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More prayers please.
I am in need of more prayers, and need I say, pray for Jim. FRiday Jim started to cough up small specs of blood. Saturday it was about a teaspoon of blood. The on call nurse came by to check. She said it was from the cancer. His heart rate has also been in the 100s but they don't seem to be worried. She said she could hear…
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Feeling selfish and guilty
I was so excited when I first found this forum. Now I come here feeling selfish, guilty, and scared to continue reading. I have always been a person who likes to research and be prepared for all possibilities. Coming here and asking questions made me feel better, like I was preparing in some way for what was to come.…
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An interesting read (article) regarding submandibular gland transfer for the prevention of dry mouth
Can be found at: http://7thspace.com/headlines/453155/clinical_observation_of_submandibular_gland_transfer_for_the_prevention_of_xerostomia_after_radiotherapy_for_nasopharyngeal_carcinoma_a_prospective_randomized_controlled_study_of_32_cases.html The essence of the article: The aim of this study was to evaluate the…
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I'm here in hospital now!
I'm finally here. Got in about 8:00 pm. Oncology dept. Even a private room. Wow. Got my Kindle fire online. Finally some real care. I've been trying to nurse my disabled sick self for 24 days at home. With the constant help from husband John....when not working and keeping up our home, pets, elderly mom, etc. I've been so…
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Proton therapy side effects?
Hi all, Err...I need educating with a big thick cancer book around the head. I'm new to this cancer business and I could really do with some info. Here's the deal...I have advanced esthesioneuroblastoma with three mets to spine and hip. Anyhoo it's HEWUGE and they want to take it out and then do proton radiation with chemo…
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Honey
2014-02-19 When I first came onto the site before I started radiotherapy I mentioned the healing powers of Manuka honey. Before I started treatment I had a spoonful of this honey every day and I didn,t get ulcers or too much soreness in my mouth. Today on the local news they are using honey in hospital on dressings for…
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Ned
I had my two year CT scan and it is NED....All is good! Ann
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Secondary lactase deficiency
Hi all, I have a question: has anyone experience of this after Cisplatin? I have some symptoms that are perplexing my team. Basically I had about 15 rounds of Cisplatin ending in December 2013.(plus radiation) About six weeks ago I began to experience what felt like a sickness bug, lots of flatulence but no vomiting or…
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Asking For Opinions
Hello All, Just looking for opinions and/or our resident insurance guru, if we have one. As many others have done, my former company has decided to no longer be directly involved with supplemental health insurance for those of us on Medicare. I have received & tried to interpret(Ha, Ha!) all the new info. as well as…
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Neti Pot
My second radiation was for SCC of the soft palate. The radiation field to treat this cancer was high enough it encompassed my maxillary sinuses and lacrimal apparatus. Toward the end of treatment both my nose and eyes were absolutely streaming. Although my eyes impoved quickly after treatment ended, I continued to have…
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NED
Just to quickly report a [1 year and 4 months after radiation and 1 year after last (chemo) treatment] follow-up with my radiation oncologist. He scoped my nasopharynx (primary was NPC), throat, etc. and there was no macroscopic sign of C. In a nutshell I am doing great, although recovering after a common cold. I tend to…
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Great and Not So Great News
Saw the ENT today for PET results. The great news...the original tumor is gone and affected lymph nodes all look good. The not so great news is that he has a new growth "neoplasm" on or in his thyroid that was not there before. So he has an ultrasound scheduled in the morning and a needle biopsy scheduled Wednesday…
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unknown hardest part right now
Still waiting to be hospitalized on Tuesday for tests. Bone scan, lung biopsy, and arrange with new rad DR for rad to 2 brain lesions.( My previous rad has retired.) Shock is wearing off. Anxious for action plan. Fearful of any more bad news possibly to come. Thank goodness I have this group! Vicki
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Checking In, Clear Scans
Hi Everyone Haven't been on in a while, just thought I would check in and say hello. I live near Liverpool in the UK and had mucoepidermoid carcinoma back in 2011, my doctor said it was a strange presentation with a neck lump that was mostly fluid with a few cancer cells, but no primary has ever been found, low grade.…
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Unofficial scan results
Have had 2 sessions of ebitux and taxol (6 weeks) and had a CT scan this morning to see if it was working on my recurrence. The nurse told me I would not get results until Thursday but when I had the scan they told me the doctor would have in hand by lunch today. I waited til 2pm and called. The doctor had the written…
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NPC - treatment done!
