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support is so important
Just another note of gratitude for the support from my fellow survivors. You really make a difference in my life and what I am facing. I check back often. Every response gives me encouragement to move forward. Love, light and good health to you all. Vicki
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Today is World Cancer Day....February 4th!
Just wanted to recognize today....in case some of you weren't aware that today is World Cancer Day! Celebrating and Supporting all touched by cancer. Chevrolet is donating $1 for every profile changed to purple....up to 1 million Dollars! Here's how it works: If you have a facebook or twitter profile, your being asked to…
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Please say a prayer for my buddy pal
i turned my friend on to this network when i found out he had prostate cancer - he was reluctant to join-(DENIAL)he has been receiving hormone treatment for a while and just went for his review at sloan in NY. He did not receive the dagnosis he was wishing for. his prostate numbers are gresat but its tenticles are…
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CT scan alarm-Scared
Dear friends, Last week I ended up at urgent care with flu-like symptoms.They sent my husband and I to the ER. Upon learning I am a tongue cancer survivor, they ordered a CT scan... my very first one. We were later sent home ...all labs looked good. Suggested that may have a virus. (Did get flu shot a couple of months…
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In Memory of Fallen Pets...
As to many, our pets are more than just pets, more than anmals to us..., they are family. We love them as we do our kids, family and friends...., they are family. I'd like to honor our fallen pets with this post... Ebony, my best buddy, the greatest friend...., I still miss her. I was honored to have her love me equally…
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Wish me luck....
cross your fingers and toes, and say a prayer if you're inclined. I have my scan tomorrow morning (you all know how well I take these scans). I'm hoping to detach myself from the ceiling fan on Thursday after seeing the Onc. p
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Alive and adjusting UPDATE
Just a quick update to let you all know im alive and trying to adjust to this new lifestyle my left hand is still in a splint, so hard to type got home on tuesday sugery was the 16th dont know the path results yet tom is doc appt guess ill find out then Tpat path report said the margins were clear but close. They want me…
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Effects of radiation
My 86 year old father went thru radiation and chemo treatment in the summer of 2012 for cancer of the epiglottis. Although he cancer free at this point, he has two significant issues affecting the quality of his life. First, he still has no desire to eat anything of substance. He says his throat is dry, has no appettite,…
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game plan
Just talked with my doctor's partner and he gave me the game plan.The tumor is in front and the bottom of tounge.He said most likely will have to split my jaw to get at it and replace maybe half of tounge with muscle from thigh.They will also remove the lymph node on the left side.Since I will have radation and would be…
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Man it’s Cold in Lafayette
I don’t know about you but this Cajun boy is not use to this kind of cold weather. I been locked in for two days now, everything is ice and no one is moving. I don’t like cold; I need 80 / 85 degree weather in order to operate. Just glad to morrow forecast is showing it in the 60 hard to believe it is freezing one day and…
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Turkey Neck Problems
My hubby is about 9 weeks out of treatment. Pet scan is scheduled for Feb 17. ENT said the turkey neck is side effect from rads, as I have seen so many of you post the same about turkey neck. ENT put him on an antibiotic and steroid which seemed to help, but only short term. The turkey neck is now back quite large and…
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Doesn't seem like much...
I know it might seem like much to anyone, but if you're stage 3 emphysema and a neck breather it is. I blew up a balloon today. Kinda felt like a little kid at Christmas. Thats all just had to share.. wmc
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Anyone with a similar story? Small swollen node after cellulitis.
Hi, I was diagnosed with HPV+ metastatic SSC of the right tonsil with several lymph nodes involved on the right and a negligible amount on the left Jan 2013. I had two rounds of chemo with three weeks off in between and then 33 rad treatments w/ chemo. I finished the end of May and had a clean CT in August. I'm scheduled…
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MUCUS AND CANT SLEEP
THANKS ALL I AM HAVING A LOT MUCUS AND CONSTANTLY RINSE WITH BAKING/SALT SOLUTION . WHEN LAYING DOWN TO SLEEP THE MUCUS KEEPS COMING OUT OF MY MOUTH. SLEPT FOR 4 HOURS GOT UP AND TRIED TO SWALLOW THE MUCUS DOWN. BUT IT WAS DIFFICULT BECAUSE MY THROAT AND TONGUE WERE SO PAINFUL. I SCARED TO GO BACK TO SLEEP AGAIN SO I…
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Feeding Tube
My husband has stage 1 tonsil cancer, due to HPV. He only has to go through 6 weeks of radiation, no chemo thankfully. He is in week 4 and has not had solid food in 2 weeks, but is drinking Shakeology, ice cream and the ocassional chicken broth. The doctor told him he should only lose 2 lbs a week, which is ridiculous…
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My Best Friend
One of the hardest things to do it to put something you love to sleep. My Pit Bull Harley was almost 14 years old and had a lot of old age problems. This week she got to where she could not walk and was in a lot of pain and sick. My son and I knew it was time but just did not have the heart, last night we all kissed her…
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Help our friends across the POND !!!!
