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Update
Hi all: My friend Debbie's travel buddy that was diagnosed with breast cancer this week as stage 3 saw the oncologist yesterday and he feels that it's stage 2 instead of stage 3 so that was some good news. She starts her chemo on Tues. Thanks for the prayers and keep them coming. My friend Debbie thanked me for being so…
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Vocal Cord Cancer T3M0N0 newly diagnosed
Hi Everyone, I am 48 years old and suffered a hoarse voice for about 3 weeks so I quit smoking on Jan 1 2012 then want to general doctor on Jan 3 who sent to me to ENT who said looks like i had early stage cancer, next a biopsy confirmed cancer stage T2 refered me to Radiologist.who said could be treated with Radiation…
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Swollen epiglottis
Hello to all, My dad is 14 weeks since his last chemo and radiation treatment. We have had 8 weeks of speech therapy (a swallow study showed us a swollen epiglottis which was not flipping well making swallowing foods difficult) we had a ct scan which showed Ned and a scope as well so the big picture is a blessing. However…
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One year post treatment
Hello everyone and first off this forum has been extremely helpful in this journey. It has been perhaps one of the hardest years of my 46 . I have been through alot, being a recovering alcoholic I have had many rough times in my life. Having lost everything at 38 and managing to become a contributor to society and now…
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Jaw pain
Andy has had jaw/gum pain for a month and all the docs say everything looks fine. They are thinking it is scar tissue and tightening his movement so that it hurts to open his mouth very wide at all. Recommended stretching. Anybody have some experience with this and some stretch exercises?
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Another Prayer Request
Hi all: It seems this bease is popping up all over the place. Yesterday my friend Debbie called me about a friend of hers (whom I've met; delightful person)she worked with and travels with and was just beside herself. She had just finished lunch with her in Chatt. (where they both live) Debbie was down at her cousin's here…
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Enlarged Lymphnodes
Hey Everyone, I have been feeling like i have a minor cold lately. Tonight I just got this piercing pain under my left ear so i started to investigate. I found 2 lumps on each side of my adams aplle.they seem so sudden and i got the whole turkey neck thing too. Of course I am worried now. I hoped you guys could give me…
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From Sweet Dreams To Wet Dreams.....
Get'yer mind outta the gutter. From Sweet Dreams To Wet Dreams, One Woman's Struggle To Just Get Some D@mn Sleep. Like, that? It may be the title of my memoir. Gah! Just have to tell you what happened to me last night. I, of course, share this with, you, my friends, the only ones that will truly understand. So last night,…
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Prayer for Eddie
Hi all: A couple of weeks ago I posted about Eddie who is the husband of the caregiver Gladys that took care of my brother. Well, they finally got all the news yesterday and it's not good. He has pancreatic cancer that has spread to his liver. It is Stage 3 so they cannot do any surgery. He will being doing 4 weeks of…
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very close friend has tongue cancer
Hello to all of you wonderful people taking the time to post your stories on this site. Thankfully we have the internet which enables us to form global communities that help and support us all through life's journeys! A very close friend of mine - who is more like a sister - is about to have at least 3/4 of her tongue and…
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Looking for Hypopharyngeal (Esophageal/Laryngeal) Survivors, Please
Hey - I think Charles54's earlier post got lost in the shuffle - he came in a few days ago to introduce himself and check for folks with a diagnosis similar to his. He has hypopharyngeal, and was wondering if there were others in the same boat.
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Numbness in hands and left foot
Hi all, I have been experiencing random numbnees in my hands and left foot. I have been through four rounds of Chemo and 22 of 35 Rad sessions. Has anyone else out there had this side effect?
