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Head and Neck Cancer

Question about difference between PET and other scans
Hi, i got diagnosed at 17 with NPC 5 years ago, then again with mets in bones,liver,lung and spleen almost 4 years ago. I did 10 cycles of carboplatin, gemcitabine and taxol + radio therapy and i was clear until may this year when the doctors spotted a recurrance in the spleen, everything else was clear. I had a…
H&N Kit?
Hey Guys, I'd like to create a kit for the newly diagnosed H&N brothers and sisters in my area. Like a "You're not alone in this, here are some things that you will probably need soon" basket. Knowing that almost all will receive chemo, chemo/radiation or radiation and will experience some combination of side effects soon.…
Alkaline Water
This came up in another post. If I am being naughty I can let this post die. I have friends that say I should consider a machine. Does anyone have experience with Alkaline water/machine and/or diet. I am very interested.
Another nephew update
Hi all: The latest I've heard on my nephew last night was he has developed H4 Flu pneumonia but they're not overly concerned about that and are giving antibiotics. The really good news is he's breathing mostly on his own and they did start exercising one of his legs. Didn't do the other leg as skin grafting was involved in…
Update on Mom and Dad
Hi guys! I wanted to give you an update on mom. She went to the doctor this morning for a follow up for the blood clot in her leg and lung. The doctor is almost 100% sure both clots are gone. We are waiting to find out if she needs to have the filter removed and how long she will be on blood thinner. She also needs to go…
4 cycles vs 6 cycles of treatment
hi there.. my dad intend to stop treatment after 4 cycle. just wonder anyone had only 4 cycles and cancer response completely? his last scan shows tumour shrink about 50% thanks
pascotty
you still out there
Support Groups
Have any of you attended or are attending a support group for head and neck cancer?
salty taste
I know that people have talked about salty taste on this site but my question is, Has anyone had it taste like ocean water and make you sick? Also, is there something to rinse with that lessens it? Jim has tried filtered water, bottled water, all brands and they all are very salty. He has also tried cold and room temp. He…
Rads
Are there SCC's who has chosen no radiation following resection of hard palate or submandibular or other parts of the head, neck, mouth etc.w/good results? Should it always be done? Ramifications if you choose only to have the cancer removed? Dotty
nose bleed
have any of ya'll gotten a nosebleed after treatment? i finshed treatment last year and cetuximab recently. This morning I had a real severe nosebleed in the nostril on the side of face that had the cancer last year , blood everywhere. My nose has been real stuffed on that side lately , but I didn't think I was blowing it…
Amifostine - Eythol
I was looking for some other information and came across this on Amifostine... Amifostine - Eythol It still has me a little ticked from a comment that someone made awhile back that related to their MD as stating that Amifostine was outdated and ancient in the cancer treatment arena.... While almost three years (when I had…
Started Chemo Today and scared
Well, this morning I started my chemo treatments. This is in pill form, so I am alone at home and it to took me a while to even build up the nerve to take the pills. I think the pills are a good thing/bad thing. I was expecting to have infusions and to be around caring nurses and professionals to keep an eye on me for…
PET Part 1 & 2 (No NED but not bad)
Well the PET scan is over now comes the waiting game, tic toc, tic toc, tic toc, so goes the clock, been there many of times and amny more to go in life. lol Hondo
producing a little more saliva
I think I am producing a little more saliva not during the day but by night it don’t feel like it use to but anything helps I have been taking Exoxac for two weeks I still have a hard time with bread. I have got the overactive bladder under control Still need the stoppers 4 or Biotin during the day I still have problems…
cancer spreading through tissues?
Has anyone had chemo, radiation, got a clean ct scan and it came back twice? Husband had two neck surgerys. Surgeon said it was in the tissues...started out scc with 1 tonsil that spread to neck and was around 9cm conglomerate with tumor being 4 or 5 involving couple of nodes. Now we are playing the waiting game while his…
Need advice on my mom post treatment
