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Hyperbaric treatment and dental extractions looming on the horizon
Hello everyone, long time no see! I have a question for you all regarding hyperbaric treatments relating to dental extractions - given the time involved, loss of hours at work, cost, potential for short-term and long-term visual adverse effects, especially in my own case... (It will "ripen" my radiation-induced cataracts,…
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Introducing myself
I am a caregiver to my mother whom has larnix cancer. She has already gotten her port and her feeding tube. She has one round of chemo. She starts her radiation on Monday. I am also caregiver to my mother in law whom has diabeties. My husband also has prostrate cancer. He goes the end of this month to have his prostrate…
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bad news today
2014-02-13 just got bad news today. Have to be admitted next week to hospital for tests. Scans show shadows on my brain and lung and bones. Dr. said there was more than a fair amount of disease showing on the scans. , I have been home in bed for 20 days with severe pain to my leg and weakness. We are in shock and so scared…
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Swallowing
Today I got a hospital letter to say they were going to take me into hospital to examine my blocked throat. They could see from the swallow video test that the liquid wasn,t entering the food tube. They think it's radiation damage and will try to open my throat. I feel more nervous about this than all the other treatment…
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Advice on Nausea/appetite
My husband Tim just finished up his fourth week of IMRT treatment at MD Anderson and its kicking his butt. He has ten more to go, Feb. 28th will be his last. He is just now starting to struggle with extreme nausea and sore throat. Seems he has the nose of a bloodhound now and can sniff out smells we can't smell, some are…
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how do you calm the fear?
I'm afraid of my thoughts and feelings. Afraid when I lay down to sleep, the feeling I'm living in a nightmare will overwhelm me. Vicki
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Any Info will help
I am new to this and have read a lot of positive information. I have just been diagnosed with left tonsil and left lymph node stage III cancer. C.T. scan done and 2 biopsies of the tonsil . My EN&T DR. does not want to do surgery due to to much reconstruction. I have my PET scan this Friday 01-31-2014. After this it's a 2…
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Nerve continuity test
after all the treatments etc, I have "winging of the scapula" on my right side. The oncologist said it was probably due the some damage to the Long Thorasic Nerve due to the cancer itself, or the radiation treatments to the right side of the neck. I only had a tonsillectomy ( no neck dissection) so it's not due to surgery.…
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Just when i thought it was safe to walk on the ice...
Just got back from the MedOnc and the results of my 1 yr post treatment CT was less than stellar. It seems that a ground glass nodule, that has been present in all of my scans, has increased in size by a millimeter since the last scan three months ago. Now he could not have been more reassuring that it is probably due to…
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Hospice update
Jim and I called Hopice in. They brought in the oxygen and took over sending the meds via Fedex. The pain meds being delivered is a blessing in itself. That was the most stressful part and I am already less stressed. We got the oxygen last evening and it was a blessing this morning when Jim had uncontolable coughing and…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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NEED HELP
Hello my name is Joe I am 50 yrs old and I have neck and head cancer, Just got this here problem 4 weeks ago and dont understanded it!!! Having a hard time dealing with it also, I have it all over my body places like CHEST LYMPH NOTES, RIGHT RIBS 8TH AN 9TH LEFT RIBS 4TH AN 5TH, SPINAL VETEBRA T1, T5, T12 AN STERNUM (CHEST…
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Fruit sensitivity
Back in 2007, I started having issues with orange juice and other citrus. I didn't think anything of it because I had just changed allergy meds. Later that year, I was diagnosed with tonsil cancer. After surgery and treatment, I could have citrus again. I read online somewhere (although I can't find it now) that citrus…
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Scar tissue surgery :(
Hello! For months I've wanted my trache removed. I HATE IT! so much! I got it this past June when cancer on my larynx was restricting my breathing. Went through chemo/rad and by November 2013 got a clean pet scan. Thank goodness, time to focus on healing. But here it is February and still having a difficult time talking…
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trach tube
well head to the doctor for my first vist at 2 weeks post surgery.Still have the trach in and wondering if it's ok to have a family member take me or by medical vechile.Found out it will cost over 1100 for the trip by medical.Here at the rehab they said family can take you just wanting to see if that would be the safe…
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What a great forum for newbies!
