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SCC what to expect when I am 5 months post Radiation
Trying to work out what state I am going to be in after 35 -40 days of radiation the 3d type as I am going to Bali in April come hell or high water. E.G. Swallowing Energy (mountain biking tour,White water rafting wimp level LOL scuba diving.) Pain etc my health pro's are obviously keeping the information on the light…
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yeast infection at feeding tube site
Does anyone know if a person has a yeast infection around feeding tube site can you also have this inside the stomach and or inside the belly? David got his tube out yesterday after 1 year of use, he has yeast infection and wondered if he might have the infection on the inside of his stomach also? He didn't ask the doctor…
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Arthritis question
It seems now that i have the honor of maybe having arthritis. I had my first surgery in July 2010 double neck dissection with cancer on the left side. Also they removed 95 % of my jaw. I had a 15 hour surgery for that. Then i had 2 surgerys shaping my tongue so i could eat and talk.My last tongue surgery was in March. In…
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Energy level
Well, I have another question. It seems that since Bob finished radiation two weeks ago, his energy level just goes down, down, down. He actually just slept or napped 20 hours yesterday. Is this "normal"? I'm really encouraging him to at least step outside for a bit, but he's not really getting much exercise. Do I force…
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how long until the pain goes away
My husband wants to get back to work, but he's still on pain meds and he goes off shore and you can't take pain pain meds while on the oil rig. He is getting frustrated.. He was going to go next week, but it's for BP and they are super strict. So, we will continue to count our pennies.. LOL
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You Can Call Me NED!!!
My 1 year PET/CT scan came back clean. The residual hot spot that was evident in the 2 previous PET/CT scans is gone. What a great day. The doc didn't even give me a chance to sit down before he gave us the very good news. Cheers. Jimbo
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Needles
You know, I’d really thought that I was pretty much over needles. I always used to faint or nearly faint when I got them. I remember that in college I would even give blood but immediately go to the recovery cots because it was that or the floor. Cancer changed all that... or so I thought. For six months I had at least one…
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Suggestions for Heartburn
I have had this 5FU pump since late monday, due to have it remove late friday afternoon, for some reason today I have had heartburn, any suggestions? Can I take equate or tums? Thanks Linda
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technical question
Sometimes I read a discussion that says you can contact a particular person directly to ask a question by clicking on their name. Where do I do this. I know it is inappropriate to start a new topic to someone in the midst of a discussion already begun. And sometimes people offer for you to email them directly...I don't…
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ROZAROO - Happy Birthday.....
________!_!_!_!_!_!_!_______ @%@%@%@%@%@% [________HAPPY__________] [_______BIRTHDAY________] [_______ROZAROO________] @%@%@%@%@%@%@%@ Best, John
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Here we go again.....
Hi Friends, Just a request for prayers as my PET/CT is set for Friday. I had been declared NED, yet they are watching a "hot spot" in mt throat. I have not had a PET since last year since my insurance company would not approve it because of the NED diagnosis. UGH! I am staying positive, and in prayer. I know that He's not…
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New ACS study
Probably some of you have seen a news piece on the results of a new experimental treatment carried out witht he support of ACS. Dr. Carl June conducted the treatment of three cancer patients diagnosed with a terminal stage of leukemia. The approach was to have the body produce what he called "chimera" cells from the…
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hello to all or should i say G'Day from dingo land LOL
had malignant tongue and throat removed as much as they could. Mask has been made and on the 16th I start the IMRT (3D) radiotherapy am looking forward to seeing everyone's reactions and treatments as these sort of sites are lots more helpful than Oncologists no offence to them. Ray PS please feel free to say hello
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Facebook there we go
Thought i would clear up the Title as they can be misleading hehe E.G. Coke anyone? Is it ok to post FB details on here Ray PS mine is todd.raymond56@gmail.com
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Secon Erbatox
Today is a long day for us. Rads at 9am, home, then Erbatox at 1:30. Jim has been doing great since Friday. First time in months that he only take a nap then is up till bedtime. I know the long day will exhaust him. I just pray he recovers quickly. Daughter and grandson in from Spokane so that is helping with his energy.…
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Type 2 Diabetis
I have been taking Metformin for almost 2 years now, and it has done a fairly good job of keeping my levels on track. When I had my first infusion on monday, the nurse said the chemo would affect the levels, today it was @ 391...does anyone else here see higher readings during the chemo treatments, and if so what can or do…
