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Feeling better already
Hello All, Have been reading the board for the last 4 hours. Inspirational, thank you. Just registered and before I go to bed (It is 2.30am where I am) I wanted to introduce myself. Strange entry into the cancer-world for me. 43 years old. Smoker, heavy drinker, HPV-. Had swelling on the left side of my neck on and off…
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Please send prayers for strength and wisdom
Andy had his ct scan on Friday and we get the results on Monday. If there is no disease progression, he continues the clinical trial protocol. If there is progression, he is out of the trial and we go back to the toolbox. Intense time here. Meanwhile, he has a blood clot in his lung which can be caused by chemo. He has to…
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SSI Disability
Do you have to claim your SSI Disability, if so, does SSI send out your year end statement?
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new. 6 months out.
hello everyone- Is there anyone out there treated w/ radiation and chemo for hypopharngeal stage 4? I had 38 rounds of rads and three chemo treatments ending June 20,2011. I'm 6 mos. neg last month.
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Having a Laryngoscopy done tomorrow morning
Well I went and seen the new or newer ENT doc and he has scheduled me for a scope to be done tomorrow. From his initial look he said it did not look like cancer but bad radiation burns, I said it has been almost a year since I went through radiation and he said he has seen it come up 2,3 and even up to 5 years after.…
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what happens after chemo and radiation?
My mom completed chemo 2 weeks ago ( taxol/carboplatin) and did her last radiation session on Jan 5th for throat cancer. She refused the feeding peg from the start but I had to have her admitted right after her radiation because she was malnourished. She refuses to eat or drink anything, not even the supplements like boost…
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I'm a new member looking for friends
Hi Everyone, I'm new here...just stopping by to say hello.
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newbe
Hi, im writing on behalf of my dad, he was dianosed with sinus cancer in November. He has recently returned home from hospital after surgery where he needed reconstruction to his jaw. Although he has a lot of support at home, I think this site would really help him as you have all been there. As you all know , this is a…
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New to CSN - long term surivivor
I'm new to CSN, but am an old acquaintance of squamous cell of the head and neck, mine was actually found at the base of the tongue over twenty years ago (June 1991). I've lived longer than was expected from my treatments at the time and have found that the complications from my chemotherapy and radiation treatments have…
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register for Roll Call
I'm interested in registering to "ROLL CALL" Can anyone get me pointed into the right direction. My handle is RJC-still-Vertical, I was originally diagnosed with Head & Neck Cancer (squamous cell carcinoma) at the base of the tongue in June of 1991, finally cleared treatments in August of 92 and have been vertical ever…
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December PET Shows METS
Blessings all, Just thought I'd make a rare post and share my current status. Back in early December I shared that I had a small intestine blockage that resulted in a tumor removal that was positive for SCC. Just before Christmas I had a PET done which they compared to the last one done in Sept 2011. I elected not get the…
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I'm exhausted!
I'm so sorry for posting this because I know it has probably been posted several times - I just can't find anything about it. So I was diagnosed with Adnoid Cystic Carcinoma July 2011. I went through 33 radiation treatments, was done on September 19th. I felt good for a few weeks and then started getting sluggish and by…
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Phase Two
Next Wednesday I am on board to have a radical/modified neck dissection. My surgeon will also move my left salivary gland to the center of my mouth so I don't lose it during radiation. It will be an overnight because of the 5:30pm time slot. More if needed. There is a dilemma in my case though. I went and met with my new…
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Hyperbaric
Hi Everybody, Just went to the dentist and it looks like I am going to need some teeth pulled. Maybe as many as 5. Anyone been through this? Your input would be appreciated. Best, Steve
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Update on my diagnosis.... maybe
Hello All, My last post was explaining that I have Stage IV SCC with Occult Primary(3 large lymph nodes involved right side of neck). My doc's had decided my treatment plan was 7 weeks of daily rads and 2 Cisplatin treatments. I was ok with this, I had a plan and was ready to go. In fact, treatments are to start next week.…
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Partial Glossectomy with primary closure
Hi friends! How are you? I´m here to ask / share experiences in people who had partial glossectomy with primary closure. It´s been 37 days from my surgery and I´m still talking like a 5 y.o. child with speaking problems. Some works really strange, even more in my main language (portuguese). English is a bit better... I´d…
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Got scoped yesterday...no sign of nothing. NPC
Well this is my second check up since treatment and my Onco is still pretty proud of herself and how she nailed my tumor. She said its all gone, I am good to go.It was a pretty big one,lol It was tough and it is still tough. Everyday I wake up and think about this thing in one form or another.I wake up in the middle of the…
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GlioBlastoma Tumor or Brain cancer
What are the signs of a patient with brain cancer is near the end a
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Scope and cat scan results
Hello to everyone On Wednesday January 4, my dad had his first scope since tmt ended and it looked good. On Friday we had a cats can. On Wednesday January 11, (my sons 4th birthday) the dr. Called and said there was NED. The tonsil mass was gone and the lymph nodes were all normal measuring less than 1 cm. I am still numb…
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Cyberknife?
