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Good Vibes needed for Steve
Steve (hawk711) is having a jaw resecting (left side) this coming Tuesday, August 26. He and I have been in fairly regular contact leading up to and after my own same procedure in early May. Please send him your good vibes (in whatever form you generate them) on the 26th, and into the next several weeks afterwards, so that…
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HBOT here I come! Update number 1
I have my first appointment next Monday. I don't know how long it will take to get set up. Local ENT is hopeful that it will help my ear problems and when he looked in my mouth today he said back tooth is loose and 'fissure' goes right up the tooth to the sinus. Luckily my husband likes to read and recently downloaded some…
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4 years yesterday
Hi all: Yesterday marked 4 years of Charlie's passing and home going. It's still rough being without him of course. I always read over the cards and letters and look at the book at all who came and then watch the dvd the funeral home did of the pictures. Had to stay late at school last nite for curriculum nite for all of 2…
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Canker sore becomes Cancer after PET scan
In October of last year I had a PET scan because of a high CEA blood test reading. I had a canker sore at the time. Within days I had an extremely sore tongue. Saw my regular doctor, referred to an ENT, saw him several times, medicine prescribed, nothing helped. By January 2014 I was so weary of hurting and nothing…
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worried obout throat cancer please help me anyone please...
Hi all, it is not easy to be there.i have ent problems ,i have sore throat ,burning pain un my one side jaw and ear .i have neck pain and when i turn my head to both sides it sound kinda cracking.weird sansation one side of my tounge and some pain in my mouth. My left tonsil is some bigger than other.i feel like its pain…
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Save the teeth!
Three and a half years out from treatment, I had a dental crown fail catastrophically. Turns out it was completely decayed through from beneath, and the tooth itself was shattered. After numerous discussions with my oncology team, dentist, endodontist, and maxillofacial surgeon with special expertise in…
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Squamous cell carcinoma of base of tongue also involving lymph nodes
My brother was diagnosed a week ago with squamous cell carcinoma of the base of the tongue (primary site) and also has spread to lymph nodes on both sides os the neck. He's a non-smoker (always has been). Information on the Internet is conflicting with regards to treatment and survival rates. Just looking for accurate and…
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Still NED!
15 months after treatment and I got the all clear. NED! Side effects? Well, that's another story but tolerable with meds. The thing that I need to watch is the heart. I had two heart attacks, bypass surgey and stents prior to cancer treatment. My RO is concerned about the effects of chemo and rads on my arteries. I eat…
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Is your glass half full?
I have often heard the question; Is the glass half full, or is it half empty? Well as a member of this H&N Survivors group and the support I have received I can now answer that question: My glass has been refilled.............. Many times. Thank you all for helping everyone in our extended family. Bill
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Skiffin - Barium Swallow Test Scheduled
Just a quick info.... I'm scheduled to go in for the above on Tuesday..., hopefully to determine the source of the leak... (which I'm certain is the connection of my stomach to my intestinal tract). I talked to my onco, whom is in the same building and originally had me see someone about the cyst on my pancreas.... She…
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Symptoms after Treatment. Can anyone help?
My Brother-in-law ( who has Throat Cancer) just went through 7 weeks of Radiation ( 5 days a week, 45 min a day) and Chemo ( 1 day a week for 8 hours). He was doing ok. Couldn't eat so they put a tube in the Stomach, but other than that ok. Swallowing was uncomfortable, but possible. He was seemingly "normal" in terms of…
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Low Grade Mucoepidermoid Carcinoma
Hi, I've recently been diagnosed with a low grade mucoepidermoid carcinoma on my hard palate. I had surgery to remove the tumour last week and i have just been discharged. They also use temporalis flap to cover the whole of the hard palate. Im on a soft diet atm and have lost 4kg in a week! Stiches and clips have been…
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Lip sore
had two appts today, first one my monthly checkup. He said there was no cancer left in my neck. The second was a biopsy on my lip for a crusty red sore that never heals. I've had it for months and twice had it frozen but it kept coming back. The doc said to be safe they would send off a biopsy. It was a strange sore like a…
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1 year out, myoclonic jerks. Anyone else?
