-
treatment begins
After months of waiting and worrying, my first chemo is today. Doctor decided to use erbitux. Sounded like a good choice (less side effects) until I read about it on the internet. I will be having it together with radiation which begins next week. Does anyone have experience with erbitux? Dr said no hair loss or nausea. I…
-
Husband getting trachea Help
My husband is getting ready to have a trachea put in next Thursday, September 20th. He was diagnosed with squamous cell carncinoma which had metasize after 6 months of chemotherapy and 38 radation treatments.. he is no longer able to breath due to damage to his windpipe can anyone out there talk to me about this or does…
-
Special Prayers for Special Lady
As many of you know, my sister Colleen is losing her battle with cancer.. She's pretty much in a sleep state for these last few days, and they don't expect her to survive more than a few more. Please keep Colleen in your prayers, and for a peaceful passing... She's a loving person, and it has been such an honor to share…
-
Super blessed! A true feel good story :) UPDATE
As many of you know I've run up about $225K in medical bills without any insurance. Well, Medicaid has decided to help, but to give me a $20k deductible. I am VERY pleased with that. Yes, it's a lot of money but I am beyond thankful for the assistance. Well, I now have about $1500 out of pocket in dental procedures to have…
-
Another Step Forward
Just had to share; when I lived on the in PA I was an ATA (amateur trap association) memeber, I shot trap/clay targets competively all over the east coast and at the Grand American in Ohio several times. Since moving to AZ not so much, then my dance with the Big C kinda put a hault to such things. Well since getting ,my…
-
prognosis stage IV
Did anyone get a prognosis for stage IV cancer, I think thats what my stage may be. I didn't get any info on the stages or the prognosis. Reading the forums it seems to me about 2/3 of cancers come back again. Thats worrying although many of you came through a second cancer . I read that once the cancer reaches the lymph…
-
I'm new here, Hello everyone
Hi, My name is Janice. I was told last May 2012, I had mucoepidermoid carcinoma primary sight unknown. Well, this May they found the primary sight, the base of my tongue. I'm told this is a rare cancer and having it in the tongue area is almost unheard of. I went to the tumor board last Friday to discuss my case. According…
-
Ran across this
I don't know if this has been posted before but I thought it was interesting. http://www.npr.org/search/index.php?searchinput=HPV I am think my immune system is not the best. I rarely get sick but I am on my 3rd cancer, melanoma 40 years ago, prostate 12 years ago and now scchn. Although the melanoma which was a mole on…
-
Never Forget ~ 911
In Honor...
-
Root canal.....DONE!
The root canal is DONE! It was really nothing. No pain, just a little uncomfortable. Expensive as heck...but that's about it! Now to eat soft foods for a couple of days and then an extraction next week. Soft foods after that and then 4 cavities filled and a crown put on. Getting a little sick of doctors/dentists/etc…
-
Favor to ask - clinical trials
Hey Kids, Got a favor to ask for those more internet savy (or with a better memory). A while back someone on this site posted some links that gave a pretty comprehensive list of clincial trials or some sites to check for them. I've searched for it, to no avail. I also did a general search on the web and found some info,…
-
Would you do it again?
My husband, who is due to start radiation soon after having tongue tumor removed is seriously considering not doing this therapy. He is considering the quality vs quantity issue. The liklihood of return of the cancer is a factor in this consideration. So often we have read of the return regardless of chemo or radiation. We…
-
what is Varian6
I have received my list of rad appts 18th Sep--29 Oct and it just states the dates followed by the word Varian6 is this a name for a certain radiation treatment. I don't get much info on my treatment, I will see my head of the team tomorrow to ask questions but usually I dont understand the answers unless I looked up on…
-
up-date~~Live Strong
Had my evaluation yesterday for the new group at the Y, I did fairly well, have been having trouble with my lower legs while walking, so the 6 minute walking test didn't go too good, HOWEVER, I pressed 100 lbs with my legs, 75lbs arms, balanced on each foot singlely for 4 minutes...the classes start 9/23, I'm excited to go…
-
MSContin/Hospice
After a visit to our oncologist, my husband decided to go on Hospice. He is doing so-so but the doctor explained to us that Hospice isn't only for end of life. My husband chose quality over quantity when his 2nd cancer recurred in January and spread to his lung. Hospice has been in and explained a lot of things to us.…
-
Baby steps!
