended
Nice to log on and see you all helping where you can or should that be were you can.
Mouthwash
My wife was going to start a trial for a mouthwash during her second round of chemo. The doctor has been examining her and determined she is not a good candidate because her mouth is moist and does not look like it is developing sores. It hurts at times and may get worse later. Oh well back to the salt water rinse for her.…

Head and Neck Cancer

Discussion List

Discussion Boards