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well all done
Well I guess it's over except for the healing.They cut from ear to ear and down my chine. removed teeth as they said would be destryored in radation.So far everthing is healing good. They have a trach in and driving me nuts can't talk .They said maybe today will remove the ballon in it. took alittle over 1/2 of tounge and…
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Food irritating throat (7 weeks out)
Hi guys, It has now been 7 weeks since I completed radiation and I am having a heck of a time in the eating department. I never got a PEG, and now I have lost 45 lbs (200 to 155). I have gotten to the point where I feel like I would be doing great if I could only get in more calories. I can't drink the high calorie drinks…
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Need some light on Throat Cancer
Hi All, My friend has been diagnosed with squamous cell carcinoma in the throat. We just got the biopsy results yesterday and its mentioned as malignant. He is 67Yrs old, non-smoker and non-drinker. He has a history of bloop pressure and diabetes (currenly on daily medicines and under control). He started having coughs…
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Introducing myself
Hello to all, My name is Tammy, wife to Dale. We found this site 3 1/2 years ago, the night my husband was dx'd w/head and neck cancer. You all are incredible people and we have read several times a week and received all we needed to get us through those hard times. What a wealth of information! Dale had stage 4 B.O.T…
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Mucoepidermoid Carcinoma in a 10 year old
My 10 year old son was recently diagnosed with Mucoepidermoid carcinoma in the parotid gland. The cancer was found when he underwent surgery for the removal of a branchial cleft cyst, which turned out to be a tumor. We feel as though we are straddling two worlds here with treatment options. This is an adult cancer in a…
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One positive side effect so far
Just wanted to comment that I like the fact that I do not have to worry about those long dark ugly hairs that used to appear on my neck and under my chin anymore following radiation. LOL! PJ
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Electric shock sensations and pain in neck, arms and ribs?
This site is amazing and a wealth of support and information. Thank you. My husband is 10 weeks out of the usual, intense chemo and radiation treatments. He is doing fairly well - had the PEG tube yanked, literally, (it hurt!!) about 4 weeks ago. He continued to lose a little weight but seems to have stabilized now. His…
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PET scan...feet first?
Claustrophobic about up coming pet scan.(date to be determined.) A friend suggested seeing if I could go in feet first. Having less time with my head inside machine. She has been through one herself. It did not bother her very much. Scan for my neck to my lower back. Maybe down to my legs I don't know yet. Having severe…
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Should I be concerned???
Pat is about two and a half months out of treatment. Eating seems to be going only ok. He says that most of his taste is back, and he doesn't have trouble swallowing, he just really doesn't seem to have much of an appetite. He is still losing weight. He did have some extra weight to lose, but his oncologist seems to be…
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Four month check up.
Well I had my four month check up with my ENT oncologist, and all looks good in the throat and neck. Have a sore spot in my neck we'll keep a close watch on but think it is just a sore muscel, and I'm getting some feeling back. No scans needed yet but he did write NED on my report. I'll go with that. I guess we say phrases…
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Advice needed regarding Hospice
My husband decided a year ago, exactly, to stop all treatment once we found out that his cancer had spread. Laryngeal (radiation, chemo and surgery). Then a second primary at the cervical of his esophagus (radiation and chemo). NED for 4 months then cancer back at the cervical of his esophagus and spread to his right lung.…
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After Stage 4 HPV 16 Throat Cancer Surgery, Extensive Chemo & Radiation now 2 months out dr. says ha
My boyfriend was diagnosed with Stage 4 throat cancer from HPV 16 (oral sex) just like Michael Douglas, which I understand has a totally different prognosis (better) than acfrom smoking. He's about 2 months out of the extensive radiation and chemo with all those awful side effects - he had them all - his doctors ran a scan…
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Upset and feel angry
I'm feeling upset and angry today. No head MRI until next Tuesday. Soonest they can get me in. That's pretty good if you're not nervous, in pain and very stressed out about it. I'm hoping someone will cancel and I can get in sooner. Oncologist wanted it done this week. That's what we were expecting to happen. Having a lot…
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Saw Oncologist Today- update
Hello, Today we saw Oncologist for two lesions seen on CT scan. Plan for this week: PET scan and MRI with contrast. Waiting for appointments. He's trying to push them through insurance faster as "urgent". He wants them done this week. Thankful for that. I have a history of anxiety disorder (severe) including panic attacks…
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Eggs diet post treatment
Hello everyone. I've been almost 3 months out of treatment for NPC. I've been craving for eggs every morning. I have 3 sunny side eggs along with a slice of bread every morning...seems my body is craving protein and calories. Now I was told by family member that eating eggs everyday is bad for me. I've been eating the eggs…