As you may know, I've been so overwhelmed lately with everything! Each day after work and school ive been trying to help with getting last minute things ready and prepared for my parents so move soon. They hope in a few weeks! I can't wait. As I wrote previously, dad tried jello and pudding but he couldn't really eat it…
-
4th Recurrence
Well, I don't seem to be able to beat this thing. I was just diagnosed with another tumor on my base of tongue. This is my 4th reucrrence since my original diagnosis 5 years ago. Because I've had prior tongue base resections, the only surgical option at this point is a total glossectomy with a free flap from my rectis…
-
Worried, dad still not eating
Hey everyone, Sorry to see some of you have been dealing with bad news while I was absent. I read a few posts that sounded very positive as well. I'm wiring tonite bc I can't get over worrying about my dad. He's still using peg tube, he's only tried a few diff foods, pudding and jello, but complains that it burns then…
-
Almost Exactly One Year
I found this site almost exactly one year ago and I can't really put into words how thankful I am. You folks have seen me though the panic and the pain with your insightful, often humorous (yes Matt, I'm talking about you) advice and support. Most of the remedies that actually made treatment bearable didn't come from from…
-
NorCal Medical Cannabis Event Sept 7 San Francisco
Please take time and attend this event if you can get to San Francisco on Sept 7. The organization's mission is to prmote education and awareness of the benefits of medical cannabis. http://www.intche.net/ Also, if any of you have any time to volunteer, please give them a call. There are all sort of jobs they need help to…
-
Squamous Cell of Neck area Has Invaded Lung
Four years ago my husband was diagnosed with Squamous Cell Cancer to th neck muscle. A biopsy and surgery, radiation therapy and chemo regiment. A year later a bump appeared on scar line. Squamous cell was diagnosed and more surgery , radiation and chemo. Pet scan a year later revealed hot spot on left tonsil. surgery was…
-
chemo
Hi All, I am just wondering if anyone has had chemo and never experienced any side effects? The doctor gave my mom a pamphlet with a case study of a lady who had no side effects from chemo. thanks in advance.
-
Injecting some levity
WHY OLD PEOPLE DON'T GET HIRED! Job Interview: Human Resources Manager: "What is your greatest weakness?" Senior Citizen: "Honesty." Human Resources Manager: "I don't think honesty is a weakness." Senior Citizen: "I don't really give a **** what you think."
-
Tobegolden
Have not heard from Rick in a long while, any info or news.
-
Does it ever heal???
Had squamous cell carcinoma in the nasopharynx two different times, so been fried twice by two different rads (photon and then proton radiation) any how and I know this is gross, but I blow a hunk of my nasopharynx out of my nose every week or so. I blame my memory going on this cause i feel like I blow a piece of my brain…
-
post radiation salty mouth
My husband is 1 week post radiation and his mouth now feels like a salt lick. Does anybody have any suggestions or encouragement?
-
Any word from George Baltimore?
Wondering if anyone has been in contact with George? I haven't seen any posts from him. Keep him in my prayers and hope he is just out living life.
-
Thought Branchial Cyst for Months - Turned out Cancer
Hello all - I am 34 years old, from Liverpool in England and have just been diagnosed with cancer this week after many months of tests having strongly suggested otherwise. Bit of a shock but I'm up for the fight! I had quite an unusual presentation of what will be an oral cancer (of unknown primary) and was wondering if…
-
Hoax Email-Johns Hopkins Medicine Repudiates
You may have seen the following: “CANCER UPDATE FROM JOHN HOPKINS”. This hoax email reputedly from Johns Hopkins Medicine has been around for quite a few years. Johns Hopkins Medicine posted a repudiation of this misinformation on 20 March, 2010. I am saddened to say that it is still being recklessly promoted. You may have…
-
Cyberknife
It's Cyberknife for me. I have another appointment on Tuesday, Sept. 3rd. Hopefully schedule simulation soon, yes another mask! When it is finally going to happen, it will be 5 days, probably 1 hour per treatment. Will keep you posted.