Posting this link. Hoping some folks in the UK can help out
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Question for the Lary’s. (Laryngectomees)
Question for the Lary’s. I am a neck breather and total Laryngectomy with neck reduction on both sides, level II~V and 86 glands removed. I have a TEP and use the HME to speak. I have marked biapical bullous emphysema Stage III…
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What Day s It ~ Crappie Day
For my fellow warriors doing battle, or just not back to their formal Abi-Normal self..., you will be. Hang in there, get through, and start planning on the things you love and can't wait to get back to..., for me that's fishing for one... Started the morning cold, foggy and with a slow bite…. First in the boat was a solid…
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SORE TONGUE
HI ALL I HAVE NPC AT AGE 53. GOING THROUGH TREATMENT 3 CHEMOS AND 33 RTS. 1 CHEMO AND 8 RTS LEFT TO GO. I STILL CAN SWALLOW BUT MY TONGUE IS VERY SORE. IS THIS A TYPICAL SIDE EFFECT FROM RT AND CHEMO? ANYONE EXPERIENCE THIS DURING THEIR TREATMENT. THANKS
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Mucoepidermoid BOT
Since this a rare cancer I will post my story to add to the others. BTW, thanx to tommyodavey who guided me to this site. In 2007 a small lump appeared in my left neck. My ENT was not concerned. Now, in October 2013, it had began to enlarge but still no pain. My ENT ordered CT and did FNA. The CT showed a mass in the right…
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just some questions on what I can expect
Hi guys now that I'm less then week away from surgey am wondering what I should expect.As in pain mangement after surgey.Have already been told 7-10 days in hospital and will have the peg tube put in.Do they teach you just how to use it and where to get the supplies I'll need.Will I beable to take liquid though the mouth…
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Exam anxiety Satisfied
Friends, 2 months shy of the 2-year mark and I heard the words “No Signs of Cancer” this afternoon. Other than edema, my ENT neither saw, felt nor scoped anything suspicious. Next exam in 6 months. Keep on keeping on! Matt
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First Anniversary Date
It is so interesting how on this journey certain dates now take on more meaning. Of course my wife's birthday, my eldest son's and youngest daughter's birthday. Our wedding anniversary. But then a new batch of days: date of diagnosis, start of treatment, ringing the bell, first PET/CT after treatment. And then three months…
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Checking in, update, etc. etc.
Hi CSN Buds! Thought I'd check in with y'all. Hope everyone is having a Happy New Year! Think I told y'all I quit at Jo-Ann's on Dec. 20 so I could be available Mon-Friday for substituting. So far I subbed 4 days this month and have Mon, Wed. Thurs. and Friday booked for next week and one day for February already. Pretty…
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another yr passes with love
Hello everyone, Well it's another yr. older for me today. I woke up with a card waiting for me on the table from my husband. As I was reading it something slipped out of it on the table. A beautiful ring. He is incredibly sneeky when he wants to be. (I am so blessed to have such an incredible man beside me) I have alot to…
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Bronchiectasis
Hi, I'm new in here, and to be honest, I guess I'm just here to have a good old whine about how frustrated I get sometimes. 2007: removal of right tonsil, removal of gland under chin, neck disection, right side of neck. 2009: following the appearanc of 8 lumps on right side of neck; radical neck disection, right side; 33…
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Scope good today, no CT, PET and MRI?
Overdue to get checked at end of November but finally found an ENT HNC surgeon I trust, at least I think so. He did the scope thing, everything looks fine. One nice benefit of scopes rather than scans is you got zero wait time. Perfect for the instant gratification generation. I asked about scans and his take is PET is…
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Got the results today
My Surgeon said I am clean and green so much so after 4 years, no more PET Scans and he doesn't want to see me for a year I may just go back in six months for no reason at all just because I am use to it. I will see what my Radiologist says in May, but if he says he doesn't want to see me for a year I may be thinking a…
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food and water staying in throat
sometimes when i eat, the food and drink stays in the back of my throat instead of going down the esphogus. it has lingered there as long as 10 minutes after swallowing. i can't talk when this happens or the food/drink will spew all over the place. After reading a post from JF, i'm wondering if it could be the sphincter…