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Diamox
I have been on Diamox for about 5 or 6 months, it was to help with the excess water build up on the brain, now that I am off of it everything taste like salt. For a while I was thinking my wife is just using too much salt in everything. But now even my bottled water tastes salty, the Diamox made all my food taste different…
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tongue pain
I thought yall might have sone insight as to when my tongue would quit burning? i am 13 weeks past treatment and anything i eat still burns my tongue. I tried to eat eggs this morning and they burnt. I dont know if its the texture (which feels like sand) or the burns on my tongue that are just still sensitive. I really…
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encouragement
Hi everyone, My mom was diagnosed with cancer in July - squamous cell carcinoma. The cancer was on the back of her tongue, spread a little to the floor of her mouth, and to some of the lymph nodes on her neck. She was a heavy smoker, but she quit about 4 years ago. Her getting cancer has been a fear of mine since I was…
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saliva
My husband had about 70% of his tongue removed,and 36 lymopnodes. He then had 33 rounds of radiation. I was wondering if anyone could tell me aprox. how long it takes for the saliva glands to start working. Thank you.
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Chef daddy Mike Son Up-date 8-23-11
Mike called a short while ago to up-date me on his Sons condition. They were able to do the bone marrow test and it showed that the leukemia is no long in there, but his Liver has stopped working. If you remember I posted about his heart running supper fast, well that was because of the liver not working, his heart just…
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What is Jevity
I hope this isn't a silly question. Is this the food used for the feeding tube? If so, where do I buy it or is it by prescription? My husband will have the tube in on Tuesday. Sorry for sounding so silly not knowing what this is. Is this like Ensure? Thanks, Donna
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Bad couth need help
Along with my other problems like dry mouth and can’t swallow Since Radiation I have a couth it is worse in the morning but I have through the day bad again late afternoon I couth up flame like you do with a chest cold sometimes I don’t have control over it I couth and it goes in the floor or on me has anyone had this…
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Pet Scan Results
Doctor just called said no sign of cancer in tonsil, node, or whole body area. But Steve did have a spot on his right face show up the first time he had a pet scan, so they rad it to. ENT & Chemo doc think this is a false reading, no this pet scan has lite up a small area again. Doctor said it could be inflamation, or…
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Has anyone heard from Jeepman?
I was just wondering if anyone has heard from Jeepman? I have not seen him post in awhile.
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What if caregiver gets cancer? update 8/25
Went to doctor for CT result yesterday, just couldn't wait over a week. CT clear but since I found the lump on my tongue refered to ENT ASAP. See ENT this afternoon. Please pray it is something else other than cancer. Debbie OK, I have not posted this question sooner because I know you all will tell me that it aint cancer…
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Ray the hypochondriac
Lost one salivary gland through Scc damage just had my first 4 Radiation treatments but I am so dry my tongue is not sticking its sliding over the roof of my mouth. I know we are all different as each body is probably like a snow flake,unique. I do think this might be a bit early.
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Smoking
My husband finished treatments on April 20, 2011 for SCC of the left tonsil hpv. His doctors told him this was caused from HPV and not smoking, so what does he keep doing, smoking, does anyone here still smoke after treatment, and does anyone have any comments on how I can help him to quit. I quit when he was diagnosed,…
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First Pet after treatment
Steve goes in for his pet scan tomorrow at 9:45, I am not going to lie, I am scared. I know how mean cancer can be, saw take a great man before, I know the doctors say Steve has a 80 percent chance of being cured, but damn it, I am scared, please pray for me to have the courage to smile and show him the braveness that I…
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waiting is the hardest
Here I set waiting for Steves pet scan results, we called and she said they are typing them up and will have the results this afternoon. Steve is taking a nap and here I set with a million things running through my mind. Why can't I stop being scared, I hate this feeling, I know his out look is good, the doctors can't even…
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eating again
For the last three days Steve has been eating with me, he has cleaned his plate, and even asked for seconds on my salad. God is good, I feel I can breathe a little better each day. I try to keep up the brave front for him, but after watching my first husband pass on from cancer, the old fright returns. Steve is not just my…
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smells
I know everyone is different, but has anyone continued to have an aversion to cooking smells? Jim has gotten sick from food smells from day one so I have had to eat fast food or take out for the last two months. If you had this problem, how long before it went away? I am craving home cooking and the expense is putting a…
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One Year Tomorrow
Dear CSN Buds: Tomorrow the 21st will be one year since Charlie passed away. I'm getting ready to leave here and go to NC and be with his family. I can't say it's any easier being without him and I miss him more than ever; but because of folks like y'all I've managed to get to this point! Truly y'all have been so wonderful…
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Still kickin'...just not as high
Thank you all for your posts. Sorry I have not posted earlier, but have been feeling a bit numb. The good news is that no disease was found in the neck. Even the hot spot they were watching is no longer visible. Hooray! Unfortunately, there is a questionable site in my right lung. I will be going to Mt Sinai for a needle…
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How far out were you when were you able to eat regular food again?