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Heart rate and levothoroxine
The current exercise thread brought this to mind. Yesterday I had an ear cleaning at my General practitioner's office. He did the routine vitals. My resting heart rate was 56 and has been around there for the last year or so. I exercise all the time and just thought it was a positive side effect of exercise but now I am…
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Exercise after Cancer
Good Afternoon! I hope this day treats you well. I came across the article on the NYT about exercising after cancer. New claims are that exercise can reduce the risk of recurrence by 40%! However, one part I wondered about said that it helps patients who gain weight during treatment, slim down and gain mobility. I would be…
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Michael Douglas smoking again
It is none of my business really but I am quite angry that someone famous like Michael Douglas would pick up cigarettes again! I was Stage 4 tongue cancer. As a former long time smoker I no longer smoke and don't want anyone around me smoking. I have tried to be an outspoken anti smoking person and warn all my friends…
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Cherry Pie and Chemo
Thanks all for all the good words and encouragment. Thought I'd let you know how the first day of rads/chemo went, but first the cherry pie. Hubby's favorite dessert is cherry pie. Since my baking skills are seriously lacking I found a a wonderful place in the city that makes artisonal pies and delivers to the burbs on…
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My husband is grubbing and had his first beer in 6 months
My husband is the grub monster. He is going to town on some food. He even tried a beer the other day and enjoyed it. He still has trouble with dry foods, but for the most part he is getting his main nutrition by mouth and supplementing with the peg tube on days his mouth hurts too bad. Not to crazy about the beer, but he…
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Miss you guys
I am sorry I have not been posting anything the last 2 weeks. I hope every one is doing okay and all scans come back clean for those who are waiting. I am sending prayers and hugs to all of those who need them. Please say a few for me. My mom was in the hospitol with a blood clot in her leg and one in her lung. She is home…
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Important! Please help Connie start eating?
Hello again, I have another question for the experts. Although Connie is attempting to eat, she is having a hard time with it. She is 5 months on the peg tube and has not regained any lost weight. In fact, she weighed herself the other day and had lost another 3 lbs. She started treatment at 134 lbs and is now down to 107…
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News from a happy man
I hesitated to post this good news as so many here are hurting. But, I thought that maybe some good news is what we all need. I just had my 16 month post treatment PET scan and it came back normal. Just call me Ned !! This is my second normal scan in 8 months.. I was so happy for the good reading at this time. I felt…
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Coke anyone
I have not been able to drink a coke for the passed 9 years. I am not sure why but after my first treatment just could not get it down and it burned my mouth so bad I just never wanted it. A few days ago my stomach was up-set and I was feeling bad when my sister-in-law said try drinking a coke. I told her I can’t and the…
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When is it time to give in and get the peg?
I am very concerned for my hubby. He is 3 weeks into his rads and chemo and his appetite is way down and he can get very little food in him. He is not working right now, but is staying pretty active and is fighting with everything in him. The shakes even hurt him, he doubled over while trying a banana the other day.…
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Well this sucks
Some of you may know that I've been having trouble with the right side of my face, chin and tongue. Well two days ago I started getting that familar tingling feeling in my left jaw and then I had a "Hondo". That sharp pain that went from my upper jaw almost to my chin. Than goodness it was only a short pain. Oh well just…
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A year ago....
I realized today that about a year ago was when I decided to try and find out why my voice was changing and I was having trouble swallowing. My primary care doc missed it over and over again. The best advice I can give anyone new to the site is to listen to your body and if you aren't feeling better, get another opinion.…
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First Day of Chemo/Rads today!
Today is my husband's first day of treatment. Rads first then chemo after. They said 5-6 hours for the chemo. I'm a little nervous but hoping for the best. He wanted a cherry pie for dinner last night so I ordered one for him...I thought why not? He is determined to try and not use the PEG at all, but we'll see how it…
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1st Chemo Treatment
Well here it is then of the day, I'm tired , but I think that is atrributrd for being there for 8 hours. My daughter and grandaughter came with me, while they couldn't stay because of the young ones age, since I was first in the allowed her to see rhe room set up, sthe infusion needles and bag trees, she was scared at all…