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My son
Hi guys, I apologize for not checking in once in a while but my son has gotten worse. We're in the hospital now, he was ambulanced in Tuesday evening after 7 hours of chemo up here. The infusion department of the hospital closes at 7:30pm and everyone but one nurse had left and then my son became dizzy, nauseous and…
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prayers for Jim update
Thanks for all the prayers and offers for help with my Ambien. I have recieved some money to help with that. Jim's surgery was a success, Thank you Lord! He is home and only has a little pain in his stomach, although still sleeping alot. He has not needed pain meds since leaving the hospital. Doctor said he would regain…
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Not Head and Neck cancer releated but its part of cancer but Joe Paterno Dies from lung cancer
I just wanted to pass long if nobody as heard but Joe Paterno Dies form lung cancer last night. Joe my good friend you will be truly missed.
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First post treatment CT scan
I have been reading posts in this forum since my diagnosis of HPV positive left tonsil (primary) and left lymph node cancer in Oct. Of 2011. This forum has been very helpful post diagnosis, during, and after treatment. I have not posted, but am grateful to know that there are others who share this journey with me. The…
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Treatment choice.
Hi Everybody, I am new to this place it seems like there is a lot of caring people out there, with a lot of information. Well here's my dilemma almost a month ago I got diagnosed with SCC of the left Tonsil it is stage 2 3.7 cm. My ENT Oncologist said after blood work and CT scans and a PET scan that I have 2 choices for…
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NED!!!
I love NED! This was my second PET scan. Went for scan at 10 and was done at 11:30. Got to my fave doc's at 11:40 and by 11:50 he had looked at the scan and was pleased. I felt like I could breathe again. Went to see the 2nd doc at 2 and he said the scan looked fabulous or words such as that. My first doc, Dr. Siddiqui was…
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Lip and mouth sores
Hi everyone, My dad has 17 imrt radiation treatments done and carbo/5th Chemo for tonsil lymph node cancer. Right now his lips are cracked and have a blood blister on them and sores on the inside. Dr said try aquaphor and a&d ointment but it does not help. Does anyone know any treatment to help this? Also anyone heard of…
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T1N0M0 Tongue Survivor, is there any?
Hi, I´ve been looking around this forum to someone T1N0M0 tongue cancer survivor. Didn´t find anything on the archives... Is there any? Since I´m 46 days of my surgery I´d like to head some stories by someone with similar situation. Thanks a lot again!
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Carbo/taxol
will be starting carbo/taxol next week. i have read a lot about this drugs and found out about its effects as well as its side effects. anybody got this cocktail before? what to expect...
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Atrophy of the neck area
Looking to see if anyone else is experiencing issues with Low Blood Pressures (Orthostatic Hypotension - Low Blood Pressure dropping when changing positions from Sitting to standing within 3 minutes of more than 20mmHG). I am starting to associate this issues with the Atrophy of my neck due from the complications from…
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EBV iga positive (NPC)
Hi I just went to a health screening and my result show that my EBV iga is 139 >120 positive Does that means that I have contacted NPC , cause this is what the doc told me I will be going to a hospital for check up next week Thanks alot for reading
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Basketcase again!
Hi all: I've been a real basketcase the past few days! Tuesday I left the house to run errands and walk. I stopped at the park about a mile from my house and not many people were there as it had been raining. I noticed when I pulled in a car with two people just sitting there; dumb me thought oh, they're waiting on…
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No more talk, Treatment starts today
Well here I go. Radiation treatment starts today. OF course I couldn't sleep very well and have been up since 0345. Pretty nervous, but want to get it started. Yesterday was tough day, and busy. Had my finale radiation "planning" appt. Doctor freaked out when I told him I had teeth removed after my planning ct scan. He was…
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Strange new happenings
Ok, so Ron was diagnosed with Stage 1V sinus cancer. The cancer had invaded both maxillary and enthomoid (sp) as well as the frontal left lobe of the brain, eye orbit and eye and all nerves etc that go with. He underwent a 26 hour operation to remove all included eyeball and 6 lymph nodes on the right side. Then 32…
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over 8 months
my hubby is still suffering fron severe throat pain 8 months out. tonight he is at an 8 and it seems to stay between 6 -8. I am curious what is it, that seems to cause all this pain over 8 months out.
