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a bit of funny !
I was watching a show about mummies....real ones, not the monster movies. And they had put the mummy in a CT machine. All of the sudden the machine said breathe in, hold your breath, now breathe. After as many machines that I have been put in and scanned with.....I laughed til I teared up. Not one of these scientists even…
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Spot-Light on Ingrid ~ Happy Birthday
And just whose day is it...... Ingrid's.... Happy Birthday lovely lady and friend.... Always, John
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Recurrence
I was diagnosed with squamous cell carcinoma under front of my tonque last May, 2012. Had radial free flap and right neck dissection in June, 2012. 8 weeks of radiation with 3 sessions of chemo (cisplatin) and finshed in mid September, 2012. My latest visit in mid July was okay. About 2 weeks ago I started having pain in…
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Nasopharyngeal cancer
I notice that some people posted fairly recently who have had - or have - cancer of the nasopharynx, and thought I would share my experience so far. My wife was diagnosed with Stage IVb Nasopharyngeal carcinoma (NPC) around a month ago, and is being treated in Taiwan, where the disease is much more common than in Western…
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Mouth sores
Hi All: Well, my mom has entered into her third week of a six week chemo and radiation treatment schedule. She managed to get the Mugard (during the second week of treatment). I am worried that the damage had already been done. She has had to start using the PEG tube, because her mouth hurts so badly. She is currently…
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stricture biopsy
Hi My husband had neck dissection in April this year and finished 6 weeks of radio therapy in June. He has been in and out of hospital with an infection and weight loss. Last time in July he had a nasal gastro tube inserted. He was discharged and felt ok for a few weeks apart from tiring easily and unable to eat much. Then…
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Speckled Perch, Crappie, Sac-A-Lait
What ever you call them where you are located.... I found a few of them today...; My hopes, thoughts and prayers for those going through treatment, and especially those that have gone through and now either recovering, or surviving.... Get out, do the things you love, and live life... John ~JG
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understanding pet ct scan
Just received scan and need to understand prognosis. Doctor is missing and will be able to see one on tuesday. The impression ; Hypermetabolism within the right submandibular space. There is a corresponding soft tissue nodule on the localizing ct scan. The calculated suv is 9.9 The uptake is consistent with malignancy…
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New Clinical trial for metastasis called Rigosertib
Hey guys, I wanted to let you know I started this phase 2 trial today. my latest scans showed that the tumors in my lungs had doubled in size in the last 3 months. Rigosertib works by blocking cell division in cancer cells and causing them to die. So here is what I read "Six head and neck cancer patients included in this…
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New PEG tube for life
Thank you guys so much for sharing your knowledge on the workings of this site and your experiences with the PEG. I have another question about what you all use and 2 Cal. Has anyone tried 2 Cal and it didn't agree with them? We tried it because we needed more calories (my husband continues to lose weight). However, he…
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13 rads and not doing well
I,ve done 13 rads so far on both sides of my throat and base of tongue. I feel dreadful, I,m queezy with the mucus. I have a lump either on thr base of my tongue or throat which acts when I swallow like a finger down my throat and I wretch. my swallowing is going again and I choke. my mucus if I was slug would stretch to…
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First day of radiation tomorrow...
Hi all, Mixed emotions on the eve of Pat's first radiaition treatment. We are feeling prepared for what is to come, but still a bit daunted about what he will be going through...Feeling scared, while at the same time feeling excited (excited?!?!? this feels so wrong to say, but I think you all understand what I mean) to…
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First Scan Post Treatment
Hi all - have my first scan post treatment tomorrow morning. Will then receive the results Thursday. I have been getting checked every four weeks but tomorrow will be exactly six months post treament and the first scan since the fun began. I thought I had been doing ok in the lead up but today (Sunday) the 'fear' as I call…
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6 Years Out and Just Now Getting a PEG tube
I had tonsil cancer in 2007, and had the neck disection, chemo, and radiation. I'm now 51 (yay - I made it!) Cancer free still! However, last summer I started having a sore throat and difficulty swallowing. Finally started throat dilations in April. Today was my ninth one. The last was 7 weeks ago, and I have since lost…
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L-Glutamine Question
Hello all, I was going to go ahead and try the L-Glutamine for my husbands very dry mouth and very thick secresions(they are actually choking him) can anyone give me specific directions on how to use how often etc...? Thanks Christy
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SweetBlood @ Disney...
