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Eating Habits
I have always been a carnivore but I think I am losing my appetite for meat. Not only does it taste dry due to the lack of saliva but it just isn't appealing. I wonder if I am a closet vegan. I have always liked most veggies but I don't think I could eat them and only them. Come to think of it I occasionally like fish and…
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Liquid Recipes
Can anyone give me a list of...or a resource for recipes of decent tasting, high protein/calorie food. We have a commercial grade blender coming this week and my wife is so tired of Ensure Plus and Boost Plus. It is supposed to have a recipe book with it but I fear that it is more geared towards smoothies, etc. I have been…
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Week 5 of 6 radiation and chemo
Hello Everyone forgive me if I am not allowed to post here as I am a caregiver. My mom is 56 yrs old and was diagnosed with throat cancer. Her primary was never found but they went ahead and began her treatment 30 shots of radiation and 6 treatments of chemo which is a 2 hour drip of taxol and a 1 hour drip of carboplatin.…
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hey Bigfuzzy
What you riding I am on a Merida
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Enjoy the New Year Everyone
I wish you all the best in 2012 Let us remember all of our family and friend who are still going through treatment as the old year comes to an end and the new one begins. Also let us remember the ones who did not make it to see 2012 may their memories continue to be a part of us here on CSN. I wish and pray for each of you…
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My fathers PET SCAN
Well so far my father has had 2 PET SCANS since his radiation and chemo ended back in August, and they both have been NED. I am soo elated I, i, I just am soo HAPPY! However, something still reminds me that this nasty disease still has the chance to come back... several years down the road.... He has another PET SCAN in 2…
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Too much saliva
When I had radiation in 2010, I started the fluoride soak and carried water everywhere. Now I have a trach, and had the lower right side of my mouth rebuilt and am on chemo. Swallowing because of the last surgery is tough. One of my biggest problems is too much saliva. I have a home suction machine that I stay close to.…
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Coughing up mucus, blood tinged?
About 2 weeks post rads, last few days, noticed some blood when I hack up mucus, not every time and not sure where it's coming from. Did anyone else get this?
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Happy Day After New Year Everybody
Hi all: Posted a new picture of Charlie that was taken several years ago. That's the first Sheltie we had (Smokey) getting a treat out of his pocket! Hope everyone had a Merry Christmas and Happy New Year. I went to Charlie's folks for Christmas. Mother-in-law got out of the hospital on Christmas Eve Day and doing pretty…
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What is your favorite (or least awful, whichever is appropriate) flouride rinse?
Any thoughts...I need to get better at doing this. Thanks Stacey
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Mixed IMRT and PT for Ethesioneuroblastoma
I had surgery to remove ethesioneuroblastoma in my sphenoid sinus. I'm going to have a mixed radiation therapy of IMRT and PT (proton therapy). Anyone had experience with this kind of mixed threapy? Thanks, olivia
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Altered taste buds
I am trying to get off the peg tube. March 3, 2011 was my first radiation/chemo treatment. At first things were way too sweet or too salty. Now I have no problem with sweets, can eat vegetables and dairy fairly well. However, it some foods seem to be really hot to the tip of my tongue and it doesn't have to be a spicy…
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Arm pain question
Jim has started to have pain in his lower left arm, between the elbow and wrist. Could this be treatment related? Should we call the doctor and which, Rad, Chemo, ENT, GP. I know that arm pain can signal heart attach but I think that is uppet arm. Any help is appreciated. Jim is 7 months post treatment. Debbie
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Still so sick
My husband finished treatment for a tumor on the base of his tongue with it in the lymph on either side. It has been 2 1/2 months and he is still not able to swallow so is still on a feeding tube. It makes him nauseas if the flow is to high so keeps it low, meaning he is not getting enough nutrition. Then he started to get…
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Out with the old, in with the new
Just curious if anyone has new year's resolutions or ideas of what they would like to do different in 2012? I had my treatments in 2010 so spent the bulk of 2011 getting better and stronger. I believe last year was the worst and the best year of my life. I plan on joining a 24/7 gym in town to build back up my strength,…
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gRADuation Day
Today is finally here, my last rad treatment, yesterday was my last carboplation infusion. It's hard to believe that this journey started with finding a small lump on the rt side of my neck, then progressed to tonsil surgery ,3 seperate chemo infusions 1 every 21 days starting in August, radiation and 1 weekly chemo…
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Throat abscess
So the day after Christmas I ended up in the ER, at first they thought I had pneomia but after a CT scan and some poking around they found a abscess in the area where my left tonsil used to be. So this explains the horable smell that has been coming out of me the last month and also not being able to swallow. Two days on…
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Happy New Year! I'm a little early, but I will be visiting, and they get pissy, if I'm on my phone
. ☆。★。☆。★ . ☆ 。☆ 。☆。☆ ★。☆\|/ ☆ ★ ☆Happy New Year!☆ ☆★。/|\。★☆ ★ 。☆。★ 。☆。 . ☆。 ★。 ☆ ★ . Wishing all a very Happy and Healthy 2012!
