NED
Just to quickly report a [1 year and 4 months after radiation and 1 year after last (chemo) treatment] follow-up with my radiation oncologist. He scoped my nasopharynx (primary was NPC), throat, etc. and there was no macroscopic sign of C.
In a nutshell I am doing great, although recovering after a common cold. I tend to tolerate much worse a common cold (since radiation), with a some symptoms (dry mouth, throat pain, fatigue) much more pronounced and prolonged then before (treatment).
I continue to have dry mouth (saliva is back ~30% but this percentage is sometimes in the 10% zone) and taste is off (but that doesn’t bother me at all, I eat everything I want, no issues here).
Something new though, I have a little bit of a shoulder pain (one side). The pain is only during certain movements, and was worse 3 months ago. Doesn’t seem to be fibrotic in nature, but rather arthritic. Of course, when it first started I immediately thought I had bone mets, but the evolution kind of contradicts this thought.
Comments
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Yippee!!!!
Congrats on your meet up with Mr. NED.....you got to admit, there's no feeling to match the one you get with the "all clear".
I don't know about everyone else....but I can sure tell you that anything the deviates from my "new-norm" and is above the waist scares me, too. I had a mild case of thrush in the back of my throat at scan time....I had had a sore throat for a week, and was sure I was going to have a bad scan. Saw the Onc 2 days later, she looked down my throat...and said "Wow, you've got some thrush going on"....I was so happy to hear that....
p
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so good to hear all is well.
so good to hear all is well. as for the pain, could it be age.....lol.
dj
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Congrats!
Sounds like life is doing you well....
Can relate to the shoulder pain....Kreg is having some major difficulty with shoulders/nerve pain. He is having some tests done as we speak to hopefully get to the bottom of things. Pat (longtermsurvivor) told me about radiation fibryosis and it sounds like that is the cause...not a lot we can do about it. Maybe some nerve block meds and physical therapy MAY help...but never goes away completely.
Hope you get to the bottom of your shoulder pain too..
Best to you,
~C
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Time to celebrate the good news!
About shoulder pain, have had it bad since September 6 left neck dissection, but I keep doing exercises and small weights and now Yoga which has helped a lot. I won't say it does not hurt, but my range of motion is better.
Had a "frozen shoulder" right side about 7 years ago and worked it out by swimming and stretching back on a kick board. Best of luck to you,
PJ
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Thank you all for encouragements and advices.
John, I am not a ballet dancer, so I could restrict my movements. The problem is that when I roll on my right side during night, the shoulder pain wakes me up. But as I said, this has somewhat improved, now it’s the dry mouth that wakes me up; or the fact that I have to … you know, no. 1. But I diverge.
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wonderful news
Agree with others: follow up on that cold if it doesn't resolve promptly. Your immune system is down and you need to make sure it doesn't go into pneumonia.
Shoulder pain - get that checked. Don't be cavalier about anything right now.
And, again, congratulations on your great news!
Celebrate!
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Good to hearNoellesmom said:wonderful news
Agree with others: follow up on that cold if it doesn't resolve promptly. Your immune system is down and you need to make sure it doesn't go into pneumonia.
Shoulder pain - get that checked. Don't be cavalier about anything right now.
And, again, congratulations on your great news!
Celebrate!
Congrats on the "all clear"!
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Pain In The Night...corleone said:Thank you all for encouragements and advices.
John, I am not a ballet dancer, so I could restrict my movements. The problem is that when I roll on my right side during night, the shoulder pain wakes me up. But as I said, this has somewhat improved, now it’s the dry mouth that wakes me up; or the fact that I have to … you know, no. 1. But I diverge.
And other mystery things..., LOL.
Well more than likely the pain will subside, but as for the dry mouth and call for duty, more than likely not as much.
I am almost five years post Tx, have all taste and about 95% saliva back.
The 5% or so that I don't is during the night, wake up with leather tongue, sip water, go pee...., my routine. I haven't slept more than 4 hours straight in over five eyars...
JG
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