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its been awhile-2 years since last recurrance
Hello everyone, I dont post much but I read almost everyday. On march 1st it will be 2 years since my moms last surgery. I am so greatfull becauce she really went throuh a lot and I believe its Gods miracle that she is here and well. For those who know my moms story: since nov of 2010 she had tonsil surgery with left neck…
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still waiting
Still waiting for a call for available hospital bed. Doctor's Office left us hanging for hours with out a return call. Husband has been following up. Feels like they are not giving good service. Putting us off. I've been so very sick in bed for weeks. We do what they say and get the short end Not happy. Scared and nervous.…
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anyone need Boost/liquid supplements in the toronto area?
My mom is having her feeding tube taken out this month and won't need these anymore. There's still quite a bit left for anyone who needs it and lives in the Toronto area, let me know!
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1st pet scan after treatment this week. Prayers for my father please!
I am so nervous its crazy! I pray that it was all worth it! Thank you all for the amazing support!
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postive first doctor visit
Just got back from my first doctor appointmentHe told everything they and the results.Took alomost 1/2 of tounge 80 lymph nodes and everything show they got the cancer.Will need radiation but no cemo.Will need to set up a portable sucking machine for home and he left the teach in but did cap it.Not sure when that will come…
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comfort from group 4:23am
Just a stop in to feel the comfort of my group's presence while awake at 4:30A.M.
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DAD 5 weeks out of treatment for tongue cancer-earpain
hello again, i would absolutely be lost without this website... my father finished treatment for stage 4 tongue cancer about 5weeks ago.. he looks great but the last few days he just wants to sleep.. there are days where he is out cutting grass and cutting weeds! God bless him... his first PET scan is august 11.. is it…
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Thank you from Rachel
To all my H/N friends, My hearing for SSD on April 7,2014 @11:00am, has been canceled!!???..... INSTEAD THE ASL JUDGE DECLARED FAVORABLE DESICION IN ADVANCE! No more waiting!(well now waiting to hear from SSD, and all about how much and insurance". My lawyers Case Manager Julia called to tell me she said she cried when she…
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Had a wonderful lunch
yesterday with PJ47....she's up here from S. Carolina, visiting her daughter and grand-babies.....we both had soup! Had some great conversation, and laughs. I love this group....and it's such fun to meet folks in person.
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Advice on phlegm
The weekend has been up and down, started the Fentanyl pain patch which has helped tremendously but now we are dealing with thick mucous in throat which constantly starts the dry heaves and he can't keep anything down. We were told half flat ginger ale does wonders but he won't consider anything to his lips! I have a…
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tounge flap
Hi guys as posted evrything is positive so far but have a question that I noticed.When they add the a tounge flap do they graf it to the lower gum? One of surgens told they were going remove the bottom teeth because during radiation they would be destoyed anyway.But noticed today that my tounhe is on the gums and wondering…
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REAL FOOD!
On Wednesday, I got the go-ahead to eat ANYTHING I WANT! This is after the total laryngectomy and rebuilt esophagus. I was on PEG tube feedings before going in the hospital, and on continuous feed since then. So, I went from continuous feed right to REAL FOOD! Food is so delicous. It has been a long time. I have to watch…
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Frustrated!
The 24th of this month will make 2 months since I finished the treatments. Honestly, this "recovery" period is worse than anything I endured during the treatment. It seems like I can't eat anything (never had a PEG) except grits with fried eggs mixed in. Anything sweet taste like motor oil (especially Boost/Ensure drinks)…
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Sweetheart Diagnosed; Wants to "Go It Alone"
Hi thanks for this wonderful resource. My boyfriend of 5 years, 53 years old, was diagnosed with "throat cancer", perhaps stage 1/2 in the past month. Stage 1 for size of tumor at base of tongue, potentially stage 2 because a few lymph nodes lit up on PET Scan. He is not forthcoming with any more details and previously…
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Hyperbaric treatment and dental extractions looming on the horizon
Hello everyone, long time no see! I have a question for you all regarding hyperbaric treatments relating to dental extractions - given the time involved, loss of hours at work, cost, potential for short-term and long-term visual adverse effects, especially in my own case... (It will "ripen" my radiation-induced cataracts,…
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Introducing myself
I am a caregiver to my mother whom has larnix cancer. She has already gotten her port and her feeding tube. She has one round of chemo. She starts her radiation on Monday. I am also caregiver to my mother in law whom has diabeties. My husband also has prostrate cancer. He goes the end of this month to have his prostrate…
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bad news today
2014-02-13 just got bad news today. Have to be admitted next week to hospital for tests. Scans show shadows on my brain and lung and bones. Dr. said there was more than a fair amount of disease showing on the scans. , I have been home in bed for 20 days with severe pain to my leg and weakness. We are in shock and so scared…
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Swallowing
Today I got a hospital letter to say they were going to take me into hospital to examine my blocked throat. They could see from the swallow video test that the liquid wasn,t entering the food tube. They think it's radiation damage and will try to open my throat. I feel more nervous about this than all the other treatment…
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Advice on Nausea/appetite
My husband Tim just finished up his fourth week of IMRT treatment at MD Anderson and its kicking his butt. He has ten more to go, Feb. 28th will be his last. He is just now starting to struggle with extreme nausea and sore throat. Seems he has the nose of a bloodhound now and can sniff out smells we can't smell, some are…
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how do you calm the fear?
