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Hey friends made it: 13 YEARS
Hi everyone, i known I havent checked in for sometime been hectic summer ending and Faith going back to school(which as it turns out will be last year at this school). Chris and I have decided to move in together and are buying his Grandfathers home near Allentown, hopefully my SSI comes at least to hearing before than!!!…
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I would like to thank
everyone who replied to my MOAN. I'm trying out the tips with mouth rinses. Sat was a dreadful day for me mentally, I was ready to give up. Sunday I wasn't as bad and after an early evening shampoo and shower and curled up in my jimjam I felt life wasn't so bad after all. Got through today at rads no probs, tomorrow is day…
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this is for a friend at the H&N clinic
my friend is having rad for a cancer thats touching her windpipe and cant have an op. Shes been having rad just a bit longer than me and when I saw her this morning she has itchy rashes in patches on her arms, face and legs. They look angry but the skin beneath is still white, does this go with radiation, I know a lot of…
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Bit off subject
Hey everyone, My Father is in the hospital again with heart issues. He has black outs his drs. call sudden death syndrom. (meaning his heart stops...and of coarse he blacks out for several minutes) and then the heart restarts itself. He also has diabetes type2 and the middle stage parkinsons. He is a patient with the V.A.…
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Getting back to "normal" after treatment
Hi Hubby finished his radiation treatments almost 3 weeks ago had a rough go of it towards the end and after not eating for almost 2 weeks went ahead and had his peg tube inserted with a week and a half left of treatment , a few days after the peg was placed he ended up with a massive blood clot in his lungs (1 giant clot…
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Chief Daddy Mike
Mike is in the hospital again with internal bleeding and some broke ribs. His blood pressure is running 176 \ 109. The Hospital did some testing and told him that his cancer was back then a few day’ later they said oh we made a mistake your cancer is not back. He is down, depressed and angry because he can’t talk or get a…
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Update
Hi Everyone I haven't been here for awhile, but thought I would write an update on Jeff. He is 8 months out of treatment and is doing pretty well. He has had a battle with thrush, which I don't think is completely gone. We see the ENT on Monday and will find out. He is even more froggy and hoarse. His taste was coming…
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'Muco-epidermoid carcinoma'
I carried a tongue cyst for about 18 months after being told by doctors as a infectedd salivary gland which when finally removed turned out to be very slow growing 'Muco-epidermoid carcinoma - low grade'. The histopathology report states one of the peripheral margin is close, 0.1 cm clear. The MRI that was done after 7…
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Is it normal...
Hi all. Just have to ask this question...Is it normal for some cancer patients to take absolutely no interest in their treatment, and what is to be expected during and after treatment? As I have mentioned before, I am the caregiver of Pat who is about ready to start radiation treatments next week. Mask fitting takes place…
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Has this happened to anyone
I had a fever yesterday and left work early. I noticed my neck was all red and hot exactly where the treatment area was mapped out.last night the fever broke and i am feeling better todday. my neck and partial chest is still red and very sore, much similar to when you over work a group of muscles and feel it the next…
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throat cancer
I just found this site and really need any experienced info anyone can give...I have just finished my rad treatments 35 of them and have my 3rd and last cisplatin hopefully tomorrow ....it has been delayed because of low white count...I have throat cancer am 50 yrs old and never smoked but it is the HPV type...can anyone…
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Needing your thoughts and prayers
hugs and pockets ! I am traveling to MD Anderson tomorrow for another PET scan. I am feeling pretty good about it but you all know how it is the night before so I would appreciate your thoughts prayers etc. Thanks guys I don't know what I would do without ya ! :/ / Peggy
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Peggylulu!!!!!
Been thinking about you and saying prayers...how was your scan?
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PET Results--What do you read?
No one has said NED but all said looks good, scan again in Dec which will be 3 months. RO appt in Jan. Sandy FINDINGS: Overall PET and CT image quality and inter-modality registration are satisfactory. The aortic arch intravascular SUVavg is 1.9. The hepatic SUVavg is 2.4. Head and Neck: Interval decrease in size and…
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Lump under side of jaw
Hi All, Firstly I am not a cancer survivior, but I thought if anyone would know if I am being paroniod it would be people on this site. Over the last, about 6 months, I have noticed that on the right hand side of my jaw, pretty much right in the middle from your chin to when your jaw kinda joins your neck, I have a lump.…
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Nikgogol Story
Hello all, I have been a silent lurker on these boards for a bit over a month. Your questions and sharing of your experiences have aided me greatly as I found myself diagnosed with head and neck cancer. One of the most helpful and soothing functions of these boards has been the ability to search through threads, identify…
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HAIR REGROWTH
I'm on chemo for life. Right now I have been on Taxotere for the last 19 weeks. For the first 17 weeks or so, just about all of my hair fell out. I have not shaved for a week and noticed my facial hair has really started to come back. Another week and I'll be a 70's pornstar. My question is, has anyone else who lost hair…
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Low white blood cell count - no second round of chemo?
