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Should I be concerned???
Pat is about two and a half months out of treatment. Eating seems to be going only ok. He says that most of his taste is back, and he doesn't have trouble swallowing, he just really doesn't seem to have much of an appetite. He is still losing weight. He did have some extra weight to lose, but his oncologist seems to be…
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Four month check up.
Well I had my four month check up with my ENT oncologist, and all looks good in the throat and neck. Have a sore spot in my neck we'll keep a close watch on but think it is just a sore muscel, and I'm getting some feeling back. No scans needed yet but he did write NED on my report. I'll go with that. I guess we say phrases…
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Advice needed regarding Hospice
My husband decided a year ago, exactly, to stop all treatment once we found out that his cancer had spread. Laryngeal (radiation, chemo and surgery). Then a second primary at the cervical of his esophagus (radiation and chemo). NED for 4 months then cancer back at the cervical of his esophagus and spread to his right lung.…
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After Stage 4 HPV 16 Throat Cancer Surgery, Extensive Chemo & Radiation now 2 months out dr. says ha
My boyfriend was diagnosed with Stage 4 throat cancer from HPV 16 (oral sex) just like Michael Douglas, which I understand has a totally different prognosis (better) than acfrom smoking. He's about 2 months out of the extensive radiation and chemo with all those awful side effects - he had them all - his doctors ran a scan…
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Upset and feel angry
I'm feeling upset and angry today. No head MRI until next Tuesday. Soonest they can get me in. That's pretty good if you're not nervous, in pain and very stressed out about it. I'm hoping someone will cancel and I can get in sooner. Oncologist wanted it done this week. That's what we were expecting to happen. Having a lot…
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Saw Oncologist Today- update
Hello, Today we saw Oncologist for two lesions seen on CT scan. Plan for this week: PET scan and MRI with contrast. Waiting for appointments. He's trying to push them through insurance faster as "urgent". He wants them done this week. Thankful for that. I have a history of anxiety disorder (severe) including panic attacks…
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Eggs diet post treatment
Hello everyone. I've been almost 3 months out of treatment for NPC. I've been craving for eggs every morning. I have 3 sunny side eggs along with a slice of bread every morning...seems my body is craving protein and calories. Now I was told by family member that eating eggs everyday is bad for me. I've been eating the eggs…
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Chef Daddy Mike
I got to talk to Mike yesterday; he was just getting out of the hospital once again this time it was because of his heart. Somehow the radiation treatment has affected the heart and causing it not pump normal. Please just keep him in prayer; he has been through hell in the last few years. God Bless you all Tim Hondo
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Hearing test
I went for a hearing test this week. I've been deaf in my right ear since rad and not full hearing in my left. results were the right ear doesn't equalise pressure,there no reading at all, and normal loss of high sound in the left ear which is due to my age. I can't get or don't need a deaf aid because they feel I can get…
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New Problems
Went to PC today. Jim's oxygen level was below 81, should be 90 or above. He is starting to have breathing problems so doctor wanted him on oxygen asap so got an appointment tomorrow. He says it will help with energy levels too. Jim is not thrilled but anything to kepp the fishing going. Been way to cold lately but weekend…
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Tx update
Just checking in. Started my 2nd session today. Each session is 1 week taxol and ebitux then 2 weeks of only erbitux. No nausea. 4th week I still have my hair, it has started to hurt and thinned some this week. Imagine it will be gone within the week. Some acne rash but not too bad, a light make-up covers. Thanks, for the…
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support is so important
Just another note of gratitude for the support from my fellow survivors. You really make a difference in my life and what I am facing. I check back often. Every response gives me encouragement to move forward. Love, light and good health to you all. Vicki
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Today is World Cancer Day....February 4th!
Just wanted to recognize today....in case some of you weren't aware that today is World Cancer Day! Celebrating and Supporting all touched by cancer. Chevrolet is donating $1 for every profile changed to purple....up to 1 million Dollars! Here's how it works: If you have a facebook or twitter profile, your being asked to…
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Please say a prayer for my buddy pal
i turned my friend on to this network when i found out he had prostate cancer - he was reluctant to join-(DENIAL)he has been receiving hormone treatment for a while and just went for his review at sloan in NY. He did not receive the dagnosis he was wishing for. his prostate numbers are gresat but its tenticles are…
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CT scan alarm-Scared
Dear friends, Last week I ended up at urgent care with flu-like symptoms.They sent my husband and I to the ER. Upon learning I am a tongue cancer survivor, they ordered a CT scan... my very first one. We were later sent home ...all labs looked good. Suggested that may have a virus. (Did get flu shot a couple of months…
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In Memory of Fallen Pets...