My mom was diagnosed in April 11 with a very large BOT cancer that had spread to her tonsil and neck lymph nodes. It was HPV positive. She had 35 radiation treatments with 3 simultaneous doses of cisplatin. She lost around 25 lbs during treatment (which she didn't need to). We also lost my father during her treatment to…
**** I Have Been Deported~ After the Fact & Updated****
OK, tomorrow is finally the day...I've had this port in my chest since January 2009. I was supposed to get it out around March of this year, but at that time my surgeon only did it at the surgey center and putting me out. As I hadn't met my total out of pocket at that time, I decided to wait. Now that I've had the PET and…
See Doc today guess i ask for some real serious drugs Advice??
Serious meds.Mouth is one big blister so is throat and of course swallowing in my sleep wakes me up. Seem to want to sleep all the time wife says stop work it is physical I am in the building trade and 59 no forget the age she says I am 25 mentally hehe. got two weeks of cooking left and then it apparently goes on. Seen if…
Nephew Update
Hi all: Here's the latest on my nephew Brian. He opened his eyes last night! My sister-in-law was so excited. I talked to her last night. He looked right at them when they were talking to him and he tried to talk when his son Justin, was there before he left for college. Now, we are awaiting results from blood and lung…
No ear tubes for me today! Flash flooding. ***posting a couple pix****
Well, I am still dealing with clogged ears. It's been almost exactly two months. What a PITA. Anyway.... I saw the doctor (probably resident) who was working with the doctor today. He could see the fluid in my ears still and he can back with the main dr dude and we chatted. I told him about my history and concerns. He…
Is it neuropathy or something else?
Im a stage iv survivor who had SCC on the base of the tongue and the secondary site in the lymph nodes. I had 35 radiation sessions and three chemotherapy doses of cisplatin over seven weeks. My pet scan is clear and my oncologist and radiologist are telling me I am cancer free. That's the good news! The bad news is that I…
Should we get Neck Ultrasounds??
Anyone having any routine neck ultrasounds to check for blockages, vessel weakness, aliens? There have been a few threads about carotid rupture that has me thinking..... Stacey
Herpes to Fight H&N Cancers??
Sorry - forgot how to include links It's at http://ht.ly/1eCi5c Docs using bacteria from dirt, scorpions and the virus that causes herpes to fight cancer. From the article: "Not to leave viruses out of the mix, doctors based at the Institute of Cancer Research in London report that they have used a genetically engineered…
Wierd taste in mouth
This may sound a little gross so I hope this is not uncommon but here goes. I am almost two months post treatment and for the last 2-3 weeks I have been getting a weird taste in my mouth when I urinate. I cant even describe the taste. Has anybody experienced this? I would hate to think something is going awry in my…
Finally, A Plan
I just met with my chemo onc and he has a battle plan for me now. Briefly, I started with a parotid cancer and it spread to my lungs and lower back. I had a lung biopsy which confirmed it to be the same type of cancer that started in my parotid. My doc sent the sample to a lab which did gene sequencing to pick the best…
Creatinine Level High - Does this go away?
My husband is 3 weeks out from rads and chemo (32 rads and 3 cisplatin)for stage II laryngeal cancer of the epiglottis. He was doing pretty good but getting daily IV fluids to help his hydration and keep the mucus a little under control. He was still not eating much due to the sore mouth and the mucus gagging him (no PEG)…
HPV test ????
After my boys ragged me on fathers after I mentioned what had been said on here about HPV. I am wondering was it a standard test your Onco ran for you or what ?
pro's and con's of a T.E.P
I had a Laryngetomy in oct 2010 and a T.E.P implant on May 2011, I cannot seem to get it to work for me and everyone tells me to just keep trying. I've had it replaced 3 times because of leakage to my lungs.I use the HME Cassette ( heat and moisture exchanger) Only good thing about that is it helps to keep the stoma clean.…
Another Update
Hi all: Thanks again for all the prayers and continued prayers. My nephew is still in a coma but docs told sis-in-law they are not discouraged about that as we all know people can be in comas for months! The fact that he has come thru all the surgeries is amazing in itself. They are going to put in a feeding tube and trach…

Head and Neck Cancer

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