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Head and Neck Cancer

"If you smile at me, I will understand"
(Crosby, Stills and Nash reference) Today was teeth day at the local torture shop, I mean dentist. My dentist is a truly wonderful man with an even better example of humanity in his primary hygenist, Pam. But it does not make the trip any more enjoyable, for all of their wonderful attributes as humans, as professional…
What type of follow up after treatments have ended?
Hello, Husband PET is clear and the healing has begun. He had stage 4a throat cancer. Primary site on his tonsils and formed a tumor on his neck. He never got his tonsils out and he went through the chemo and radiation. I'm curious as to the kind of test your doctors have done after your first clean PET scan. The…
Update on operation
Hello friends, I just wanted to give you an update on how Carmen's operation went. It went well considering what it is about. The opereration went on for a couple of hours. Oh my........we had no idea of the extend of this operation. We thought he was removing a little bit (2 cms by 4). Poor Carmen, she was in shock when…
A few questions
I have read every old post about teeth and flouride but still have a question. I use trays with flouracil 20,000ppm 5 mins a day. I asked my rad doc if it was for life and he said no, just until you get some saliva back, probably a few years. Is this true or does it just boil down to personal preference, insurance etc?…
Back from G'Burg and Prayer Requests
Hi all: Got back from G'burg yesterday afternoon. We had a blast even with the rain and we did have a little snow. One of the friends I went with wanted to go to visit where they scattered her brother's ashes last year at his request when he passed away due to cancer; so we did that of course and the rain stayed away for…
depression or just a temporary state of mind?
Sometimes in the middle of the night I wake up and am already in racing thought mode. I lay there and wait for it to pass... Sometimes during the day I become overwhelmed by the thoughts of whats the use? I take a lorazepam. I am going to die eventually and came so close to it while I was on treatment that I think I…
Feeling better already
Hello All, Have been reading the board for the last 4 hours. Inspirational, thank you. Just registered and before I go to bed (It is 2.30am where I am) I wanted to introduce myself. Strange entry into the cancer-world for me. 43 years old. Smoker, heavy drinker, HPV-. Had swelling on the left side of my neck on and off…
Please send prayers for strength and wisdom
Andy had his ct scan on Friday and we get the results on Monday. If there is no disease progression, he continues the clinical trial protocol. If there is progression, he is out of the trial and we go back to the toolbox. Intense time here. Meanwhile, he has a blood clot in his lung which can be caused by chemo. He has to…
SSI Disability
Do you have to claim your SSI Disability, if so, does SSI send out your year end statement?
new. 6 months out.
hello everyone- Is there anyone out there treated w/ radiation and chemo for hypopharngeal stage 4? I had 38 rounds of rads and three chemo treatments ending June 20,2011. I'm 6 mos. neg last month.
Having a Laryngoscopy done tomorrow morning
Well I went and seen the new or newer ENT doc and he has scheduled me for a scope to be done tomorrow. From his initial look he said it did not look like cancer but bad radiation burns, I said it has been almost a year since I went through radiation and he said he has seen it come up 2,3 and even up to 5 years after.…
what happens after chemo and radiation?
My mom completed chemo 2 weeks ago ( taxol/carboplatin) and did her last radiation session on Jan 5th for throat cancer. She refused the feeding peg from the start but I had to have her admitted right after her radiation because she was malnourished. She refuses to eat or drink anything, not even the supplements like boost…
I'm a new member looking for friends
Hi Everyone, I'm new here...just stopping by to say hello.
newbe
Hi, im writing on behalf of my dad, he was dianosed with sinus cancer in November. He has recently returned home from hospital after surgery where he needed reconstruction to his jaw. Although he has a lot of support at home, I think this site would really help him as you have all been there. As you all know , this is a…
New to CSN - long term surivivor
I'm new to CSN, but am an old acquaintance of squamous cell of the head and neck, mine was actually found at the base of the tongue over twenty years ago (June 1991). I've lived longer than was expected from my treatments at the time and have found that the complications from my chemotherapy and radiation treatments have…
register for Roll Call