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over 8 months
my hubby is still suffering fron severe throat pain 8 months out. tonight he is at an 8 and it seems to stay between 6 -8. I am curious what is it, that seems to cause all this pain over 8 months out.
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"If you smile at me, I will understand"
(Crosby, Stills and Nash reference) Today was teeth day at the local torture shop, I mean dentist. My dentist is a truly wonderful man with an even better example of humanity in his primary hygenist, Pam. But it does not make the trip any more enjoyable, for all of their wonderful attributes as humans, as professional…
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What type of follow up after treatments have ended?
Hello, Husband PET is clear and the healing has begun. He had stage 4a throat cancer. Primary site on his tonsils and formed a tumor on his neck. He never got his tonsils out and he went through the chemo and radiation. I'm curious as to the kind of test your doctors have done after your first clean PET scan. The…
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Update on operation
Hello friends, I just wanted to give you an update on how Carmen's operation went. It went well considering what it is about. The opereration went on for a couple of hours. Oh my........we had no idea of the extend of this operation. We thought he was removing a little bit (2 cms by 4). Poor Carmen, she was in shock when…
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A few questions
I have read every old post about teeth and flouride but still have a question. I use trays with flouracil 20,000ppm 5 mins a day. I asked my rad doc if it was for life and he said no, just until you get some saliva back, probably a few years. Is this true or does it just boil down to personal preference, insurance etc?…
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Back from G'Burg and Prayer Requests
Hi all: Got back from G'burg yesterday afternoon. We had a blast even with the rain and we did have a little snow. One of the friends I went with wanted to go to visit where they scattered her brother's ashes last year at his request when he passed away due to cancer; so we did that of course and the rain stayed away for…
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depression or just a temporary state of mind?
Sometimes in the middle of the night I wake up and am already in racing thought mode. I lay there and wait for it to pass... Sometimes during the day I become overwhelmed by the thoughts of whats the use? I take a lorazepam. I am going to die eventually and came so close to it while I was on treatment that I think I…
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Feeling better already
Hello All, Have been reading the board for the last 4 hours. Inspirational, thank you. Just registered and before I go to bed (It is 2.30am where I am) I wanted to introduce myself. Strange entry into the cancer-world for me. 43 years old. Smoker, heavy drinker, HPV-. Had swelling on the left side of my neck on and off…
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Please send prayers for strength and wisdom
Andy had his ct scan on Friday and we get the results on Monday. If there is no disease progression, he continues the clinical trial protocol. If there is progression, he is out of the trial and we go back to the toolbox. Intense time here. Meanwhile, he has a blood clot in his lung which can be caused by chemo. He has to…
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SSI Disability
Do you have to claim your SSI Disability, if so, does SSI send out your year end statement?
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new. 6 months out.
hello everyone- Is there anyone out there treated w/ radiation and chemo for hypopharngeal stage 4? I had 38 rounds of rads and three chemo treatments ending June 20,2011. I'm 6 mos. neg last month.
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Having a Laryngoscopy done tomorrow morning
Well I went and seen the new or newer ENT doc and he has scheduled me for a scope to be done tomorrow. From his initial look he said it did not look like cancer but bad radiation burns, I said it has been almost a year since I went through radiation and he said he has seen it come up 2,3 and even up to 5 years after.…
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what happens after chemo and radiation?
My mom completed chemo 2 weeks ago ( taxol/carboplatin) and did her last radiation session on Jan 5th for throat cancer. She refused the feeding peg from the start but I had to have her admitted right after her radiation because she was malnourished. She refuses to eat or drink anything, not even the supplements like boost…
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I'm a new member looking for friends
Hi Everyone, I'm new here...just stopping by to say hello.
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newbe
Hi, im writing on behalf of my dad, he was dianosed with sinus cancer in November. He has recently returned home from hospital after surgery where he needed reconstruction to his jaw. Although he has a lot of support at home, I think this site would really help him as you have all been there. As you all know , this is a…