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SORE TONGUE
HI ALL I HAVE NPC AT AGE 53. GOING THROUGH TREATMENT 3 CHEMOS AND 33 RTS. 1 CHEMO AND 8 RTS LEFT TO GO. I STILL CAN SWALLOW BUT MY TONGUE IS VERY SORE. IS THIS A TYPICAL SIDE EFFECT FROM RT AND CHEMO? ANYONE EXPERIENCE THIS DURING THEIR TREATMENT. THANKS
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Mucoepidermoid BOT
Since this a rare cancer I will post my story to add to the others. BTW, thanx to tommyodavey who guided me to this site. In 2007 a small lump appeared in my left neck. My ENT was not concerned. Now, in October 2013, it had began to enlarge but still no pain. My ENT ordered CT and did FNA. The CT showed a mass in the right…
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just some questions on what I can expect
Hi guys now that I'm less then week away from surgey am wondering what I should expect.As in pain mangement after surgey.Have already been told 7-10 days in hospital and will have the peg tube put in.Do they teach you just how to use it and where to get the supplies I'll need.Will I beable to take liquid though the mouth…
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Exam anxiety Satisfied
Friends, 2 months shy of the 2-year mark and I heard the words “No Signs of Cancer” this afternoon. Other than edema, my ENT neither saw, felt nor scoped anything suspicious. Next exam in 6 months. Keep on keeping on! Matt
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First Anniversary Date
It is so interesting how on this journey certain dates now take on more meaning. Of course my wife's birthday, my eldest son's and youngest daughter's birthday. Our wedding anniversary. But then a new batch of days: date of diagnosis, start of treatment, ringing the bell, first PET/CT after treatment. And then three months…
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Checking in, update, etc. etc.
Hi CSN Buds! Thought I'd check in with y'all. Hope everyone is having a Happy New Year! Think I told y'all I quit at Jo-Ann's on Dec. 20 so I could be available Mon-Friday for substituting. So far I subbed 4 days this month and have Mon, Wed. Thurs. and Friday booked for next week and one day for February already. Pretty…
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another yr passes with love
Hello everyone, Well it's another yr. older for me today. I woke up with a card waiting for me on the table from my husband. As I was reading it something slipped out of it on the table. A beautiful ring. He is incredibly sneeky when he wants to be. (I am so blessed to have such an incredible man beside me) I have alot to…
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Bronchiectasis
Hi, I'm new in here, and to be honest, I guess I'm just here to have a good old whine about how frustrated I get sometimes. 2007: removal of right tonsil, removal of gland under chin, neck disection, right side of neck. 2009: following the appearanc of 8 lumps on right side of neck; radical neck disection, right side; 33…
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Scope good today, no CT, PET and MRI?
Overdue to get checked at end of November but finally found an ENT HNC surgeon I trust, at least I think so. He did the scope thing, everything looks fine. One nice benefit of scopes rather than scans is you got zero wait time. Perfect for the instant gratification generation. I asked about scans and his take is PET is…
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Got the results today
My Surgeon said I am clean and green so much so after 4 years, no more PET Scans and he doesn't want to see me for a year I may just go back in six months for no reason at all just because I am use to it. I will see what my Radiologist says in May, but if he says he doesn't want to see me for a year I may be thinking a…
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food and water staying in throat
sometimes when i eat, the food and drink stays in the back of my throat instead of going down the esphogus. it has lingered there as long as 10 minutes after swallowing. i can't talk when this happens or the food/drink will spew all over the place. After reading a post from JF, i'm wondering if it could be the sphincter…
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I know you guys are tired of the "How long after" posts...
But I just gotta ask anyway! I have two radtreatments left, THANK YOU GOD! I would like to get a baseline on how long it usually takes a person to start coming off of the Zophran and to stop with the compulsive, funny feeling, swollen throat gagging? Keep in mind, my chemo Dr cancelled my last two chemo treatments because…
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Not again!
