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TODAY IS CT DAY
Hi friends, and I hope you are all doing well. CT at 9am today. I have no reason to believe it won't go well as after 15 weekly treatments of Cisplatin, the mediastinal nodes are still just dead tissue after the Taxotere destroyed them. All of the damage to my body and the severe Pleural Leakage is almost healed. The small…
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went to doc yesterday.
went to my oncologist yesterday for meds. she told me she does not want me to have surgery on the 25th. her and her partner both said to wait three more weeks so they can mesure the two spots on my rite lung the are 3centermeters now. if they grow in this this three weeks wait and see, that there is no sence in haveing to…
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Road Trip
My husband and I went on our first road trip since cancer #2 struck in December/January. We went 3000 miles to visit friends and family in New Mexico, Arizona, Colorado, and Kansas (started in St. Louis). The new profile picture is from the mountains above Alburquerque. We took the tram up to over 10,000 feet. I was…
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checking in - 14 rads done so far
Dears, sorry i haven't been available much recently. To be honest I'm not enjoying this rad treatments at all ! And sorry for the long post! 14 sessions done, still have another 14. I have developed a reflux / gastritis problem in my stomach because of stress (that's what the Dr. told me) Haven't been eating for the past…
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Jaw replacement and osteoradionecrosis
first I really appreciate each if you. Here's my new situation I'd like to know if there is anyone out there going thru this. 3 years ago I had segmented mandilbectomy, fibula free flab to reconstruct jaw bone. All teeth removed and implants put in. Six weeks radiation. no reoccurrence of scc so far. I was told last week…
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MOVING
Tomorrow will be four months since Jim died. Seems like yesterday. The closing on the condo is Tuesday so I am beginning to pack up. Jim had his own room the last few years. He kept his books, clothes mementoes, etc. in there. My sister offered to pack it for me but my son wants to do it. We were in there Friday and I was…
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Just Sayin..
It's been long and hard battle..., hopefully the light at the end of the tunnel is near. I still have a ways to go, still seeping a little from the stomach, but no PICC line and what I can eat is a new venture as well... But I'm pushing forward. Oh and BTW, I had a little fun today.... ~John
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One year check with the surgeon...
I saw the radiologist at my one year mark (June 21) and he said all was clear, so today was my one year check with the surgeon. He was VERY PLEASED with my progress and said "see ya in 4 months". Cancer free. Music to my ears. For those of you just starting your journey...be hopeful, have faith and lean on the support…
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Newly diagnosed
My husband was diagnosed on August 11th with Metastatic Squmaous Cell Carcinoma of neck with unknown primary. He does not smoke or drink or use any tobacco products so I think it may be HPV, although we haven't got that far yet. He is suppose to have a scope to take multiple biopsies in hopes of finding the primary and…
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Prayers for son
I know it isn't cancer until they say it is cancer but after what I have been through I can't help but worry. That said I want to ask for prayers for my son Lonnie. He started having jaw pain on his left side near the ear (where Jim's pain started) and thought it was his wisdom teeth. Dentist said no, maybe he grinds teeth…
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Mayo Clinic Rochester and Modified Radical Neck Dissection
I'm wondering how many of you received treatment at Mayo? My ENT already scheduled me for Wednesday with another ENT in Bismarck to consult about my modified radical neck dissection. I wanted to go to Mayo but was told that this was already scheduled so why change it now, the sooner I get in the better. But the health care…
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Rang the bell today...
...well, my doorbell anyway...they don't have a bell tradition where I am taking treatment so today was the last day of tx and went home and rang my own bell. Kept the mask, not sure why, I suppose I'll resolve that later. I know from all of you that the next couple of weeks are often the worst so I hope I can cope ok.…
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checking in
Hey everyone, Been crazy here trying to get ready for my son's upcoming wedding. Aug. 30th. So excited to be a part of it ! My brother is doing pretty good after his tx's. About 3 mo's out. (almost) He's lost around 65 lbs though. They maybe pulled the peg a bit too soon. Doing the supp's is helping keep his labs in order…
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Good Vibes needed for Steve
Steve (hawk711) is having a jaw resecting (left side) this coming Tuesday, August 26. He and I have been in fairly regular contact leading up to and after my own same procedure in early May. Please send him your good vibes (in whatever form you generate them) on the 26th, and into the next several weeks afterwards, so that…
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HBOT here I come! Update number 1
I have my first appointment next Monday. I don't know how long it will take to get set up. Local ENT is hopeful that it will help my ear problems and when he looked in my mouth today he said back tooth is loose and 'fissure' goes right up the tooth to the sinus. Luckily my husband likes to read and recently downloaded some…
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4 years yesterday
Hi all: Yesterday marked 4 years of Charlie's passing and home going. It's still rough being without him of course. I always read over the cards and letters and look at the book at all who came and then watch the dvd the funeral home did of the pictures. Had to stay late at school last nite for curriculum nite for all of 2…
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Canker sore becomes Cancer after PET scan
In October of last year I had a PET scan because of a high CEA blood test reading. I had a canker sore at the time. Within days I had an extremely sore tongue. Saw my regular doctor, referred to an ENT, saw him several times, medicine prescribed, nothing helped. By January 2014 I was so weary of hurting and nothing…
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worried obout throat cancer please help me anyone please...
