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Never Forget ~ 911
In Honor...
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Root canal.....DONE!
The root canal is DONE! It was really nothing. No pain, just a little uncomfortable. Expensive as heck...but that's about it! Now to eat soft foods for a couple of days and then an extraction next week. Soft foods after that and then 4 cavities filled and a crown put on. Getting a little sick of doctors/dentists/etc…
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Favor to ask - clinical trials
Hey Kids, Got a favor to ask for those more internet savy (or with a better memory). A while back someone on this site posted some links that gave a pretty comprehensive list of clincial trials or some sites to check for them. I've searched for it, to no avail. I also did a general search on the web and found some info,…
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Would you do it again?
My husband, who is due to start radiation soon after having tongue tumor removed is seriously considering not doing this therapy. He is considering the quality vs quantity issue. The liklihood of return of the cancer is a factor in this consideration. So often we have read of the return regardless of chemo or radiation. We…
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what is Varian6
I have received my list of rad appts 18th Sep--29 Oct and it just states the dates followed by the word Varian6 is this a name for a certain radiation treatment. I don't get much info on my treatment, I will see my head of the team tomorrow to ask questions but usually I dont understand the answers unless I looked up on…
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up-date~~Live Strong
Had my evaluation yesterday for the new group at the Y, I did fairly well, have been having trouble with my lower legs while walking, so the 6 minute walking test didn't go too good, HOWEVER, I pressed 100 lbs with my legs, 75lbs arms, balanced on each foot singlely for 4 minutes...the classes start 9/23, I'm excited to go…
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MSContin/Hospice
After a visit to our oncologist, my husband decided to go on Hospice. He is doing so-so but the doctor explained to us that Hospice isn't only for end of life. My husband chose quality over quantity when his 2nd cancer recurred in January and spread to his lung. Hospice has been in and explained a lot of things to us.…
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Baby steps!
As you may know, I've been so overwhelmed lately with everything! Each day after work and school ive been trying to help with getting last minute things ready and prepared for my parents so move soon. They hope in a few weeks! I can't wait. As I wrote previously, dad tried jello and pudding but he couldn't really eat it…
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4th Recurrence
Well, I don't seem to be able to beat this thing. I was just diagnosed with another tumor on my base of tongue. This is my 4th reucrrence since my original diagnosis 5 years ago. Because I've had prior tongue base resections, the only surgical option at this point is a total glossectomy with a free flap from my rectis…
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Worried, dad still not eating
Hey everyone, Sorry to see some of you have been dealing with bad news while I was absent. I read a few posts that sounded very positive as well. I'm wiring tonite bc I can't get over worrying about my dad. He's still using peg tube, he's only tried a few diff foods, pudding and jello, but complains that it burns then…
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Almost Exactly One Year
I found this site almost exactly one year ago and I can't really put into words how thankful I am. You folks have seen me though the panic and the pain with your insightful, often humorous (yes Matt, I'm talking about you) advice and support. Most of the remedies that actually made treatment bearable didn't come from from…
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NorCal Medical Cannabis Event Sept 7 San Francisco
Please take time and attend this event if you can get to San Francisco on Sept 7. The organization's mission is to prmote education and awareness of the benefits of medical cannabis. http://www.intche.net/ Also, if any of you have any time to volunteer, please give them a call. There are all sort of jobs they need help to…
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Squamous Cell of Neck area Has Invaded Lung
Four years ago my husband was diagnosed with Squamous Cell Cancer to th neck muscle. A biopsy and surgery, radiation therapy and chemo regiment. A year later a bump appeared on scar line. Squamous cell was diagnosed and more surgery , radiation and chemo. Pet scan a year later revealed hot spot on left tonsil. surgery was…
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chemo
Hi All, I am just wondering if anyone has had chemo and never experienced any side effects? The doctor gave my mom a pamphlet with a case study of a lady who had no side effects from chemo. thanks in advance.
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Injecting some levity
WHY OLD PEOPLE DON'T GET HIRED! Job Interview: Human Resources Manager: "What is your greatest weakness?" Senior Citizen: "Honesty." Human Resources Manager: "I don't think honesty is a weakness." Senior Citizen: "I don't really give a **** what you think."
