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thanks again every one for the thoughts and prayers!
Been at the hospitol all day, husbands brother and sister-in-law were there when I came home, so was his daughter. I had a very hard day! Husbands cancer doctor said there is nothing more to do nothing else can be done. He has blood clots in both of his veins on each side of his neck. And he face is all swollen up. They…
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Back in the Hospital... Weak & Distended Abdomen....
Hello all... I am new at the board (wrote my first post the other day). I am the "online" voice for my Dad who has SCCHN with an unknown Primary. He was just admitted into the hospital again (first time was for strep two weeks ago). He just received his second round of up front Chemo a week ago today. Like the first time,…
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Something maybe going on
last couple of weeks have had a sore inside of mouth and earache of and on on the left side, made an appointment to see the ENT at Hershey next Monday.
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SCC found in Small Intestine
The results of the tumor removed from my small intestine came back positive for Squamous CC. My doctor said he has never seen SCC to metriculate from throat to bowel? Has anyone heard of SCC in intestines? Next phase is to have a comparative PET/CT done this Friday, last one was 9/1/11 for reference. Will be traveling to…
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Radiation Question????
Merry Christmas to all!!! I am writing on behalf of my Dad, mostly because I can type a lot faster than him... and he would rather be watching the Jets/Giants Game. My Dad was diagnosed with SCC in late October of this year with the primary tumor unknown. He started his two rounds of up-front Chemo right after…
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Merry Christmas from oz
Hi all you fellow diagnosed. Just wanted to wish you all a fabulous Christmas and for only wonderful things in 2012. This is my third Christmas since diagnosis and I'm loving life xxxxx
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Merry Christmas to All
Just wanted to wish all of you wonderful people on the forum (as well as all the caregivers) a Merry Christmas and a healthier New Year. Buzz and I are so grateful to have him alive and feeling good nearly one year after treatment ended. There were times when I didn't think we would get through the rough times. This forum…
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Merry Christmas to all
To a very special group of people I would like to send a warm wish for a very merry Christmas and a very happy and healthy new year. Many sleepless nights I turned to all of you for support and received it generously. I could not end my night without wishing you all my best regards. Hope alls well Michelle
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STGIII HPV+ SCC: anyone had only radiation?
i'm a 59-yo woman who found a lump in her throat 2 weeks ago, w/associated node. biopsies, scans, presentation to tumor board all done, and now i must decide whether to accept the whole recommended hog -- radiation, chemo, and then possible resection -- or to decline chemo. i'm reasonably savvy about medical matters. it…
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Happy chanukkah
Just in case there are members of the Jewish faith here, as well! We are a mixed marriage and celebrate life in a spiritual way that is not exactly affiliated with an organized religion. Maybe there are others battling cancer here that relate to a less structured religion? Anyhow, however you embrace the universe....happy…
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husband is in hospital;
Hi everyone this Christmas Eve, Just wanted to say my husband is back in hospitol has been for 2 days now, doctor wants to do a ct scan of his lower right jaw because he has a lot of swelling and he said he didn't look good. They took X-rays of his stomach and his lower lungs, He said that is stomach tools ok but has…
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New Squamous Cell Carcinoma Diagnosis
Hello, My name is Clinton, I am newly diagnosed with squamous cell carcinoma(11/28/11 was the day I found out) and am still in the process of trying to find the primary tumor. My cancer was found because I noticed swelling in the right side of my neck below my jaw. Ct scan showed 3 lymph nodes involved and biopsy's…
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Another Merry Christmas and a big Thank You
Hi All, Just wanted to add my wishes for a Merry Christmas and/or Happy Holidays to all of you. Thank you so much for all you have done for me. You have helped me through the most difficult time of my life, and gave me the support and knowledge to be the best caregiver I could be to my husband. Each and every one of you…
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longtimesurviver
Your post to Mike regarding B.O.T. reaccurance percentages left me with a another question At the age of 78 and Diag. with the above plus lung and treatment of 36 rads neck & 36 to lung plus chemo of 8 all in a two month period.--left a little messed up. As I understand chemo has little value in B.O.T. I have a date with…
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flying
I was just wondering if anyone has flown since neck dissection and radiation or has anyone been advised against it? I just found out my sister is moving to washington and being in alabama, I think ill be flying more than i intended. Thanks Angel
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White pinhead nodule on left tonsil bed?
