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Video swallow
I went for a video swallow test today. the blue dye water stopped in my lower throat. they say probably my sphincter muscle isn,t opening to let the food down. I have now to wait till the tests are sent to my onc team. I was told it's too close to rads for any invasive treatment so don't know what will happen. I,m…
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Never thought I'd be here again
So once again we get some frantic news from our Radiologist. Sorry my terms are a bit fuzzy after 3 years. Said she saw something but won't say what it was. Consulted with another doctor and they recommended a pet scan and some other scan again. Needless to say the winds have been knocked out of our sails. She went to see…
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First PET scan since final Radiation in Oct NED!
May 31 2013 i found out i had Squamis cell carsanoma (spelling) and started 9 months of almost hell. I had my last radiation on Oct 29th, first PET Scan end of Jan and It was clear also. I had 3 rounds of Chemo, a blood clot in lower lung, 4 trips a week each spent in hospital for one thing or another. 37 daily mon to…
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2 year anniversary
today is my 2 yr anniversary for laryngectomy surgery to get rid of recurrence. just 3 little more years to go before i can use the word CURED!!! yay me. congrats to those who have already reached that mark and those like me, hang it there, it will be here for us before we know it. yiiiippppppeeee for all of us!! God bless…
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Soreness around PEG tube stoma
After 5 months of pain free PEG stoma I have just developed a shiny deep pink lump to one side of the hole! it's only small but goes half way round the hole? it stings when I move and also leaks slightly! should I be concerned, I put some cream on for sores should I wait and see if it clears or see my GP. I hate goingto…
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Catluver
Has anyone heard from Vicki since her surgery? I know that some people have connected by Facebook. Hopefully no news is good news. I know I am off of the grid when I am on strong meds.
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Insurance crap....
It's beginning to look like I've been thrust into what may be common nowadays. I had my scan in January under the new insurance....remember I had to cancel my appointment, and make a new one in a different town, because the local imaging center wasn't in my network....ok...did that. Also it was pre-authorized by the Drs.'…
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just checking
Just checking in. Waiting in hospital now for brain surgery. Thought it would be very early this morning. Then told 5:30pm today. Now moved up to 3:30pm. Good. Sooner better. Procedure to drain and remove part of fliud filled cyst behind L ear, not deep, not close to brain. About 1 hour surgery. Should provide much needed…
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Chemo Rads or Just Radiation
God Bless you all for sharing! :) I am a 49 yr old Non smoker in excellent shape with a wife and two wonderful children. Then 2 yrs ago I was found to have HNSCC HPV pos They did a modified neck disection and transoral surgery to remove the primary from the base of my tongue. Surgeons thought they'd caught it early enough…
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Offloading thoughts
In my "about me" I wrote that my Dad was diagnosed with pancreatic cancer one week prior to my being diagnosed with squamous cell carcinoma. Dad did very well, was on hospice the whole time. I made it through surgery, he was doing well, still at home. When I began radiation and the effects started to hit, I could see him…
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experimentale drug
Hi Went today to the doctors to get my game plan for ratiation treatment.I go back Monday to be fitted for my hockey mask and a week later will start them.5 days a week for 6-7 weeks at 10min per session.I won't need chemo but was asked if I wanted to try thier experimental drug.Will take first dose a week before rads…
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a new doctor, MO
i've been a member here for about 2 years. i recall many posts from you guys speaking of your 3 or 4 month check ups with your ent, mo or ro and I had no idea what the mo and ro meant, i just knew i didn't have one of them. you also spoke of being poked, prodded and scoped by the ent at every 3 month check up. again, i…
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birthday present
hello to all on february 24, 2014 i received the best birthday gift..my dad's 2 year petscan was all good with even an improvment in the inflamation in his esophagus! we ended chemo n rad in 10-11..we have had a petscan in 2012 and this one would have been 2013 (we were 2 months behind) i am so happy to get to the two year…
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Dads first pet scan 8 weeks after treatment with hot spots....