As to many, our pets are more than just pets, more than anmals to us..., they are family. We love them as we do our kids, family and friends...., they are family. I'd like to honor our fallen pets with this post... Ebony, my best buddy, the greatest friend...., I still miss her. I was honored to have her love me equally…
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Wish me luck....
cross your fingers and toes, and say a prayer if you're inclined. I have my scan tomorrow morning (you all know how well I take these scans). I'm hoping to detach myself from the ceiling fan on Thursday after seeing the Onc. p
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Alive and adjusting UPDATE
Just a quick update to let you all know im alive and trying to adjust to this new lifestyle my left hand is still in a splint, so hard to type got home on tuesday sugery was the 16th dont know the path results yet tom is doc appt guess ill find out then Tpat path report said the margins were clear but close. They want me…
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Effects of radiation
My 86 year old father went thru radiation and chemo treatment in the summer of 2012 for cancer of the epiglottis. Although he cancer free at this point, he has two significant issues affecting the quality of his life. First, he still has no desire to eat anything of substance. He says his throat is dry, has no appettite,…
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game plan
Just talked with my doctor's partner and he gave me the game plan.The tumor is in front and the bottom of tounge.He said most likely will have to split my jaw to get at it and replace maybe half of tounge with muscle from thigh.They will also remove the lymph node on the left side.Since I will have radation and would be…
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Man it’s Cold in Lafayette
I don’t know about you but this Cajun boy is not use to this kind of cold weather. I been locked in for two days now, everything is ice and no one is moving. I don’t like cold; I need 80 / 85 degree weather in order to operate. Just glad to morrow forecast is showing it in the 60 hard to believe it is freezing one day and…
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Turkey Neck Problems
My hubby is about 9 weeks out of treatment. Pet scan is scheduled for Feb 17. ENT said the turkey neck is side effect from rads, as I have seen so many of you post the same about turkey neck. ENT put him on an antibiotic and steroid which seemed to help, but only short term. The turkey neck is now back quite large and…
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Doesn't seem like much...
I know it might seem like much to anyone, but if you're stage 3 emphysema and a neck breather it is. I blew up a balloon today. Kinda felt like a little kid at Christmas. Thats all just had to share.. wmc
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Anyone with a similar story? Small swollen node after cellulitis.
Hi, I was diagnosed with HPV+ metastatic SSC of the right tonsil with several lymph nodes involved on the right and a negligible amount on the left Jan 2013. I had two rounds of chemo with three weeks off in between and then 33 rad treatments w/ chemo. I finished the end of May and had a clean CT in August. I'm scheduled…
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MUCUS AND CANT SLEEP
THANKS ALL I AM HAVING A LOT MUCUS AND CONSTANTLY RINSE WITH BAKING/SALT SOLUTION . WHEN LAYING DOWN TO SLEEP THE MUCUS KEEPS COMING OUT OF MY MOUTH. SLEPT FOR 4 HOURS GOT UP AND TRIED TO SWALLOW THE MUCUS DOWN. BUT IT WAS DIFFICULT BECAUSE MY THROAT AND TONGUE WERE SO PAINFUL. I SCARED TO GO BACK TO SLEEP AGAIN SO I…
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Feeding Tube
My husband has stage 1 tonsil cancer, due to HPV. He only has to go through 6 weeks of radiation, no chemo thankfully. He is in week 4 and has not had solid food in 2 weeks, but is drinking Shakeology, ice cream and the ocassional chicken broth. The doctor told him he should only lose 2 lbs a week, which is ridiculous…
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My Best Friend
One of the hardest things to do it to put something you love to sleep. My Pit Bull Harley was almost 14 years old and had a lot of old age problems. This week she got to where she could not walk and was in a lot of pain and sick. My son and I knew it was time but just did not have the heart, last night we all kissed her…
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Help our friends across the POND !!!!
Posting this link. Hoping some folks in the UK can help out
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Question for the Lary’s. (Laryngectomees)
Question for the Lary’s. I am a neck breather and total Laryngectomy with neck reduction on both sides, level II~V and 86 glands removed. I have a TEP and use the HME to speak. I have marked biapical bullous emphysema Stage III…
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What Day s It ~ Crappie Day
For my fellow warriors doing battle, or just not back to their formal Abi-Normal self..., you will be. Hang in there, get through, and start planning on the things you love and can't wait to get back to..., for me that's fishing for one... Started the morning cold, foggy and with a slow bite…. First in the boat was a solid…