Please remember that these discussion boards are a public forum, which means open to the public (i.e. non-CSN members) and the content can be found via internet search engines. Members are strongly advised not to share personal identifiers such as real names, email address, telephone number, street address, etc. This information can be used to identify you and link you to the content you provide. Other areas of CSN are restricted to members only and cannot be found by search engines.

Head and Neck Cancer

 

Discussion List

• 

  Skiffin Update - No News

  Hello family.... I just wanted to let you know, I'm still alive and kicking, just not very high as of yet.. I don't really have much news other than I am feeling better with the IV fluids going in dai…

  1 views

  21 comments

  0 point

  Started by Skiffin16

  Most recent by CherieLW

  Aug 18, 2014

  Head and Neck Cancer
• 

  Have Not Forgotten You, My Friends

  Hope all of you are still beating the crummy beast. Please be strong, but gentle with yourselves. I have not left Kentucky yet as I have been in the hospita for 6 days with a mysterious lung infection…

  1 views

  11 comments

  0 point

  Started by wolfen

  Most recent by Noellesmom

  Aug 17, 2014

  Head and Neck Cancer
• 

  possible new problem_very strange-update

  Hello everyone. I did not post for awhile. My mom is NED for 2.5 years now, as some of you may know she had recurrence 3 times and total of 4 surgeries. Today she noticed something on her bottom gum. …

  1 views

  13 comments

  0 point

  Started by joannaw81

  Most recent by jim and i

  Aug 17, 2014

  Head and Neck Cancer
• 

  Another Update

  Hi all: Basketcase checking in here and boy have I been a basketcase this week. First all, let me update you on Steve (bff's husband) Told y'all MRI showed brain lesions all but gone only a whisper of…

  2 views

  3 comments

  0 point

  Started by Jan Trinks

  Most recent by jim and i

  Aug 17, 2014

  Head and Neck Cancer
• 

  Lost most of my taste, sorta.

  I never had any Chemo or Rad, but I lost most of tast on my tounge. I can tast some salt but that's it and not like it should be. I didn't realize it because when I swallow I do have tast, just not on…

  60 views

  13 comments

  0 point

  Started by wmc

  Most recent by TracyLynn72

  Aug 17, 2014

  Head and Neck Cancer
• 

  Heavy Mucous...

  I have seen threads on dry-mouth but what do you suggest for heavy mucous buildup. I am now constantly having to spit out huge thick gobs of rope-like mucous that I can barely get out of my mouth. I s…

  53 views

  5 comments

  0 point

  Started by JC F

  Most recent by debbiejeanne

  Aug 16, 2014

  Head and Neck Cancer
• 

  Thank God

  Debbie got ahold of me and mentioned that Shawn was asking about me (I replied to your thread btw), but I wanted to just let everyone know I'm continously praying for you and thinking of you all altho…

  1 views

  8 comments

  0 point

  Started by CherieLW

  Most recent by CherieLW

  Aug 15, 2014

  Head and Neck Cancer
• 

  i hate this

  Hello all, I know you all got things to worry about. But I need to let things out of my system! I have finished my 8th rads session today. I'm feeling weird, nausea is killing me and the weird constan…

  1 views

  12 comments

  0 point

  Started by Goyca

  Most recent by phrannie51

  Aug 15, 2014

  Head and Neck Cancer
• 

  just want to say thank you!

  Although we are not totally over healing from the treatments..we are getting there...getting the feeding tube out will be nice...i just wanted to say thanks..thanks to all of you who posted and encour…

  8 views

  7 comments

  0 point

  Started by ahollie

  Most recent by Hondo

  Aug 15, 2014

  Head and Neck Cancer
• 

  Dry Mouth and Cavities.

  Had a good talk with my dental hygenist yesterday about preventing cavities after receiving radiation. I had assumed it was because of the rads that the teeth start to get them and that is why we use …

  89 views

  21 comments

  0 point

  Started by tommyodavey

  Most recent by FRONT AND CENTER

  Aug 15, 2014

  Head and Neck Cancer
• 

  It's back :/

  ended up in hospital this week with super low sodium levels and couldn't stop vomiting... Had loads of tests done and the last one was an MRI just to rule out recurrence... Turns out there's now disea…

  42 views

  15 comments

  0 point

  Started by Meegs

  Most recent by FRONT AND CENTER

  Aug 15, 2014

  Head and Neck Cancer
• 

  One year and counting. .

  Hi All. For those of you who remember me, my brother has reached his 12 month post treatment. He finally got his peg tube removed a couple of weeks ago. He's doing alright, I guess. Unfortunately, his…

  1 views

  8 comments

  0 point

  Started by sin9775

  Most recent by CherieLW

  Aug 15, 2014

  Head and Neck Cancer
• 

  newbie

  47 yr old male on march 6 of this year found out i had parotid gland cancer stage 4 adenocaecinoma nos high grade poorely differanted margins involved peripheral soft tissue lymph vascular invasion pr…

  58 views

  33 comments

  0 point

  Started by topcat100

  Most recent by CherieLW

  Aug 14, 2014

  Head and Neck Cancer
• 

  Update from ENT

  Swelling in cheek from cellulitus is gone but still have a fistula draining. Diflucan and anti-biotics atleast a month. He said sometimes when that infection gets involved with the titanium it can be …

  7 views

  12 comments

  0 point

  Started by hwt

  Most recent by CherieLW

  Aug 14, 2014

  Head and Neck Cancer
• 

  scan was amazing!

  nothing but good news! we are so thankful...and he has started to be able to eat some today too...must be alot of mental block gone thats made him want to eat more now too! thanks for all the prayers …

