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Is it normal...
Hi all. Just have to ask this question...Is it normal for some cancer patients to take absolutely no interest in their treatment, and what is to be expected during and after treatment? As I have mentioned before, I am the caregiver of Pat who is about ready to start radiation treatments next week. Mask fitting takes place…
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Has this happened to anyone
I had a fever yesterday and left work early. I noticed my neck was all red and hot exactly where the treatment area was mapped out.last night the fever broke and i am feeling better todday. my neck and partial chest is still red and very sore, much similar to when you over work a group of muscles and feel it the next…
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throat cancer
I just found this site and really need any experienced info anyone can give...I have just finished my rad treatments 35 of them and have my 3rd and last cisplatin hopefully tomorrow ....it has been delayed because of low white count...I have throat cancer am 50 yrs old and never smoked but it is the HPV type...can anyone…
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Needing your thoughts and prayers
hugs and pockets ! I am traveling to MD Anderson tomorrow for another PET scan. I am feeling pretty good about it but you all know how it is the night before so I would appreciate your thoughts prayers etc. Thanks guys I don't know what I would do without ya ! :/ / Peggy
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Peggylulu!!!!!
Been thinking about you and saying prayers...how was your scan?
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PET Results--What do you read?
No one has said NED but all said looks good, scan again in Dec which will be 3 months. RO appt in Jan. Sandy FINDINGS: Overall PET and CT image quality and inter-modality registration are satisfactory. The aortic arch intravascular SUVavg is 1.9. The hepatic SUVavg is 2.4. Head and Neck: Interval decrease in size and…
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Lump under side of jaw
Hi All, Firstly I am not a cancer survivior, but I thought if anyone would know if I am being paroniod it would be people on this site. Over the last, about 6 months, I have noticed that on the right hand side of my jaw, pretty much right in the middle from your chin to when your jaw kinda joins your neck, I have a lump.…
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Nikgogol Story
Hello all, I have been a silent lurker on these boards for a bit over a month. Your questions and sharing of your experiences have aided me greatly as I found myself diagnosed with head and neck cancer. One of the most helpful and soothing functions of these boards has been the ability to search through threads, identify…
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HAIR REGROWTH
I'm on chemo for life. Right now I have been on Taxotere for the last 19 weeks. For the first 17 weeks or so, just about all of my hair fell out. I have not shaved for a week and noticed my facial hair has really started to come back. Another week and I'll be a 70's pornstar. My question is, has anyone else who lost hair…
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Low white blood cell count - no second round of chemo?
Hi All - My mom is currently in Week 4 of 7 for treatment of her stage 4 NPC Cancer. So far, she has all the side effects that everyone has spoken about in this forum. Her pain level is not very high yet and she got her PEG tube in last week. She can still eat very small amounts of liquid through her mouth, but takes the…
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SSDI
My husband was diagnosed 6 months ago recurrent Nasoparengyl Carinoma. He finished Gamma Knife and Chemo a couple of weeks ago. He has been out of work for 6 months now and does not want to go back he is so sure that he will get SSDI. His last paycheck is going to be Nov 22, and he will lose his health insurance on Dec 22.…
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Mouth ulcer WHICH not going away
After my husband’s neck dissection he discover mouth ulcer in is right side of tonsil area where cancer was originate in (END OF July). He was telling his all doctors including oncologist, ENT and they all said it’s just side effect of radiation. My husband has his ENT appointment last week and now ENT want to do biopsy in…
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PET Results....
A scare and anxiety for a few hours, but ended well.... Got my report, and the MD writing the report didn't give me an all clear... He actually wrote; IMPRESSION There is a new small area of hypermetabolic activity within the infratonsillar region of the pharynx as described (another area of the report). This has an…
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Lingual Tonsillectomy/Biospy What was everyone's pain/recovery?
I'm scheduled for a lingual tonsillectomy/biopsy in which they will take the entire lingual tonsil. What was everyone's recovery for this procedure and any complications?
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Another has anyone had this happen???
My fiance has been fighting this dreaded cancer for almost two years now. Had Stage IV BOT with lymph node involvement. Went thru radiation and chemo which did not work, went on to have a partial glossectomy and all lymph nodes removed on both sides of his neck and he is currently still on a feeding tube. His surgery was…
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F-C-R a real disorder
Hello everyone, I was reading an article about this in the Cure magazine (Fall issue 2013 pg. 59. ) We call it scanxiety and realize it is a part of the process. Learning to have a cancer survivorship care plan in place is a really good idea. I wasn't given a specific one to follow...kinda fell through the cracks so to…
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My cancer docs keep leaving! 3 now!