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today
A PROSPEROUS SAFE AND HAPPY NEW YEAR to all of you and all you could hope for from myself and all my family. Hope you are half as lucky as me to have the family and friends I have.
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Weight Loss
Lots of talk about weight loss. How many people are satisfied with their loss? I for one lost about 15lbs and am now concentrating on keeping it off without losing much more. This puts me at a BMI of 23 which is where I want to be. This is the only plus to having scchn. Unfortunately now that I am starting to enjoy eating…
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Non smoker-non drinker issue
Hi all, I am very curious about this subject ''non smoker-social drinker issue''. How come you develop mouth cancer after quiting smoking since 2005? How long does it take for cancer to develop even if you quit smoking yrs ago? My partner quit smoking as mentioned. She still has a drink now and then but can it cause mouth…
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Another Surgery Down
It's never a good sign when the people in pre-op and recovery recognize you, but after four procedures in seven months what can you expect. Removed the hot spot that showed up on my tongue after the last surgery and the six month scans. The doctor took more than he planned, all in an effort to make sure it is all removed.…
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Avatar
I can remove the pic but if I try to put in a new one it reverts back the one I was using previously. Any thoughts? John
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seasons late greetings
Hello all my good friends feeling brave enough to face computer. (sometimes I hide on here and do not want to and sometimes I come home from work and am so exhausted I cannot face the typing) if that makes sense. I am here to wish you all had a great safe Christmas or whatever your faith and that you all have a safe entry…
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Calling all NPC Starters & Survivors
Hi everyone I have notices that the NPC survivors are growing here on CSN and thought it good to get a list together so we could all recognize each other and better help others just starting treatment. My NPC Started is Nov 2002, Last treatment was March 2005, I am almost 5 years survivor Take care everyone
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thanks again every one for the thoughts and prayers!
Been at the hospitol all day, husbands brother and sister-in-law were there when I came home, so was his daughter. I had a very hard day! Husbands cancer doctor said there is nothing more to do nothing else can be done. He has blood clots in both of his veins on each side of his neck. And he face is all swollen up. They…
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DelNative please check-in
Just wondering how your doing. Has anyone heard from him? Ed
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Jim's new buddy
This is Jim's new buddy. They have the same hobby, naps. He has been great for Jim's outlook on life. We adopted the dog from a rescue place. He is 10 years old, same as Jim in people years. I haven't seen Jim smile or laugh so much in over a year. Having a dog is definately good medicine. Debbie
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It has been 1 year and 1 month since I completed radiation~~still can't eat or drink~~still coughing
My radiation treatments were completed on Nov. 5th, 2010. On the 7th on Nov. , 2010 my trach was removed. In December 2010, I started pt with a speech pathologist for 8 weeks.She tested me and the drink still trickled down into the windpipe. Well, a year has passed and I still have the same problem with what they called a…
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5 weeks out of rads and chemo for NPC
I find myself close to soon getting enough food thru my mouth...just eggs and similar simple bland foods but its going down regular.Any other NPCs out there that got back a real appetite and taste buds? When is ir reasonable to ask for the tube to be taken out? I can tell I am healing but get burned out so quick...i am…