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NECK AND JAW SPASM'S
Im 4 yrs out from bilateral neck rads and of course it is catching up with me. Ive had the neck spasms for quite a while and seems like they are triggered when I do specific thinks, IE: lots of time on a computer, looking down or up for extended periods ETC. I also started to have some worsening TMJ type pain and sometimes…
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pet scan came back
Hey guys had my first pet scan monday and today was told all is good.He said it looks like everything they wanted to get they got.He did say that my throat looked alittle swollen but looks more like it from the scar tissue and will get better with time.Did start back to work monday nite also..Wow longgg nite but felt…
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Any one got an update on John - Skiffin
Been out of the loop for a few weeks. Anyone know how John is coming alng? Debbie
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1st Rad session today --- update 4 sessions done :) but dryyy throat
Hello all, Had my first rad session today. The mask is tighttttt... But I thought of it as a facial treatment mask, as if I'm at the Spa! :) The technician was very helpful and kept on talking with me during those 15 min. well... Its still the first session, but going through it means that I can go through the rest and win…
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7 months check-up. Mixed news
There is an enlarged node on the contralateral side, which they're keeping an eye on. Another ultrasound planned in 4 weeks. The new lesion, also contralaterally, which looks identical to how my original tumour looked last summer before the **** hit the fan... he feels sure that's a mouth ulcer due to rubbing on a nearby…
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Catching Up
Hi all: Time for another update. First of all, my nephew Brian DOES NOT HAVE an enlarged heart. They did an echocardiogram during his recent hospital visit and it's not enlarged like they told his mother at the nursing home/rehab! He does still continue to battle body temp drops but is now back at nursing home/rehab. My…
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An interesting article about HPV
http://www.current-oncology.com/index.php/oncology/article/view/1375 This London based study is quite recent - for you info , Gary
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19 years old, swollen nodes, very scared, how do i know it hasnt spread?
Hey Guys, My name is Daniel, im 19 and living in a city called Cork in Ireland and currently i have 2 swollen nodes in my neck, one is near my jugular vein and another is on the back of my neck. I have an upcoming ultrasound of these nodes next week and then depending on the findings, a biopsy. I think it may be NPC as i…
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sinus cancer
Hi, I have a rare cancer. ADENOCARCINOMA OF ETHMOID SINUS CAUSED BY ORGANIC WOOD. It is uncureable, and i have to have it removed every three to four months. The most important thing is to stop it going through the ethmoid bone which leads to the brain. The operation to remove the bone and to insert a metal bone is called…
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Blood transfustion (Blood doping) for cancer patients
Hi Everyone. I was wondering if anyone has details or information regarding to giving cancer patients blood transfusion from a healthy donor. Would it improve the quality of life with boost energy and healing? Would the white blood cells in the donor blood help or not help or has an adverse effect to the recipient? This is…
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Swiss Cheese Trachea?
Happy Monday, Folks! Hubby started his IMRT today in Houston. 1 down, 32 to go. He met with the oncologist who explained the risks and brought something up I was curious about. If the trachea has been comsumed by cancer to the extent that a hole will be left when the cancer is killed, where does that leave us? Does the…
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Chemo/Rad complete but Platlets numbers dive
All of you have been so helpful, so I am asking for anyone's feed back on low platlet count. My chemo/rad stopped 2 1/2 weeks ago. Between last Tuesday and yesterday my numbers went from 170 to 112. They doctor was surprised so ran them again and they went down 5 more points in less than 1 hour. I was told this was do to…
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Johnnybegood Is Free
In the wee hours of the morning, an unexpected storm raged through and as it moved on, took the storm raging within my child's body. Hers was not an easy death, but she is free now. There is so much to say to each of you, but words will not come now. For the moment, just know that we love you. Love, Karen(Wolfen)
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5th one!
Clean PET/CT that is! A year and a half cancer free now! It took 3 separate treatments but it worked. Never give up. Best wishes to all my brothers and sisters on this board. Keep fighting! AB
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Hole in Upper Palate / Up-date
Well I go to see my ENT tomorrow so she can check the hole in my upper palate again. Last time she check it, it was the size of a pencil now it is the size of a penny, I am not sure what she will say or want to do, that is what I am afraid of. Oh well just another day in the life of a H&N cancer patient with the gift of…
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Comic Relief
I have been completely dependent on a G tube for about six months now, and I will live with it until this journey is over. I wound up with a G tube because my jaw won't open enough to get a JPEG in, and will barely permit me to be anesthetized. As some of you know, my G tube has been quite an adventure. First, in the…
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pain in throat after inserting the feeding tube.