HI All, I posted on here around September last year hoping for advice on how to make my mom's NPC Stage 4 (only locally advanced) treatment better. I've used all the wonderful tips that people have given and she has completed treatment! She did 35 rads and was only able to do 1 session of adjuvent chemo as she developed a…
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its been awhile-2 years since last recurrance
Hello everyone, I dont post much but I read almost everyday. On march 1st it will be 2 years since my moms last surgery. I am so greatfull becauce she really went throuh a lot and I believe its Gods miracle that she is here and well. For those who know my moms story: since nov of 2010 she had tonsil surgery with left neck…
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still waiting
Still waiting for a call for available hospital bed. Doctor's Office left us hanging for hours with out a return call. Husband has been following up. Feels like they are not giving good service. Putting us off. I've been so very sick in bed for weeks. We do what they say and get the short end Not happy. Scared and nervous.…
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anyone need Boost/liquid supplements in the toronto area?
My mom is having her feeding tube taken out this month and won't need these anymore. There's still quite a bit left for anyone who needs it and lives in the Toronto area, let me know!
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1st pet scan after treatment this week. Prayers for my father please!
I am so nervous its crazy! I pray that it was all worth it! Thank you all for the amazing support!
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postive first doctor visit
Just got back from my first doctor appointmentHe told everything they and the results.Took alomost 1/2 of tounge 80 lymph nodes and everything show they got the cancer.Will need radiation but no cemo.Will need to set up a portable sucking machine for home and he left the teach in but did cap it.Not sure when that will come…
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comfort from group 4:23am
Just a stop in to feel the comfort of my group's presence while awake at 4:30A.M.
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DAD 5 weeks out of treatment for tongue cancer-earpain
hello again, i would absolutely be lost without this website... my father finished treatment for stage 4 tongue cancer about 5weeks ago.. he looks great but the last few days he just wants to sleep.. there are days where he is out cutting grass and cutting weeds! God bless him... his first PET scan is august 11.. is it…
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Thank you from Rachel
To all my H/N friends, My hearing for SSD on April 7,2014 @11:00am, has been canceled!!???..... INSTEAD THE ASL JUDGE DECLARED FAVORABLE DESICION IN ADVANCE! No more waiting!(well now waiting to hear from SSD, and all about how much and insurance". My lawyers Case Manager Julia called to tell me she said she cried when she…
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Had a wonderful lunch
yesterday with PJ47....she's up here from S. Carolina, visiting her daughter and grand-babies.....we both had soup! Had some great conversation, and laughs. I love this group....and it's such fun to meet folks in person.
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Advice on phlegm
The weekend has been up and down, started the Fentanyl pain patch which has helped tremendously but now we are dealing with thick mucous in throat which constantly starts the dry heaves and he can't keep anything down. We were told half flat ginger ale does wonders but he won't consider anything to his lips! I have a…
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tounge flap
Hi guys as posted evrything is positive so far but have a question that I noticed.When they add the a tounge flap do they graf it to the lower gum? One of surgens told they were going remove the bottom teeth because during radiation they would be destoyed anyway.But noticed today that my tounhe is on the gums and wondering…
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REAL FOOD!
On Wednesday, I got the go-ahead to eat ANYTHING I WANT! This is after the total laryngectomy and rebuilt esophagus. I was on PEG tube feedings before going in the hospital, and on continuous feed since then. So, I went from continuous feed right to REAL FOOD! Food is so delicous. It has been a long time. I have to watch…
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Frustrated!
The 24th of this month will make 2 months since I finished the treatments. Honestly, this "recovery" period is worse than anything I endured during the treatment. It seems like I can't eat anything (never had a PEG) except grits with fried eggs mixed in. Anything sweet taste like motor oil (especially Boost/Ensure drinks)…
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Sweetheart Diagnosed; Wants to "Go It Alone"
Hi thanks for this wonderful resource. My boyfriend of 5 years, 53 years old, was diagnosed with "throat cancer", perhaps stage 1/2 in the past month. Stage 1 for size of tumor at base of tongue, potentially stage 2 because a few lymph nodes lit up on PET Scan. He is not forthcoming with any more details and previously…