Hi All - My mom is currently in Week 4 of 7 for treatment of her stage 4 NPC Cancer. So far, she has all the side effects that everyone has spoken about in this forum. Her pain level is not very high yet and she got her PEG tube in last week. She can still eat very small amounts of liquid through her mouth, but takes the…
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SSDI
My husband was diagnosed 6 months ago recurrent Nasoparengyl Carinoma. He finished Gamma Knife and Chemo a couple of weeks ago. He has been out of work for 6 months now and does not want to go back he is so sure that he will get SSDI. His last paycheck is going to be Nov 22, and he will lose his health insurance on Dec 22.…
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Mouth ulcer WHICH not going away
After my husband’s neck dissection he discover mouth ulcer in is right side of tonsil area where cancer was originate in (END OF July). He was telling his all doctors including oncologist, ENT and they all said it’s just side effect of radiation. My husband has his ENT appointment last week and now ENT want to do biopsy in…
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PET Results....
A scare and anxiety for a few hours, but ended well.... Got my report, and the MD writing the report didn't give me an all clear... He actually wrote; IMPRESSION There is a new small area of hypermetabolic activity within the infratonsillar region of the pharynx as described (another area of the report). This has an…
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Lingual Tonsillectomy/Biospy What was everyone's pain/recovery?
I'm scheduled for a lingual tonsillectomy/biopsy in which they will take the entire lingual tonsil. What was everyone's recovery for this procedure and any complications?
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Another has anyone had this happen???
My fiance has been fighting this dreaded cancer for almost two years now. Had Stage IV BOT with lymph node involvement. Went thru radiation and chemo which did not work, went on to have a partial glossectomy and all lymph nodes removed on both sides of his neck and he is currently still on a feeding tube. His surgery was…
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F-C-R a real disorder
Hello everyone, I was reading an article about this in the Cure magazine (Fall issue 2013 pg. 59. ) We call it scanxiety and realize it is a part of the process. Learning to have a cancer survivorship care plan in place is a really good idea. I wasn't given a specific one to follow...kinda fell through the cracks so to…
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My cancer docs keep leaving! 3 now!
Quick background: initial cancer care in Fargo, ND with Dr. V. Spread, spread, spread after 3 surgeries, 2 chemos and radiation. He referred me to Dr. Kim in St. Paul, MN for CyberKnife. That took care of the last spread but Dr. Kim retired. Now 2 suspicious spots on lungs one year later. Met her replacement, he's okay and…
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Radiation DONE!
Hi all, I haven't been on in a few weeks. Finsished radiation two weeks ago and took a little sabbatical. I made it through!!! Overall I believe I beat the odds. I have to send out a huge thank you to Sandy, Rob's wife And to phrannie51. Phrannie had recommendEd Mugard and Sandy was extremely generous in helping me out…
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Tips for getting through radiation...
Hi everyone. My name is Jamie, and I am the caregiver of Pat, my husband of twenty years Pat was diagnosed with tonsil cancer in late August 2013. He had a complete tonsilectomy, removal of 29 lymph nodes, and a bit of muscle behind the tonsil area on August 6th. He has healed from the surgery for the most part, but we are…
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TPF protocol
Hello, I am new to this site and I am glad to have found all of you. My son was diagnosed with PSCC of the tonsil T4N2bM0, and is having induction chemo using TPF. I am so concerned about his dosage because it is less than what i have researched. I am worried about the cancer cells coming back ,Plus the doc is unsure of…
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Rash
Hey Fellow Survivors! Hope everyone is well, and just checking in with the old timers. I read the old posts on rashes, but my rash has occurred 3 times on my neck where the radiation occured, and quickly spreads across, and down past the collar bone, feeling hot, very red and swollen. I had cisplatin in 2009. I read your…
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I'm just so mad!! And sad.
I'm feeling a variety of emotions tonight. TWO ladies that I know were diagnosed with breast cancer this week. TWO in one week! Plus another friends' father in law was given 6 weeks to live with lung cancer (stage IV and has spread pretty much everywhere). Every single time I hear of someone I know getting that diagnosis…