I finally got to meet my old time friend on here, Dawn ~ sweetblood22. Shelley and I drove over to have lunch and meet Dawn today... It was such a pleasure..., we've talked on here, created the SuperThread, and been friends on FaceBook for nearly four years now.., along with a few phone calls and FaceTime. We met up at the…
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Good news today
Just found out last Fridays CT Scan shows continued shrinkage of the tumors in my Lung and Mediastynum. Who says Friday the 13th is bad luck. I am also finished with my clinical trial, but will continue taking the Taxotere for as long as it works. Best Mike
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Awaiting biopsy and scared
Good morning, I came across this website while looking for information. I figured that this would be a good place to get some answers baised on people's personal experience. Here is my story in a nutshell: In May of this year I discovered a hard pea sized lump near my collar bone. My primary examined me and based on my…
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Saliva Hope
Hey all, Dx June 2009, SCC right lymph node, primary unknown, neck dissection, feeding tube, radiation, chemo. I haven't visited for a long time. I really wanted to add my support here, but found that reliving the agony was not helping my emotional recovery. Sorry for that. My health is excellent. I'm posting now to let…
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I little humor
Four surgeons are comparing the type of patients they consider the easiest to operate on. The first surgeon says, "I like to operate on electricians, because when you open them up everything is color coded." The second surgeon says, "I prefer to operate on accountants, because when you open them up everything is numbered."…
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Going the wrong way
These last few months ,it seems things are going the wrong direction for me with the long term dealing with my cancer . Ended treatment for BOT SCC in April ,2010. I am happy to announce that all my scans are cancer free and my doctors say I am doing great . But because of a dentist , I have developed ORN and am going thru…
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Great Family Outing
friends, could not really even imagine the day I had with my wife and kids when I started this crazy journey in Jan of this year! Spending the entire day at the State Fair of Texas was such a blessing! Pig races, carnival rides, parades and fireworks! Not to mention fried everything!!! So thankful for such a day (and many…
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Hey friends made it: 13 YEARS
Hi everyone, i known I havent checked in for sometime been hectic summer ending and Faith going back to school(which as it turns out will be last year at this school). Chris and I have decided to move in together and are buying his Grandfathers home near Allentown, hopefully my SSI comes at least to hearing before than!!!…
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I would like to thank
everyone who replied to my MOAN. I'm trying out the tips with mouth rinses. Sat was a dreadful day for me mentally, I was ready to give up. Sunday I wasn't as bad and after an early evening shampoo and shower and curled up in my jimjam I felt life wasn't so bad after all. Got through today at rads no probs, tomorrow is day…
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this is for a friend at the H&N clinic
my friend is having rad for a cancer thats touching her windpipe and cant have an op. Shes been having rad just a bit longer than me and when I saw her this morning she has itchy rashes in patches on her arms, face and legs. They look angry but the skin beneath is still white, does this go with radiation, I know a lot of…
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Bit off subject
Hey everyone, My Father is in the hospital again with heart issues. He has black outs his drs. call sudden death syndrom. (meaning his heart stops...and of coarse he blacks out for several minutes) and then the heart restarts itself. He also has diabetes type2 and the middle stage parkinsons. He is a patient with the V.A.…
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Getting back to "normal" after treatment
Hi Hubby finished his radiation treatments almost 3 weeks ago had a rough go of it towards the end and after not eating for almost 2 weeks went ahead and had his peg tube inserted with a week and a half left of treatment , a few days after the peg was placed he ended up with a massive blood clot in his lungs (1 giant clot…
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Chief Daddy Mike
Mike is in the hospital again with internal bleeding and some broke ribs. His blood pressure is running 176 \ 109. The Hospital did some testing and told him that his cancer was back then a few day’ later they said oh we made a mistake your cancer is not back. He is down, depressed and angry because he can’t talk or get a…
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Update
Hi Everyone I haven't been here for awhile, but thought I would write an update on Jeff. He is 8 months out of treatment and is doing pretty well. He has had a battle with thrush, which I don't think is completely gone. We see the ENT on Monday and will find out. He is even more froggy and hoarse. His taste was coming…
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'Muco-epidermoid carcinoma'
I carried a tongue cyst for about 18 months after being told by doctors as a infectedd salivary gland which when finally removed turned out to be very slow growing 'Muco-epidermoid carcinoma - low grade'. The histopathology report states one of the peripheral margin is close, 0.1 cm clear. The MRI that was done after 7…