  25 views

  13 comments

  0 point

  Started by ahollie

  Most recent by ahollie

  Aug 14, 2014

  Head and Neck Cancer
• 

  It's a beautiful day

  Sometimes just nice to notice that. Sorry for off-topic. Hugs and smiles x x x

  1 views

  4 comments

  0 point

  Started by Anonymous7/6/2023

  Most recent by debbiejeanne

  Aug 13, 2014

  Head and Neck Cancer
• 

  Ensure - PLUS

  For anyone drinking Ensure, if you haven't noticed, the PLUS has 350 calories instead of 220. I find it a bit thicker so I thin mine down with about half cup of whole milk adding another 70 calories f…

  260 views

  18 comments

  0 point

  Started by hwt

  Most recent by Anonymous7/6/2023

  Aug 13, 2014

  Head and Neck Cancer
• 

  Get scan results tomorrow....

  so..after a first not so good first scan...we got a second opinion and had a new scan last week and get results tomorrow...i hate this part..the waiting is so hard...at least when you know what you ar…

  24 views

  16 comments

  0 point

  Started by ahollie

  Most recent by jim and i

  Aug 12, 2014

  Head and Neck Cancer
• 

  10 month checkup....NED

  Had my ten month check up and the doctor is very pleased. Said everything looks great and it's NED. It was a long day, left the house at 9:30am and drove fours hours to the doctor. Had to wait 1 1/2 h…

  26 views

  28 comments

  0 point

  Started by wmc

  Most recent by wmc

  Aug 12, 2014

  Head and Neck Cancer
• 

  Good news but hard times ahead

  Back from vacation with sisters in Ohio and catching up with all my friends on CSN. I think it did me good to get away for a couple weeks of distraction and refreshment. I recieved good news the first…

  1 views

  15 comments

  0 point

  Started by jim and i

  Most recent by hwt

  Aug 11, 2014

  Head and Neck Cancer
• 

  NECK AND JAW SPASM'S

  Im 4 yrs out from bilateral neck rads and of course it is catching up with me. Ive had the neck spasms for quite a while and seems like they are triggered when I do specific thinks, IE: lots of time o…

  39 views

  9 comments

  0 point

  Started by luv4lacrosse

  Most recent by katenorwood

  Aug 11, 2014

  Head and Neck Cancer
• 

  pet scan came back

  Hey guys had my first pet scan monday and today was told all is good.He said it looks like everything they wanted to get they got.He did say that my throat looked alittle swollen but looks more like i…

  4 views

  18 comments

  0 point

  Started by thennies61

  Most recent by Hondo

  Aug 11, 2014

  Head and Neck Cancer
• 

  Any one got an update on John - Skiffin

  Been out of the loop for a few weeks. Anyone know how John is coming alng? Debbie

  4 views

  3 comments

  0 point

  Started by jim and i

  Most recent by Skiffin16

  Aug 10, 2014

  Head and Neck Cancer
• 

  1st Rad session today --- update 4 sessions done :) but dryyy throat

  Hello all, Had my first rad session today. The mask is tighttttt... But I thought of it as a facial treatment mask, as if I'm at the Spa! :) The technician was very helpful and kept on talking with me…

  28 views

  18 comments

  0 point

  Started by Goyca

  Most recent by Meegs

  Aug 9, 2014

  Head and Neck Cancer
• 

  7 months check-up. Mixed news

  There is an enlarged node on the contralateral side, which they're keeping an eye on. Another ultrasound planned in 4 weeks. The new lesion, also contralaterally, which looks identical to how my origi…

  14 views

  11 comments

  0 point

  Started by Anonymous7/6/2023

  Most recent by lornal

  Aug 9, 2014

  Head and Neck Cancer
• 

  Catching Up

  Hi all: Time for another update. First of all, my nephew Brian DOES NOT HAVE an enlarged heart. They did an echocardiogram during his recent hospital visit and it's not enlarged like they told his mot…

  1 views

  5 comments

  0 point

  Started by Jan Trinks

  Most recent by CivilMatt

  Aug 9, 2014

  Head and Neck Cancer
• 

  An interesting article about HPV

  http://www.current-oncology.com/index.php/oncology/article/view/1375 This London based study is quite recent - for you info , Gary 

  1 views

  5 comments

  0 point

  Started by Guzzle

  Most recent by Guzzle

  Aug 8, 2014

  Head and Neck Cancer
• 

  19 years old, swollen nodes, very scared, how do i know it hasnt spread?

  Hey Guys, My name is Daniel, im 19 and living in a city called Cork in Ireland and currently i have 2 swollen nodes in my neck, one is near my jugular vein and another is on the back of my neck. I hav…

  476 views

  99 comments

  0 point

  Started by danielvarian

  Most recent by CSN_Simone

  Aug 8, 2014

  Head and Neck Cancer
• 

  sinus cancer

  Hi, I have a rare cancer. ADENOCARCINOMA OF ETHMOID SINUS CAUSED BY ORGANIC WOOD. It is uncureable, and i have to have it removed every three to four months. The most important thing is to stop it goi…

  27 views

  11 comments

  0 point

  Started by singingbog

  Most recent by phrannie51

  Aug 8, 2014

  Head and Neck Cancer
• 

  Blood transfustion (Blood doping) for cancer patients

  Hi Everyone. I was wondering if anyone has details or information regarding to giving cancer patients blood transfusion from a healthy donor. Would it improve the quality of life with boost energy and…

  3 views

  1 comments

  0 point

  Started by Purplemountain

  Most recent by phrannie51

  Aug 8, 2014

  Head and Neck Cancer