I'm afraid of my thoughts and feelings. Afraid when I lay down to sleep, the feeling I'm living in a nightmare will overwhelm me. Vicki
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Any Info will help
I am new to this and have read a lot of positive information. I have just been diagnosed with left tonsil and left lymph node stage III cancer. C.T. scan done and 2 biopsies of the tonsil . My EN&T DR. does not want to do surgery due to to much reconstruction. I have my PET scan this Friday 01-31-2014. After this it's a 2…
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Nerve continuity test
after all the treatments etc, I have "winging of the scapula" on my right side. The oncologist said it was probably due the some damage to the Long Thorasic Nerve due to the cancer itself, or the radiation treatments to the right side of the neck. I only had a tonsillectomy ( no neck dissection) so it's not due to surgery.…
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Just when i thought it was safe to walk on the ice...
Just got back from the MedOnc and the results of my 1 yr post treatment CT was less than stellar. It seems that a ground glass nodule, that has been present in all of my scans, has increased in size by a millimeter since the last scan three months ago. Now he could not have been more reassuring that it is probably due to…
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Hospice update
Jim and I called Hopice in. They brought in the oxygen and took over sending the meds via Fedex. The pain meds being delivered is a blessing in itself. That was the most stressful part and I am already less stressed. We got the oxygen last evening and it was a blessing this morning when Jim had uncontolable coughing and…
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Planned CSN Outage Tonight
Dear Users, CSN will be down for routine maintenance tonight from around midnight to 3:00 AM Eastern Time. We apologize for any inconvenience. The site will be up and running as quickly as possible. Thank you for all you do for CSN! CSN_Nick
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NEED HELP
Hello my name is Joe I am 50 yrs old and I have neck and head cancer, Just got this here problem 4 weeks ago and dont understanded it!!! Having a hard time dealing with it also, I have it all over my body places like CHEST LYMPH NOTES, RIGHT RIBS 8TH AN 9TH LEFT RIBS 4TH AN 5TH, SPINAL VETEBRA T1, T5, T12 AN STERNUM (CHEST…
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Fruit sensitivity
Back in 2007, I started having issues with orange juice and other citrus. I didn't think anything of it because I had just changed allergy meds. Later that year, I was diagnosed with tonsil cancer. After surgery and treatment, I could have citrus again. I read online somewhere (although I can't find it now) that citrus…
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Scar tissue surgery :(
Hello! For months I've wanted my trache removed. I HATE IT! so much! I got it this past June when cancer on my larynx was restricting my breathing. Went through chemo/rad and by November 2013 got a clean pet scan. Thank goodness, time to focus on healing. But here it is February and still having a difficult time talking…
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trach tube
well head to the doctor for my first vist at 2 weeks post surgery.Still have the trach in and wondering if it's ok to have a family member take me or by medical vechile.Found out it will cost over 1100 for the trip by medical.Here at the rehab they said family can take you just wanting to see if that would be the safe…
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What a great forum for newbies!
I found this forum by mistake while searching for info on my husbands diagnosis. He has malignant neoplasm of the oropharynx and connective tissue and other soft tissue, tested positive HPV and primary was found in right tonsil after he felt a lump in his right neck. Original biopsy going into the neck discovered a mass…