Hi All, My father 53yrs on his last week(3 days left) of radiation of 7 weeks.day before yesterday we put the feeding tube.From yesterday he is saying he is feeling pain in his throat.when swallowing the saliva(though he had pain before he is telling he is feeling more pain).Does it because of tube or anything else,i am…
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Off of the fan!
Long day but good results. MRI at 11, Doctor at 1. Doctor likes what he saw. Tumor is still shrinking. He showed me the comparison of previous scan and todays. Another doctor at 4. The chunck that came out of my upper gum area looks like shrinkage. The area is 'communicating' with the sinus area. I don't know weather to…
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Tracheotomy Tales
I have updated my profile with my own 'tracheotomy tale' - I'll bet we all have a tale to tell about our trachies, be they temporary or more longstanding. When end you think of everything we have got ourselves through, we are a bunch of heroes when you think about it! Give ourselves a pat on the back :) )
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Help concerning the swallowing muscles
Can anyone out there share their experiences with learning to swallow again? I am 4 mos post treatments and my swallowing works ok sometimes and other times the muscles feel like they go into spasms or sort of like a paralyzed state when I try to swallow. When I get up in the mornings, I have to re-train myself to swallow…
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Hondoo
Hondoo, you say you can eat anything even a beefburger after it goes through the nutrimixer. What enjoyment do you get out of it, because you can't taste it. I can't taste the ensure drinks I cant even 'burp' so not even a secondhand taste. When you talk about your diet and eat anything I feel like your enjoying the taste…
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Very scary moment!
My 17 year old son has a swollen lymph node on the back of his neck. I immediately got him to the doctor to have it looked at....I don't mess around with bumps, lumps and other things anymore!! He felt positive that it was "just a swollen lymph node" but wanted to try to determine WHY it was swollen. The doctor said "let's…
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Carcinoma Perifora fossa T3N2M0 of my father
Hi All, After reading these discussions found this site very helpful during this drastic situation. My father 53yrs getting treated with carcinoma periforafossa T3N2M0 doctor suggested for ChemoRadiotherapy.Completed 2 chemo cycle 27 sitting of radiation.Now we are struggling with the bad side effects of Radiation.But He…
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Hearing Loss...
So, I've done 23 rads and 2 cisplatin chemos and have the usual side effects...but I told the doctors a few days after the second chemo that I was having definite hearing problems, especially in my right ear and am losing constant tones that pitch in the ear and then disappear. They said they will defintely not go the…
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Update On My Daughter, Johnnybegood
Cannot remember when I last posted. My girl is still in the fight, but just barely after enduring 6 very hard years. Twice in the last week, she has defied a 24 hour prognosis. I know in my heart that there will not be another rally, as she simply has nothing left in reserve. I have been here in Kentucky for over a month &…
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Swallowing worsen after 12 yrs
Hi I am a cancer survivor after 12 yrs. I had nashrygeal cancer I. 2002, had radiation, chemo and neck surgery. Had feeding tube during my treatment and had it remove few months after. the side affect from all this treatment was dry mouth but i managed to have food by mouth. Only food I can eat was anything with sauce. I…
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Out of the box ideas for Trismus
Hello everyone Brand new to this forum (not brand new the NPC), diagnosed 2008, and 2012, same spot same everything, came back 3.5 years after first treatment with chemo and rads. Took me a good 2 years to recover from the first treatment with minor issues. Second treatment has not been so kind. Everything above the…
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Prayers Requested
I am posting today requestiing prayers for my husband. I read this board daily and only post occasionally. My husband successfully fought mandibular sarcoma two and a half years ago, undergoing radiation, partial neck dissection, mandibulectomy, and fibula free flap surgeries. He goes in every three months for scans and…
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Skiff ~ Home at Last...
Now to stay here..., LOL Well, I really appreciate all of the thoughts, concerns and prayers.., along with a few visits and phone calls... I got to come home Friday, with strings attached..., well actually a tube a and a pump. I am on nutrients, antibiotics through a PICC line (catheter inside my left arm).. No food or…
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need your help-MD Anderson Cancer Center decline my appointment application
Just now i knew the center refused my application of appointment because my current CT scanning and biopsy do not support I have the NPC. However, my biopsy is not good because my swollen node is small and the doc can not get the correct swollen tissue. In addition, my local doctor has small experience on NPC and i am…