-
Looks like I'm going to have to stop Therapy.---UPDATE
The Eributux is just kicking my butt. I'm pretty sure that I'd now be rated as class 3 on the 1-4 rash scale. No matter what we try (lotions, coconut oil-actually works better than any lotion, antibiotics and even prednisone) the spread continues and the itching is driving me to distraction. We actually did't infuse this…
-
Update again 9/2/14
UPDATE 9/2/14 : DOCTOR REPORTED THE NEW SPOT WAS INDEED A TUMOR AND A BLOODY ONE. HE SAID THAT HE STOPPED THE BLEEDING. NOW I HAVE A NEW DISAGREEMENT WITH ANOTHER SISTER. SHE SAYS WE SHOULD NOT TELL MOM WHAT THE DOCTOR SAID, LET THE DOC TELL HER ON MONDAY AT THE APPOINTMENT. i SAY WE SHOULD TELL HER BECAUSE SHE HAS THE…
-
UPDATE FROM 8-27 POST
CT Scan from last week turned out good. My Dr. and I discussed being able to take up to a 4 week break from the Cisplatin if the CT result was favorable. I arrived Yesterday and the break was "A Go" until I showed him my right foot which I cut 8 days earlier and ends up the foot was full of Staph and Cellulitis. I took an…
-
Natural Way of Healing Cancer?
Hi everyone :) I have a question? Is there a natural way to cure cancer? Like taking herbal supplements? My mother and I are both taking xanthone supplements plus moringa.... we are taking it 1 cap, three times a day... hope it can lessen the tumor of my mother on her neck...according to her ENT friend, it is just…
-
Worried
Hi. For 1 month, I have swollen lymph nodes on my left neck under the jaw, they are not painful. I also noticed pimple like bumps on my left tonsils (bumps with white spots inside), it is not painful. Whenever I swallow there is something itchy inside my left ear and when I burp, a muscle on my back neck aches. I have…
-
just wondering
Hey guys..things seem to be moving right along so pretty lucky so far.My question is what do I get to look forward to as hoping on friday they pull the peg tube.Haven't used it in 2 months and have gained weight.He wanted to wait till after the pet scan and that came back all clear.So with any more luck it get pulled
-
Just Diagnosed
This is all brand new. I received my diagnosis today. I've suspected for 3 months that this was cancer. I was told it was a harmless Brachial Cleft Cyst but when the surgeon removed it the pathology said Metastatic Squamous Cell Carcinoma. He pulled a piece of tonsil and the lymph node near the cyst/necrotic lymph node (?)…
-
* The Trilogy* machine
Has anyone been treated with * The Trilogy linear accelerator machine* ? On the hospital website ( which I am going to ) , I read they say there are only 32 in the US and the hospital I am going to has one of them to treat cancer. ( There may be more now, unsure when they built and updated the website.) This makes me feel…
-
PEG replaced
last night my PEG tube sprang a leak at the end towards the tummy. I managed to clip it off with the clip and phoned the nurse the next day, she looked at it and said she couldn't repair it and called the hospital. I have the PEG that has a washer type thingy inside the stomach and a triangle fastener on the outside. I…
-
HAd a PET CT after 12 days of radiation.
Hi All, My father had a PET CT yesterday after 13 days of completion of radiation.What my onocologist told id ,the primary tumor has almost shrinked (with SUV-3.2 from 10.6)and size almpst gone.But the size of lymph nodes has not shrinked.and one important point is 2 lymph nodes from left side has slightly increased in…
-
CT Scan of lungs results
below are the results from a ct i had done last friday, 8/29. i hoping someone can tell me what they mean. i have to say i'm just a little worried about a couple things. one being the mention of the coronary arteries. Pat, if you read this, I would greatly appreciate your expertise. i don't know if my doc will call me…
-
Happy Day
Just saying, it's the weekend and it's Sunday. Some people are at home having nice little family days, some will be going to church, or for a walk, and some (like me) are at work (I've snuck off to the back office on the work computer HA)... In America it's very early in the morning, but it's 08:45 here :) Just wanted to…
-
Skiffin Update..
I got the PICC line out about a week ago... Started eating and drinking again, what I can. But at least I'm maintaining my weight.. The eating was rough at first, stomach aches and pains and progressive nausea..., but that has decreased. I figure maybe it was just the four months of not eating and drinking that I had to…
-
Itch, scratch and blood drops
This might help some who don't know this trick. I learned it after my younger brother's accident. Hydrogen peroxide will dissolve blood on clothing, bedding.. etc. Really does work. Kritter
-
Cancer stinks!
