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roll call
How do you post to roll call--maybe I've had to much Chemo--can't think to well
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Tongue ulcer from rad?
Did anyone develop ulcers on the side of the tongue where the radiation (primary tonsil) was aimed? I am 2 weeks done treatment, and I mostly escaped mouth sores but I have what looks like an ulcer on the side of my tongue at the back.
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On The Road Again
Hi all: In just a few hours I'll be on the road again. Headed to G'burg with friends for a week! I have to leave my babies here though and I hate that! Hope everyone's first week of new year has been good. Have a prayer request. My sister's best friends are two people she went to high school with and she's known Martha…
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Funny what you forget between surgeries
This is my third surgery on my tongue. Two last May and another last week. What surprises me is how much I've forgotten since the last surgeries. My tongue is swollen from the surgery and it's harder to swallow and my speech seems more messed up. But I could be all wrong. It's only be a week. I've started eating soft food…
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SSD and unemployment
Anyone here collect both SSD and UE? If we can't collect both then why SSD since there is more money from UE?
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don't know if this is the right place
First I have to tell you that my husband is stage 1v breast cancer, however he has mets to all the bones. Back in 2009 he had mets at the base of the skull, had radiation etc. I am posting here because we recently discovered a tumor or knot the size of a quarter in his neck area...kind of close to the base of neck, but not…
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GOOD-BY from HONDO
Hi everyone I have been here for a pretty long time posting but feel now it is time to leave. God has really blessed me in taking care of me while dealing with this NPC cancer all three times. As many of you know the last time my C came back all the doctors could offer me was just more Chemo and only gave me less then a 5%…
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January 2, 2009
Well this last three years has been an adventure to say the least. I was Dx on Janaury 2, 2009....the first time that I heard the words, "you have throat cancer".... Happy to say that I'm still here and doing well. I have developed many great friendships while on this forum. It has given me a lot, and hopefully I have…
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ACS Facebook users, old friends finding you?
I have some old friends from high school who I haven't spoken to for ages and finding me on facebook recently, requesting confirmation. I do not know whether to initiate contact. I believe most of my fb friends now are aware of what I'm going through and I am not sure whether I want to spread the news to old friends I do…
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Update
I am still having problems with no saliva not able to eat very much I am 13 mounts after treatment. I have got very weak and tired I have a bad sinus head congestion my Doctor gave me 2 rounds of antibioses which has caused yeast infection in my throat. I had blood work last week and the Doctor said my red blood cells were…
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Thank you
Thank you everyone for your kind words. Sharon, I think my depression (and only admit it here) came from the fact that I was the center of attention. Then suddenly it stops. I don't exactly mean that how it sounds. All of you can relate that once they say you are cancer free it does not really end physically or…
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Back
Hello everyone and happy new year. I am coming up on 2 years cancer free. During my cancer I was constantly on here and there are a few members that I am enternally grateful too. Not only for their advice but their humanity. These people (and I still see they are here helping others) I hope I can help others in even the…
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Prayers did the job
Just got back from dad's appointment and everything looks great. His tumors have reduced by over 80%. The only thing that showed on the scan was two spots in his lympe nodes. Everything else was clean. The doctor plans on doing 9 more rounds of the same and see what happens. The nurses seem to have their own treatment paln…
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Radiation Ulcer
My husband is 6 months out from 37 radiation and 5 chemo treatments for SCC diagnosed in January for tumor on aryepiglottic fold and 2 lymph nodes. Around the 3rd month out of radiation they noticed an ulcer that formed in the left supraglottic region of his throat. The 2 lymph nodes and tumor have completely resolved.…
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1st scope since treatment ended
Just got back from the first scope since treatment ended on 10-19-11 and dr said it looks good no mass on the tonsil, still inflamed though He scheduled a ct scan and said he will compare that from the first one and if all looks well he will see him in 4 months. I tried to say in not so many words are we ok and the dr said…