I had a diagnostic left tonsillectomy to confirm primary back in late September, it healed and before rads started in October, I noticed this white tiny nodule on the bed. It's always been there, I looked today and it either hasn't changed or looks a little smaller. 3 weeks ago, I mentioned it to my RO and he said it's…
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Tonsil Cancer Survivor
I'm new so hello everyone. In Feb of this year (2011) I woke up with a swelling on the right side of my neck. One Dr led to another Dr and I was diagnosed with tonsil cancer by my ENT. I was 56 years old. Before I had time to blink I had my right tonsil out and found myself admitted to a cancer ward for chemo - 100 hours…
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Study for SCC to test Chemo with Cetuximab
They want me to participate in a study the has standard Chemo treatment, but adds Cetuximab, which was developed by MD Anderson. They believe it will increase my chances of not getting cancer again in the future and are hoping this study will prove that. I just want to hurry up and get started. This kind of scares me, but…
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About to Start Rads and Chemo
I had radiation only in 2010 for laryngeal cancer. Unfortunately, it has returned; and I have undergone total laryngectomy. But the operation was unable to get all of the tumor. So I will be receiving radiation plus chemo come the first of the year. The chemo will be designed to sensitize cells to the effects of radiation.…
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Merry Christmas and Happy NED Year!
Hi Folks, I'm not on the site like I once was so just wanted to say Hello to all the newbies and Greetings to all the oldies here. Just received my best Christmas present of the year - 20 month post-tx PET results. All clear - still NED!! Happy Holidays to one and all and I hope for a NED for each and every one of you in…
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Ears and nose stuffy?
Is it supposed to feel like a perpetual cold? I'm am 10 days post rad and both my ears feel a little stuffed so my hearing gets affected. I can still plug my nose and pop them and that makes them feel a bit better. More frequently and usually overnight, my nose or one nostril gets plugged, which makes me breathe through my…
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Merry Christmas
Hi all: Just wanted to wish all my "CSN" buds a very Merry Christmas. I'm about to embark for NC to my in-laws for Christmas. Charlie's mom has been in the hospital since Sun. night with a kidney infection but they're thinking she'll be home maybe today. All went well with the goodies to the onc. and rad. onc. offices and…
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A mixed Christmas present
Buzz's latest scan (CT of the neck) showed resolution of the abscess he had in September with swelling still present in some areas but the word benign was mentioned. The oncologist thinks there is cancer there but we are not going to believe that unless a biopsy confirms it. Buzz is not having any more PET scans as he,…
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Finally
Got a clean PET! Best Christmas present ever. Celebrating with a 7 day backpacking trip in Grand Canyon over Christmas. Wishing all of you a healthy Christmas and many more New Years! AB
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HPV
After reading about HPV and how it affects the treatment outcome I went ahead and had my removed lymph node tissue tested. It turns out that I am P16 positive so hopefully my survival chances just went up. I really figured my situation was triggered by years of smoking although I quit 11 years ago. John
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food phobia?
hi all, my girlfriend who just completed the last chemo (cisplatin and 5fu) 3 weeks ago for NPC. She has no oral/throat pain whatsoever and the swallowing test shows she can eat without any problems. However, she has zero appetite and it seems she exhibits symptom of food phobia. when she sees food she gets upset and just…
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Stocking ideas
I need help. Not sure what to put in my husbnads stocking this year. I normally give him jerky, peanuts, etc. Any Suggestions from all you wonderful survivors.
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1 week post rads
Hopefully my swallowing is as worse as it gets, I can still swallow water but it is a chore to drink my feeds and I recently discovered I could syringe a whole can via my stomach tube if I split it into 2 sessions, 1 hour apart. I used to take a 2-3 hours dripping it through the feed bag and it gave me heartburn that way,…
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What to do????
I am new...learned lots already reading... My first H&N surgery was 1997. Now I've had 25+ surgeries. Had radiation (only) in 2010. The cancer came roaring back. Had what I call extreme surgery in Oct. was in the hops 12 days. Now feeding tube and trach. Had more surgery to take bone from the roof of my mouth in early Dec.…
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BOT recurrence?
I completed my rads + chemo for BOT MEC in May of 2009, and have had NED on all scans since then. Of course the big question is "Can my cancer come back?" The docs have told me that recurrence of this cancer is not common, and when it does happen, it would be rare for it to be located at or near the same place. After…