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Finally
Got a clean PET! Best Christmas present ever. Celebrating with a 7 day backpacking trip in Grand Canyon over Christmas. Wishing all of you a healthy Christmas and many more New Years! AB
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HPV
After reading about HPV and how it affects the treatment outcome I went ahead and had my removed lymph node tissue tested. It turns out that I am P16 positive so hopefully my survival chances just went up. I really figured my situation was triggered by years of smoking although I quit 11 years ago. John
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food phobia?
hi all, my girlfriend who just completed the last chemo (cisplatin and 5fu) 3 weeks ago for NPC. She has no oral/throat pain whatsoever and the swallowing test shows she can eat without any problems. However, she has zero appetite and it seems she exhibits symptom of food phobia. when she sees food she gets upset and just…
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Stocking ideas
I need help. Not sure what to put in my husbnads stocking this year. I normally give him jerky, peanuts, etc. Any Suggestions from all you wonderful survivors.
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1 week post rads
Hopefully my swallowing is as worse as it gets, I can still swallow water but it is a chore to drink my feeds and I recently discovered I could syringe a whole can via my stomach tube if I split it into 2 sessions, 1 hour apart. I used to take a 2-3 hours dripping it through the feed bag and it gave me heartburn that way,…
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What to do????
I am new...learned lots already reading... My first H&N surgery was 1997. Now I've had 25+ surgeries. Had radiation (only) in 2010. The cancer came roaring back. Had what I call extreme surgery in Oct. was in the hops 12 days. Now feeding tube and trach. Had more surgery to take bone from the roof of my mouth in early Dec.…
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BOT recurrence?
I completed my rads + chemo for BOT MEC in May of 2009, and have had NED on all scans since then. Of course the big question is "Can my cancer come back?" The docs have told me that recurrence of this cancer is not common, and when it does happen, it would be rare for it to be located at or near the same place. After…
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Lump in throat sensation / right submandibular gland swelling in a 19yr old?
Some background: I'm a 19 yr old college student studying abroad in a foreign country right now. I'm in good health overall, don't smoke or do drugs, and have only drank alcohol in moderation in a handful of occasions. About two weeks ago, I had a lump in the throat sensation which I thought was due to stress (I'm very…
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I'm done!
Finished my last rad 35/35 today. Last Cisplatin is so far not too hard on me, I'm on day 5 and no nausea/hiccups when I had them before starting day 3 or 4. My lymph node is like a pea now, will it continue getting smaller? (Trying to avoid a neck dissection). I'm struggling to drink my supplement feeds, my stomach can…
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Cannot swallow
Hello everyone, another question. I can hardley swallow water now, and when I do it goes down the wrong pipe, so I end up coughing up most of the water. And whenever I do drink it comes out my nose. It seemed like it happened all of the sudden, I have not been able to swallow that well at all since my partial neck…
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Neti Pots
I just saw the report about the folks dying from amoeba infections from their Neti pots (misreported in places as a "bacterial" infection). Since so many H&NC folks use them, I thought I'd summarize the safety precautions: Use distilled or boiled water - I'd recommend buying the large jugs of steam-distilled water that…
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Second 90 day follow up today
All clear...
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Mucoepidermoid of the salivary gland
If anyone has had this type of cancer (stage II), please contact me. Thanks, Cheryl
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Couple of Eating questions
After 16 months,I had my Esophageal Dilation last Tuesday.........I can feel a difference when eating some soft foods and I can finally swallow tablets and pills again. Questions: 1-when I try to eat mashed potatoes or grits,both feel abrasive on my throat lining.Has anyone experienced this with these 2 foods and possibly…
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Can We Compare Notes on Gunk? Ewww Alert
Ugh. "Normally", I have small, polite gobs of goo that I hack up from time to time. After my neck dissection, it was more "substantial" (before, I regularly brought up very small amounts). Lately, my production has increased greatly - sometimes it's great green rubbery goo. Sometimes, I have a rough time with my "goo…
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acinic cell carcinoma
perotid gland
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Merry Christmas!