Hi all, it is not easy to be there.i have ent problems ,i have sore throat ,burning pain un my one side jaw and ear .i have neck pain and when i turn my head to both sides it sound kinda cracking.weird sansation one side of my tounge and some pain in my mouth. My left tonsil is some bigger than other.i feel like its pain…
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Save the teeth!
Three and a half years out from treatment, I had a dental crown fail catastrophically. Turns out it was completely decayed through from beneath, and the tooth itself was shattered. After numerous discussions with my oncology team, dentist, endodontist, and maxillofacial surgeon with special expertise in…
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Squamous cell carcinoma of base of tongue also involving lymph nodes
My brother was diagnosed a week ago with squamous cell carcinoma of the base of the tongue (primary site) and also has spread to lymph nodes on both sides os the neck. He's a non-smoker (always has been). Information on the Internet is conflicting with regards to treatment and survival rates. Just looking for accurate and…
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Still NED!
15 months after treatment and I got the all clear. NED! Side effects? Well, that's another story but tolerable with meds. The thing that I need to watch is the heart. I had two heart attacks, bypass surgey and stents prior to cancer treatment. My RO is concerned about the effects of chemo and rads on my arteries. I eat…
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Is your glass half full?
I have often heard the question; Is the glass half full, or is it half empty? Well as a member of this H&N Survivors group and the support I have received I can now answer that question: My glass has been refilled.............. Many times. Thank you all for helping everyone in our extended family. Bill
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Skiffin - Barium Swallow Test Scheduled
Just a quick info.... I'm scheduled to go in for the above on Tuesday..., hopefully to determine the source of the leak... (which I'm certain is the connection of my stomach to my intestinal tract). I talked to my onco, whom is in the same building and originally had me see someone about the cyst on my pancreas.... She…
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Symptoms after Treatment. Can anyone help?
My Brother-in-law ( who has Throat Cancer) just went through 7 weeks of Radiation ( 5 days a week, 45 min a day) and Chemo ( 1 day a week for 8 hours). He was doing ok. Couldn't eat so they put a tube in the Stomach, but other than that ok. Swallowing was uncomfortable, but possible. He was seemingly "normal" in terms of…
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Low Grade Mucoepidermoid Carcinoma
Hi, I've recently been diagnosed with a low grade mucoepidermoid carcinoma on my hard palate. I had surgery to remove the tumour last week and i have just been discharged. They also use temporalis flap to cover the whole of the hard palate. Im on a soft diet atm and have lost 4kg in a week! Stiches and clips have been…
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Lip sore
had two appts today, first one my monthly checkup. He said there was no cancer left in my neck. The second was a biopsy on my lip for a crusty red sore that never heals. I've had it for months and twice had it frozen but it kept coming back. The doc said to be safe they would send off a biopsy. It was a strange sore like a…
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1 year out, myoclonic jerks. Anyone else?
Rob went to ENT and Radiation Oncologist Monday. NED still. Woo hoo. He has been suffering from myoclonic jerks for about a month. Only at rest at the end of the day. Docs are not sure why. Has anyone else had these problems, one year out? He will take the myoclonus over the cancer anyday. Sandy
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Just need a place to vent...apologies in advance-UPDATE
Well, after the reoccurrence, radical neck dissection, thyroid gone, numerous "things" in the lungs, three rounds of Carbo/Taxol/Eributux, tomorrow is finally the scan day. Head to bowels and I must say, I'm more frightened than any time in the past 2 1/2 years. Intellectually, I know that the "cocktail" probably did what…
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still there
well after finishing my 35 treatments of rad, i was in so much pain my dr. had me get a pet scan early than she likes. sure enough some more cancer showed up. so went to diffrent dr. for a mri. he want to make the hole in palate 3times the size it is now, plus more jaw bone to be removed and some of my cheek bone. he plans…
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12 o'clock and all is clear
H&N Gang Had my 2y4m (post rad) exam today and I am relieved to report I am NED! After looking, feeling and scoping, my ENT said “everything is great”! On the side effect front, the saliva and taste continue to improve and I can stray away from my water bottle, but it would be a critical error to attempt to eat anything…