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Scan Type and Frequency
I know this subject has been brought up before but I couldn't find the answer in previous posts. I would like to know what frequency scans are done post-treatment. Buzz has had scans every three months. Out of 5 scans, 3 have been PET scans which have shown increased activity in several areas. September's scan showed a…
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Eating Habits
I have always been a carnivore but I think I am losing my appetite for meat. Not only does it taste dry due to the lack of saliva but it just isn't appealing. I wonder if I am a closet vegan. I have always liked most veggies but I don't think I could eat them and only them. Come to think of it I occasionally like fish and…
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Liquid Recipes
Can anyone give me a list of...or a resource for recipes of decent tasting, high protein/calorie food. We have a commercial grade blender coming this week and my wife is so tired of Ensure Plus and Boost Plus. It is supposed to have a recipe book with it but I fear that it is more geared towards smoothies, etc. I have been…
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Week 5 of 6 radiation and chemo
Hello Everyone forgive me if I am not allowed to post here as I am a caregiver. My mom is 56 yrs old and was diagnosed with throat cancer. Her primary was never found but they went ahead and began her treatment 30 shots of radiation and 6 treatments of chemo which is a 2 hour drip of taxol and a 1 hour drip of carboplatin.…
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hey Bigfuzzy
What you riding I am on a Merida
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Enjoy the New Year Everyone
I wish you all the best in 2012 Let us remember all of our family and friend who are still going through treatment as the old year comes to an end and the new one begins. Also let us remember the ones who did not make it to see 2012 may their memories continue to be a part of us here on CSN. I wish and pray for each of you…
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My fathers PET SCAN
Well so far my father has had 2 PET SCANS since his radiation and chemo ended back in August, and they both have been NED. I am soo elated I, i, I just am soo HAPPY! However, something still reminds me that this nasty disease still has the chance to come back... several years down the road.... He has another PET SCAN in 2…
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Too much saliva
When I had radiation in 2010, I started the fluoride soak and carried water everywhere. Now I have a trach, and had the lower right side of my mouth rebuilt and am on chemo. Swallowing because of the last surgery is tough. One of my biggest problems is too much saliva. I have a home suction machine that I stay close to.…
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Coughing up mucus, blood tinged?
About 2 weeks post rads, last few days, noticed some blood when I hack up mucus, not every time and not sure where it's coming from. Did anyone else get this?
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Happy Day After New Year Everybody
Hi all: Posted a new picture of Charlie that was taken several years ago. That's the first Sheltie we had (Smokey) getting a treat out of his pocket! Hope everyone had a Merry Christmas and Happy New Year. I went to Charlie's folks for Christmas. Mother-in-law got out of the hospital on Christmas Eve Day and doing pretty…
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What is your favorite (or least awful, whichever is appropriate) flouride rinse?
Any thoughts...I need to get better at doing this. Thanks Stacey
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Mixed IMRT and PT for Ethesioneuroblastoma
I had surgery to remove ethesioneuroblastoma in my sphenoid sinus. I'm going to have a mixed radiation therapy of IMRT and PT (proton therapy). Anyone had experience with this kind of mixed threapy? Thanks, olivia
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Altered taste buds
I am trying to get off the peg tube. March 3, 2011 was my first radiation/chemo treatment. At first things were way too sweet or too salty. Now I have no problem with sweets, can eat vegetables and dairy fairly well. However, it some foods seem to be really hot to the tip of my tongue and it doesn't have to be a spicy…
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Arm pain question
Jim has started to have pain in his lower left arm, between the elbow and wrist. Could this be treatment related? Should we call the doctor and which, Rad, Chemo, ENT, GP. I know that arm pain can signal heart attach but I think that is uppet arm. Any help is appreciated. Jim is 7 months post treatment. Debbie
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Still so sick
My husband finished treatment for a tumor on the base of his tongue with it in the lymph on either side. It has been 2 1/2 months and he is still not able to swallow so is still on a feeding tube. It makes him nauseas if the flow is to high so keeps it low, meaning he is not getting enough nutrition. Then he started to get…