My dad had his first pet scan this week 8 weeks post treatment... We met with oncologist at mayo and he said still a spot in the side of the last tumor, a new small one on the other side of the tongue and a new one in the left lung...... What?! How can this be? He just went through horrible brutal treatment and now there…
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New to the forum
Hello, I'm new to the forum and have been reading all the threads. I was just diagnosed with squamous cell cancer in my neck. The primary cannot be found, but I have had 9 lymph nodes removed on the right side of my neck with 2 of them cancerous. Right now I'm starting to go stir crazy waiting to see the oncologists on…
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Fluid in pleural space and PE's
Has anyone developed PE's or fluid in lung or pleural space as a result of long term chemo? I developed 3 PE's around the first of the year, and dissolved by taking Xarelto. Over the last 3 weeks I had 1500 ML drained, and had a Pleur X drain inserted last Thursday. 2000 ML was drained then, followed by 500 ML on Saturday…
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NPC post treatment rhinoscopy
ENT put a camera up my nose to check the tumor. He said it is cleared...nothing out of the ordinary. The tumor is gone!!! Part two will be the PET scan to confirm the objective finding. PM
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green mucous for 1 month
Hi everyone. I need help and advice. Ever since I got the cold/flu a month ago, my nose has been producing greenish thick discharge. It clogs up my nose sometimes. I have to constantly blow it out and it came back in an hour. I've been using the NeilMed and it clears the nose but came back in an hour. I've been out of…
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During radition
Hi has anyone taken vitimins during there radition? Have heard some do help with everything....
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Paendoscopy and dilation
My throat dilation didn't work but they will try again. The good news is it's not throat cancer I did have it on my mind as a friend of mine had cancer that blocked her throat. The surgeon said it is blocked with scar tissue. better luck next time and back to the ensures and PEG tube.
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Follow-up/Petscan
Hi all, I'm writing a little follow-up to what I posted a couple weeks ago. We had been 'lurking' here for over 3 years and finally needed to chime- in. Dale had his petscan yesterday and the Doc called late last night to say "ALL CLEAN!!" There was a very small lymph node or salivatory gland under his chin line. They…
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Done with radiation - major meltdown plus questions
My husband is 1 week post radiation. He is still on a liquid diet (but after reading so many posts, we expected this). I had to laugh at him last night becuase he tried to eat a Gold Fish and about threw up at the taste (I'm not being mean, he's a little melodramatic, so his reaction was funny!) But prior to that, he had a…
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can a low grade mucoepidermoid carcinoma recur as high grade?
Hi, I was treated (maxiollectory only) for a low grade mucoepidermoid carcinoma on the hard palate, I had clear margins but reading the pathalogy report it seems that the bone was eroded (i am assuming this is the bone of the hard palate), I have been clear for a long time now and was woundering, 1) can a low grade…
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On day 9 of a common cold - on the down slope
Finished TX June 12th, 2012. 35 rads 6 cisplatin for SCC stage IV tumor in the throat near the epiglottis and had invaded a few lymph nodes. I was always wondering if my body would react differently to a cold or flu (haven't had flu in 25 years) post treatment. Well, a cold feels the same as it always did but it sure did…
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peg tube stitches
Those of you who have peg tubes..did you get stitches at first? they stitched my husbands actual tube to his stomach and it is hanging downward and driving him crazy..it keeps getting caught in his pants..they told us it would be two weeks before they take them out..is that the right thing? the dr said one thing and the…
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Piggybacking on JackFlash22's thread
My ENT wants to do a dilation and I was wondering if someone could tell me what's involved. I can't imagine that sticking a tube down my throat can be anywhere near comfortable. Thanks for some info. Joe
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Five to Thrive
I just received an e-mail about 'Cutting Edge Cancer Research.' I have seen the doctor at a conference with my favorite chef, Rebecca Katz. Short notice: Tonight, Tues. Feb 25 4pm (PST) 7pm (EST). www.w4cs.com Five to Thrive has been very informative to me during this journey.
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A bit apprehensive
I have an appt for day surgery on my throat blockage on Monday, I was told they will look to see why it's blocked and think it's probably rad tissue. I,m told if they can they will stretch my throat. I,m quite excited that I may be able to swallow next week but apprehensive that it may not work. can you swallow straight…
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Nasal problems
I had been having problems with breathing and sinus through my noise for years. Everything would be aright until I went to bed and then about 1am I would wake up because my noise was plugged up and I could not breathe. For someone with dry mouth you all know how that is. A few weeks ago my daughter told me about trying…
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New to board: Coping with Dad's diagnosis
Hi All, I have spent the last few hours reading through everything I could on this site. What a great supportive group you are. My dad was diagnosed with SCC on Labor Day of this past summer. He had a large tumor on the right side of his neck we were told from a lymph node. He did not have the cancer anywhere else and it…