We usually say cancer sucks but it can stink, literally. Not many use a foul smell as the symtom to get to the doctor but might help someone someday. Before I was diagnosed, a number of months went by where my family constantly complained about my bad breath. I tried every possible remedy to no avail. When finally seeing…
-
Reflections
Today my husband and I celebrate 52 years of marriage (we have been together since I was a junior in high school -- he is older than me and mother tried to talk me out of marrying him straight out of high school. But you know back then that is what we did) and during this time we have been thru many trying times. But by…
-
Treatment options... Ideas??
Hi guys so I'm in New Zealand and feel that we have limited treatment options here... I have just had 5 days of radiation to the brain and that's all the docs want to do. The two tumours are inoperable and they are just hoping to slow growth with the radiation. gamma knife has come to my attention which I am going to look…
-
MRI Results in
Will my doctor filially got back from Vacation and called with the results of the MRI. And it is showing nothing that we did not know already, she is even more confused now then she was before. She is trying to get me to see another H&N doctor in New Orleans who deals with the wearied oh like me. In the mean time the…
-
healthcare issues/red tape
I know I've seen many issues posted here about insurance issues (red tape) and cost of medical care. I was on the accoi.org site (which is for ACC) and was given this information to share with other survivors of any type dx. The web site is Patient Avocate Foundation Welcomes You ! - PAF And their phone # is 1-800-532-5274…
-
Saw the Oncologist today for
my periodic checkup....hadn't been there since to since last May, and my scan was July 1st. Not only do I look good (in her eyes), and feel good (in my estimate).....but FINALLY my blood counts have returned to normal!!! That took 2 years.....day after tomorrow will be my two year anniversary of finishing treatment!…
-
Free flap surgery
Has anyone had a mandiblectomy with free flap where they used tissue from the thigh instead of the fibula bone? When I went back for surgery follow up they told me I had fluid I'm my thigh by the incision. They said it would go away by itself but not how long. How long does it take for fluid to be absorbed? It seems like…
-
Necrosis how to stop it
As my doctors were all trying to figure out what next to do about the Necrosis the hole was just getting bigger and bigger. My daughter was doing a little research about Oil pulling; I think Laralyn had a post about it last month. Coconut Oil Pulling and Raw Honey seams to be the cure for it, I even started using a little…
-
2 Years ago.....tomorrow
August 30 2012, is the day I got the phone call saying you have Stage 4 cancer. A life changing moment. I am not one to get upset or afraid real easily, but I'll tell you, that chilled me to the bone, as I am sure you can all relate. Of course I jumped on the internet to learn all I could about SCC, Staging, 5 year…
-
Carboplatin and 5-fu
Has anyone had the bad luck of having a second go round of carbo and 5-fu? Had rads and chemo Dec 2012-Jan 2013. Since then I was on avastin for mets to lungs for kidney cancer but this was changed to erbitux this past February when a biopsy showed it was squamous cell. Last Pet scan showed it had spread to left 6th rib…
-
40 anniversary surprise
My children and I all planned a surprise for my Wife on our 40th anniversary. I told the Wife I wanted to spend our anniversary up on Toledo Bend just me and her. Well I could see that she did not really like the idea but she went along with it. We were down on the pear fishing when her brother and his wife just walked up…
-
Sore throat 5 months after radiation
I have a sore throat for 3 weeks. It has been 5 months since my last radiation treatment. ENT has put me on a 3 week regimen of antibiotics still no relief. Also I have a tickle in my throat that results in me coughing up a clear mucous. ENT says next thing is a CAT scan. has anyone else had this problem before? I had…
-
Inspire
My great niece was an intern for St. Jude Hospital this summer. Her sorority does fundraising for the hospital. She ends her messages with: For the children. I was thinking of ending mine with: For the survivors. This was on the wall at the doctor's office today and I felt it was more of an inspiration. You are Stronger…
-
Surgery Prior to Radiation
Hello everyone, My ENT is wanting to perform a tonsillectomy and neck dissection on the same day and then start radiation treatment. How many of you had surgery prior to radiation and how long did you have to heal before the radiation could start? I of course want all of my treatment to start immediately but am worried…
-
What Type PEG Tube are you using
What type of PEG are you all using, I have a low profile tube and from the day they put it in it leaks For everyone who has a PEG Tubes what type do you have. Two months ago I got a replacement Low Profile PEG Tube and all it does is leaks. I can eat all my Norman food with no problems but as soon as I drink water it…
-
help please, 3 weeks since treatment finished
Hi there, I haven't been here in a while. I have now had my radiation and chemo over 7 weeks. It now been 3 weeks since it finished. I have a peg and am still using this. How long before you are able to eat again or does it seem too long for me ? I have been on morphine which I have now weaned myself off , one side effect…