I found this forum by mistake while searching for info on my husbands diagnosis. He has malignant neoplasm of the oropharynx and connective tissue and other soft tissue, tested positive HPV and primary was found in right tonsil after he felt a lump in his right neck. Original biopsy going into the neck discovered a mass…
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Special Diet for PET scan?
The PET scan has been rescheduled for tomorrow for my hubby (one week earlier). They told him to eat proteins & veggies, no sugar, no starch or processed foods for the evening before meal. Is this standard? Just curious. Please send up prayers for NED. Thank you. Cindy
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WEEK 4 Need Help
Hello everyone; Well Monday was my 4th chemo treatment and the 1st time I actually got sick, What a night it was sweats and throwing up, Thank you for all your support and may god bless you all, Do any of you live in or around the southside of Chicago, Would like to start a support freindship any ideas would be helpful. I…
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NED
Praise God! I had a CT scan today and received the news that there is “no evidence of disease” which is the best answer they give. There will be additional specialists that look at the scans and they may find things. I will continue to get periodic examinations for the next five years to insure that I remain disease free.…
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Pain control and hospice help
Jim's pain seems to be increasing at a faster rate lately. In the past week I have had to give him a dose of pain meds in late afternoon. Previously he only needed meds tp sleep. The week before last he would get pain when he moved around but usually if he rested it eased off. Last week he had to have pain meds around 6 or…
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Chuckles0504 Update RIP to my beloved husband
Been on this forum since 2012, have not posted that often. I think the last time I posted my husband had a NED PET scan and all look great. This disease can take an absolute turn for the worst so quickly. Since that PET scan in May, my husband had complained repeatedly and voiced to his docs that he had pain in both his…
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PET denied..Now Ct....anxious
Many know I've been anxious about an upcoming PET scan. And an open MRI on head for tomorrow. PET to follow MRI soon. Claustrophobic. Just got word that PET was denied. Will have CT scan of chest abdomen and pelvis instead. Looking for any growths on spine causing severe back and leg pain. Very afraid of more cancer of…
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well all done
Well I guess it's over except for the healing.They cut from ear to ear and down my chine. removed teeth as they said would be destryored in radation.So far everthing is healing good. They have a trach in and driving me nuts can't talk .They said maybe today will remove the ballon in it. took alittle over 1/2 of tounge and…
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Food irritating throat (7 weeks out)
Hi guys, It has now been 7 weeks since I completed radiation and I am having a heck of a time in the eating department. I never got a PEG, and now I have lost 45 lbs (200 to 155). I have gotten to the point where I feel like I would be doing great if I could only get in more calories. I can't drink the high calorie drinks…
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Need some light on Throat Cancer
Hi All, My friend has been diagnosed with squamous cell carcinoma in the throat. We just got the biopsy results yesterday and its mentioned as malignant. He is 67Yrs old, non-smoker and non-drinker. He has a history of bloop pressure and diabetes (currenly on daily medicines and under control). He started having coughs…
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Introducing myself
Hello to all, My name is Tammy, wife to Dale. We found this site 3 1/2 years ago, the night my husband was dx'd w/head and neck cancer. You all are incredible people and we have read several times a week and received all we needed to get us through those hard times. What a wealth of information! Dale had stage 4 B.O.T…
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Mucoepidermoid Carcinoma in a 10 year old
My 10 year old son was recently diagnosed with Mucoepidermoid carcinoma in the parotid gland. The cancer was found when he underwent surgery for the removal of a branchial cleft cyst, which turned out to be a tumor. We feel as though we are straddling two worlds here with treatment options. This is an adult cancer in a…
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One positive side effect so far
Just wanted to comment that I like the fact that I do not have to worry about those long dark ugly hairs that used to appear on my neck and under my chin anymore following radiation. LOL! PJ
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Electric shock sensations and pain in neck, arms and ribs?
This site is amazing and a wealth of support and information. Thank you. My husband is 10 weeks out of the usual, intense chemo and radiation treatments. He is doing fairly well - had the PEG tube yanked, literally, (it hurt!!) about 4 weeks ago. He continued to lose a little weight but seems to have stabilized now. His…
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PET scan...feet first?
Claustrophobic about up coming pet scan.(date to be determined.) A friend suggested seeing if I could go in feet first. Having less time with my head inside machine. She has been through one herself. It did not bother her very much. Scan for my neck to my lower back. Maybe down to my legs I don't know yet. Having severe…