Quick background: initial cancer care in Fargo, ND with Dr. V. Spread, spread, spread after 3 surgeries, 2 chemos and radiation. He referred me to Dr. Kim in St. Paul, MN for CyberKnife. That took care of the last spread but Dr. Kim retired. Now 2 suspicious spots on lungs one year later. Met her replacement, he's okay and…
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Radiation DONE!
Hi all, I haven't been on in a few weeks. Finsished radiation two weeks ago and took a little sabbatical. I made it through!!! Overall I believe I beat the odds. I have to send out a huge thank you to Sandy, Rob's wife And to phrannie51. Phrannie had recommendEd Mugard and Sandy was extremely generous in helping me out…
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Tips for getting through radiation...
Hi everyone. My name is Jamie, and I am the caregiver of Pat, my husband of twenty years Pat was diagnosed with tonsil cancer in late August 2013. He had a complete tonsilectomy, removal of 29 lymph nodes, and a bit of muscle behind the tonsil area on August 6th. He has healed from the surgery for the most part, but we are…
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TPF protocol
Hello, I am new to this site and I am glad to have found all of you. My son was diagnosed with PSCC of the tonsil T4N2bM0, and is having induction chemo using TPF. I am so concerned about his dosage because it is less than what i have researched. I am worried about the cancer cells coming back ,Plus the doc is unsure of…
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Rash
Hey Fellow Survivors! Hope everyone is well, and just checking in with the old timers. I read the old posts on rashes, but my rash has occurred 3 times on my neck where the radiation occured, and quickly spreads across, and down past the collar bone, feeling hot, very red and swollen. I had cisplatin in 2009. I read your…
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I'm just so mad!! And sad.
I'm feeling a variety of emotions tonight. TWO ladies that I know were diagnosed with breast cancer this week. TWO in one week! Plus another friends' father in law was given 6 weeks to live with lung cancer (stage IV and has spread pretty much everywhere). Every single time I hear of someone I know getting that diagnosis…
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Dreaded Erbitux
We hv not posted since our first chemo. Just so much coping going on. I will try to make a long story short. Chemo has been ok Except the evil rash coming from Erbitux ,has turned into a grade 4 . T. Has been on antibiotic for over 2 weeks. Also neupogen shots for series total of 14 shots N/V not bad,fatigue difficult at…
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Impatient and scared.
hello. I'm 36 yrs old and I was diagnosed in June with stage 4 head and neck cancer. I finished up all the treatment last week but.... I'm either in the ER or back at the Dana-Farber for IV. The pain in my throat is ridiculous. Nausea is all the time. I cannot even swallow my own spit. Way too much phlem. Why??? Does…
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No PET scan?
Hi All, I think this has come up bedfore but it's so darned hard to search this site. My husband finished his treatment (with flying colors, perhaps I will post an update) at the end of May. Since then he had an MRI which looked fine and was scheduled to have a PET at 4 months post-treatment. Like everyone else here, we…
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Update..
Hello Everyone, Wanted to check in and give you an update on Kreg. He is coming up quickly to his 1 year anniversary (when tx ended) in November. Hard to believe that it was a year ago in August that we got that dreadful news. But, life has been going well for him. He has been back to all his normal pleasures in…
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Scan tomorrow...
and you would think that with no problems encountered with the last three doctor's visits that I'd be a bit less anxious about the results. My last scan was in March and I was supremely confident that it would be clear, quite shocked to hear bad news from the RO and the subsequent referral to a specialist and a 2nd…
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Dropping a doctor
I've been seeing three doctors since my journey started in March of 2012 and wonder when or if I can drop one. I see an ENT (who originally discovered, biopsied and confirmed the diagnosis) a medical oncologist who oversaw the chemo portion of my treatments and a radiation oncologist who sent me through the 'toaster' so…
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White foam
I am almost 3 months out from treatment and suffering from dry mouth. However, in the last week I have noticed the production of small amounts of thick, white foam. I happens spontaneously when I haven't had anything to eat or drink for a while (unstimulated). I think this is the "ropey" stuff that people complain about.…
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Radiation or not?
Hello, everyone. I am a new member of this group. In July I was diagnosed with tongue cancer. I had surgery (partial glossectomy) to have the tumor removed. I then had a functional neck dissection a month later. Cancer was found in one lymph node. According to the doctors, my margins were clear and the lymph node was not…