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Chef Daddy Mike
I got to talk to Mike yesterday; he was just getting out of the hospital once again this time it was because of his heart. Somehow the radiation treatment has affected the heart and causing it not pump normal. Please just keep him in prayer; he has been through hell in the last few years. God Bless you all Tim Hondo
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Hearing test
I went for a hearing test this week. I've been deaf in my right ear since rad and not full hearing in my left. results were the right ear doesn't equalise pressure,there no reading at all, and normal loss of high sound in the left ear which is due to my age. I can't get or don't need a deaf aid because they feel I can get…
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New Problems
Went to PC today. Jim's oxygen level was below 81, should be 90 or above. He is starting to have breathing problems so doctor wanted him on oxygen asap so got an appointment tomorrow. He says it will help with energy levels too. Jim is not thrilled but anything to kepp the fishing going. Been way to cold lately but weekend…
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Tx update
Just checking in. Started my 2nd session today. Each session is 1 week taxol and ebitux then 2 weeks of only erbitux. No nausea. 4th week I still have my hair, it has started to hurt and thinned some this week. Imagine it will be gone within the week. Some acne rash but not too bad, a light make-up covers. Thanks, for the…
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support is so important
Just another note of gratitude for the support from my fellow survivors. You really make a difference in my life and what I am facing. I check back often. Every response gives me encouragement to move forward. Love, light and good health to you all. Vicki
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Today is World Cancer Day....February 4th!
Just wanted to recognize today....in case some of you weren't aware that today is World Cancer Day! Celebrating and Supporting all touched by cancer. Chevrolet is donating $1 for every profile changed to purple....up to 1 million Dollars! Here's how it works: If you have a facebook or twitter profile, your being asked to…
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Please say a prayer for my buddy pal
i turned my friend on to this network when i found out he had prostate cancer - he was reluctant to join-(DENIAL)he has been receiving hormone treatment for a while and just went for his review at sloan in NY. He did not receive the dagnosis he was wishing for. his prostate numbers are gresat but its tenticles are…
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CT scan alarm-Scared
Dear friends, Last week I ended up at urgent care with flu-like symptoms.They sent my husband and I to the ER. Upon learning I am a tongue cancer survivor, they ordered a CT scan... my very first one. We were later sent home ...all labs looked good. Suggested that may have a virus. (Did get flu shot a couple of months…
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In Memory of Fallen Pets...
As to many, our pets are more than just pets, more than anmals to us..., they are family. We love them as we do our kids, family and friends...., they are family. I'd like to honor our fallen pets with this post... Ebony, my best buddy, the greatest friend...., I still miss her. I was honored to have her love me equally…
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Wish me luck....
cross your fingers and toes, and say a prayer if you're inclined. I have my scan tomorrow morning (you all know how well I take these scans). I'm hoping to detach myself from the ceiling fan on Thursday after seeing the Onc. p
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Alive and adjusting UPDATE
Just a quick update to let you all know im alive and trying to adjust to this new lifestyle my left hand is still in a splint, so hard to type got home on tuesday sugery was the 16th dont know the path results yet tom is doc appt guess ill find out then Tpat path report said the margins were clear but close. They want me…
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Effects of radiation
My 86 year old father went thru radiation and chemo treatment in the summer of 2012 for cancer of the epiglottis. Although he cancer free at this point, he has two significant issues affecting the quality of his life. First, he still has no desire to eat anything of substance. He says his throat is dry, has no appettite,…
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game plan
Just talked with my doctor's partner and he gave me the game plan.The tumor is in front and the bottom of tounge.He said most likely will have to split my jaw to get at it and replace maybe half of tounge with muscle from thigh.They will also remove the lymph node on the left side.Since I will have radation and would be…
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Man it’s Cold in Lafayette
I don’t know about you but this Cajun boy is not use to this kind of cold weather. I been locked in for two days now, everything is ice and no one is moving. I don’t like cold; I need 80 / 85 degree weather in order to operate. Just glad to morrow forecast is showing it in the 60 hard to believe it is freezing one day and…
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Turkey Neck Problems
My hubby is about 9 weeks out of treatment. Pet scan is scheduled for Feb 17. ENT said the turkey neck is side effect from rads, as I have seen so many of you post the same about turkey neck. ENT put him on an antibiotic and steroid which seemed to help, but only short term. The turkey neck is now back quite large and…