CT results today ... doc said NED, Merry Christmas to us all.
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Down in the Dumps and Need Prayers
Hi Guys, Haven't been posting much, as I have tried to be on the leukemia board. As you may remember, my husband Pat just recently got NED on head and neck cancer 2 years out. Unfortunately, he also has chronic lymphocytic leukemia. He has had it for 11 years and has been on watch & wait (no treatment). Tests in November…
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Foul odor
So my family says that I really stink, when ever I cough up somthing, which is all the time I can smell it. But they say that the smell is really strong and really stinky. I am taking some stuff called paw paw cell regulation that is a wood product. On google there is some articles about DMSO which is a wood product and…
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CT contrast drink--need more info
Hey All, Need to get my regular CT this Friday. However this time I am drinking some concoction or other, which I have not done before. One small problem, I will be drinking this while running a webinar, any side effects I need to be aware of..imaging staff said not to worry, but looking for those with a more personal…
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Metallic Taste In The Mouth After Radiation Treatments For Base of Tongue Cancer
My Dad finished 35 radiation treatments in October for squamous base of tongue cancer, stage 2. My Dad is 77 and in excellent health and tolerated the treatments well, but, of course, with mucous, loss of taste, etc. My Dad is slowly getting his taste back (sweet taste coming slowly) but claims that he has a metallic taste…
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Swelling? Scar tissue? ???
Hello to everyone Today I noticed the right side of my dads face was swollen (his jawline) a little that is the side that got the most treatment for tonsil and lymph. When I feel it on his jaw it feels like fatty tissue that moves maybe the size of a quarter. The drs told us to expect the turkey neck and some swelling in…
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Scan Results
Well it's that time again...tomorrow I go for the CT and chest Xray results. I am hoping and praying for another NED. Just feeling a little nervous about this one for some reason. I have had 3 NEDs in and am 9 months out of treatment for Stage 3 SCC Hypopharyngeal.
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Advanced Nasopharyngeal Cancer
Hi All, I've been diagnosed with advanced nasopharyngeal cancer and taking a treatment. My treatment plan is 5 days Chemo / 2 weeks off (1st Cycle) 5 days Chemo / 2 weeks off (2nd Cycle) 6 weeks Radiation with once a week Chemo I've just finished my first round of Chemo, resting for the next one with some side effects like…
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Can you Say NED
Steves MRI came back clean, thank you everyone, until next time Merry Christmas Linda
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Hey Dawn 'sweetblood22'!
I don't think we have private message (PM) capabilities on this board. I've got a question to ask you. Can you shoot me an email to rightclick38@gmail.com? Doug
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♥ Have a great recipe to share?
In the spirit of sharing and gratitude, a website has been set up where recipes can be entered, viewed or downloaded by members. The recipes don’t have to be holiday oriented and can be anything you enjoy and would like to share. Thanks for contributing! Clickable Link: ♥ Recipe Sharing Project…
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nasopharyngeal carcinoma stage 4B
Hello all, one morning my gf (31yrs old) woke up with double vision on her right eye, she lost 50% of her hearing on her right ear and she lost feeling on her right side of her face. I immediately took her to the emergency room and she was diagnosed with stage 4B NPC in early July. Her tumor was 7cm and was super…
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Results for Cat scan this morning
Hello everyone, First of all I want to thank you very much. I will never thank you enough. I know I still have lots to learn from you guys :) . You are the best teachers :) The whole thing is pretty good considering. The scan results were cleared......no other tumor. I am so happy about this and her too. She is getting…
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has anyone else heard this?
I heard on the radio this past week that researchers are going through the prelims to get approved to run clinical trials on a new therapy that they claim could be the cure. tests so far on rats and mice and such have revealed a possible cure. They said that a nano piece of gold is inserted into a liquid which is then…