Rob went to ENT and Radiation Oncologist Monday. NED still. Woo hoo. He has been suffering from myoclonic jerks for about a month. Only at rest at the end of the day. Docs are not sure why. Has anyone else had these problems, one year out? He will take the myoclonus over the cancer anyday. Sandy
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Just need a place to vent...apologies in advance-UPDATE
Well, after the reoccurrence, radical neck dissection, thyroid gone, numerous "things" in the lungs, three rounds of Carbo/Taxol/Eributux, tomorrow is finally the scan day. Head to bowels and I must say, I'm more frightened than any time in the past 2 1/2 years. Intellectually, I know that the "cocktail" probably did what…
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still there
well after finishing my 35 treatments of rad, i was in so much pain my dr. had me get a pet scan early than she likes. sure enough some more cancer showed up. so went to diffrent dr. for a mri. he want to make the hole in palate 3times the size it is now, plus more jaw bone to be removed and some of my cheek bone. he plans…
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12 o'clock and all is clear
H&N Gang Had my 2y4m (post rad) exam today and I am relieved to report I am NED! After looking, feeling and scoping, my ENT said “everything is great”! On the side effect front, the saliva and taste continue to improve and I can stray away from my water bottle, but it would be a critical error to attempt to eat anything…
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Skiffin Update - No News
Hello family.... I just wanted to let you know, I'm still alive and kicking, just not very high as of yet.. I don't really have much news other than I am feeling better with the IV fluids going in daily (18 hours). But the hole in my stomach is still seaping, though not as much. I'm still not supposed to be eating or…
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Have Not Forgotten You, My Friends
Hope all of you are still beating the crummy beast. Please be strong, but gentle with yourselves. I have not left Kentucky yet as I have been in the hospita for 6 days with a mysterious lung infection. Started 2 weeks ago with sore throat which progressed to acute bronchitis & despite meds became pneumonia. A CT was…
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possible new problem_very strange-update
Hello everyone. I did not post for awhile. My mom is NED for 2.5 years now, as some of you may know she had recurrence 3 times and total of 4 surgeries. Today she noticed something on her bottom gum. She does not currently have any bottom teeth as she had to take them out. She had them removed in may. Anyhow something is…
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Another Update
Hi all: Basketcase checking in here and boy have I been a basketcase this week. First all, let me update you on Steve (bff's husband) Told y'all MRI showed brain lesions all but gone only a whisper of a lesion. Well the pet scan was good too no new problems; have dismissed him for 3 months and now talking in terms of long…
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Lost most of my taste, sorta.
I never had any Chemo or Rad, but I lost most of tast on my tounge. I can tast some salt but that's it and not like it should be. I didn't realize it because when I swallow I do have tast, just not on my tounge until then. Yesterday I had my orange juice and cream of chicken soup [as everyday] and I noticed if I just hold…
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Heavy Mucous...
I have seen threads on dry-mouth but what do you suggest for heavy mucous buildup. I am now constantly having to spit out huge thick gobs of rope-like mucous that I can barely get out of my mouth. I spit so hard the other day into the sink that the left side of my face started to cramp up. It seems here in Canada that they…
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Thank God
Debbie got ahold of me and mentioned that Shawn was asking about me (I replied to your thread btw), but I wanted to just let everyone know I'm continously praying for you and thinking of you all although I've been a "no show" for a few months now. I'm still so greatful for all the advice I received while going through one…
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i hate this
Hello all, I know you all got things to worry about. But I need to let things out of my system! I have finished my 8th rads session today. I'm feeling weird, nausea is killing me and the weird constant taste & breath like metal or something like that. Starting to loose interest in food, but I'm trying to eat 2 times a day,…
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just want to say thank you!
Although we are not totally over healing from the treatments..we are getting there...getting the feeding tube out will be nice...i just wanted to say thanks..thanks to all of you who posted and encouraged me thru all of this..its nice to come on here and read that so many went thru the same thing and can relate and also…
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Dry Mouth and Cavities.
Had a good talk with my dental hygenist yesterday about preventing cavities after receiving radiation. I had assumed it was because of the rads that the teeth start to get them and that is why we use flouride trays. She told me it was due to having a dry mouth and that your saliva does a great job at protecting the teeth.…
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It's back :/
ended up in hospital this week with super low sodium levels and couldn't stop vomiting... Had loads of tests done and the last one was an MRI just to rule out recurrence... Turns out there's now disease in my brain :( dont know many details like how much and where exactly but it's in a few places. Was only dealing with my…
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One year and counting. .
Hi All. For those of you who remember me, my brother has reached his 12 month post treatment. He finally got his peg tube removed a couple of weeks ago. He's doing alright, I guess. Unfortunately, his taste has still not rebounded. If you remember, my brother is trusting his ENT to find any recurrences. He has only had one…
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newbie
47 yr old male on march 6 of this year found out i had parotid gland cancer stage 4 adenocaecinoma nos high grade poorely differanted margins involved peripheral soft tissue lymph vascular invasion present perineural invasion present lymph nodes 2 removed extranodal exstension presence extraparenchymal exstension gradeing…