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SWEET
Just a general question regarding taste....... I have no sense of sweet three weeks after radiation and a month since last chemo. Did anyone else share this same experience? And when did sweet return, if at all, following treatment. I bought a dozen donuts today just because......but cant eat them because I am sure they…
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pain during swallowing almost 1 year post treatment
Hello, it's now been over 1 year since my mom's first surgury on 11/15/10 for tonsil cancer and radiation which was completed on 2/17/11, second surgury for small tongue cancer was on 10/6/11. Yesterday we went to her ENT and we spoke about my mom's problem. She is having slight pain during swallowing in the same spot as…
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New HPV Info
http://vitals.msnbc.msn.com/_news/2012/01/26/10243115-more-men-than-women-have-oral-cancer-virus You will probably need to copy and past to your browser to get to the article or I guess you could type in the entire line. John
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Phlegm management
If the updside down picture didn't tip you off already, I'm new to the site. I'm HPV+ SCCHN IVA, t1,n2,m0 and started concurrent chemo (cis-platin) and radiation (IMRT, twice daily) on 1/3/12, so I'm a day short of 3 weeks of treament in a 6 week regimine, and crossing off the days one at a time! I've gotten meds to the…
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Good news
Hello everyone, Just wanted to say that Carmen received her results after her partial glossectomy. She is cancer free. No need of radiation. what a relief. Pathology said displasia (not sure of spelling) pre-cancerous cells in what they removed on the 10th of jan 2012. They are almost sure they got all the precancerous…
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The Work Dilemma
I had one of those revelatory moments at work. I was completing my self-assessment for the past year and came face-to-face with the fact that my cancer really has had an impact at work. But how do you acknowledge that in a self-evaluation? Because I am very familiar with employment law and HR, I tried desperately to find…
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Does prognosis change??
Hello all, my girlfriend, Natalie was diagnosed with stage 4b NPC last July. Docs told us her 5 year survival is around 35%. She done with her treatment last November and was declared NED on her first post treatment PET scan. Based on her NED result, does that change her prognosis? She has always been healthy and I was…
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Fibrosis on togue
Hello, I´m 51 days past my partial glossectomy surgery. Still feeling fibrosis and hard areas in the tongue. I was T1N0M0. Has anyone on something like that? Can u share experiences? thanks
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Seond neck dissection
Good news today. The biopsies were negative and the drain tubes are out. My doc did not close it up though, I have to keep it packed with gauze and replace it daily....I can definitely tell you guys where the nerves in my neck are as I seem to hit them everyday in my attempt to keep the packing in. My wife and I simply…
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Sleep
I have read over the past couple of years on this board and others the problem a lot of people have with sleeping. At my last check up with the team we talked about about sleep and a successful recovery and a healthy life after treatment, the chemo doc and the rad onc told me that, second only to lifestyle, sleep was…
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Chemo brain
Do you know that appliances work a lot better whenever they are plugged in? Glad I was home alone. Denny
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What do you think??? Should I be worried???
My husband is 8 months out from chemo and radiation. I have brought this subject up once before, but I am a little more worried. Last night my husband tripped over his ugg boots in the dark and fell while getting up tp let the dogs out. This morning, while I was at work he turned around and tripped over the dog and fell…
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Second neck dissection, of sorts.....
I am a week post surgery now to remedy the post treatment infection that I developed in my neck. After three weeks on antibiotics, my Dr had a CT done and saw that there was a rather large "sterile abcess" in my neck. He performed pre-surgical biopsies of the area and they came back NED, thank God. I am now recovering from…
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radiation
Those of you who have had radiation-how long does the radiation continue to work after completion? How long to shrink a tumor? How long did it take to get your strength and appetite back?
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My feet are killing me
I've now been on erbitux for about 10 weeks. It has been a struggle for me. My face finally settled down, but that required lots of TLC, steroids, and time. Now my finger tips and heels are fissuring badly. The finger tips I can handle by wearing occlusive gloves at night and slathering them with vaseline, but the feet are…
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NED but.....
Hi everyone. So I just hand my first PET and MRI since completing treatment in early november for NPC and it came back NED but the scans showed calcification on the left side of my thyroid. Now we are going to do an ultrasound and biopsy to determine if I need to worry about my thyroid having cancer. Has any one gone…
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Good and Bad News today
Hubby received the results from his 2nd post treatment PET scan today. His initial scan was in June before treatment, he had one 2 months out and now 5 months out. Due to kidney issues he cannot have the contrast anymore. Anyway.. the good news is that the tumor area is totally clear but they want him to go in for a…
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Tonsil Ca
I was diagnosed in late Oct 2011 with Left tonsil ca. I had a neck resection with one positive node in left neck which was encapsulated. I then underwent a radical tonsillectomy using the Davinci robot all margins were clear. Because of the robotic surgery I was told I would not need chemo and the radiation therapy would…