I'm interested in registering to "ROLL CALL" Can anyone get me pointed into the right direction. My handle is RJC-still-Vertical, I was originally diagnosed with Head & Neck Cancer (squamous cell carcinoma) at the base of the tongue in June of 1991, finally cleared treatments in August of 92 and have been vertical ever…
December PET Shows METS
Blessings all, Just thought I'd make a rare post and share my current status. Back in early December I shared that I had a small intestine blockage that resulted in a tumor removal that was positive for SCC. Just before Christmas I had a PET done which they compared to the last one done in Sept 2011. I elected not get the…
I'm exhausted!
I'm so sorry for posting this because I know it has probably been posted several times - I just can't find anything about it. So I was diagnosed with Adnoid Cystic Carcinoma July 2011. I went through 33 radiation treatments, was done on September 19th. I felt good for a few weeks and then started getting sluggish and by…
Phase Two
Next Wednesday I am on board to have a radical/modified neck dissection. My surgeon will also move my left salivary gland to the center of my mouth so I don't lose it during radiation. It will be an overnight because of the 5:30pm time slot. More if needed. There is a dilemma in my case though. I went and met with my new…
Hyperbaric
Hi Everybody, Just went to the dentist and it looks like I am going to need some teeth pulled. Maybe as many as 5. Anyone been through this? Your input would be appreciated. Best, Steve
Update on my diagnosis.... maybe
Hello All, My last post was explaining that I have Stage IV SCC with Occult Primary(3 large lymph nodes involved right side of neck). My doc's had decided my treatment plan was 7 weeks of daily rads and 2 Cisplatin treatments. I was ok with this, I had a plan and was ready to go. In fact, treatments are to start next week.…
Partial Glossectomy with primary closure
Hi friends! How are you? I´m here to ask / share experiences in people who had partial glossectomy with primary closure. It´s been 37 days from my surgery and I´m still talking like a 5 y.o. child with speaking problems. Some works really strange, even more in my main language (portuguese). English is a bit better... I´d…
Got scoped yesterday...no sign of nothing. NPC
Well this is my second check up since treatment and my Onco is still pretty proud of herself and how she nailed my tumor. She said its all gone, I am good to go.It was a pretty big one,lol It was tough and it is still tough. Everyday I wake up and think about this thing in one form or another.I wake up in the middle of the…
GlioBlastoma Tumor or Brain cancer
What are the signs of a patient with brain cancer is near the end a
Scope and cat scan results
Hello to everyone On Wednesday January 4, my dad had his first scope since tmt ended and it looked good. On Friday we had a cats can. On Wednesday January 11, (my sons 4th birthday) the dr. Called and said there was NED. The tonsil mass was gone and the lymph nodes were all normal measuring less than 1 cm. I am still numb…
Cyberknife?
So, went to the doctor who never seems to give me good news--my ENT. Latest surgery appears to be successful. Clean margins everywhere. The bad news is that there appears to have been more than one area of cancer in the area they removed. This is after a surgery 8 months ago that took out the primary tumor. He's talked to…
Need some prayers
Dad will get the results of his first CT scan since starting chemo up again for a reoccurance of tongue cancer. His docotor is pretty sure it will show the chemo has really worked well. Dad is feeling better and acting more like his old self. Just wanted to have a few extra paryers. Kathy
ENT Monday for ear and mouth problem
As I posted a while ago, am having trouble with ear pain and a sore inside of mouth, it comes and goes and has only been there since I had my teeth removed and dentures made. Go to the Ent on Monday so he can take a look.
pain meds
Can someone tell me what they think of this? I have started to get off my fentanyl patches and just got down to 25 a few days ago...and am feeling achy all over, nauseous, my skin on my upper body seems to be on fire, and i wake up at night with immediate thoughts of anxiety and dispair even though I was just NED'ed by the…
Post-surgery, radiation Lymphedema
Has anyone had success with "draining" the lymphedema in your neck after dissection and radiation? Trying to get an appointment with a PT who specializes in lymphedema therapy, but I'm curious whether anyone has had success getting rid of that neck "waddle" after lymph removal and radiation. As my face becomes thinner due…

Head and Neck Cancer

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