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Have Not Forgotten You, My Friends
Hope all of you are still beating the crummy beast. Please be strong, but gentle with yourselves. I have not left Kentucky yet as I have been in the hospita for 6 days with a mysterious lung infection. Started 2 weeks ago with sore throat which progressed to acute bronchitis & despite meds became pneumonia. A CT was…
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possible new problem_very strange-update
Hello everyone. I did not post for awhile. My mom is NED for 2.5 years now, as some of you may know she had recurrence 3 times and total of 4 surgeries. Today she noticed something on her bottom gum. She does not currently have any bottom teeth as she had to take them out. She had them removed in may. Anyhow something is…
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Another Update
Hi all: Basketcase checking in here and boy have I been a basketcase this week. First all, let me update you on Steve (bff's husband) Told y'all MRI showed brain lesions all but gone only a whisper of a lesion. Well the pet scan was good too no new problems; have dismissed him for 3 months and now talking in terms of long…
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Lost most of my taste, sorta.
I never had any Chemo or Rad, but I lost most of tast on my tounge. I can tast some salt but that's it and not like it should be. I didn't realize it because when I swallow I do have tast, just not on my tounge until then. Yesterday I had my orange juice and cream of chicken soup [as everyday] and I noticed if I just hold…
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Heavy Mucous...
I have seen threads on dry-mouth but what do you suggest for heavy mucous buildup. I am now constantly having to spit out huge thick gobs of rope-like mucous that I can barely get out of my mouth. I spit so hard the other day into the sink that the left side of my face started to cramp up. It seems here in Canada that they…
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Thank God
Debbie got ahold of me and mentioned that Shawn was asking about me (I replied to your thread btw), but I wanted to just let everyone know I'm continously praying for you and thinking of you all although I've been a "no show" for a few months now. I'm still so greatful for all the advice I received while going through one…
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i hate this
Hello all, I know you all got things to worry about. But I need to let things out of my system! I have finished my 8th rads session today. I'm feeling weird, nausea is killing me and the weird constant taste & breath like metal or something like that. Starting to loose interest in food, but I'm trying to eat 2 times a day,…
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just want to say thank you!
Although we are not totally over healing from the treatments..we are getting there...getting the feeding tube out will be nice...i just wanted to say thanks..thanks to all of you who posted and encouraged me thru all of this..its nice to come on here and read that so many went thru the same thing and can relate and also…
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Dry Mouth and Cavities.
Had a good talk with my dental hygenist yesterday about preventing cavities after receiving radiation. I had assumed it was because of the rads that the teeth start to get them and that is why we use flouride trays. She told me it was due to having a dry mouth and that your saliva does a great job at protecting the teeth.…
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It's back :/
ended up in hospital this week with super low sodium levels and couldn't stop vomiting... Had loads of tests done and the last one was an MRI just to rule out recurrence... Turns out there's now disease in my brain :( dont know many details like how much and where exactly but it's in a few places. Was only dealing with my…
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One year and counting. .
Hi All. For those of you who remember me, my brother has reached his 12 month post treatment. He finally got his peg tube removed a couple of weeks ago. He's doing alright, I guess. Unfortunately, his taste has still not rebounded. If you remember, my brother is trusting his ENT to find any recurrences. He has only had one…
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newbie
47 yr old male on march 6 of this year found out i had parotid gland cancer stage 4 adenocaecinoma nos high grade poorely differanted margins involved peripheral soft tissue lymph vascular invasion present perineural invasion present lymph nodes 2 removed extranodal exstension presence extraparenchymal exstension gradeing…
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Update from ENT
Swelling in cheek from cellulitus is gone but still have a fistula draining. Diflucan and anti-biotics atleast a month. He said sometimes when that infection gets involved with the titanium it can be a bear to clear up. I'm seeing an infectious disease doctor for it. Now that inflamation was down he was able to do another…
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scan was amazing!
nothing but good news! we are so thankful...and he has started to be able to eat some today too...must be alot of mental block gone thats made him want to eat more now too! thanks for all the prayers and good thoughts...next scan isn't until November!