So, went to the doctor who never seems to give me good news--my ENT. Latest surgery appears to be successful. Clean margins everywhere. The bad news is that there appears to have been more than one area of cancer in the area they removed. This is after a surgery 8 months ago that took out the primary tumor. He's talked to…
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Need some prayers
Dad will get the results of his first CT scan since starting chemo up again for a reoccurance of tongue cancer. His docotor is pretty sure it will show the chemo has really worked well. Dad is feeling better and acting more like his old self. Just wanted to have a few extra paryers. Kathy
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ENT Monday for ear and mouth problem
As I posted a while ago, am having trouble with ear pain and a sore inside of mouth, it comes and goes and has only been there since I had my teeth removed and dentures made. Go to the Ent on Monday so he can take a look.
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pain meds
Can someone tell me what they think of this? I have started to get off my fentanyl patches and just got down to 25 a few days ago...and am feeling achy all over, nauseous, my skin on my upper body seems to be on fire, and i wake up at night with immediate thoughts of anxiety and dispair even though I was just NED'ed by the…
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Post-surgery, radiation Lymphedema
Has anyone had success with "draining" the lymphedema in your neck after dissection and radiation? Trying to get an appointment with a PT who specializes in lymphedema therapy, but I'm curious whether anyone has had success getting rid of that neck "waddle" after lymph removal and radiation. As my face becomes thinner due…
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Bigfuzzydoug aw come on talk to me
Hi there obviously you are big into cycling. Have not read your story so excuse my ignorance. I am not long out of Radiation just ride for the freedom as i used to run bought knees got so bad had to be replaced last christmas was told I could not ride the bike again (not enough bend) huh March I did the 60KM Just over 37…
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29 y.o. girl tongue cancer
Hello to all. I was really in doubt before joining - and also afraid. Last october i had a surprise with the possibility for having cancer. None of my family had this. Cancer ghost was not over my family. But now it is. I had a tongue (right side) biopsy on Oct 28, 2011. Result came as low displasia. The doctor said it…
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Surgery only?
I'm new to the boards, but just from reading the posts it's easy to see what a great group this is! My Dad had a neck dissection with a free flap in early October for a T3N0M0 SCC of the hypopharynx. He's doing great and the docs call him their "rock star" patient. His surgeons are nationally rated, and we're very pleased…
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Altitude
I am going to Colorado in March. I am doing well physically and will be 7 months out from treatment when this trip occurs. I was wondering if anyone has taken a trip after treatment to a higher altitude and did it cause any problems? Thanks just want to know what to look out for.
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Just When I thought
Just when I thought ok, chemo over, rads over, follow-up PET scheduled for end of March, I can concentrate on getting on with my life one day at a time...I had an appointment today with my internist for a non-cancer issue, I wake up this morning with red blister blotches on my left side going around to almost the middle of…
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Neck abcess post radiation, chemo and neck dissection
Hello everyone, I finished treatment (chemo/rads/neck dissection) on August 2 2011. Life has slowly gotten back to a new normal for my wife and I. I have been exercising again and then BAM! .......in a matter of a few days I ways in the hospital in critical care. I was out of town for the New Year's holidays and got sick,…