Yep, another clean PET scan! That's 4 in a row now and 1 solid year of clean scans! Thought I'd share the news with all the old gang here and the new as clean scans are a cause for celebration. So, when you're having a cold one tonight (even if it's through a tube), know that you're having one with me and that it's…
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PET report and doctors visit encouraging
Feel better after oncologist visit. The bad news is the tongue cancer is back on the left side and extends to the left madible. The 15 nodules in the lungs have grown in size. There are a lot of medical terms about abnormal uptake and intense uptake in hilar region, mediastinum and others. I guess I need a medical…
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CT done....results were expected
Hello everyone, I wasn't sure I wanted to post this time around. But it's been a long journey. I had a very long visit with my primary today. We talked of many things, but mainly quality of life issues for me. I graduated high school with this fellow. Seems like a different lifetime. We've decided to change up my pain…
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Nasal congestion
I have a flu for over a week now. Getting better but still feel cold in the body that goes to the bones. Worse symptom is nose congestion in which unable to breath at all. Breathing through the mouth make it very dry. Try to blow out the nose but content is very thick and won't come out. Used Neil Neddy pot but not seem to…
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Swallowing sphincter muscles
www.cedars-Sinai/patient/programs-and.../swallowing disorders.aspx or www.cedars- Sinai then go to swallowing disorders
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hyperbaric chamber therapy
Does anyone has any take or experience in regard to the hyperbaric oxygen treatment for post cancer treatment. PM
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Rang the Bell Today
I can't believe it but I will not be going for any more treatments on Monday, I rang the bell today after my last rad treatment. It was and still is a little surreal, these last few days have been hell - voice gone and starting feeding through tube - my mouth and throat just too sore after the last few days of rads. Still,…
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Dental -update
Oncologist gave us a dental surgeon's name to get teeth extrated since they are crumbling. Called insurtance company and said the cover 100 percent and to file under medical. Insurance person at dental surgeon's office said they do not file medical, only dental. I called a regular dentist listed on the insurance network.…
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food stuck
4 months after radiation and seems lie with every meal food is hanging in throat and wont wash down. I am not chocking but it is so uncomfortable that i am afraid to eat
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Hi Friends
Jan 21, 2014 - 6:27 pm Rachel 13 year suvivor stillNew Rachel 13 year suvivor still here! Its been a year since what could be permibnet Peg tube has been in, still annoying, but handling it is easier! Got to find something to be happy with side effects of Ensurce plus therapeutic Nutrition has seriously affected my BMI in…
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Updates, additions and delays...
As you know we lost our Bubba (11 year old Boxer) to cancer in December. It was truly heartbreaking and our home felt very, very empty. We have added a baby Boston Terrier to our family..Chloe Noel. We haven't moved yet. Our buyer is causing all sorts of trouble and we are shooting for this coming Friday..it will be our…
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prostate
I know my prostate is not in my neck or head LOL. Some of you might remember that I was diagnosed with prostate cancer last year. Had my 2nd 3 month checkup today. Blood work showed no change. still at 5.5 PSA, doc did the digital job and said there is no change and the risk of prgression is low, another one in 3 months.…
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Johnnybegood Is In The Hospital - UPDATE 1/16
I'm asking again for prayers & good vibes for my daughter, Johnnybegood. She has been hospitalized as her liver enzymes are through the roof & bile duct is blocked. After resuming chemo last week, she had a 24 hr. period of yellow eyes & face. It went away but came back with a vengeance all over. Onc sent her for a CT &…
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Is this normal
Hi guys just asking another question.Tounge is still sore after exploratory surgery but my main question is that my mouth fills with slivia and wondering if this normal? I am always spitting it out but just keeps filling back up plus with my mouth so wet not very thristy or hungry.
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To be Flu shot or Not to be Flu shot?
Hello everyone. It is cold winter flu season. I just had a flu about 3 days ago and it almost gone out of me. However, it made me lost so much weight where I am back to where I was when I just finished my treatment. I've been out for one and half month now. Recovery was doing well until the flu took me all the way back. I…
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radiation where it isn't supposed to be
Is it common to have radiation burns in places where the radiation is not supposed to be going? My radiation should be confined to my neck and lower jaw, but I have burns on my breast and on my back. Not happy about that.
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something happened after the exploratory
Hi guys I posted earlier about how well the exploratory went and it did.Saturday felt good and very hungry but nor sure if I over did it or ate the wrong foods.Sat nite I ate some chicken and washed it down with cranberry juice.The juice stung some but thought well maybe because where pricked and probed was still very…
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Toothpaste
I finally looked into OCF and read about Biotene. It sounds like the "New and Improved" formula doesn't have what we need in it. I can't handle any other mint toothpaste, burns tongue and mouth and lips. What are you using for toothpaste that doesn't burn and has the enzymes that we need in it?