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It's a beautiful day
Sometimes just nice to notice that. Sorry for off-topic. Hugs and smiles x x x
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Ensure - PLUS
For anyone drinking Ensure, if you haven't noticed, the PLUS has 350 calories instead of 220. I find it a bit thicker so I thin mine down with about half cup of whole milk adding another 70 calories for a total of 410. Milk chocolate is my preference. It's more expensive but works out in the long run because I only have to…
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Get scan results tomorrow....
so..after a first not so good first scan...we got a second opinion and had a new scan last week and get results tomorrow...i hate this part..the waiting is so hard...at least when you know what you are looking at ..you know...the unknown just stinks....
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10 month checkup....NED
Had my ten month check up and the doctor is very pleased. Said everything looks great and it's NED. It was a long day, left the house at 9:30am and drove fours hours to the doctor. Had to wait 1 1/2 hrs to see him, he was running late. Then he called my SLP and made her come down and change my TEP due to leaking and…
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Good news but hard times ahead
Back from vacation with sisters in Ohio and catching up with all my friends on CSN. I think it did me good to get away for a couple weeks of distraction and refreshment. I recieved good news the first day home, my condo is ready to close. But that good news is tempered with the thought of sorting through Jim's belongings.…
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NECK AND JAW SPASM'S
Im 4 yrs out from bilateral neck rads and of course it is catching up with me. Ive had the neck spasms for quite a while and seems like they are triggered when I do specific thinks, IE: lots of time on a computer, looking down or up for extended periods ETC. I also started to have some worsening TMJ type pain and sometimes…
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pet scan came back
Hey guys had my first pet scan monday and today was told all is good.He said it looks like everything they wanted to get they got.He did say that my throat looked alittle swollen but looks more like it from the scar tissue and will get better with time.Did start back to work monday nite also..Wow longgg nite but felt…
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Any one got an update on John - Skiffin
Been out of the loop for a few weeks. Anyone know how John is coming alng? Debbie
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1st Rad session today --- update 4 sessions done :) but dryyy throat
Hello all, Had my first rad session today. The mask is tighttttt... But I thought of it as a facial treatment mask, as if I'm at the Spa! :) The technician was very helpful and kept on talking with me during those 15 min. well... Its still the first session, but going through it means that I can go through the rest and win…
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7 months check-up. Mixed news
There is an enlarged node on the contralateral side, which they're keeping an eye on. Another ultrasound planned in 4 weeks. The new lesion, also contralaterally, which looks identical to how my original tumour looked last summer before the **** hit the fan... he feels sure that's a mouth ulcer due to rubbing on a nearby…
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Catching Up
Hi all: Time for another update. First of all, my nephew Brian DOES NOT HAVE an enlarged heart. They did an echocardiogram during his recent hospital visit and it's not enlarged like they told his mother at the nursing home/rehab! He does still continue to battle body temp drops but is now back at nursing home/rehab. My…
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An interesting article about HPV
http://www.current-oncology.com/index.php/oncology/article/view/1375 This London based study is quite recent - for you info , Gary
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19 years old, swollen nodes, very scared, how do i know it hasnt spread?
Hey Guys, My name is Daniel, im 19 and living in a city called Cork in Ireland and currently i have 2 swollen nodes in my neck, one is near my jugular vein and another is on the back of my neck. I have an upcoming ultrasound of these nodes next week and then depending on the findings, a biopsy. I think it may be NPC as i…
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sinus cancer
Hi, I have a rare cancer. ADENOCARCINOMA OF ETHMOID SINUS CAUSED BY ORGANIC WOOD. It is uncureable, and i have to have it removed every three to four months. The most important thing is to stop it going through the ethmoid bone which leads to the brain. The operation to remove the bone and to insert a metal bone is called…
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Blood transfustion (Blood doping) for cancer patients
Hi Everyone. I was wondering if anyone has details or information regarding to giving cancer patients blood transfusion from a healthy donor. Would it improve the quality of life with boost energy and healing? Would the white blood cells in the donor blood help or not help or has an adverse effect to the recipient? This is…
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Swiss Cheese Trachea?
Happy Monday, Folks! Hubby started his IMRT today in Houston. 1 down, 32 to go. He met with the oncologist who explained the risks and brought something up I was curious about. If the trachea has been comsumed by cancer to the extent that a hole will be left when the cancer is killed, where does that leave us? Does the…