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Tobegolden
Have not heard from Rick in a long while, any info or news.
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Does it ever heal???
Had squamous cell carcinoma in the nasopharynx two different times, so been fried twice by two different rads (photon and then proton radiation) any how and I know this is gross, but I blow a hunk of my nasopharynx out of my nose every week or so. I blame my memory going on this cause i feel like I blow a piece of my brain…
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post radiation salty mouth
My husband is 1 week post radiation and his mouth now feels like a salt lick. Does anybody have any suggestions or encouragement?
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Any word from George Baltimore?
Wondering if anyone has been in contact with George? I haven't seen any posts from him. Keep him in my prayers and hope he is just out living life.
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Thought Branchial Cyst for Months - Turned out Cancer
Hello all - I am 34 years old, from Liverpool in England and have just been diagnosed with cancer this week after many months of tests having strongly suggested otherwise. Bit of a shock but I'm up for the fight! I had quite an unusual presentation of what will be an oral cancer (of unknown primary) and was wondering if…
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Hoax Email-Johns Hopkins Medicine Repudiates
You may have seen the following: “CANCER UPDATE FROM JOHN HOPKINS”. This hoax email reputedly from Johns Hopkins Medicine has been around for quite a few years. Johns Hopkins Medicine posted a repudiation of this misinformation on 20 March, 2010. I am saddened to say that it is still being recklessly promoted. You may have…
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Cyberknife
It's Cyberknife for me. I have another appointment on Tuesday, Sept. 3rd. Hopefully schedule simulation soon, yes another mask! When it is finally going to happen, it will be 5 days, probably 1 hour per treatment. Will keep you posted.
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Fixated on possible Recurrance
Friends, If we cant be honest here I figure that there are very few places we can be. Found a small white lesion on the right side of my tongue and it would apprear that my primary site (right tonsil) is getting bigger. i feel the bump and "just know" what that means. I had a CT on 6/12 NED but concern with right node. Had…
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PET Scan: no cancer return, but what does all that "other stuff" mean?
We (hubby and I) just got back results from what we've learned would be his last PET scan (4 years out from radiation and chemo). the doc was very pleased with the results and told us to come back in a year, for a final visit. He said the chances of his larengeal cancer returning is about 0%, which certainly sounds like…
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laryngectomy and neck dissection
My husband had a complete laryngectomy and neck dissection in June 2013. He is recovering well at 3 months post surgery. However, the swelling/fluid retention from the neck dissection is still a large area of concern. His surgeon states that nothing but time will re-channel the lymph structure in his neck. He started…
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Questions regarding feeding tube
Here we go..... Firstly, very grateful to have found this site for information sharing....many thanks to all of you. It really does help tremendously to have your input. My husband will soon start radiation treatments of 200 rads per session for 6 weeks. He had 29 neck nodes removed, one of his tonsils and a large tumor…
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virotherapy cure fore for cancer?
Saw this today in newspaper. Has anybody had the treatment. It is a trial therapy which injects herpes modified virus into the cancer the body goes into 'fight' mode and kills the cancer. 94% of cancers tested after were cancer free
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Happy to hear from you, Nick
I wonder about you often,as we both were treated at the Waxner (Ohio State ) medical center. Sorry to read about your continuing battles..keep the faith ,child
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Upcomong PET scan
Hi, everyone. It's been 2 months since (tonsil cancer) treatment ended and I've been battling Thrush for the past 6 weeks (allergic to the meds - gave me hiccups 24/7 for two weeks until I finally found a Dr who gave me baclofen which stopped them). I still cannot eat most foods due to dry mouth and have been living on 4…
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Nasopharyngeal Carcinoma round 2
I am a 21 y/o diagnosed when I was 20 just after graduating the fire academy. I was checked by the doctor because I could not breath through my nose, which made wearing an airpack very difficult. I went through countless rounds of chemo (cisplatin) and 35 radiation treatments. I was given a clean bill of health in late May…