My husband completed chemo (taxol & carboplatin, 9 times, once a week) last week. Yay! He has 9 more rads (of 34) and he's finished! What a happy day that will be! :) He has lived on 3 high calorie, high protein shakes a day & has been able to keep the weight on without a peg. He is wanting to eat regular food so bad. When…
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Here I go...
I go into Mayo hospital on Monday 22nd to have my surgery...They are going to use the lazer and do a neck resection...Don't know about radiation yet until they do the pathology...They may leave a hole in my soft palate, it is a 50/50 proposition now but, the doctor said they can repair it later...So, I am nervous and very…
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Hope this helps...Part 2
LLLT has been evaluated for the treatment and prevention of mucositis among patients with head and neck cancer undergoing radiation and/or chemotherapy, demonstrating potential promise for reducing severity and incidence of oral mucositis in this group of patients. The laser is directed at affected areas of the mouth and…
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Tongue pain
Has any one had tongue pain after bot surgery atter six months out. Still on pain Meds a few times a day. is it time to see a physical therapist to work on tongue exercises?
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Ear Tickle pre and post treatment
I finished chemo-radiation treatment on June 1st for a 2 cm tumor at the top of my larynx on the right side with 3 lymph nodes (both sides). I went for my first post treatment exam and scan on July 26th and they said everything looks good. Among all the other symptoms and problems described on this board (learning to eat…
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Hope this helps some HNC patients...Part 1
Laser Therapy Reduces Oral Mucositis in Head and Neck Cancer The use of low-level laser therapy (LLLT) may reduce the incidence and severity of oral mucositis caused by chemotherapy and/or radiation therapy among patients with head and neck cancer. These results were presented at the 2011 annual meeting of the American…
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Hi everyone! post treatment update
Hi everyone I really missed you guys! I hope everyone is good and well, as for me ive been going through a lot since I was last on to start with I lost my health insurance five months ago and have not seen my doctor for my cancer check ups which im supposed to go for every two months and have not seen for five months the…
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White Blood Cell Count
Woke up this wed with a fever of 100.5, called doc and was told to take tylenol, did that, felt fine for most of the day. Around 1:30 in after noon took temp again it was at 101, called doc again , sent me to emergency room , my level was @ 1.8, spent the last 2.5 days in hospital, antibiotics and all. Levels now back to…
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Questionable statements by a Radiation Oncologist... my Radiation Oncologist...
I'm about 15 months out from end of treatment for Stage 4 BOT with mets to multiple lymph nodes on both sides. Some of you here may recall my comments during treatment about my Radiation Oncologist... fondly referred to as "the mollusk" owing to her 'warm bedside manner' not. I believe I received the maximum allowable…
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Question About what to do about being light headed all the time?
Hey Guys I just wanted to ask what I should do about being light headed all the time? Because it just started to do this last week it doesn't matter if I am sitting down or standing it feels like I am light headed all the time. But I also noticed that when my ears feel like they are popped I can hear my self talk and…
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cancer treatment centers of america
my dad got diagnosised with laryngenal cancer- stage 4A 2 weeks ago we are having trouble talking my dad into going away from the small area we live at for treatment does anyone know about the cancer treatment center of america in illinois the cancer could possibly spread to his lungs local doctors say if that is the case…
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New Song
As I wait for the call from the Cancer Center, I'm watching Good Morning America. Robin Roberts introduces a new Martina McBride song, I'm Going to Love you through it. Type it in your search engine, get the kleenex. Beautifully done. Inspiration. (I'm sure Sweet or Skiffin will be able to cut and paste and whatever else…